Re: Infrared Sauna Benefits - To

[Guest guest]

It sounds too good to be true! LOL!! LOL!! I'd like to have a sauna,

but as far as sweating out toxins, there are lots of ways to raise

body temperature and sweat. A good hot tub, or even in a pinch, a

good hot shower will get the sweat rolling for me. I've actually

found that heat of any kind makes me feel sicker, weaker, so I'm not

doing my hot soaks right now. We're all so different in our ways of

responding to this illness!

>

> ,

>

> I found a website that answered alot of your questions, and then

> some. Check out this website if you'd like to know more about far

> infrared sauna's.

>

> http://altmed.creighton.edu/sauna/repoted_benefits.htm

>

> Sis

>

[Guest guest]

, That sick feeling from heat is a Herx! . . . One indication you need more, not less heat. Just start with baby steps though. You're one person who would benefit greatly. BTW, the sweat from infrared contains many more toxins than regular sweat. I love my sauna! Rogenediana crocker <dwcrn@...> wrote: It sounds too good to be true! LOL!! LOL!! I'd like to have a sauna,but

as far as sweating out toxins, there are lots of ways to raisebody temperature and sweat. A good hot tub, or even in a pinch, agood hot shower will get the sweat rolling for me. I've actuallyfound that heat of any kind makes me feel sicker, weaker, so I'm notdoing my hot soaks right now. We're all so different in our ways ofresponding to this illness!>> ,> > I found a website that answered alot of your questions, and then > some. Check out this website if you'd like to know more about far > infrared sauna's.> > http://altmed.creighton.edu/sauna/repoted_benefits.htm> >

Sis>

[Guest guest]

Thanks Girls I'll read up !

[Guest guest]

I know, it does sound too good to be true!! Those who own them say

they've noticed a difference after using them, so I wouldn't mind

giving it a try. I do take a hot bath every day, and it doesn't

bother me. Although, I don't perspire very much - only in the

summer and then that's only a tiny bit, so I probably need something

to force it out of me.

Sis

--- In , " diana crocker " <dwcrn@...>

wrote:

>

> It sounds too good to be true! LOL!! LOL!! I'd like to have a

sauna,

> but as far as sweating out toxins, there are lots of ways to raise

> body temperature and sweat. A good hot tub, or even in a pinch, a

> good hot shower will get the sweat rolling for me. I've actually

> found that heat of any kind makes me feel sicker, weaker, so I'm

not

> doing my hot soaks right now. We're all so different in our ways

of

> responding to this illness!

>

>

> --- In , " auntsisnj " <auntsisnj@>

wrote:

> >

> > ,

> >

> > I found a website that answered alot of your questions, and then

> > some. Check out this website if you'd like to know more about

far

> > infrared sauna's.

> >

> > http://altmed.creighton.edu/sauna/repoted_benefits.htm

> >

> > Sis

> >

>

[Guest guest]

Dear Lynda, et al!

Ooops! I'm confused. I have Lupus with vasculitis affecting the

central and peripheral nervous systems. I _have_ always thought heat

seemed to make me feel ill. But I can see where it can be a Herk--I

have been reading about detoxing, and I believe that Herk occurs.

Well, I'd love to hear more from others about this. I need more

input; I am going to talk with my physical therapist, myofascial body

worker about it. Her treatments have seemed to bring on Herk

symptoms, but, yes, they are similar to my original lupus symptoms, too!

> > >

> > > ,

> > >

> > > I found a website that answered alot of your questions, and then

> > > some. Check out this website if you'd like to know more about far

> > > infrared sauna's.

> > >

> > >

> >

<http://altmed.creighton.edu/sauna/repoted_benefits.htm>http://altmed.creighton.\

edu/sauna/repoted_benefits.htm

> > >

> > > Sis

> > >

> >

> >

> >

>

[Guest guest]

Yes, heat makes me sick also, especially moist

heat, but I cannot tolerate heat, dry or wet. So a sauna is not in my future.

Lynda

At 10:47 PM 11/13/2006, you wrote:

>It sounds too good to be true! LOL!! LOL!! I'd like to have a sauna,

>but as far as sweating out toxins, there are lots of ways to raise

>body temperature and sweat. A good hot tub, or even in a pinch, a

>good hot shower will get the sweat rolling for me. I've actually

>found that heat of any kind makes me feel sicker, weaker, so I'm not

>doing my hot soaks right now. We're all so different in our ways of

>responding to this illness!

>

>

>

> >

> > ,

> >

> > I found a website that answered alot of your questions, and then

> > some. Check out this website if you'd like to know more about far

> > infrared sauna's.

