Re: New here.....

[Guest guest]

hello there!!

I am shari... been here for years.... since early 2003... a link to a page on my story is below - please read for symptom details.....

I had my salines a total of 7 years - got them in 96 been out since 03.... I had a completes rupture- replacement 3 years in... within a short while after that the headaches started... thought it was work, stress.... was trying to get pregnant at he time and could not.... I finally did in 2000-2001, had a decent pregnancy.... then after the real problems started... headaches worsened... body pain got really bad - joint pain muscle pain.... sever neck pain.... could hardly move my neck to the left at all, very stiff.... went for massages all the time to alleviate it. only worked for a few days of that. shoulder became stiff as well as neck. headaches were out of control. saw neurologists, all kinds of docs... no help. tried all kinds of meds, anti inflams, muscle relaxers, etc... noting worked. Got a bad case of Shingles....all got worse. then the chronic infections started. first just yeast. I went to my doc who basically said there was nothing else he could test for. I made an appt w/ pain management. he looked me over - did all kinds of tests. during the physical test he kept feeling my neck back and shoulder area and how stiff it was... kept poking around... said - have you ever had surgery on you back... not thing i said no. ever been in a bad accident - i said no. then i said why? he said you have a massive amount of scar tissue here - i can feel it crunching... it is not in your right side - just the left....i thought for a moment then my face went white... my rupture was on my left side.. that was where my replacement was a year and a half earlier... I told him of this and he asked me if i ever thought my implants could be causing this.... i freaked out... went home.. started the research and the rest is history. within 3 months - implants were out, happily out, and I have been here ever since the day I went to that doc in 2/03. on review, both my inplants were leaking when removed and both were filled with mold and all kinds of parasites, staph, strep - live bacteria, plantlife, etc.... there is a pic on the site below - remember on the pic - the cleaner looking implant on the left is three years newer but still moldy in the valve.... my explanting ps (not the orignal PlasticSurgeon) wrote a letter on this that won an appeal to my insurance co on this matter they were so gross....

There are a lot more details here: it gets a lot worse and there are a lot more symptoms

- I feel they also affected my son. I have not done a lot of serious doc aided detoxing due to financial issues as I have had to stop working because of this....this has made things worse so I am going to do that now - no matter what the price. I want my life back.

Good luck to you!!!

shari

www.breastimplantawareness.org/shari.htm

[Guest guest]

Hi there...

I think the question here is "who on this forum does NOT have fibromyalgia?" Most of us have that, as well as migraines, autoimmune diseases, rashes, etc.

Mine have been in since 1997 at age 22, and while still in my early 20's I was diagnosed with have Fibromyalgia, degernative joint disease / connective tissue disease, arthritis, autoimmune disease of the thyroid (Hashimoto's Disease), hypothyroidism, Pseudotumor Cerebri (fluid on the brain, constant headaches/migraines 24/7 ---someone else was diagnosed with EPILESPSY recently!), and probable Lupus and Sjogren's Syndrome........ etc etc........ It never ends.

If you have the means to remove them, it may be the best decision you ever made to get them out now before you have even greater symptoms. Mine still look pretty nice as well, but after hearing so many stories and health problems from other women (who are implanted with saline implants) that MIRROR my story ----I'm explanting as soon as I can afford it. As much as I love having larger breasts, I'd rather be flat chested than die for vanity.

Keep researching this... you'll find so many other women with the same symptoms, and many haven't even had them in as long as you have! Most of us have ran accross a few doctors who tell us we're nuts --- but the volumes of similarities in all of us are too profound to ignore.

BEST of luck to you!!!

Brigite

In a message dated 7/28/2006 2:57:22 AM Eastern Standard Time, leyna1964@... writes:

Hello! *waves* I'm new here, and wanted to introduce myself and askquestions....I have had my saline implants for 16 years now, with no problems atall with the implants...but 4 years ago I developed Fibromyalgia,chronic fatigue, and numerous pains in my breasts, constant headacheson one side of my head, severe memory problems that cause problems atwork (I'm a cashier), vision problems, etc. etc.I know that the Fibro is caused by my implants, from everything I'vebeen reading.I cannot stand being in pain all the time-and these headaches arehorrible!I am considering having my implants removed for these health reasons,even though they have not ruptured-they still look great in fact!I'd like to know if anyone here has been diagnosed with Fibro, and ifit goes away after you have the implants removed, or does the Fibrostay with you, even after removal?Has anyone else had their saline implants for more than 15 years? Ifso, what complications have they had?If I don't have my implants removed, will my Fibro get worse?Thanks for the replies-I look forward to getting to know everyone here!

