Re: CAPD

[Guest guest]

Dear Friends,

I think I made a big mistake. It's not that I don't believe in labels

like SID or CAPD. I think they are not always given by the proper

professional. Last year when started speech therapy every week we

would come home with another packet of information describing another rare

disorder. The truth was, was HOH and she did not make progress until

she had hearing aids.

I wish I could scream out to every SLP. CHECK THE CHILD'S HEARING. I

want to shoot myself everytime I think of the people that tried to force my

daughter to talk. I am sorry for being so upset over this issue but it

really hits home with me. life has totally changed since being

aided. Her doctor worked with Dr. Berlin at Hopkins as well as many famous

DR.s at the Kennedy Institute. (Leo Kanner)

He could not believe that anyone would even consider to have

behavior problems that were not directly cause by her hearing loss.

also has Super High Frequency Hearing. The buzzing that she hears are

background noises like lights and electricity currents all kinds of things.

Dr. Berlin over sees Dr. Ira and for the first time we are seeing real

progress.

Sheri

[Guest guest]

In a message dated 10/5/1999 12:20:16 PM Eastern Daylight Time,

SDunnstern@... writes:

<< It's not that I don't believe in labels

like SID or CAPD. I think they are not always given by the proper

professional. >>

At one point Jake's therapist was saying maybe he had CAPD...and we knew he

had Auditory Neuropathy. I had given them all the info about it and kids

with AN act like CAPD kids on occasion. Like you, I think the correct

professional needs to apply the labels. Turn out Jake has oppositional

defiant disorder, (worse case than his brother) and no learning

disabilities....unlike what the teachers thought. Now with the CI we see

that some of the behavior is lack of understanding the english language

before the CI. He is still ODD but much more cooperative than pre CI.

Elaine B.