> >

> >

>

<http://altmed.creighton.edu/sauna/repoted_benefits.htm>http://altmed.creighton.\

edu/sauna/repoted_benefits.htm

> >

> > Sis

> >

>

>

[Guest guest]

Dearest Rogene:

I have been worried about your broken arm. We thought that it was your hand! I am sorry about your more serious injury. Please get well soon.

We know that I have lupus, and the heat is so bad for me. Yesterday, I started to feel a bit better, but I had the worst GI ever for a few days. Stress causes these awful flares, and we have had our share of stress. A lady in Toronto died from lupus last week, and it can be very serious if we do not have the proper care. We were told to get rid of the Hot Tub because my doctors did not want me to use it. Heat will cause an MS flare as well, and for me heat is deadly. Our family doctor called me on Sunday, and he was glad when I told him that the tub was gone...he hates hot tubs!

Take care of our Rogene...love always...Lea

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~``

Re: Re: Infrared Sauna Benefits - To

Lynda and ,

It really is confusing because implanted women have had their Lupus (and other) dx's reversed after being explanted and detoxing.

The whole implant illness thing needs much study . . .

L.Ron Hubbard wrote a book on sweat detoxing years ago. "Clear Body, Clear Mind" I don't agree with his religious views . . .but the Scientology Church has set up detox centers across the country where people have gotten outstanding results. Tom Cruise donated multiple units for 9/11 rescue people.

I adapted his program to use with a hot tub shortly after explant. I really didn't understand what I was doing - and quit when I started herxing badly. However, I did enough to know it helped me - my first breakthrough after implants.

An Infrared sauna is a considerable improvement over what he writes about. The light alone is beneficial - even without the heat.

My daughter, and occupational therapist, has seen it benefit the Alzheimer's patients she works with considerably. She uses light units or pads - not a sauna.

Infrared therapy has been proven to benefit peripheral neuropathy in as little as one treatment.

I'm so frustrated right now . . . I'd love to be using my sauna, but I don't want to sweat unter this cast on my arm!

Oh yes, massage can bring on a herx too! . . . Thankfully, with a herx, when it's over, you should feel better than you did before the treatment. Drink plenty non-chlorinated water!

Rogene

diana crocker <dwcrncharter (DOT) net> wrote:

Dear Lynda, et al!Ooops! I'm confused. I have Lupus with vasculitis affecting thecentral and peripheral nervous systems. I _have_ always thought heatseemed to make me feel ill. But I can see where it can be a Herk--Ihave been reading about detoxing, and I believe that Herk occurs. Well, I'd love to hear more from others about this. I need moreinput; I am going to talk with my physical therapist, myofascial bodyworker about it. Her treatments have seemed to bring on Herksymptoms, but, yes, they are similar to my original lupus symptoms, too! > > >> > > ,> > >> > > I found a website that answered alot of your questions, and then> > > some. Check out this website if you'd like to know more about far> > > infrared sauna's.> > >> > > > ><http://altmed.creighton.edu/sauna/repoted_benefits.htm>http://altmed.creighton.edu/sauna/repoted_benefits.htm> > >> > > Sis> > >> >> >> >>

[Guest guest]

Rogene:

> Lynda and ,

>

> It really is confusing because implanted women have had their Lupus

> (and other) dx's reversed after being explanted and detoxing.

Yes! But I haven't. 'Though better my CTD and MS-like symptoms are

still with me!

Rogene:

> Oh yes, massage can bring on a herx too! . . . Thankfully, with a

> herx, when it's over, you should feel better than you did before the

> treatment. Drink plenty non-chlorinated water!

Yes, and yes.

Lynda:

> If you have lupus, the sick feeling from heat is

> not a herx, it is you getting very sick.

Yes, that's true for me. Good discussion, friends!

[Guest guest]

I'm one that can TRULY testify to the benefits of my portable infrared sauna! I used to get sooo achy... and just flat out " blah " feeling. From the moment my sauna arrived, i sat in it RELIGIOUSLY! It's true that you need to work your way up (in minutes and hot-level). I'm now up to an hour in the morning and an hour at night. I drink a lot of distilled water as well as taking my electrolytes.

It's like night and day after sitting in my sauna. For a while there i had brown stuff coming out of me. (pretty gross). I took pics but i don't know how to post them.

In the beginning, If i missed a session in my sauna i could tell a HUGE difference! I just didn't feel good. NOW, i don't have to sit in it as often. Sometimes I'll skip a few days. However; I love sitting in it. It's usually my " relax & wind down " time. I'll watch t.v., etc.

Hope my input helps! It was one of the best investments I've made, and it was only $200 on eBay. (Brand new, portable).