[Guest guest]

lenya, Welcome aboard, My name is Terri I had saline for 20 years and I have Fibro as well as migraines and numerous other problems. I had capsular contracture for about 18 years but PS said it was just scar tissue he tried to manually pop them in 1987 but that did not do anything but cause me severe pain. My breasts also looked great as my natural breasts were large to begin with so the implants looked very natural. The capsule was hard and over time even though I had alot of skin it started to change shape. I noticed it but nobody else could unless I pointed it out. That wasn' reason to me to keep them though. My fibro I have was diagnosed 9 years ago. At first it was pain in the joints and fatigue and headaches night and day. Eventually over time it spread to neurological probllems. Memory loss, speech problems, balance problems. I couldn't remember what I was doing from moment to moment. Literally went outside to smoke and forgot what I was doing and

pulled down my pants to sit on the toilet. Problem was I was outside on a lawn chair. I was a general maanger for 18 screen theatres and was responsible for all financials and operations of large staff as well as all building and projector issues and maintenance. I couldn't remember my assistants name or people I had hired. I knew this was really bad started seeing neurologist. During this time I heard a woman talking about saline implants on the news and how all implants have silicone bags hlding the saline. I was shocked, I went on the internet and looked up silicone poision and saw a list of chemicals that made me want to throw up. I also saw a statistic that over 400,000 women who have had implants 15 to 20 years have Fibromyalgia. I knew it was too much of a coincidence and started doing more research. I found a surgeon to do my explant borrowed the money and had them taken out. It has been 11 months, My memory is back, My pain has lessoned enogh that I am off pain

meds, I still have muscle weakness and take two naps a day. I had to quit my job after they closed my theatre. Because I was too sick to continue the cherade. Now I am doing a detox and cleansing my body of all the toxins. It is a long process.My breasts look and feel much better now. The breast tissue filled back out and I am the same size I was before and after implants. But the right one is soft not hard like it wsa with the implants. After they were removed the pathologist found silicone in my breast tissue as well as the capsule. The right breast that looked so natural was because the bag had leaked all the fluid into my body. I wouldn't take the implants back if you paid me. I just wish I would have found out sooner. I might have saved myself 9 years worth of pain. I lost everything I owned because of the illness. Now I have a chance at a healthy life. It is so much better now. I know that all the problems I had was because of the toxic bags. I know

that they now tell women that they expire after 10 years and need to be replaced. they don't last a lifetime. I hope this helps, Terri P Hawaiileyna1964 <leyna1964@...> wrote: Hello! *waves* I'm new here, and wanted to introduce myself and askquestions....I have had my saline implants for 16 years now, with no problems atall with the implants...but 4 years ago I developed Fibromyalgia,chronic

fatigue, and numerous pains in my breasts, constant headacheson one side of my head, severe memory problems that cause problems atwork (I'm a cashier), vision problems, etc. etc.I know that the Fibro is caused by my implants, from everything I'vebeen reading.I cannot stand being in pain all the time-and these headaches arehorrible!I am considering having my implants removed for these health reasons,even though they have not ruptured-they still look great in fact!I'd like to know if anyone here has been diagnosed with Fibro, and ifit goes away after you have the implants removed, or does the Fibrostay with you, even after removal?Has anyone else had their saline implants for more than 15 years? Ifso, what complications have they had?If I don't have my implants removed, will my Fibro get worse?Thanks for the replies-I look forward to getting to know everyone

here! __________________________________________________

[Guest guest]

oh - sorry - one more thing

I have known many many women here that have gotten better - just not me and that is my fault as I have not done a lot of things i should have mainly because I could not find a doc nearby to help and the docs far away would have been too much $$ for us...some girls completely healed after being extremely healed after going to the right docs and doing the right thing to rid your body of the crap the implants leave behind when they are gone so do not give up hope... also - mine did not look fake to anyone either nor did I have capsular contracture when removed - my implants were small - very few people knew - they looked great in a shirt but I did not like them - the way they were nor did my hubby... I was a AA and went to a small c.... 250 cc's I had.... one had 30cc less fluid when removed as well... I am thinking since you have had your so long then this is a possibility for you... maybe you have been leaking and some of the fluid may be causing your issues... 15 years is a long lifetime for an implant... I had mine 7 and had 4 operations... if after 7 mine were full of garbage I would have hated to see what mine would have looked like had I added a few years... something to think about

shari

[Guest guest]

