Hello all

[Guest guest]

Gail wrote:

>

> just want to know if we are all censored when our messages are

> posted??

A lot of email groups do use that format, but ours does not. As I

mentioned in the other message I sent just now, *no* messages have ever

been moderated in this group.

In email groups that are moderated, the moderation has two primary

purposes:

1) To keep the discussion on topic (so a group dedicated to Star Wars

for instance doesn't end up being flooded with messages that aren't of

interest to most of the people in the group).

2) To make it possible to block flamers... people who's main reason for

posting is to see how upset they can make other people.

In our group we've decided that that kind of full moderation would make

the group so it was too narrowly focused and didn't give people the

broad spectrum of support they need for all aspects of life with this

disease. Because of that decision we have to live with some

negatives... we do have to wade through a lot of off topic posts at

times (no that's not pointed at anyone!), and occasionally a fight

erupts and feelings are hurt. On the whole I think we're better for it

(especially since I don't think either or I have the time it

would take to actually do active moderation of all the posts that come

through this group each day!)

athan

[Guest guest]

Gail,

I've had an ileostomy and now a continent ostomy since 1972. I eat whatever I want with no problems. One of the keys for me is to chew my food very carefully. Only rarely have I had problems with some foods (usually popcorn). The only modification I've made in my diet recently in deference to the PSC is to cut down on fat intake but that was on my own, not due to my doctors recommendation. Hope that helps.

Barby

UC - age 11, ileostomy - age 17 (1972), continent ostomy - 1994

PSC - 1995

married 23 years, 5 sons ages 10-21

KS - tornado (1983) and house fire (2002) survivor

[Guest guest]

>what should i be avoiding in my diet besides fat lead me in the

>right direction lots of food hard for me to digest because of my

>ileostomy no raw veg. or fruit nuts ect help thank you gail

Gail, My husband Bob has had an ileo since '67 and is on prevacid was

on prilosec. He watches soft breads, very spicey foods, beans, nuts,

raw fruit, and raw vegetables, because many of these do not digest

and come out mostly whole, ouch. He does eat tomatoes sparingly, and

finds that bib and only the leafy part of romaine lettuce with small

amounts of tomato and some hard boiled egg, or shredded cheese to

change the taste some. Because of the inability to ingest many of

these needed foods for nutrients I push, push, multi-vitamin and

supplements(many times he can not take because they also upset his

stomach) also he eats whole wheat bread and yogurt and sometime Boost

or Slim Fast(it is supposed to have vitamins,nutrients). Hope this

helps some.

Dee in Peoria, wife of Bob 59, UC, ileo, psc

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[Guest guest]

I am so sorry haven't written I get very limited PC access. I am

looking into better housing due to the fact that my physical

limitations have increased greatly due to my MS.

I am looking into a better option now, but I have to be approved to get a twice

as costly rent from the ones who provide my waiver. Also I am waiting on a

anti-fatigue drug that I hope will lessen my fatigue brought on by my MS.

And my leg muscles have weakened and I cannot walk even 2 blocks

without getting sore muscles. So i am waiting to be approved by medical

for a scooter or power chair.

Please keep me in your thoughts and prayers and if you would like to

write back. My personal address is lauralonelyheart777@...