-

On 11/14/06, auntsisnj <auntsisnj@...> wrote:

I know, it does sound too good to be true!! Those who own them say they've noticed a difference after using them, so I wouldn't mind giving it a try. I do take a hot bath every day, and it doesn't bother me. Although, I don't perspire very much - only in the summer and then that's only a tiny bit, so I probably need something to force it out of me. Sis> >> > ,> > > > I found a website that answered alot of your questions, and then > > some. Check out this website if you'd like to know more about far > > infrared sauna's.> > > > http://altmed.creighton.edu/sauna/repoted_benefits.htm

> > > > Sis> >>

[Guest guest]

You might benefit from light therapy. . . as in light units or pads. . . They generate very little heat - what heat occurs is internal rather than external. Rogene Lynda <coss@...> wrote: My peripheral neuropathy gets MUCH worse with any heat.LyndaAt 10:04 PM 11/14/2006, you wrote:>Lynda and ,>>It really is confusing because implanted women >have had their Lupus (and other) dx's reversed >after being

explanted and detoxing.>>The whole implant illness thing needs much study . . .>>L.Ron Hubbard wrote a book on sweat detoxing >years ago. "Clear Body, Clear Mind" I don't >agree with his religious views . . .but the >Scientology Church has set up detox centers >across the country where people have gotten >outstanding results. Tom Cruise donated multiple units for 9/11 rescue people.>>I adapted his program to use with a hot tub >shortly after explant. I really didn't >understand what I was doing - and quit when I >started herxing badly. However, I did enough to >know it helped me - my first breakthrough after implants.>>An Infrared sauna is a considerable improvement >over what he writes about. T he light alone is >beneficial - even without the heat.>>My daughter, and occupational therapist, has >seen it benefit the

Alzheimer's patients she >works with considerably. She uses light units or pads - not a sauna.>>Infrared therapy has been proven to benefit >peripheral neuropathy in as little as one treatment.>>I'm so frustrated right now . . . I'd love to be >using my sauna, but I don't want to sweat unter this cast on my arm!>>Oh yes, massage can bring on a herx too! . . . >Thankfully, with a herx, when it's over, you >should feel better than you did before the >treatment. Drink plenty non-chlorinated water!>>Rogene>>>>diana crocker <dwcrncharter (DOT) net> wrote:>Dear Lynda, et al!>Ooops! I'm confused. I have Lupus with vasculitis affecting the>central and peripheral nervous systems. I _have_ always thought heat>seemed to make me feel ill. But I can see where it can be a

Herk--I>have been reading about detoxing, and I believe that Herk occurs.>Well, I'd love to hear more from others about this. I need more>input; I am going to talk with my physical therapist, myofascial body>worker about it. Her treatments have seemed to bring on Herk>symptoms, but, yes, they are similar to my original lupus symptoms, too!>>>> > > >> > > > ,> > > >> > > > I found a website that answered alot of your questions, and then> > > > some. Check out this website if you'd like to know more about far> > > > infrared sauna's.> > > >> > > >> > >><<http://altmed.creighton.edu/sauna/repoted_benef >its.htm>http://altmed.creighton.edu/sauna/repoted_benefits.htm>http://altmed.creighton.edu/sauna/repoted_benefits.htm> > > >> > > > Sis> > > >> > >> > >> > >> >>>>

[Guest guest]

, Did you have silicone gel implants? Ruptured? Rogene Crocker <dwcrn@...> wrote: Rogene:> Lynda and ,>> It really is confusing because implanted women have had their Lupus > (and other) dx's reversed after being explanted and detoxing.Yes! But I haven't. 'Though better my CTD and MS-like symptoms are still with me!Rogene:> Oh yes, massage can bring on a herx

too! . . . Thankfully, with a > herx, when it's over, you should feel better than you did before the > treatment. Drink plenty non-chlorinated water!Yes, and yes.Lynda:> If you have lupus, the sick feeling from heat is> not a herx, it is you getting very sick.Yes, that's true for me. Good discussion, friends!

[Guest guest]

The arm is more frustration than anything! . . . The cast they put on Monday isn't fitting well . . . either they are going to fix it, or I'm going to start hacking away at it. I'm staying irritated - without cause! Grrrrrrrrrr is the word for the week! RogeneLea <devans@...> wrote: Dearest Rogene: I

have been worried about your broken arm. We thought that it was your hand! I am sorry about your more serious injury. Please get well soon. We know that I have lupus, and the heat is so bad for me. Yesterday, I started to feel a bit better, but I had the worst GI ever for a few days. Stress causes these awful flares, and we have had our share of stress. A lady in Toronto died from lupus last week, and it can be very serious if we do not have the proper care. We were told to get rid of the Hot Tub because my doctors did not want me to use it. Heat will cause an MS flare as well, and for me heat is deadly. Our family doctor called me on Sunday, and he was glad when I told him that the tub was gone...he hates hot tubs! Take care of our Rogene...love always...Lea ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~`` Re: Re: Infrared Sauna Benefits - To Lynda and , It really is confusing because implanted women have had their Lupus (and other) dx's reversed after being explanted and detoxing. The whole implant illness thing needs much study . . . L.Ron Hubbard wrote a book on