Hi Leyna, Welcome to ! You DO have problems with your implants . . . Just not the local complications that the manufacturer's and plastic surgeons would have you think are the only problem one has. The problems you're experiencing are only too familiar! Sixteen years is a long time for breast implants. . . By this time the shell has lost it's intergity and bits of silicone have been distributed throughout your body. Fluids are being exchanged back and forth between your implants and your body. In short, it's past time to have them removed! . . . Selecting a doctor who will remove them properly is essential. They should be removed "en bloc". That means cutting around the capsule and removing the capsule with the implant still inside to the contents of the implant can't spill into your chest cavity . . . A good surgeon will also use

drains until there is no substantial drainage. Most women find that detoxing is essential too . . . We can't tell you exactly what will help . .. we an offer some suggestions, based on what has worked for us. Detoxing includes adopting a very healthy diet and lifestyle . .. for the rest of your life! . . . It takes a lot of discipline, time and patience. But the good news is that you can get your life back! . . . We have a bunch of wonderful ladies who understand how you feel and want to help you get better . . . If there's anything we can help you with, let us know! Hugs and prayers, Rogene

[Guest guest]

>

Thanks so much for your reply! It wasn't until recently that I

connected my Fibromyalgia with my implants...actually, after reading

about the complications online! lol

I have an appointment with my gynocologist next month, and I'm going

to ask him if he can refer me for a MRI.....I know that is suppossed

to tell the condition of my implants from what I've read about

it...but since they are saline, will it still show any problems?

I mean....they haven't gotten any smaller or harder....I just have the

Fibro and health problems, and would like to somehow see the condition

of the implants.

I have a lot of financial problems and will not be able to have them

removed unless my insurance pays for them.

>

> Welcome to !

>

> You DO have problems with your implants . . . Just not the local

complications that the manufacturer's and plastic surgeons would have

you think are the only problem one has. The problems you're

experiencing are only too familiar!

>

> Sixteen years is a long time for breast implants. . . By this time

the shell has lost it's intergity and bits of silicone have been

distributed throughout your body. Fluids are being exchanged back and

forth between your implants and your body.

>

> In short, it's past time to have them removed! . . . Selecting a

doctor who will remove them properly is essential. They should be

removed " en bloc " . That means cutting around the capsule and removing

the capsule with the implant still inside to the contents of the

implant can't spill into your chest cavity . . . A good surgeon will

also use drains until there is no substantial drainage.

>

> Most women find that detoxing is essential too . . . We can't tell

you exactly what will help . .. we an offer some suggestions, based on

what has worked for us. Detoxing includes adopting a very healthy diet

and lifestyle . .. for the rest of your life! . . . It takes a lot of

discipline, time and patience. But the good news is that you can get

your life back! . . .

>

> We have a bunch of wonderful ladies who understand how you feel

and want to help you get better . . . If there's anything we can help

you with, let us know!

>

> Hugs and prayers,

>

> Rogene

>

[Guest guest]

Wow.....all I can say is Wow. So your Fibro has gone? I have all

those symptoms too-the memory problems and balance problems, etc.

Everyone laughs at me at work, and I've been just telling people that

I'm forgetful because I'm in Menopause, due to a hysterectomy I had to

have a couple of years ago.

You went through some hell, didn't you?!

> Hello! *waves* I'm new here, and wanted to introduce

myself and ask

> questions....

>

> I have had my saline implants for 16 years now, with no problems at

> all with the implants...but 4 years ago I developed Fibromyalgia,

> chronic fatigue, and numerous pains in my breasts, constant headaches

> on one side of my head, severe memory problems that cause problems at

> work (I'm a cashier), vision problems, etc. etc.

