Guest guest Posted October 1, 1999 Report Share Posted October 1, 1999 In a message dated 10/1/1999 7:49:31 PM Eastern Daylight Time, wog@... writes: << Is it possible for a child with a progressive loss to have a sudden drop in hearing in a 24 hour period???? >> My son had a sudden loss of around 40dB in the highs and 15 in the lows in less than a month. Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 1999 Report Share Posted October 1, 1999 In a message dated 10/1/1999 10:36:46 PM Eastern Daylight Time, dehahn@... writes: << I know kids that have lost 30dB's overnight. Sometimes it keeps me up at night. Chris >> I know what you mean. We took Jake in for a sudden change in reaction to sound and he had lost 10-20dB in scattered area's of the audio. IN 3 weeks he seemed even worse with the aid adjustments and we found he lost more. Believe me I was scared to death he would wake up one morning with nothing left. I met a lady once a cue camp that had that happen to her son and it scares the poop outta you. Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 1999 Report Share Posted October 1, 1999 At 07:51 PM 10/1/99 -0400, you wrote: > > >Is it possible for a child with a progressive loss to have a sudden drop in >hearing in a 24 hour period???? It's possible for any kid with a hearing loss, and is more common than most people think. A progressive loss is not a prerequisite. Chris << Christofer deHahn..................Manager, EDA Systems and Test >> << Quantum Corporation...........Shrewsbury, Massachusetts, USA >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 1999 Report Share Posted October 1, 1999 At 10:21 PM 10/1/99 -0400, you wrote: >From: Beat4girl@... > >In a message dated 10/1/1999 7:49:31 PM Eastern Daylight Time, wog@... >writes: > ><< Is it possible for a child with a progressive loss to have a sudden drop in > hearing in a 24 hour period???? >> > >My son had a sudden loss of around 40dB in the highs and 15 in the lows in >less than a month. I know kids that have lost 30dB's overnight. Sometimes it keeps me up at night. Chris << Christofer deHahn..................Manager, EDA Systems and Test >> << Quantum Corporation...........Shrewsbury, Massachusetts, USA >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 1999 Report Share Posted October 1, 1999 Yes it is. However, I'd check for ear infection first before I worry. We just got 's new aids two days ago. Today he could not hear with them on max volume. AARRGGHH I thought...already broken! Questioned further and decided to take him to the ER Urgent Care at one of our hospitals. He has a VERY inflamed ear and throat and probable strep so he's on Zithromax. So, the h/a's seem to be okay. " w.o.g. " wrote: > > > Is it possible for a child with a progressive loss to have a sudden drop in > hearing in a 24 hour period???? > tols me today that his one hearing aid was not working and shortly > after that they both were not working. Called the hearing aid place, > checked batteries, ect ect...their suggestion is immidiate audiogram and > they are saying could be a sudden loss. The one other time he complained > aids were not working they infact had a hole in the tubing and were not > working..this time I examined them and listened through them ect ect...they > are working. > The thing is I feel like i did when we first found out about his loss all > over again.... > Is there anyone out there with any other suggestions as to what this problem > might be???? > ~ and 's Mom > > At 03:14 PM 30/09/99 -0500, you wrote: > > > > > >Sheri, > > > >I read to daughter daily and she sits beside my 4 yr. old daughter when she > is doing computer games. > >Pls. provide me more detailed information from your experiences with your > child. > >thanks. > >Tina > > > >SDunnstern@... wrote: > > > >> From: SDunnstern@... > >> > >> I have a few suggestion that can help a child to become an early reader. > >> 1) Read to them one-on-one a half an hour a day. > >> 2) There are some great early reader computer programs. > >> 3) a great catalog Is Primary Concepts > >> 1- > >> it is very Montessori based but more contemporary. > >> If you want some more specific information let me know. > >> was a VERY early reader. She learned to talk and read at the same > >> time. > >> Sheri > >> > >> > >> > All messages posted to this list are private and confidential. Each > post is the intellectual property of the author and therefore subject to > copyright restrictions. > > > >>All messages posted to this list are private and confidential. Each post > is the intellectual property of the author and therefore subject to > copyright restrictions. > > > > > > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 1999 Report Share Posted October 1, 1999 lost 30 db across the board overnight. He's also regained twenty overnight another time. Then lost another twenty five. Not from middle ear problems or fluid either. Christofer deHahn wrote: > > > At 10:21 PM 10/1/99 -0400, you wrote: > >From: Beat4girl@... > > > >In a message dated 10/1/1999 7:49:31 PM Eastern Daylight Time, wog@... > >writes: > > > ><< Is it possible for a child with a progressive loss to have a sudden drop in > > hearing in a 24 hour period???? >> > > > >My son had a sudden loss of around 40dB in the highs and 15 in the lows in > >less than a month. > > I know kids that have lost 30dB's overnight. > > Sometimes it keeps me up at night. > > Chris > > << Christofer deHahn..................Manager, EDA Systems and Test >> > << Quantum Corporation...........Shrewsbury, Massachusetts, USA >> > > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 1999 Report Share Posted October 3, 1999 In a message dated 10/1/99 7:49:34 PM Eastern Daylight Time, wog@... writes: << Is it possible for a child with a progressive loss to have a sudden drop in hearing in a 24 hour period???? >> Hi! My daughter has a fluctuating progressive loss. She tells me too sometimes her hearing aides are broken. I do all the systems check and bring her in for an audiogram for verification. For my daughter and myself our hearing fluctuates back and forth and over time we lose a bit of hearing. It can be very frustrating. A few times for her she has gone a day or two with no hearing and gradually regains some. Good luck Lori HOH and Audrey's mom HOH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 1999 Report Share Posted October 3, 1999 > >Barb in the cases where it was for no apparent reason did the sudden loss >correct or was it permenant?? Sorry memory is failing but is Petya >diagnosed with Alport?? That is what we think has... >I was prepared for a loss I just thought it would be tiny bits over >time...but then explained last night it may well have been little bits at a >time and that last little bit made it too much for the aids to compinsate. >In any case we have an Audiogram Monday morning....until then I suppose I >will just relax and hope for the best! >~ and 's Mom For her it has been temporary. It can last for months at a time. I think when it happens it happens gradually but seems like overnight. It is exactly as you described. The last little bit makes it too much for the hearing aids to compensate. After Petya was first diagnosed they had Petya on a schedule of audiograms every three months. So we had gone for an audiogram in Jan. Then her doctor wanted to put tubes in her ears to see if draining the fluid would improve her hearing. It was down about 5dB all across the board, this was in March. This was explained as testing variance. After surgery we had another audiogram. She was down about 5 dB all across the board. Again this was explained as testing variance. Then in April all of her class at school was given an audiogram by the school audiologist. Hers showed her down another 5dB. I always sent every copy of an audiogram to the school. After the teacher compared the one from school with the other copies I had sent she wrote me a note saying she was concerned about Petya's hearing and I might want to contact the doctor. By the time I got her in the audiogram was down another five dB. The audie told me testing variance again. What the audie was doing was always only looking at the last audiogram to compare. When I insisted she pull out all of them and compare them suddenly she realized that there was a definite downtrend. At this point the doctor wanted me to bring her in for an audiogram at any time I noticed a drop in hearing. It didn't matter when and all I was to do was call. Up to this point I didn't notice the drop in hearing. Petya was simply turning the hearing aids up. In May Petya suddenly couldn't hear. The audiogram showed her down another 10dB. At this point the hearing aids couldn't compensate. The doctor put her on a short course (10 days) of prednisone. This seemed to bring back her hearing. Now I am not sure if it was the medicine or time that helped because now we simply wait it out when it happens. I imagine that if we had waited it out that time it would have come back on its own without the medication too. Now I have some warning it is happening because Petya will start complaining that her hearing aids are " low " . She will tell me she turned them up and changed the battery and they are still " low " . She wants me to fix the aids. She is always in denial that it is her ears. During the first episode I described she lost some hearing that has never come back. That was three years ago. All the other times this has happened she has not lost hearing permanently. Every child is different. I have heard of some that lose it all overnight and it gradually comes back although never quite as good as it was before the sudden loss. I can only tell you about what it is like for Petya and what our experience is. I do know that it took time to convince the school and the doctor's as well that her hearing was fluctuating. It is important to know if it is fluctuating because her IEP needs to reflect that. You want to make sure the support is there for the worst hearing days. We aren't sure if she does have Alport's. The doctors think so but without a biopsy can't be sure. I don't want to put her through that until there is a good reason too. Right