sweat detoxing years ago. "Clear Body, Clear Mind" I don't agree with his religious views . . .but the Scientology Church has set up detox centers across the country where people have gotten outstanding results. Tom Cruise donated multiple units for 9/11 rescue people. I adapted his program to use with a hot tub shortly after explant. I really didn't understand what I was doing - and quit when I started herxing badly. However, I did enough to know it helped me - my first breakthrough after implants. An Infrared sauna is a considerable improvement over what he writes about. The light alone is beneficial - even without the heat. My daughter, and occupational therapist, has seen it benefit the Alzheimer's patients she works with considerably. She uses light units or pads - not a sauna. Infrared therapy has been proven to benefit peripheral

neuropathy in as little as one treatment. I'm so frustrated right now . . . I'd love to be using my sauna, but I don't want to sweat unter this cast on my arm! Oh yes, massage can bring on a herx too! . . . Thankfully, with a herx, when it's over, you should feel better than you did before the treatment. Drink plenty non-chlorinated water! Rogene diana crocker <dwcrncharter (DOT) net> wrote: Dear Lynda, et al!Ooops! I'm confused. I have Lupus with vasculitis affecting thecentral and peripheral nervous systems. I _have_ always thought heatseemed to make me feel ill. But I can see where it can be a Herk--Ihave been reading about detoxing, and I believe that Herk occurs. Well, I'd

love to hear more from others about this. I need moreinput; I am going to talk with my physical therapist, myofascial bodyworker about it. Her treatments have seemed to bring on Herksymptoms, but, yes, they are similar to my original lupus symptoms, too! > > >> > > ,> > >> > > I found a

website that answered alot of your questions, and then> > > some. Check out this website if you'd like to know more about far> > > infrared sauna's.> > >> > > > ><http://altmed.creighton.edu/sauna/repoted_benefits.htm>http://altmed.creighton.edu/sauna/repoted_benefits.htm> > >> > > Sis> > >> >> >> >>

[Guest guest]

, If you want to send them to me, I'll post them. Rogene Shoham <resultsbyrachel@...> wrote: I'm one that can TRULY testify to the benefits of my portable infrared sauna! I used to get sooo achy... and just flat out "blah" feeling. From the moment my sauna arrived, i sat in it RELIGIOUSLY! It's true that you need to work your way up (in minutes and hot-level). I'm now up to an hour in the morning and an

hour at night. I drink a lot of distilled water as well as taking my electrolytes. It's like night and day after sitting in my sauna. For a while there i had brown stuff coming out of me. (pretty gross). I took pics but i don't know how to post them. In the beginning, If i missed a session in my sauna i could tell a HUGE difference! I just didn't feel good. NOW, i don't have to sit in it as often. Sometimes I'll skip a few days. However; I love sitting in it. It's usually my "relax & wind down" time. I'll watch t.v., etc. Hope my input helps! It was one of the best investments I've made, and it was only $200 on eBay. (Brand new, portable). - On 11/14/06, auntsisnj <auntsisnjlycos> wrote: I know, it does sound too good to be true!! Those who own them say they've noticed a difference after using them, so I wouldn't mind giving it a try. I do take a hot bath every day, and it doesn't bother me. Although, I don't perspire very much - only in the summer and then that's only a tiny bit, so I probably need something to force it out of me. Sis> >> > ,> > > > I found a website that answered alot of your questions, and then > > some. Check out this website if you'd like to know more about far > > infrared sauna's.> > > > http://altmed.creighton.edu/sauna/repoted_benefits.htm > > > > Sis> >>

[Guest guest]

-Rogene,

I feel your frustration. I had a cystoscopy today and just about

everyday of the week I have been getting tested for something, I am

going to stop all this testing soon. Then I will just do detox and

foot bath and massage therapy. I am tired of of the tests and

different doctors. They just want to keep giving me pills, I have

pretty much went off everything but my flexaril. I can't sleep

without something, Hang in there this too shall pass.

Terri P

-- In , Rogene S <saxony01@...> wrote:

>

> The arm is more frustration than anything! . . . The cast they put

on Monday isn't fitting well . . . either they are going to fix it,

or I'm going to start hacking away at it.

>

> I'm staying irritated - without cause!

>

> Grrrrrrrrrr is the word for the week!

>

> Rogene

>

> Lea <devans@...> wrote:

> Dearest Rogene:

>

> I have been worried about your broken arm. We thought that it was

your hand! I am sorry about your more serious injury. Please get well

soon.

>

> We know that I have lupus, and the heat is so bad for me.