>

> I know that the Fibro is caused by my implants, from everything I've

> been reading.

>

> I cannot stand being in pain all the time-and these headaches are

> horrible!

>

> I am considering having my implants removed for these health reasons,

> even though they have not ruptured-they still look great in fact!

>

> I'd like to know if anyone here has been diagnosed with Fibro, and if

> it goes away after you have the implants removed, or does the Fibro

> stay with you, even after removal?

>

> Has anyone else had their saline implants for more than 15 years? If

> so, what complications have they had?

>

> If I don't have my implants removed, will my Fibro get worse?

>

> Thanks for the replies-I look forward to getting to know everyone here!

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

OMG, I am totally freaking out after reading your story! After doing

research, I had read about mold and plant life, etc. and am just

speechless!

I am really ready to get mine out now! What sort of doctor do I go

to? Just any plastic surgeon? I have an appointment with my

gynocologist in August-I know I will need a referral to a specialist

if I want my insurance to pay for it....

>

> hello there!!

>

> I am shari... been here for years.... since early 2003... a link to

a page

> on my story is below - please read for symptom details.....

>

> I had my salines a total of 7 years - got them in 96 been out since

03....

> I had a completes rupture- replacement 3 years in... within a short

while

> after that the headaches started... thought it was work, stress....

was trying

> to get pregnant at he time and could not.... I finally did in

2000-2001, had a

> decent pregnancy.... then after the real problems started... headaches

> worsened... body pain got really bad - joint pain muscle pain....

sever neck

> pain.... could hardly move my neck to the left at all, very

stiff.... went for

> massages all the time to alleviate it. only worked for a few days of

that.

> shoulder became stiff as well as neck. headaches were out of

control. saw

> neurologists, all kinds of docs... no help. tried all kinds of

meds, anti inflams,

> muscle relaxers, etc... noting worked. Got a bad case of

Shingles....all got

> worse. then the chronic infections started. first just yeast. I

went to my

> doc who basically said there was nothing else he could test for. I

made an

> appt w/ pain management. he looked me over - did all kinds of

tests. during

> the physical test he kept feeling my neck back and shoulder area

and how

> stiff it was... kept poking around... said - have you ever had

surgery on you

> back... not thing i said no. ever been in a bad accident - i said

no. then i

> said why? he said you have a massive amount of scar tissue here -

i can

> feel it crunching... it is not in your right side - just the

left....i thought

> for a moment then my face went white... my rupture was on my left

side.. that

> was where my replacement was a year and a half earlier... I told

him of this

> and he asked me if i ever thought my implants could be causing

this.... i

> freaked out... went home.. started the research and the rest is

history. within

> 3 months - implants were out, happily out, and I have been here

ever since

> the day I went to that doc in 2/03. on review, both my inplants

were leaking

> when removed and both were filled with mold and all kinds of

parasites,

> staph, strep - live bacteria, plantlife, etc.... there is a pic on

the site below

> - remember on the pic - the cleaner looking implant on the left is

three

> years newer but still moldy in the valve.... my explanting ps (not

the orignal

> PlasticSurgeon) wrote a letter on this that won an appeal to my

insurance co on

> this matter they were so gross....

>

> There are a lot more details here: it gets a lot worse and there are

a lot

> more symptoms

> - I feel they also affected my son. I have not done a lot of

serious doc

> aided detoxing due to financial issues as I have had to stop working

because of

> this....this has made things worse so I am going to do that now - no

matter

> what the price. I want my life back.

>

> Good luck to you!!!

> shari

>

> _www.breastimplantawareness.org/shari.htm_

> (http://www.breastimplantawareness.org/shari.htm)

>

[Guest guest]

Yeah, I have this rash on my chest that has not gone away, no matter

what I do. Doctors are stumped when I show them. When I was diagnosed

with Fibro a couple of years ago, I had read that rashes were common,

and so I just assumed it was because of the Fibro. My parents died a

few years ago, and it was a bad shock to me-I always thought I got the

Fibro from the shock to my system, as well as the female problems I

started having...it wasn't until I researched breast implants that I

now know it was from my implants.

Yeah, I want them out, even though my boobs were probably one of the

main reasons my husband was attracted to me in the first place, and I

worry about the effect that being flat chested will have on my

marriage-he's such a " boob man! "

>

>

>

> Hi there...

