Guest guest Posted October 28, 2002 Report Share Posted October 28, 2002 Hi Sridhar, I just wanted to welcome you to the IgAN support group. Pierre did a great job answering your email, and It sounds like your Nephrologist is following the best course of treatment for you. My Nephrologist is one who does believe that HSP and IgAN are the same, but that the HSP is more systemic and IgAN is normally confined to just the kidneys. I have been diagnosed with HSP, and I do at times have trouble with joint pain. I am not a doctor, so I can't say for sure in your case, but I know that in mine, the joint trouble is related to my HSP. Welcome again! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2002 Report Share Posted October 28, 2002 Hi, I am 26 yrs old and recently diagnosed with Iga Nephropathy. It is in the early stages and no damage has been done so far. the Renal functions are all normal so far. My nephrologist put me on a daily dose of one Enalapril ( ACE inhibitor) and 6 -10 Fish Oil Capsules. Before i was diagnosed with the condition, i had severe cramps/claudication in my calf muscles while i was walking short distances. Also, i woke up every morning with severe swollen and stiff fingers. I quit smoking and with that the claudication in the legs got lot better but the swollen/stiff fingers still persist. My Rheumatologist says that the swollen/stiff fingers has a lot to do with the Iga Nephropathy while my nephrologist denies insisting that they are two different problems. I am computer Engineer which leads to the theory of Carpal Tunnel Syndrome put forth by my Internist and orthopaedician. I have no idea what's going on. I was wondering if any one diagnosed with Iga Nephropathy had similar problems. Thanks, Sridhar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2002 Report Share Posted October 28, 2002 If you read my www.igan.ca website, specifically in the " Types of IgAN " and " Symptoms of IgAN " in the IgA Nephropathy Notebook, you will see that since the diseases IgAN and Henoch-Schonlein purpura (HSP) may be different levels of the same disease, it's possible that some people with only IgAN (which is specifically kidneys) may occasionally experience some " crossover " symptoms from the more systemic disease HSP. Arthritis-like joint pain can be a symptom of HSP, and if you are interested, you might want to do some further research on HSP and see what you can find. There is plenty of information on the internet about HSP. There are 2 search engines you can use on the home page of www.igan.ca . However, I should say that the connection between IgAN and HSP is really just theoretical at this point. Since your IgAN is mild, and from your description, I would be inclined to think you nephrologist is closer to being right. It's very possible to have IgAN and to have other unrelated conditions as well. In a case like this, it will be virtually impossible to decide who is right - and it probably doesn't make any difference in treatment anyway, since all they can do is treat symptoms, and they pretty much take each symptom individually. The symptoms you describe might be experienced by some people with advanced renal failure, but, if they say your IgAN is in the early stages, that probably doesn't apply to you. Let's hope that the treament with enalapril, fish oil, and cessation of smoking will help keep it in the early stages for a long, long time. Pierre Moderator New t o the group - > Hi, > I am 26 yrs old and recently diagnosed with Iga Nephropathy. It is in > the early stages and no damage has been done so far. the Renal > functions are all normal so far. My nephrologist put me on a daily > dose of one Enalapril ( ACE inhibitor) and 6 -10 Fish Oil Capsules. > > Before i was diagnosed with the condition, i had severe > cramps/claudication in my calf muscles while i was walking short > distances. Also, i woke up every morning with severe swollen and stiff > fingers. > > I quit smoking and with that the claudication in the legs got lot > better but the swollen/stiff fingers still persist. My Rheumatologist > says that the swollen/stiff fingers has a lot to do with the Iga > Nephropathy while my nephrologist denies insisting that they are two > different problems. I am computer Engineer which leads to the theory of > Carpal Tunnel Syndrome put forth by my Internist and orthopaedician. > I have no idea what's going on. > > > I was wondering if any one diagnosed with Iga Nephropathy had > similar problems. > > > Thanks, > Sridhar > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2002 Report Share Posted October 28, 2002 Pierre, Thanks for the information. I will do the suggested research and see what i can find. Sridhar > If you read