Yesterday, I started to feel a bit better, but I had the worst GI

ever for a few days. Stress causes these awful flares, and we have

had our share of stress. A lady in Toronto died from lupus last week,

and it can be very serious if we do not have the proper care. We were

told to get rid of the Hot Tub because my doctors did not want me to

use it. Heat will cause an MS flare as well, and for me heat is

deadly. Our family doctor called me on Sunday, and he was glad when I

told him that the tub was gone...he hates hot tubs!

>

> Take care of our Rogene...love always...Lea

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~``

> Re: Re: Infrared Sauna Benefits - To

>

>

> Lynda and ,

>

> It really is confusing because implanted women have had their

Lupus (and other) dx's reversed after being explanted and detoxing.

>

> The whole implant illness thing needs much study . . .

>

> L.Ron Hubbard wrote a book on sweat detoxing years ago. " Clear

Body, Clear Mind " I don't agree with his religious views . . .but the

Scientology Church has set up detox centers across the country where

people have gotten outstanding results. Tom Cruise donated multiple

units for 9/11 rescue people.

>

> I adapted his program to use with a hot tub shortly after

explant. I really didn't understand what I was doing - and quit when

I started herxing badly. However, I did enough to know it helped me -

my first breakthrough after implants.

>

> An Infrared sauna is a considerable improvement over what he

writes about. The light alone is beneficial - even without the heat.

>

> My daughter, and occupational therapist, has seen it benefit the

Alzheimer's patients she works with considerably. She uses light

units or pads - not a sauna.

>

> Infrared therapy has been proven to benefit peripheral neuropathy

in as little as one treatment.

>

> I'm so frustrated right now . . . I'd love to be using my sauna,

but I don't want to sweat unter this cast on my arm!

>

> Oh yes, massage can bring on a herx too! . . . Thankfully, with a

herx, when it's over, you should feel better than you did before the

treatment. Drink plenty non-chlorinated water!

>

> Rogene

>

>

>

> diana crocker <dwcrn@...> wrote:

> Dear Lynda, et al!

> Ooops! I'm confused. I have Lupus with vasculitis affecting the

> central and peripheral nervous systems. I _have_ always thought heat

> seemed to make me feel ill. But I can see where it can be a Herk--I

> have been reading about detoxing, and I believe that Herk occurs.

> Well, I'd love to hear more from others about this. I need more

> input; I am going to talk with my physical therapist, myofascial

body

> worker about it. Her treatments have seemed to bring on Herk

> symptoms, but, yes, they are similar to my original lupus symptoms,

too!

>

>

>

> > > >

> > > > ,

> > > >

> > > > I found a website that answered alot of your questions, and

then

> > > > some. Check out this website if you'd like to know more about

far

> > > > infrared sauna's.

> > > >

> > > >

> > >

>

<http://altmed.creighton.edu/sauna/repoted_benefits.htm>http://altmed.

creighton.edu/sauna/repoted_benefits.htm

> > > >

> > > > Sis

> > > >

> > >

> > >

> > >

> >

>

[Guest guest]

My peripheral neuropathy gets MUCH worse with any heat.

Lynda

At 10:04 PM 11/14/2006, you wrote:

>Lynda and ,

>

>It really is confusing because implanted women

>have had their Lupus (and other) dx's reversed

>after being explanted and detoxing.

>

>The whole implant illness thing needs much study . . .

>

>L.Ron Hubbard wrote a book on sweat detoxing

>years ago. " Clear Body, Clear Mind " I don't

>agree with his religious views . . .but the

>Scientology Church has set up detox centers

>across the country where people have gotten

>outstanding results. Tom Cruise donated multiple units for 9/11 rescue people.

>

>I adapted his program to use with a hot tub

>shortly after explant. I really didn't

>understand what I was doing - and quit when I

>started herxing badly. However, I did enough to

>know it helped me - my first breakthrough after implants.

>

>An Infrared sauna is a considerable improvement

>over what he writes about. T he light alone is

>beneficial - even without the heat.

>

>My daughter, and occupational therapist, has

>seen it benefit the Alzheimer's patients she

>works with considerably. She uses light units or pads - not a sauna.

>

>Infrared therapy has been proven to benefit

>peripheral neuropathy in as little as one treatment.

>

>I'm so frustrated right now . . . I'd love to be

>using my sauna, but I don't want to sweat unter this cast on my arm!

>

>Oh yes, massage can bring on a herx too! . . .

>Thankfully, with a herx, when it's over, you

>should feel better than you did before the

>treatment. Drink plenty non-chlorinated water!

>

>Rogene

>

>

>

>diana crocker <dwcrn@...> wrote:

>Dear Lynda, et al!