>

> I think the question here is " who on this forum does NOT have

fibromyalgia? "

> Most of us have that, as well as migraines, autoimmune diseases,

rashes, etc.

>

> Mine have been in since 1997 at age 22, and while still in my early

20's I

> was diagnosed with have Fibromyalgia, degernative joint disease /

connective

> tissue disease, arthritis, autoimmune disease of the thyroid

(Hashimoto's

> Disease), hypothyroidism, Pseudotumor Cerebri (fluid on the brain,

constant

> headaches/migraines 24/7 ---someone else was diagnosed with

EPILESPSY recently!),

> and probable Lupus and Sjogren's Syndrome........ etc etc........

It never

> ends.

>

> If you have the means to remove them, it may be the best decision

you ever

> made to get them out now before you have even greater symptoms.

Mine still

> look pretty nice as well, but after hearing so many stories and

health problems

> from other women (who are implanted with saline implants) that

MIRROR my

> story ----I'm explanting as soon as I can afford it. As much as I

love having

> larger breasts, I'd rather be flat chested than die for vanity.

>

> Keep researching this... you'll find so many other women with the same

> symptoms, and many haven't even had them in as long as you have!

Most of us have

> ran accross a few doctors who tell us we're nuts --- but the

volumes of

> similarities in all of us are too profound to ignore.

>

> BEST of luck to you!!!

>

> Brigite

>

> In a message dated 7/28/2006 2:57:22 AM Eastern Standard Time,

> leyna1964@... writes:

>

>

>

>

> Hello! *waves* I'm new here, and wanted to introduce myself and ask

> questions...q

>

> I have had my saline implants for 16 years now, with no problems at

> all with the implants...but 4 years ago I developed Fibromyalgia,

> chronic fatigue, and numerous pains in my breasts, constant headaches

> on one side of my head, severe memory problems that cause problems at

> work (I'm a cashier), vision problems, etc. etc.

>

> I know that the Fibro is caused by my implants, from everything I've

> been reading.

>

> I cannot stand being in pain all the time-and these headaches are

> horrible!

>

> I am considering having my implants removed for these health reasons,

> even though they have not ruptured-they still look great in fact!

>

> I'd like to know if anyone here has been diagnosed with Fibro, and if

> it goes away after you have the implants removed, or does the Fibro

> stay with you, even after removal?

>

> Has anyone else had their saline implants for more than 15 years? If

> so, what complications have they had?

>

> If I don't have my implants removed, will my Fibro get worse?

>

> Thanks for the replies-I look forward to getting to know everyone here!

>

[Guest guest]

Yes, I'm totally disgusted by the idea that plant life can be growing

in my breasts! *shudders* My breasts don't sit as high up on my chest

as they used to...so they probably have leaked some. But I thought

that with saline, if they rupture, then they go all the way flat

within a couple of days. Mine are still big, although not as high

up-very natural looking! So I'm confused....does the silicone

covering itself leak? Is that what's causing the Fibro, etc.?

>

> oh - sorry - one more thing

>

> I have known many many women here that have gotten better - just not

me and

> that is my fault as I have not done a lot of things i should have

mainly

> because I could not find a doc nearby to help and the docs far away

would have

> been too much $$ for us...some girls completely healed after being

extremely

> healed after going to the right docs and doing the right thing to

rid your body

> of the crap the implants leave behind when they are gone so do not

give up

> hope... also - mine did not look fake to anyone either nor did I

have capsular

> contracture when removed - my implants were small - very few people

knew -

> they looked great in a shirt but I did not like them - the way they

were nor

> did my hubby... I was a AA and went to a small c.... 250 cc's I

had.... one had

> 30cc less fluid when removed as well... I am thinking since you

have had

> your so long then this is a possibility for you... maybe you have

been leaking

> and some of the fluid may be causing your issues... 15 years is a long

> lifetime for an implant... I had mine 7 and had 4 operations... if

after 7 mine

> were full of garbage I would have hated to see what mine would have

looked like

> had I added a few years... something to think about

>

> shari

>

[Guest guest]

Actually it was 16 years ago. I got them when I was 26 years old, and

I'm 42 now. So yeah, I bet I do have a faulty valve! That is so

disgusting about the mold issue....