my www.igan.ca website, specifically in the " Types of IgAN " and > " Symptoms of IgAN " in the IgA Nephropathy Notebook, you will see that since > the diseases IgAN and Henoch-Schonlein purpura (HSP) may be different levels > of the same disease, it's possible that some people with only IgAN (which is > specifically kidneys) may occasionally experience some " crossover " symptoms > from the more systemic disease HSP. Arthritis-like joint pain can be a > symptom of HSP, and if you are interested, you might want to do some further > research on HSP and see what you can find. There is plenty of information on > the internet about HSP. There are 2 search engines you can use on the home > page of www.igan.ca . However, I should say that the connection between IgAN > and HSP is really just theoretical at this point. > > Since your IgAN is mild, and from your description, I would be inclined to > think you nephrologist is closer to being right. It's very possible to have > IgAN and to have other unrelated conditions as well. In a case like this, it > will be virtually impossible to decide who is right - and it probably > doesn't make any difference in treatment anyway, since all they can do is > treat symptoms, and they pretty much take each symptom individually. > > The symptoms you describe might be experienced by some people with advanced > renal failure, but, if they say your IgAN is in the early stages, that > probably doesn't apply to you. > > Let's hope that the treament with enalapril, fish oil, and cessation of > smoking will help keep it in the early stages for a long, long time. > > Pierre > Moderator > > > > > New t o the group - > > > > Hi, > > I am 26 yrs old and recently diagnosed with Iga Nephropathy. It is in > > the early stages and no damage has been done so far. the Renal > > functions are all normal so far. My nephrologist put me on a daily > > dose of one Enalapril ( ACE inhibitor) and 6 -10 Fish Oil Capsules. > > > > Before i was diagnosed with the condition, i had severe > > cramps/claudication in my calf muscles while i was walking short > > distances. Also, i woke up every morning with severe swollen and stiff > > fingers. > > > > I quit smoking and with that the claudication in the legs got lot > > better but the swollen/stiff fingers still persist. My Rheumatologist > > says that the swollen/stiff fingers has a lot to do with the Iga > > Nephropathy while my nephrologist denies insisting that they are two > > different problems. I am computer Engineer which leads to the theory of > > Carpal Tunnel Syndrome put forth by my Internist and orthopaedician. > > I have no idea what's going on. > > > > > > I was wondering if any one diagnosed with Iga Nephropathy had > > similar problems. > > > > > > Thanks, > > Sridhar > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2002 Report Share Posted October 28, 2002 Hi Sridhar, I also have problems with swollen and stiff fingers. I notice especially in the morning that my body feels stiff, but after I take a hot shower things seem to loosen up a bit. I've discussed it in the past with my doc, but as of now there hasn't been any real answer to it. My doc believed I may be experiencing problems coming off of predinsone. However, I've now been off of that for about a month, and prior to that he kept me on a very low dosage (2.5mg every other day as I was taken down from 80mg). I intend to ask my neph about this problem again the next time I see him (in Dec). If I get any information I will post it here. P.S. I'm also in the computer field and at one point (a number of years ago prior to my diagnosis of IGAN) I was examined for carpal tunnel syndrome but was told I didn't have it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2002 Report Share Posted October 28, 2002 Had similar problems with my hands in the early days (age about 30) and have tender points now and then still. I was prescribed tablets to slow down the 'arthritis'. Sally. Re: New t o the group - If you read my www.igan.ca website, specifically in the " Types of IgAN " and " Symptoms of IgAN " in the IgA Nephropathy Notebook, you will see that since the diseases IgAN and Henoch-Schonlein purpura (HSP) may be different levels of the same disease, it's possible that some people with only IgAN (which is specifically kidneys) may occasionally experience some " crossover " symptoms from the more systemic disease HSP. Arthritis-like joint pain can be a symptom of HSP, and if you are interested, you might want to do some further research on HSP and see what you can find. There is plenty of information on the internet about HSP. There are 2 search engines you can use on the home page of www.igan.ca . However, I should say that