>Ooops! I'm confused. I have Lupus with vasculitis affecting the

>central and peripheral nervous systems. I _have_ always thought heat

>seemed to make me feel ill. But I can see where it can be a Herk--I

>have been reading about detoxing, and I believe that Herk occurs.

>Well, I'd love to hear more from others about this. I need more

>input; I am going to talk with my physical therapist, myofascial body

>worker about it. Her treatments have seemed to bring on Herk

>symptoms, but, yes, they are similar to my original lupus symptoms, too!

>

>

>

> > > >

> > > > ,

> > > >

> > > > I found a website that answered alot of your questions, and then

> > > > some. Check out this website if you'd like to know more about far

> > > > infrared sauna's.

> > > >

> > > >

> > >

><<http://altmed.creighton.edu/sauna/repoted_benef

>its.htm>http://altmed.creighton.edu/sauna/repoted_benefits.htm>http://altmed.cr\

eighton.edu/sauna/repoted_benefits.htm

> > > >

> > > > Sis

> > > >

> > >

> > >

> > >

> >

>

>

>

[Guest guest]

Dear Terry, have you been diagnosed with an autoimmune and/or a

neurological disorder? Or are you just being given a diagnosis for

this symptom, and a diagnosis for that symptom, with no real feeling

that the doctors know or believe in what they are addressing? your

toxicity from implants? Or have they checked you for fibromyalgia?

Do they think you have that? Boy, I understand what you mean about

being sick of testing and pills that don't seem to help much.

However, I did have a diagnosis but couldn't find a rheumatologist or

neurologist who believed what was going on with me was from implants;

my first rheumie allowed that I had a very odd atypical Lupus. My

second one now seems to think I have RA even though my joints are

fine, no erosion, just painful sometimes as they are with Lupus. And

I don't have much joint stuff anymore. My worst symptoms have been

neurological, and I'm sick when I read how Dr. Patten treated some of

those of us with neurological sx and abnormal MRIs and testing in the

early 90s with IV immunoglobulin (?) and some other things. I should

have been seen by him. I have worse damage than I might have if I

could have had appropriate treatment. So, I was wondering what your

diagnosis is, and what the recommended tx is. Or are any of your

doctors even talking to each other! LOL! Mine never would, or will,

and that doesn't help treatment any. I have a better deal going now

than I have had, but the rheumie is no help; I may try working with my

neurologist. At least he is a kind, thoughtful man, who is willing to

think outside the box sometimes! Worth a try, I think!

> > > > >

> > > > > ,

> > > > >

> > > > > I found a website that answered alot of your questions, and

> then

> > > > > some. Check out this website if you'd like to know more about

> far

> > > > > infrared sauna's.

> > > > >

> > > > >

> > > >

> >

> <http://altmed.creighton.edu/sauna/repoted_benefits.htm>http://altmed.

> creighton.edu/sauna/repoted_benefits.htm

> > > > >

> > > > > Sis

> > > > >

> > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

-,

I was diagnosed with fibro ten years ago. I didn't know that whole

time it was from the implants. I had to figure that out for myself

after ten years of being sick, if just one of my 30+ doctors would

have suggested it could have been the problem I would have had them

taken out ten years ago, Maybe I wouldn't have gotten so bad, 2 years

ago I started having neuro problems, I was diagnosed with migraines

and cluster headaches. After I made the connection I had them removed

but still had a residual capsule in there for this year until I had

that removed, I am going through all this testing for my claim

because I needed certain criteria. I still have a bloated stomach and

all the fibro stuff, but I dont have the memory loss any more just

the headaches. My doctors want to blame everything on Fibro. I still

have a sed rate of 30 and was thinking that if I have inflammation in

all my joints maybe I have inflammation in my brain as well and that

is contributing to the headaches, Anti inflammatories don't help me

because I have stomach issues, I don't have RA or lupus.But I cant

get tests for platinum or silicone antibodies because none of my dr.s

know how to get these tests done. Thank you for your help. I am just

going to work on eating healthy, detox with hydrotherapy and foot

baths as well as finding a naturapath to get the right supplements.

My thyroid seems to be an issue I ran 2.85 when I used to run 1.85.

None of my Dr.s want to address this either. My muscles are not just

hurting but they are also weak, so I go to massage and joined curves.

I no longer take a bunch of meds just flexaril to relax the cramps I

get at night. Thank you again if you can think of anything else I

might try I am willing to help myself.

Terri P

-- In , " diana crocker " <dwcrn@...>

wrote:

>

> Dear Terry, have you been diagnosed with an autoimmune and/or a

> neurological disorder? Or are you just being given a diagnosis for

> this symptom, and a diagnosis for that symptom, with no real feeling

> that the doctors know or believe in what they are addressing? your

> toxicity from implants? Or have they checked you for fibromyalgia?

