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Hi Mroberts,

Welcome to the group. I am one on the minority in this group who, like you,

has been diagnosed with HSP and IgAN. the only HSP symptom I don't get is

the purple rash. I have never had that part of it.

On the flaxseed oil, my understanding is that it does not contain the same

properties as the fish body oil. My Nephrologist told me that I specifically

need to take the fish oil. I seem to recall several messages from a while

back that discussed scientifically why flaxseed oil wasn't equivalent to fish

oil. You can do a search on the Yahoo website of old messages looking for

" fish Oil " and you should be able to fairly quickly find that information. I

would do it for you, except I am swamped at work this week. If you can't

find it, please send another email and I will search after work later today

for you.

Again, welcome!

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I am glad to see that there are people out there to talk to about

IgAN. I was diagnosed after a biopsy in July, 2001, but only after

eight different doctors and around two years of HSP and IgAN symptoms

that got progressively worse.

I read almost the entire web site before I decided to join. I read

the section about the Fish Oil and the mixing of it with aspirin...My

Dr. has me taking one Aspirin (325mg) and six (1,000mg) capsules of

Flaxseed Oil per day...my Proteinuria and Hematuria have gone down,

but it looks like I really need to by paying more attention to the

test results, as I have not paid particular attention to it until

lately. I still have the lower back pain, some headaches and just

can't get out of bed some days. I'm curious if anyone else is taking

Flaxseed Oil...any comments are appreciated.

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HI, I just wanted to welcome you to the group. I am glad you find us.

Everyone here is so informative about IGA. My son who is 9 years old was

diagnosed after a biopsy last March. He isn't on any medications...as of

yet. They have discussed blood pressure medicine is his protein in his

urine doesn't lower much more. It has been oaver a gram in 24 hours, but

now the levels usually ran about .2 to .3 grams. While enough about my

story...............glad you found us. Sorry I can't answer your question.

>

>Reply-To: iga-nephropathy

>To: iga-nephropathy

>Subject: New to the Group...

>Date: Tue, 15 Oct 2002 12:49:19 -0000

>

>I am glad to see that there are people out there to talk to about

>IgAN. I was diagnosed after a biopsy in July, 2001, but only after

>eight different doctors and around two years of HSP and IgAN symptoms

>that got progressively worse.

>

>I read almost the entire web site before I decided to join. I read

>the section about the Fish Oil and the mixing of it with aspirin...My

>Dr. has me taking one Aspirin (325mg) and six (1,000mg) capsules of

>Flaxseed Oil per day...my Proteinuria and Hematuria have gone down,

>but it looks like I really need to by paying more attention to the

>test results, as I have not paid particular attention to it until

>lately. I still have the lower back pain, some headaches and just

>can't get out of bed some days. I'm curious if anyone else is taking

>Flaxseed Oil...any comments are appreciated.

>

>

>

>

>

>

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