the connection between IgAN and HSP is really just theoretical at this point. Since your IgAN is mild, and from your description, I would be inclined to think you nephrologist is closer to being right. It's very possible to have IgAN and to have other unrelated conditions as well. In a case like this, it will be virtually impossible to decide who is right - and it probably doesn't make any difference in treatment anyway, since all they can do is treat symptoms, and they pretty much take each symptom individually. The symptoms you describe might be experienced by some people with advanced renal failure, but, if they say your IgAN is in the early stages, that probably doesn't apply to you. Let's hope that the treament with enalapril, fish oil, and cessation of smoking will help keep it in the early stages for a long, long time. Pierre Moderator New t o the group - > Hi, > I am 26 yrs old and recently diagnosed with Iga Nephropathy. It is in > the early stages and no damage has been done so far. the Renal > functions are all normal so far. My nephrologist put me on a daily > dose of one Enalapril ( ACE inhibitor) and 6 -10 Fish Oil Capsules. > > Before i was diagnosed with the condition, i had severe > cramps/claudication in my calf muscles while i was walking short > distances. Also, i woke up every morning with severe swollen and stiff > fingers. > > I quit smoking and with that the claudication in the legs got lot > better but the swollen/stiff fingers still persist. My Rheumatologist > says that the swollen/stiff fingers has a lot to do with the Iga > Nephropathy while my nephrologist denies insisting that they are two > different problems. I am computer Engineer which leads to the theory of > Carpal Tunnel Syndrome put forth by my Internist and orthopaedician. > I have no idea what's going on. > > > I was wondering if any one diagnosed with Iga Nephropathy had > similar problems. > > > Thanks, > Sridhar > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2002 Report Share Posted October 28, 2002 Hi , I experience pretty much the same symptoms. I have an appointment in a couple of weeks for some Nerve Conductivity Tests and other tests to examine for Carpal Tunnel Syndrome. Also, i have an appointment with my rheumatologist the coming friday and will post what she has to say. Sridhar > Hi Sridhar, > > I also have problems with swollen and stiff fingers. I notice especially in the morning that my body feels stiff, but after I take a hot shower things seem to loosen up a bit. I've discussed it in the past with my doc, but as of now there hasn't been any real answer to it. My doc believed I may be experiencing problems coming off of predinsone. However, I've now been off of that for about a month, and prior to that he kept me on a very low dosage (2.5mg every other day as I was taken down from 80mg). I intend to ask my neph about this problem again the next time I see him (in Dec). If I get any information I will post it here. > > > > P.S. I'm also in the computer field and at one point (a number of years ago prior to my diagnosis of IGAN) I was examined for carpal tunnel syndrome but was told I didn't have it. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2002 Report Share Posted October 28, 2002 , Thanks for the welcome. I feel very comfortable now that are folks with similar problems and really love the prompt response and the brisk activity in the group. Thanks again, Sridhar > Hi Sridhar, > > I just wanted to welcome you to the IgAN support group. > > Pierre did a great job answering your email, and It sounds like your > Nephrologist is following the best course of treatment for you. > > My Nephrologist is one who does believe that HSP and IgAN are the same, but > that the HSP is more systemic and IgAN is normally confined to just the > kidneys. I have been diagnosed with HSP, and I do at times have trouble with > joint pain. I am not a doctor, so I can't say for sure in your case, but I > know that in mine, the joint trouble is related to my HSP. > > Welcome again! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2002 Report Share Posted October 28, 2002 Hi Sridhar, Welcome to the group. I'm 25, and was diagnosed with IgA Nephropathy in April of last year. The problem you mention does not sound like it is related to IgAN, and I can't say I've ever had such a problem (nor have I heard of other group members ever mentioning anything like this). I think in this situation, I would be inclined to believe the nephrologist, as he would most likely have more of an understanding of the IgAN and your particular situation with it. Anyway, keep us updated on the situation. nsdhar03 wrote:Hi, I am 26 yrs old and recently diagnosed with Iga Nephropathy. It is in the early stages and no damage has been done so far. the Renal functions are all normal so far. My nephrologist put me on a daily dose of one Enalapril ( ACE inhibitor) and 6 -10 Fish Oil Capsules. Before i was diagnosed with the condition, i had severe cramps/claudication in my calf muscles while i was walking short distances. Also, i woke up every morning with severe swollen and stiff fingers. I quit smoking and with that the claudication in the legs got lot better but the swollen/stiff fingers still persist. My Rheumatologist says that the swollen/stiff fingers has a lot to do with the Iga Nephropathy while my nephrologist denies insisting that they are two different problems. I am computer Engineer which leads to the theory of Carpal Tunnel Syndrome put forth by my Internist and orthopaedician. I have no idea what's going on. I was wondering if any one diagnosed with Iga Nephropathy had similar problems. Thanks, Sridhar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2002 Report Share Posted October 28, 2002 I can say I've never had those symptoms either in my 25 years with IgAN. There's the HSP-IgAN crossover symptom possibility, as I mentioned before, but, I would really think that the symptoms you describe aren't related to your IgAN, and are caused by something else. If the crossover theory is correct, I would still guess it highly unlikely that you would have just one symptom of HSP, Sridhar. I just wanted to make that clear. Pierre Re: New t o the group - > > Hi Sridhar, > Welcome to the group. I'm 25, and was diagnosed with IgA Nephropathy in April of last year. The problem you mention does not sound like it is related to IgAN, and I can't say I've ever had such a problem (nor have I heard of other group members ever mentioning anything like this). I think in this situation, I would be inclined to believe the nephrologist, as he would most likely have more of an understanding of the IgAN and your particular situation with it. Anyway, keep us updated on the situation. > > nsdhar03 wrote:Hi, > I am 26 yrs old and recently diagnosed with Iga Nephropathy. It is in > the early stages and no damage has been done so far. the Renal > functions are all normal so far. My nephrologist put me on a daily > dose of one Enalapril ( ACE inhibitor) and 6 -10 Fish Oil Capsules. > > Before i was diagnosed with the condition, i had severe > cramps/claudication in my calf muscles while i was walking short > distances. Also, i woke up every morning with severe swollen and stiff > fingers. > > I quit smoking and with that the claudication in the legs got lot > better but the swollen/stiff fingers still persist. My Rheumatologist > says that the swollen/stiff fingers has a lot to do with the Iga > Nephropathy while my nephrologist denies insisting that they are two > different problems. I am computer Engineer which leads to the theory of > Carpal Tunnel Syndrome put forth by my Internist and orthopaedician. > I have no idea what's going on. > > > I was wondering if any one diagnosed with Iga Nephropathy had > similar problems. > > > Thanks, > Sridhar > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2002 Report Share Posted October 29, 2002 Hi Jennie, I guess i am the loner here as far as the claudication/stiff fingers and Iga Neph are concerned. :-) I sure will keep you guys updated regarding my situation. I have a couple more appointments in the coming weeks and hopefully i get some conclusive answers. In what other medical conditions is Iga Nephropathy a by-product ? I am wondering if there is something else big that i need to worry about and that Iga Neph is just the off-shoot of that. Thanks, Sridhar Re: New t o the group - Hi Sridhar, Welcome to the group. I'm 25, and was diagnosed with IgA Nephropathy in April of last year. The problem you mention does not sound like it is related to IgAN, and I can't say I've ever had such a problem (nor have I heard of other group members ever mentioning anything like this). I think in this situation, I would be inclined to believe the nephrologist, as he would most likely have more of an understanding of the IgAN and your particular situation with it. Anyway, keep us updated on the situation. nsdhar03 wrote:Hi, I am 26 yrs old and recently diagnosed with Iga Nephropathy. It is in the early stages and no damage has been done so far. the Renal functions are all normal so far. My nephrologist put me on a daily dose of one Enalapril ( ACE inhibitor) and 6 -10 Fish Oil Capsules. Before i was diagnosed with the condition, i had severe cramps/claudication in my calf muscles while i was walking short distances. Also, i woke up every morning with severe swollen and stiff fingers. I quit smoking and