Re:Prayers for cousin with HepC

April 13, 2000

Kathy, I am praying for your cousin. I too have HepC but fortunatly

mine isn't at that stage yet. However, it was the Interferon Alpha

treatment for the HepC that made my PLS progress so rapidly. My new

doc says it is very interesting because Interferon Alpha has been

known to cause MS get worse but the Interferon Beta actually helps

it. He is curious as to if the Beta form would help my PLS and my

HepC. He wants to do a spinal tap to see if there is anything there

to make it worthwhile to check out. The problem we are having with

me is that most meds that help with spasticity also can cause liver

damage. So we are looking into the baclofen pump.

If you let me know your cousin's first name, my prayers will work

even better! Did you know they are starting to do some live donor

transplants now. There is such a shortage of livers and the waiting

list is pretty long. She may need to query family to see if needed

anyone could help donate a portion of their liver. My heart goes out

to her. It must be a terribly frightening time for her and her

family.

Also, on your injections, when I gave myself the Interferon

injections, they came in a " multi-dose pen " . I just screwed a needle

on, turned a dial to set my dose, and away you go. It was really

very easy. Ask your pharmacist if they have the pen with your

medication. I know how hard it is to give yourself a shot but you

are brave and you get a whole bunch of gold stars from me.

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