Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 Moderator's note: I shortened all of your links except one. Just go to www.tinyurl then copy and paste your link into it. Then follow the directions. This makes a much shorter link for people to use. The last won't open on my computer. Kaylene Moderator >This is a response to Mindy's post on Lyme Strategies re: mycoplasma pneumonia: >Please pardon my total ignorance. I was told my daughter probably has lyme from one doctor and told she does not have it from others. Dear Mindy: My heart goes out to you! I have severe neuro-Lyme (with Babesia and Bartonella) and one of my sisters has Lyme (with CPN or Chlamydia Pneumoniae (CPN)). It is vastly confusing for even the most highly regarded Lyme specialist to sort out the diagnosis for all of us suffering like your daughter, with symptoms that match many tick-borne diseases. Although Mycoplasma Pneumoniae (MP) is supposed to be passed by human contact, I see no reason why it couldn't be carried by ticks too, or it may have taken root due to her weakened immune system. Her low cd-57 combined with any Lyme-specific positive bands, and clinical symptoms are a sure sign of Lyme disease. However, according to the CDC there are two million cases of MP each year and read info at: http://tinyurl.com/3vwf8b The illness is easily cured with antibiotics (according to e-medicine, read info at http://www.emedicine.com/emerg/topic467.htm ); acute cases are cured within a month and for most it can resolve itself within a week. So if your daughter does not recover within a month on the specific antibiotic protocol, I think your family members could be right. Lyme disease is extremely under-reported and called the " The Great Imitator " because of all the diseases it mimics. But the CPN, which I am familiar because of my sister, comes to mind first because of the bronchial involvement. CPN is also extremely under-reported - read about it on this very informative site: http://tinyurl.com/5sn9hz While googling for your daughter I also found the following info at: http://tinyurl.com/5tzzak I think that you will find the information very informative. But this statement (from that site) points to your concern about the possibility of Lyme and/or co-infections: " Mycoplasma pneumoniae is also thought to be involved in mediating other diseases and infections in its monopolization of the immune response. Some patients have developed severe bacterial and viral infections just after or during a M. pneumoniae infection. This is thought to occur by the creation of an environment that is anatomically, physiologically, and/or immunologically conducive to other organisms for invasion as well as for cellular damage. " I really hope your daughter recovers quickly and that she does not have Lyme disease. (I have also had it from very early childhood and only received a diagnosis 18 months ago - I'm 47!) I wouldn't wish it on anyone. However, if your daughter was diagnosed with Lyme (even if it was one doctor against even 20 infectious disease specialists), if it were me, I would ask for a copy of her western blot and check any positive bands with the guidelines written by Dr. Burrascano, one of the team of doctors who discovered Lyme and the most experienced Lyme doctor in the US). You can find his guidelines here: http://www.lymediseaseassociation.org/BurrGuide200509.pdf. If you indeed trust the doctor who diagnosed her with Lyme disease, I recommend you read all that you can about it (my website at www.LymeDiseaseResource.com is a good place to start), and follow his/her treatment. Good luck and God bless - Jenna www.LymeDiseaseResource.com jennasmith1@... Quote Link to comment Share on other sites More sharing options...
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