with that the claudication in the legs got lot better but the swollen/stiff fingers still persist. My Rheumatologist says that the swollen/stiff fingers has a lot to do with the Iga Nephropathy while my nephrologist denies insisting that they are two different problems. I am computer Engineer which leads to the theory of Carpal Tunnel Syndrome put forth by my Internist and orthopaedician. I have no idea what's going on. I was wondering if any one diagnosed with Iga Nephropathy had similar problems. Thanks, Sridhar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2002 Report Share Posted October 29, 2002 Lupus is a similar autoimmune disease with IgA and also arthritis one of its as various symptoms.....there are blood tests for establishing Rheumatoid factor and ANA for Lupus. Sally. Re: New t o the group - Hi Sridhar, Welcome to the group. I'm 25, and was diagnosed with IgA Nephropathy in April of last year. The problem you mention does not sound like it is related to IgAN, and I can't say I've ever had such a problem (nor have I heard of other group members ever mentioning anything like this). I think in this situation, I would be inclined to believe the nephrologist, as he would most likely have more of an understanding of the IgAN and your particular situation with it. Anyway, keep us updated on the situation. nsdhar03 wrote:Hi, I am 26 yrs old and recently diagnosed with Iga Nephropathy. It is in the early stages and no damage has been done so far. the Renal functions are all normal so far. My nephrologist put me on a daily dose of one Enalapril ( ACE inhibitor) and 6 -10 Fish Oil Capsules. Before i was diagnosed with the condition, i had severe cramps/claudication in my calf muscles while i was walking short distances. Also, i woke up every morning with severe swollen and stiff fingers. I quit smoking and with that the claudication in the legs got lot better but the swollen/stiff fingers still persist. My Rheumatologist says that the swollen/stiff fingers has a lot to do with the Iga Nephropathy while my nephrologist denies insisting that they are two different problems. I am computer Engineer which leads to the theory of Carpal Tunnel Syndrome put forth by my Internist and orthopaedician. I have no idea what's going on. I was wondering if any one diagnosed with Iga Nephropathy had similar problems. Thanks, Sridhar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2002 Report Share Posted October 30, 2002 Hi Sridhar I'd just read your posting and I've been diagnosed with Igan for a few months now, with Nephotic Syndrome as well. I'v experienced calf pain and cramps fairly regularly, but mainly during long, hard walks or running or playing rugby, which I do a lot of. I'm 28, by the way. I've spoken to my Doctors about it, and we agreed it was probably an electrolyte inbalance, due to the Diuretics I've been taking. I'd also felt quite dehydrated for a while, was perspiring heavily, a side effect of the steriods I was on, whilst on a low salt diet to help reduce the edema...! I think these added up to explain away my cramps and pains, and since I realised this, and drank more water, didn't take as much frusimide ( the diuretic), and increased salt slightly, I've been ok. This was, of course, with the advice of my Doctor. I'ce caoched and trains many rugby players for a few years, and always recognised cramps as caused by a combination of dehydraytion and electrolyte inbalance. Don't know if my situation will shed any light onto yours or not, but hope so and all the best anyway. > Hi, > I am 26 yrs old and recently diagnosed with Iga Nephropathy. It is in > the early stages and no damage has been done so far. the Renal > functions are all normal so far. My nephrologist put me on a daily > dose of one Enalapril ( ACE inhibitor) and 6 -10 Fish Oil Capsules. > > Before i was diagnosed with the condition, i had severe > cramps/claudication in my calf muscles while i was walking short > distances. Also, i woke up every morning with severe swollen and stiff > fingers. > > I quit smoking and with that the claudication in the legs got lot > better but the swollen/stiff fingers still persist. My Rheumatologist > says that the swollen/stiff fingers has a lot to do with the Iga > Nephropathy while my nephrologist denies insisting that they are two > different problems. I am computer Engineer which leads to the theory of > Carpal Tunnel Syndrome put forth by my Internist and orthopaedician. > I have no idea what's going on. > > > I was wondering if any one diagnosed with Iga Nephropathy had > similar problems. > > > Thanks, > Sridhar Quote Link to comment Share on other sites More sharing options...
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