now she is doing well with only trace amounts of blood and protein in her urine. We are down to yearly monitoring of her kidneys. If it is Alport's since she is a girl she could be 50 years old before she really has a problem with kidney function. She may never have a problem with function. So I have put this worry out of my mind. I have so many other things to worry about. :-) Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 1999 Report Share Posted October 3, 1999 Barb Thank you so much for all the information....I will be sure to update youon our Audiogram on Monday. ~ and 's Mom At 08:39 AM 03/10/99 -0400, you wrote: > > > >> >>Barb in the cases where it was for no apparent reason did the sudden loss >>correct or was it permenant?? Sorry memory is failing but is Petya >>diagnosed with Alport?? That is what we think has... >>I was prepared for a loss I just thought it would be tiny bits over >>time...but then explained last night it may well have been little bits at a >>time and that last little bit made it too much for the aids to compinsate. >>In any case we have an Audiogram Monday morning....until then I suppose I >>will just relax and hope for the best! >>~ and 's Mom > > >For her it has been temporary. It can last for months at a time. I think >when it happens it happens gradually but seems like overnight. It is >exactly as you described. The last little bit makes it too much for the >hearing aids to compensate. > >After Petya was first diagnosed they had Petya on a schedule of audiograms >every three months. So we had gone for an audiogram in Jan. Then her >doctor wanted to put tubes in her ears to see if draining the fluid would >improve her hearing. It was down about 5dB all across the board, this was >in March. This was explained as testing variance. After surgery we had >another audiogram. She was down about 5 dB all across the board. Again >this was explained as testing variance. > >Then in April all of her class at school was given an audiogram by the >school audiologist. Hers showed her down another 5dB. I always sent every >copy of an audiogram to the school. After the teacher compared the one from >school with the other copies I had sent she wrote me a note saying she was >concerned about Petya's hearing and I might want to contact the doctor. By >the time I got her in the audiogram was down another five dB. > >The audie told me testing variance again. What the audie was doing was >always only looking at the last audiogram to compare. When I insisted she >pull out all of them and compare them suddenly she realized that there was a >definite downtrend. > >At this point the doctor wanted me to bring her in for an audiogram at any >time I noticed a drop in hearing. It didn't matter when and all I was to do >was call. > >Up to this point I didn't notice the drop in hearing. Petya was simply >turning the hearing aids up. In May Petya suddenly couldn't hear. The >audiogram showed her down another 10dB. At this point the hearing aids >couldn't compensate. The doctor put her on a short course (10 days) of >prednisone. This seemed to bring back her hearing. Now I am not sure if it >was the medicine or time that helped because now we simply wait it out when >it happens. I imagine that if we had waited it out that time it would have >come back on its own without the medication too. > >Now I have some warning it is happening because Petya will start complaining >that her hearing aids are " low " . She will tell me she turned them up and >changed the battery and they are still " low " . She wants me to fix the aids. >She is always in denial that it is her ears. > >During the first episode I described she lost some hearing that has never >come back. That was three years ago. All the other times this has happened >she has not lost hearing permanently. > >Every child is different. I have heard of some that lose it all overnight >and it gradually comes back although never quite as good as it was before >the sudden loss. I can only tell you about what it is like for Petya and >what our experience is. I do know that it took time to convince the school >and the doctor's as well that her hearing was fluctuating. It is important >to know if it is fluctuating because her IEP needs to reflect that. You >want to make sure the support is there for the worst hearing days. > >We aren't sure if she does have Alport's. The doctors think so but without >a biopsy can't be sure. I don't want to put her through that until there is >a good reason too. Right now she is doing well with only trace amounts of >blood and protein in her urine. We are down to yearly monitoring of her >kidneys. If it is Alport's since she is a girl she could be 50 years old >before she really has a problem with kidney function. She may never have a >problem with function. So I have put this worry out of my mind. I have so >many other things to worry about. :-) > >Barb > >>All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > > Quote Link to comment Share on other sites More sharing options...
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