Guest guest Posted November 23, 2002 Report Share Posted November 23, 2002 hello! do you all think that a nephrologist would give epogen to someone with iga nephropathy when there is 100 percent kidney function? Mine is stable but i suffer from fatigue... Miriam _________________________________________________________________ Protect your PC - get McAfee.com VirusScan Online http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2002 Report Share Posted November 23, 2002 Miriam, In my case, it was prescribed when my blood tests indicated my haematacrit had dropped to below 34% and my haemoglobin was showing anemia. Derrick Sydney Australia > > hello! > do you all think that a nephrologist would give epogen to someone with iga > nephropathy when there is 100 percent kidney function? Mine is stable but i > suffer from fatigue... > Miriam > > > > > _________________________________________________________________ > Protect your PC - get McAfee.com VirusScan Online > http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2002 Report Share Posted November 24, 2002 I think it would depend on hour hemoglobin. there are many issues involved in giving something like that . epogen hello! do you all think that a nephrologist would give epogen to someone with iga nephropathy when there is 100 percent kidney function? Mine is stable but i suffer from fatigue... Miriam _________________________________________________________________ Protect your PC - get McAfee.com VirusScan Online http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2002 Report Share Posted November 25, 2002 I doubt it very much Miriam. Epo doesn't help fatigue unless it's caused by severe anemia. A person with 100% kidney function couldn't possibly have anemia due to chronic renal failure. Pierre epogen hello! do you all think that a nephrologist would give epogen to someone with iga nephropathy when there is 100 percent kidney function? Mine is stable but i suffer from fatigue... Miriam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2002 Report Share Posted November 25, 2002 It's very, very expensive! Pierre Re: epogen Hi Miriam, There are pretty strict guidelines for Epogen. My hematocrit went down to 32 before I was started on it. It is not used for treatment for fatigue in general, but only for anemia which often occurs in more advanced renal disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2002 Report Share Posted November 25, 2002 You won't believe!!! My husband gives me my epo shot every weekend. 5000 units. (sounds like a lot, butit is just a little bit.) Anyway, I was picking the serum up at the Pharmacy and the girl behind the counter didn't have a grasp of what she was supposed to do. The bag with my other stuff in it said look in regrigerator for other perscription. She went in there and got out a box with 8 viles in it. I thought when I saw it that it probably had the last 2 (the number I get) viles in it and did not discover the mistake until I got home. To say the least, they were VERY happy that I was honest! I think when I added it up, I had $1000 worth of stuff there! Re: epogen Hi Miriam, There are pretty strict guidelines for Epogen. My hematocrit went down to 32 before I was started on it. It is not used for treatment for fatigue in general, but only for anemia which often occurs in more advanced renal disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2002 Report Share Posted November 25, 2002 I give myself a .4cc shot every week. I use a little flap of skin right at the top of my abdomen. A 1cc Tuberculin doesn't even sting, particularly if you have just had a hot shower. Your story about the incredible EPOGen gift is better than mine. I went to pick up a prescription last year (I get 4 20,000 unit 1cc bottles each time). There was a card in the rack that said " Get Epogen from the refrigerator " . Stapled to the card was a bag with the 4 vials in it. $800 down the drain. I'm sure they sent it back to the manufacturer, but that was a truly sad waste... Walt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2002 Report Share Posted November 25, 2002 I have a similiar story. I take 8000 units a week and when I went to pickup my first dose it was for 4 10000 unit vials (4 weeks supply) They gave me a box, I took it home and it had 10 10000 unit vials in it, several thousand dollars of liquid gold for one $25 copay. I'm still using them today. They don't expire for 2 years. > You won't believe!!! My husband gives me my epo shot every weekend. 5000 units. (sounds like a lot, butit is just a little bit.) Anyway, I was picking the serum up at the Pharmacy and the girl behind the counter didn't have a grasp of what she was supposed to do. The bag with my other stuff in it said look in regrigerator for other perscription. She went in there and got out a box with 8 viles in it. I thought when I saw it that it probably had the last 2 (the number I get) viles in it and did not discover the mistake until I got home. To say the least, they were VERY happy that I was honest! I think when I added it up, I had $1000 worth of stuff there! > > > Re: epogen > > > Hi Miriam, > > There are pretty strict guidelines for Epogen. My hematocrit went down to > 32 > before I was started on it. It is not used for treatment for fatigue in > general, but only for anemia which often occurs in more advanced renal > disease. > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.