> Do they think you have that? Boy, I understand what you mean about

> being sick of testing and pills that don't seem to help much.

> However, I did have a diagnosis but couldn't find a rheumatologist

or

> neurologist who believed what was going on with me was from

implants;

> my first rheumie allowed that I had a very odd atypical Lupus. My

> second one now seems to think I have RA even though my joints are

> fine, no erosion, just painful sometimes as they are with Lupus.

And

> I don't have much joint stuff anymore. My worst symptoms have been

> neurological, and I'm sick when I read how Dr. Patten treated some

of

> those of us with neurological sx and abnormal MRIs and testing in

the

> early 90s with IV immunoglobulin (?) and some other things. I

should

> have been seen by him. I have worse damage than I might have if I

> could have had appropriate treatment. So, I was wondering what your

> diagnosis is, and what the recommended tx is. Or are any of your

> doctors even talking to each other! LOL! Mine never would, or will,

> and that doesn't help treatment any. I have a better deal going now

> than I have had, but the rheumie is no help; I may try working with

my

> neurologist. At least he is a kind, thoughtful man, who is willing

to

> think outside the box sometimes! Worth a try, I think!

>

>

>

>

> > > > > >

> > > > > > ,

> > > > > >

> > > > > > I found a website that answered alot of your questions,

and

> > then

> > > > > > some. Check out this website if you'd like to know more

about

> > far

> > > > > > infrared sauna's.

> > > > > >

> > > > > >

> > > > >

> > >

> >

<http://altmed.creighton.edu/sauna/repoted_benefits.htm>http://altmed.

> > creighton.edu/sauna/repoted_benefits.htm

> > > > > >

> > > > > > Sis

> > > > > >

> > > > >

> > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Terri writes...

But I cant

> get tests for platinum or silicone antibodies because none of my dr.s

> know how to get these tests done.

We are dancing in the same circle of frustration it seems! :-D

I can't get any of the things done that I need to have done either. I'm

writing a request for what I want, and how to order the tests I want,

and am going to give it to my doctors to see if anyone will respond, if

any of them give a damn! If my insurance won't pay for some of the

testing I will; I will use some of my settlement monies for that. I

feel more comfortable with medical doctors (how I have any faith left at

all is more than I can understand!) than NDs, 'though I may try one that

my friend with ALS sees. The medical doctor that is willing to help me,

if one of them will, must be willing to help me with alternative

treatment 'though...perhaps work with my friend's naturopath. So, this

is my plan at this point! I need testing to compare with all the workup

I had for the original settlement, to how things have changed.

Otherwise, how can I, or anyone treating me, know how to help me!

Everyone, including me wants me to 'work out,' to get strong and all of

that stuff. But my muscles are weak, not just from lack of exercising

hard enough, but because there is *atrophy*! I have nerve damage that

shows up in that way, as well as in some kind of seizures at night in

which I mutilate my tongue (I wear a mouth guard, splint, to prevent

further damage!); my dentist finally was the only one who took me

seriously about this! I also have difficulty swallowing, slow passage

of food in my intestines and other GI problems including pancreatitis (I

believe autoimmune). I, too, have headaches, which are related to

'flares,' brain damage as shown by brain MRI, and auto-antibodies

against my own myelin (covering on nerves), abnormally slow visual

evoked response testing, showing optic neuritis, inflammation of cranial

nerves (symptom is blurred vision), and definite areas of decreased

cognitive abilities in certain performance testing, showing damage again

to areas of the brain; this is revealed by neuro-psychological testing,

which I had done. I believe that damage done is damage done. But is

damage continuing to be done? Can anything be done about this? I think

I deserve to be taken care of like any other patient who has a medical

illness. I deserve to be treated with respect, and my needs attended

to, instead of being laughed at, and made to feel that my questions and

requests are irrelevant.

This is long...got carried away! But I wonder if you feel some of what

I'm feeling, Terri? Thank you for responding as if you believe me! :-)

[Guest guest]

,

Of course I believe you , nobody elects to go through this. Most of

the testing I have had recently is painful and not fun in the least,

we just want to get better, I feel like my brain is being sqeezed, I

believe tha it is inflammation in my brain as it is everywhere else.

I went to neurologist about 2 years ago I am trying to get referral

to go again, My PCD is starting to act like this is hypochondriac. I

am stuck. I am just doing the best to get better as I know all of us

are, Stay strong we will get there.

aloha,

Terri P

>

> Terri writes...

>

> But I cant

>

> > get tests for platinum or silicone antibodies because none of my

dr.s

> > know how to get these tests done.

>

>

> We are dancing in the same circle of frustration it seems! :-D

>

> I can't get any of the things done that I need to have done

either. I'm

> writing a request for what I want, and how to order the tests I

want,

> and am going to give it to my doctors to see if anyone will

respond, if

> any of them give a damn! If my insurance won't pay for some of the

> testing I will; I will use some of my settlement monies for that.