>

>

>

> They don't even have to be ruptured to exchange mold. I might not

explain

> this in the right terms, but they are somewhat porous and the mold

and fungus

> inside can come and go -if that makes sense. (I'm sure some of the

board vets

> could better explain it.)

>

> And if that doesn't make you sick enough, yes, the silicone shell

can make

> you sick. Either silicone or other metals and chemicals in it. You

can either

> have a reaction to the shell itself, and/or have reactions as it

breaks down

> into your body.

>

> Assuming one could actually be LEAKING ---a slow leak can take

months, if

> not a year or more to notice a volume change. I had this happen from

a faulty

> valve.

>

> So, between one or the other of all these risks that they don't

tell you

> about -to me, it's too coincidental to ignore!

>

> Again, good luck! Stay in touch with this board. You'll learn much.

>

> Brigite

> PS: If you got yours 15 years ago -another thing your doctor (and

mine) may

> have failed to tell you is that Saline Implants weren't even FDA

approved at

> the time. Plus, many used had faulty valves... the more I learn, the

angrier

> I get.

>

> In a message dated 7/28/2006 1:12:44 PM Eastern Standard Time,

> leyna1964@... writes:

>

> Yes, I'm totally disgusted by the idea that plant life can be growing

> in my breasts! *shudders* My breasts don't sit as high up on my chest

> as they used to...so they probably have leaked some. But I thought

> that with saline, if they rupture, then they go all the way flat

> within a couple of days. Mine are still big, although not as high

> up-very natural looking! So I'm confused....up-very natural l

> covering itself leak? Is that what's causing the Fibro, etc.?

>

[Guest guest]

Oh wow.....I had severe endometriosis, andomysis (endometrisos on the

inside of the organs, as well as the endo on the outside) a bad

cervical infection, uterine fibroids, and ovarian cysts. Plus, the

Fibro had started by then. I was in so much pain that I went from

doctor to doctor, BEGGING for a complete hysterectomy, just to get rid

of the pain! After my hysterectomy, the Fibro went away for about 4

months, then returned...and has not gotten any better, despite the

fact that I am a very healthy eater (mostly organic) and excercise as

much as possible, etc. Can't win for losing! lol

>

>

>

> In a message dated 7/28/2006 1:12:23 PM Eastern Standard Time,

> leyna1964@... writes:

>

> as well as the female problems I

> started having...it wasn't until I researched breast implants that I

> now know it was from my implants.

>

>

>

> Many of us also have female problems.

> I have PID (with no STD), Polycystic Ovarian Syndrome, Cervical

Polyps,

> Dysmenorrhea, frequent infections, etc, etc...

> Most of us also have Candida and Interstitial Cystis. (Bladder

disease.)

>

> I swear, the more you read the more you'll find could be related to

> implants...

>

> Good luck!

> Brigite

> PS: Serious dental issues are also common amongst us who are implanted.

>

[Guest guest]

Rogene, I read somewhere that silicone shows up in your organs with

an MRI -- an info on this?

Thanks, and loving hugs,

Sunny

>

> Leyna,

>

> Actually and MRI won't be able to tell anything about your

implants, except that they are there. . .

>

> With all your symptoms, you should qualify for explant - unless

your policy specifically spells out that it doesn't cover

complications of " cosmetic surgery " . . .

>

> Actually, it's a lot cheaper for the insurane company to pay for

explant than to keep you sick. They pay for health problems from over

eating, drugs, tobacco and alcohol. . . How much different are they

than implants? . . . At least there are all kinds of warnings about

everything else!

>

> Hugs,

>

> Rogene

>

[Guest guest]

Wow, that's creepy - stringy silicone! YUK! Thanks for the info

Rogene.

Love, Sunny

>

> Sunny,

>

> If you have gel implants, silicone MAY show up in an MRI . . .

Not necessarily . . .Even the newest Coil MRI will necessarily show

silicone. The plastic surgeons and manufacturer's say they will

recommend women get MRI's after getting their new implants . . . But,

if the MRI doesn't show silicone, it's useless!

>

> Lana - you see info from her on occasion . . . ran an ad on ebay

offering video rights to her explants . . .for an outrageous price.

