Re: Why?

[Guest guest]

my will retest if he notices something 'different'. He has me come in

every four-six months. i'm sick of being poked and jabbed. i might be open

to some new test that shows some promise. The MDA is this area along with

ALS do not include PLS. i have tried many times as has my doctor. MS doesn't

want me either.

i am asking for prayers for my cousin who needs a liver transplant. She has

hepatitis C which she contracted through a blood transfusion in 1979 during

the birth of her last child. Please prayer that a liver can be found for

her, she had tried to keep working but collapsed last wednesday and now

doctors say no more work..

thank you......................................kathy

dcw_bsa_t427@... wrote:

> Hello, everyone:

>

> While general testing after a confirmed diagnosis has been made (from

> a facility with the background and experience as Mayo and a number

> of others across the nation) would perhaps not serve a useful

> purpose. However, after a confirmed diagnosis, an annual EMG to

> track progression could be useful. An argument could be made to

> have the EMG confirm that only upper motor neurons are involved.

> However, if the EMG demonstrated that progression to the lower

> motor neurons had occurred, then the diagnosis would change. A

> possible reason for having that information is the availability of

> assistance from MDA. Unless the local MDA representatives have

> taken it upon their selves, PLS is not included in the 40 diseases that

> are under the MDA umbrella. What a difference a letter makes. A

> number of our members have recently had diagnoses changed from

> PLS to ALS. I assume that testing was done in order to make that

> change.

>

> Don

>

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