I

> feel more comfortable with medical doctors (how I have any faith

left at

> all is more than I can understand!) than NDs, 'though I may try one

that

> my friend with ALS sees. The medical doctor that is willing to

help me,

> if one of them will, must be willing to help me with alternative

> treatment 'though...perhaps work with my friend's naturopath. So,

this

> is my plan at this point! I need testing to compare with all the

workup

> I had for the original settlement, to how things have changed.

> Otherwise, how can I, or anyone treating me, know how to help me!

>

> Everyone, including me wants me to 'work out,' to get strong and

all of

> that stuff. But my muscles are weak, not just from lack of

exercising

> hard enough, but because there is *atrophy*! I have nerve damage

that

> shows up in that way, as well as in some kind of seizures at night

in

> which I mutilate my tongue (I wear a mouth guard, splint, to

prevent

> further damage!); my dentist finally was the only one who took me

> seriously about this! I also have difficulty swallowing, slow

passage

> of food in my intestines and other GI problems including

pancreatitis (I

> believe autoimmune). I, too, have headaches, which are related to

> 'flares,' brain damage as shown by brain MRI, and auto-antibodies

> against my own myelin (covering on nerves), abnormally slow visual

> evoked response testing, showing optic neuritis, inflammation of

cranial

> nerves (symptom is blurred vision), and definite areas of decreased

> cognitive abilities in certain performance testing, showing damage

again

> to areas of the brain; this is revealed by neuro-psychological

testing,

> which I had done. I believe that damage done is damage done. But

is

> damage continuing to be done? Can anything be done about this? I

think

> I deserve to be taken care of like any other patient who has a

medical

> illness. I deserve to be treated with respect, and my needs

attended

> to, instead of being laughed at, and made to feel that my questions

and

> requests are irrelevant.

>

> This is long...got carried away! But I wonder if you feel some of

what

> I'm feeling, Terri? Thank you for responding as if you believe

me! :-)

>

>

[Guest guest]

Diane, There are few M.D.s that practice both conventional medicine and alternative medicine! . . . But I'm afraid they are few and far between. We've had a few women lucky enough to find them though! Hopefully one will speak up. It's been my observation, over the past twelve years, that the women who take responsibility for their own health and search out all options - regarless of label, do much better than those who are bonded to conventional medicine. . . . Consider which field of medicine that got us in this shape belong to! You might consider a Visual Contrast Sensitivity test (VCS). It's available online for about ten bucks. Rogene Crocker <dwcrn@...> wrote: Terri writes...But I cant> get tests for platinum or silicone antibodies because none of my dr.s> know how to get these tests done.We are dancing in the same circle of frustration it seems! :-DI can't get any of the things done that I need to have done either. I'm writing a request for what I want, and how to order the tests I want, and am going to give it to my doctors to see if anyone will respond, if any of them give a damn! If my insurance won't pay for some of the testing I will; I will use some of my settlement monies for that. I feel more comfortable with medical doctors (how I have any faith left at

all is more than I can understand!) than NDs, 'though I may try one that my friend with ALS sees. The medical doctor that is willing to help me, if one of them will, must be willing to help me with alternative treatment 'though...perhaps work with my friend's naturopath. So, this is my plan at this point! I need testing to compare with all the workup I had for the original settlement, to how things have changed. Otherwise, how can I, or anyone treating me, know how to help me!Everyone, including me wants me to 'work out,' to get strong and all of that stuff. But my muscles are weak, not just from lack of exercising hard enough, but because there is *atrophy*! I have nerve damage that shows up in that way, as well as in some kind of seizures at night in which I mutilate my tongue (I wear a mouth guard, splint, to prevent further damage!); my dentist finally was the only one who took me seriously about this! I also

have difficulty swallowing, slow passage of food in my intestines and other GI problems including pancreatitis (I believe autoimmune). I, too, have headaches, which are related to 'flares,' brain damage as shown by brain MRI, and auto-antibodies against my own myelin (covering on nerves), abnormally slow visual evoked response testing, showing optic neuritis, inflammation of cranial nerves (symptom is blurred vision), and definite areas of decreased cognitive abilities in certain performance testing, showing damage again to areas of the brain; this is revealed by neuro-psychological testing, which I had done. I believe that damage done is damage done. But is damage continuing to be done? Can anything be done about this? I think I deserve to be taken care of like any other patient who has a medical illness. I deserve to be treated with respect, and my needs attended to, instead of being laughed at, and made to feel that my

questions and requests are irrelevant.This is long...got carried away! But I wonder if you feel some of what I'm feeling, Terri? Thank you for responding as if you believe me! :-)