Not that she wanted to sell the rights, but she wanted to draw

attention to the implant situation. . . She has had a number of

silicone granulomas (masses of silicone) right under the skin. . She

could see them and feel them . . . Yet an MRI didn't show them at all.

>

> The silicone that comes from the shell of a saline implant is

going to be in very tiny bits . . . Not enough to show up at all. . .

>

> Dr. Melmed demonstrated how an implant shell degrades over time

to the FDA . . . He had three implants . . . one new, one older one

and one old one . . . all gel. . . Right there in front of the FDA he

tried to pull the new one apart . .. nothing. . . Then he pulled on

the older one . . . it stretched . .. Finally, he pulled on the old

one . . . It came to pieces with silicone gel stringing out of

it. . . . They called a recess to clean up the place!

>

> Rogene

>

[Guest guest]

Thank you Dorothy...That is just the idea i needed about the 3 ring

binder...thank you also for the rest of the advice...i will keep you

posted...Madalyn

From: Dorothy <dorv@...>

Subject: RE: [ ] New Here.....

Date: Monday, August 18, 2008, 6:16 PM

Sorry to hear about your daughter..so young!

I suggest that you ask for copies of the blood work results. Start now and

keep copies of every single test that is done. Mine are a mess and I should

take my own advice...keep them in a 3-ring binder in chronological order so

you've always got them available.

It's so much easier to keep copies of everything than to have to get them

together if you should ever need them in the future. It could also prevent

you from having a test repeated unnecessarily.

Also, make sure that both you and your daughter are comfortable with any

specialist you see. If you're not, move on before going too far with

him/her. It's so important that you have a good rapport with the doctors as

you're placing your daughter's health and life in their hands.

Make sure you research anything the doctor may say or prescribe. Ask the

doctor questions if you don't understand completely. Ask specifically what

the expected outcome is expected from any meds, how long it should take for

results, and what side effects, if any, she may experience.

Good luck tomorrow.

Dorothy

_____

From: @gro ups.com [mailto: @gro ups.com] On

Behalf Of molly1762

Sent: Monday, August 18, 2008 5:32 PM

@gro ups.com

Subject: [ ] New Here.....

Hi....I am a 46 yr old mom to a 17 yr old daughter who has a high level

of RA in her blood work. we have a doctor visit tomorrow to go over her

blood work. then we will see a specialist.. .if there is any information

that you may think is helpful in these beginning stages i would more

then appricate it. thank you!

[Guest guest]

Hi...

Just went through this, my doctor painted a very bleak picture and I've been in

a state of panic ever since until I saw the specialist, a Rheumatologist. My

doctor, a GP and the Rheumatologist have completely opposite views, since it is

about Rheumatoid Arthritis my Rhematologist's view point wins, that's why my GP

referred me to him. Of course, you cannot help but be concerned but don't panic.

Get all the facts and see the specialist, find out what treatment options are

required and/or necessary and the outlook will be much better than you can

image. I was ready to file for SSDI, bankruptcy, sell everything, and basically

pick a burial plot when the Rheumatologist told me not to go through all that

because I'll be 99% in 6 to 8 weeks. Now I don't know if I'll be 99% in 8 weeks

but I do know I spent way too much energy worrying about things that are not

going to happen. Hope this helps.

Stan

_,_._,___

[Guest guest]

Stan,

I heard the same song and dance from many a doc. This will only be a blimp

and you will be back to 100% in a few weeks once we get you on meds. NOT!!!

NEVER again.

I wished someone had told me the worst case scenerio, instead of giving me

the pep-talk like I just have a case of the flu and it will be gone shortly.

I wish we had talked about ALL the options. I would have probably made some

better choices.

For me I have failed most of the drugs. Either they worked for a short

period of time and then quit working or the side effects were out-weighed any

small benefit I was getting from them if I got any benefit at all.

Granted I have had long periods of remissions on my own. But I will never

be 99% again. At least not for any long periods of time that I will be able

to remember and enjoy.

You do need to educate and learn all you cal about ALL methods of treatment.

traditional and none traditional medicine. I am finding better relief in

none traditional medicine than traditional....and at a plus NO SIDE effects.

yeah!

Toni

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