Re: Undefined pain-Tim

[Guest guest]

Tim Downing wrote:

> :

> The problem is this, I have very acute pain in my right shoulder like

> ive thrown it out that extends from my neck and then down my arm to

> the fingers. The more I do with it, the worse the pain is to the point

> where I can't even touch the skin. All the pressure points on my arm

> have the same sensation.

Tim,

I don't mean to scare you, but RSD (reflex sympathetic dystrophy)

sometimes has the similar symptoms. Surgery is sometimes a trigger.

You can also be hypersensitive in all your nerve endings and muscles

after your surgery, so I hope it will eventually subside.

Please tell your doctor. I know what you mean about Physical Therapy. I

interview my therapists as others have suggest and more, harder, and extensive

are not words or actions used in my physical therapy plans.

It is gentle, slow, stretches, and myofascial release for deep cramps

by someone who is trained specifically to break up or prevent scar

tissue and release the cramps.

I had what you described and I will NEVER subject myself to that to

please a physical therapist who told me I was " wimpy " . I forgot what

type of surgery you had. People have been known to have dislocated

joints during surgical procedures. Moving around dead weight can cause

injuries. My surgeon told me when I woke up from hip pain from a hysterectomy

that she thought it was from the procedure.

They place you in stirrup straps that are equal with your shoulders.

That type of extension can cause a muscle injury. I went to physical

therapy for six weeks to manage that !

My neurosurgeon who did my three level spinal fusion with

instrumentation, told me he had to wrestle through the scarring and

other things to get the rods, screws, and cages in. I did not question the

feeling that went all down my leg medially for six months and then subsided. Go

Figure.

I was a surgical x-ray technician and have witnessed orthopedic surgery first

hand, and people should feel bruised and beat up as they are really manipulated

to get the desired effect in some of the operations.

Please let your doctor know so he can do some x-rays on your " thrown

out of place feeling " unless your were structurally manipulated. The

wasp sting sounds like nerve endings letting you know they are there ! I am not

a doctor though, so I am just going by my experience and what I have been told.

Don't suffer through it. I did not know for seven months my Sacral

Iliac joint was misaligned in an auto accident, they thought it was

just from my back being traumatized and Sciatica.

The good physical therapist did all the measurements, extension and

flexion testing, and said, No wonder. It was not sciatica. My Sacral

Iliac joint was misaligned from stepping on the brake so hard when the car

pulled out in front of me on a major highway going 60 miles an hour. After it

was put back in place, I could tell the difference. I kept saying I feel like my

right leg was shorter than the other, it was.

I wear a sacral iliac belt to prevent hyper-mobility and displacement

but sure enough, a wrong step or movement and it happens again.

Go figure ! Please have it checked, let us know what you find out.

Bennie

>

[Guest guest]

Bennie,

Yes I agree with all of that. The scary part to me is that dr' and surgeon's

alike become complacent with the " norm " . They always seem to have a story that

starts out with " oh, you think thats bad? "

It took 6-7 hours for him to remove the scar tissue. I cant even imagine the

amount of trauma on the nerves during that process. All I know for sure though

is, the pain is there, regardless of what anyone says, and I wont just go away.

I have been fighting since 2004 to get fixed and I have not even the slightest

inkling to give up.

Thank you though for the insight and possibilities. I am noting all of that.

The thing Im not sure of is that post-op the 1st surgery, they did an MRI. Of

course with a disk replacement, the protocol is a little different with that

NeoDisk. But even so, it was inflamed around the spinal canal. I was feeling

pretty good for a couple of months, then I just went downhill and so they did

another MRI to find that again, it was inflamed. So, surgery #2, he does the

fusion. Post op this time they do an x-ray. He looks at the x-ray and says its

perfect and he has no ideaa what the pain could be. After 7 months of knowing

that the same pain was inflammation around the spinal canal, how could he say

that?

He has told me he's not giving up so Im not totally worried, Im just

frustrated. Pain can KISS MY EVER LIVING BUTT!! LOL

smiles for miles

Tim

[Guest guest]

Tim Downing wrote:

> So, surgery #2, he does the fusion. Post

> op this time they do an x-ray. He looks at the x-ray and says its

> perfect and he has no ideaa what the pain could be. After 7 months of

> knowing that the same pain was inflammation around the spinal canal,

> how could he say that?

>>

Tim,

I have similar problems, after my three level fusion with

instrumentation and cages, a follow up MRI showed A-OK. I have

an auto accident new SI pain but a myelogram and MRI show an area of

scarring or a displaced herniated disc in the area that pains me, so to speak.

Well this years MRI, shows this cloudy stuff has migrated but they

still feel no impingement and will my metal it is hard to differciate and all

doctors say, going in there could cause more harm than good so I ride it out.

Also, wanting to be the every so complacent conservative approach

patient, I subjected myself to many epidurals, facet injections, diagnostic

injections (this is where they just stick wherever to see if it hurts), and a

injection of corrosive stuff to dissolve the scar tissue, Sure you say ! In the

quest for pain relief, my common sense evades me. If it dissolves scar tissue,

wouldn't it dissolve everything else. The real answer is YES. They are

factually called nuero toxins and my soap box is NO EPIDURALS.

There are a few us here, you don't want to get us going about this.

There is a thing called arachnoiditis that occurs from repeated injections that

is irreversible and very very painful. I have been told I am probably a proud

owner of this by the neuroradiologist but don't say it to loud as some doctors

deny it exists.

SO , i keep going the best I can until I can be sure of a decision I

make. No more invasive interventions if I can help. Repeat until you believe.

Bennie

[Guest guest]

Tim,

I completely understand where you are coming from when you feel like

the doctor acts like he isn't sure what is causing your pain.

My doctors, the orthopedist & the pain specialist, can't understand

why my knee is still hurting after I received my spinal column

stimulator. The stimulator is controlling my RSD (thank God) but the

problems with my right knee are still there. As a matter of fact, the

pain specialist took xrays of my lumbar all the way down to my feet.

In those xrays, it showed that the right hip & knee have significant

arthritis in them.

I have felt all along that I would not have this localized pain in

my knee if I could get a total knee replacement.

It is going to take me awhile to fight for that to happen.

I just wanted to let you know that I can completely understand where

you are coming from when you speak of the frustration of your doctor.

I hope you have a low pain day,

Lori

>

> Tim Downing wrote:

>

> > So, surgery #2, he does the fusion. Post

> > op this time they do an x-ray. He looks at the x-ray and says its

> > perfect and he has no ideaa what the pain could be. After 7

months of knowing that the same pain was inflammation around the spinal canal,

how could he say that?

> >>

>