(No subject)

November 25, 2002

There's an angel in my inbox

And she came here from a friend

Who typed in my e-mail address

Then clicked on the button 'Send'

There's an angel in your inbox

And you got her straight from me;

I knew when I finished reading this,

It was something you should see.

This little angel in your inbox

Does contain a nice surprise;

For when you send her on to friends,

Her message multiplies.

She brings you a note of

Happiness, health and song;

And the nicest thing you can do

Today is to forward her along.

By simply sending her on

Can make you happy as can be;

She should be sent to everyone

Her message is for all to see.

Please send this little angel on,

And have a great day, too;

Just smile and be happy because

This angel was sent to you!

Author Unknown

December 25, 2002

Mona,

Welcome to CHARGEland...it may be kind of quiet for a couple days over the

holidays, but I'm sure that any questions you have will be fielded shortly and

any tips or ideas we have will be happily shared.

(PS - I am also a TA & a parent of a CHARGEr)

~ Weir

Mom to Kennedy, 4yr old CHARGEr, 13, 11, and wife to Graeme

New Brunswick, Canada

Visit the Weir Website: http://personal.nbnet.nb.ca/gweir

ICQ# 1426476

(no subject)

Hi all Merry Christmas! I am new to the charge group! My name is Mona

Wyatt, I am a teaching assistant in Yorkton sask at St 's school. I

am working with a little sweetheart 10 years old with charge. Her name

is ! I will need as much help as anyone can give. I'm new to Charge

and where we live no body knows alot about it. Please give tips on potty

training, thing your kids are doing in school, anything else you think

of that may help me! I want to do my best for and I look to all of

you for help! Thank you, I look forward to all of your tips!!!!!!!!!!!!

Mona

Membership of this email support groups does not constitute membership in the

CHARGE Syndrome Foundation.

For information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter)

please contact marion@... or visit

the CHARGE Syndrome Foundation web page

at http://www.chargesyndrome.org

6th International CHARGE Syndrome Conference, Cleveland, Ohio,

July 25-27, 2003. Information will be available at our website

www.chargesyndrome.org or by calling 1-.

December 30, 2002

Hi Mona,

I wish there were an easy answer for potty training our charge children. My

son Adam is not trained at 12 yrs old. His school has been trying for years

to train him as well as us at home sitting in the bathroom for long periods

of time hoping for a miracle. I must say cleaning a 12 yr olds BM's is not

pleasant as he is now becoming more grown up Down there. {pubic hair} YIKES.

What can you do!! Adam's teacher used to put boys underpants on him during

school hours. He started to understand that he shouldn't soil them. He was

doing quite well with it at school. At home, well that was a different story.

For some reason Adam does things for school that he just won't do at home.

His teacher will tell of so many tasks he performs for them that seem

virtually impossible for me to believe. If I could only be a fly on the wall!

I guess there is no easy answer for most of our problems or questions

pertaining to our Chargers. Maybe your child's teacher should try the

underpants thing. Anything is worth a try.

P.S. Adam is still not trained as he has had a different teacher for the

last 2 yrs.

Good luck and if you have any form of success, can you let us know?

Happy New Year,

Terri - Mom to Adam 12 & 14 yr old twins & my youngest

6yrs old

December 30, 2002

Hi Terri! Thanks for getting back to me so soon. What types of programs is your

school running for Adam. What

kinds of things can he do in school. Thanks Mona

Nezro2@... wrote:

> Hi Mona,

> I wish there were an easy answer for potty training our charge children. My

> son Adam is not trained at 12 yrs old. His school has been trying for years

> to train him as well as us at home sitting in the bathroom for long periods

> of time hoping for a miracle. I must say cleaning a 12 yr olds BM's is not

> pleasant as he is now becoming more grown up Down there. {pubic hair} YIKES.

> What can you do!! Adam's teacher used to put boys underpants on him during

> school hours. He started to understand that he shouldn't soil them. He was

> doing quite well with it at school. At home, well that was a different story.

> For some reason Adam does things for school that he just won't do at home.

> His teacher will tell of so many tasks he performs for them that seem

> virtually impossible for me to believe. If I could only be a fly on the wall!

> I guess there is no easy answer for most of our problems or questions

> pertaining to our Chargers. Maybe your child's teacher should try the

> underpants thing. Anything is worth a try.

> P.S. Adam is still not trained as he has had a different teacher for the

> last 2 yrs.

> Good luck and if you have any form of success, can you let us know?

> Happy New Year,

> Terri - Mom to Adam 12 & 14 yr old twins & my youngest

> 6yrs old

>

February 6, 2003

ect254@... wrote:

<<Anyone on here from O'Fallon Police Missouri?>>

I live in O'Fallon, MO, but I work in the next city over.

Janet Bettag

LSLPD

Lake Saint Louis, MO

Department email: jbettag@...

Personal email: MsJBettag@...

March 7, 2003

Since deafblindness refers to the impact of the combined loss, I don't

understand how she misses that label. Who has evaluated her? Even with a mild

vision loss and a mild hearing loss the impact of the combines loss is still

there.

Does she have enough vision to compensate for her hearing loss?

Does she have enough hearing to compensate for her vision loss?

In deafblindness, you do not need to meet the federal criteria for deaf or

blind; it is the combined loss that is important.

Kim

Mom to Dylan 6 CHARGE, Kayla 12, Tyler 14

-- Re: (no subject)

>

> Bonnie-

I know this is an emotionally charged issue and I certainly didn't intend

to bring up very difficult emotions. I'm sorry to have struck that chord

in you. None of us needs to revisit that any more often than necessary.

Pat's history is an amazing story of struggles and strengths -- on the

part of Pat and all of you involved in her care and education. I really hope

your outcome with SSI is a positive one and is resolved soon.

You know, even though db is a recognized label, Aubrie doesn't fit because

the hearing and vision in her good eye and ear are not bad enough. So

she's not db, nor is she mr, nor is she physically handicapped in the true

meaning of that label -- there is no label to describe her. She's not

disabled enough in any area to qualify for that label, but she's certainly not

non-disabled. So far, she's been able to fit under " developmental delay " --

the global category they allow for young children. At this next IEP we will

have to choose a real category, and I have no idea which it will be.

Maybe they should have a way of allowing a dx to be a label since that is

really the best description of a child with disabilities related to a syndrome.

Michele

March 8, 2003

In IL, there is specific criteria for the level of vision in the best eye and

hearing in the best ear. The best of each has to be below whatever the minimum

criteria is. She is above the level in her best of each.

Michele

Re: (no subject)