Re: one more thing...

[Guest guest]

and everyone,

Here is something that I take from Biotics Research Corp. that has helped me

just as much as Dr. Cabot's diet. I've spoken of this before, and

it's called Beta-TCP. It has taurine, pancrelipase, beet concentrate in it.

Now, here is what you have to have to even get it. You must have gallstones,

and be 100 percent sure you have them.

You MUST have normal colored stools. NO CLAY COLORED STOOLS!

If you have those two things, you can take it. I've only found one place to

get it, and I order mine through Dr. Neal Springer in Hollywood, Ca. But if

you've got a doctor or chiropractor or naturopathic doc you can get it

through them. Biotics Research Corp. only sells to healthcare professionals.

What does it do? You take it when you eat a meal. It thins your bile and

helps you digest the fats that you've eaten. It's been a miracle to me. But

it's not a replacement for a healthy diet and you need to cleanse. Normally

I don't get one pain at all, but I went to a wedding last Sunday and ate

stuff that I would never eat anymore. Not one pain!!! Although I'm going to

do a cleanse in the next week or two. I feel that I should.

Here's something else, which Steve needs to know or those who've had GBs

removed need to know. They also have something called " Beta-Plus, " which is

for people who've had their GBs removed. It emulsifies the fats, which is

what the GB does. When he gets well, he might need this.

No, I don't get a cut on this. This doctor has helped me so much. In my

last order in December, there was a mix-up with someone ill in his office.

Well, it was about Dec. 21st and I hadn't received my order. They called me

up at home and sent it FedEx, overnight, no charge to me at all. I thought

that was very nice because Dr. Springer knew that I needed this.

Hope this helps someone!

Susie

[Guest guest]

I do not do cleanses or special diets. I do take vitamins and supplements

just to make sure my body is getting everything it needs. I do try to eat

sensibly and try to keep away from processed foods with lots of chemicals. Now

I am a sweet lover. And for the last five years make my own cookies and

such....not that they are all that good for one, but at lease I know they are

free from transfats and preservatives. There are lots of small changes one can

make that will help them eat healthier. Some people have allergies that

affect them, I have never found myself to have any. In fact the only thing I

completely stay away from is fried food...not only because it is bad for you,

but at my age (59) I do not seem to digest it as well as I did when young. We

all just have to find out what works for each of us. Martha

[Guest guest]

Hi,

I joined the group about july or so .I haven't actually posted anything yet

so here goes.

In " 82 " my left hand began to ache something nasty .after about 2 months it

moved to the right hand , same horrid ache .next were my elbows,one at a time

,then knees ,ankels " they actually swelled up'', feet were next ,then the

whole thing mooved into my back .

this took about a year then whent away ,but would reappear from time to time.

bu " 86 " the back seemed to be getting worse .I handled the pain with over the

counter drugs.

By " 95 " or so I finally had to seek a Dr,s help with the pain ,although

through all these years I had been to a lot of Dr,s for the strange mooving pain

that keept erappearing & never got any reasonable answers.

In late " 96 " I had a wicked ear infection ,possabley the worse in my life.It

took a long time to get better .then after a verry stressfull time the

" mooving ache " moved in with a vengance.

I hade attackes that lasted 2 months each .

on the onset of one of these spells I started taking some of the left over

antibiotics I had from the ear problem & started to get better .

All excited I ran back to my Dr. and ask for more since this was the first

thing that had ever seemed to be helping .I was told " NO, there is no way

that could possably be helping "

Now I'm no Dr.but I know it was working ! That was " 98 " .more yrs more Dr,s

Each time I told them my story & littery begged to try antibiotics each one

telling me that they are sure that antibiotics would not help they won't even

let me try because I would breed a " super virus " & really be in trouble then.

BY " 2000 " I could no longer do the heavy lifting I had & changer

jobs.different insurance & Dr.s same NO from all.2years later again the spells

are

taking over I end up at the Pain Clinic now things start to make some since.

CAT

scan shows I have a degenerated disc at my 12th vertabray, & was told to see a

Rheumy when the mooving pain returned.I did & finally got a dioganoisis of

reactive arthritis & thats all I got .no antibiotics

called my daughter & ask her to look it up on the internet .by now it's

2004 .22years have past since this started .you probably know what she found

for

me.THIS GROUP !

Maybe I was right all along about the antibiotics,now how to find them,not

as easy as one would think, armed with stacks of papers to back up my theory I

revisit all Dr,s .still " NO you will breed a super virus " I told a superior

at work about my delima & was told her daughter had been on minocycline for 3

yrs rof acne.By now I was concidering Texas for help but finally through

the groups help I got my MINO.* munths now & I'm not sure whats happening but

do belive I'm getting better .sorry this is so long but I would love to here

from anyone that knows about " reactive arthritics " as I still know very

little about this & don't have anyone to ask.

thanks for reading

Bonnie in seattle

[Guest guest]

just thought i'd respond to your message...

the way my doc explained it to me is that what's going on is both reactive

arthritis and rheumatoid arthritis. sounds confusing but it just means that

technically you might have rheumatoid (the tests and symptoms say so) but really

the arthritis is a reaction to some kind(s) of infections. the other thing that

makes our situation not a clear case of reactive arthritis is that reactive

lasts a shorter period of time and usually goes away with antibiotics. that's

the gist of it, maybe you could research it more. just google " reactive

arthritis " and a ton of info comes up.

if the antibiotics worked then you definitley know there's some kind of

infectious agent going on. just keep knocking the doors down until you get the

meds you need. my doc presribed me minocycline, flagyl, nizoral, ketek (all

kill some kind of infection) and i've gotten so much better!

ivory

-----------------------------------------------

> rheumatic

> From: Beaconbonnie@...

> Date: Wed, 14 Jun 2006 15:57:05 -0400

> Subject: Re: rheumatic Re: one more thing...

>

> Hi,

> I joined the group about july or so .I haven't actually posted anything yet

> so here goes.

> In " 82 " my left hand began to ache something nasty .after about 2 months it

> moved to the right hand , same horrid ache .next were my elbows,one at a time

> ,then knees ,ankels " they actually swelled up'', feet were next ,then the

> whole thing mooved into my back .

> this took about a year then whent away ,but would reappear from time to time.

> bu " 86 " the back seemed to be getting worse .I handled the pain with over the

> counter drugs.

> By " 95 " or so I finally had to seek a Dr,s help with the pain ,although

> through all these years I had been to a lot of Dr,s for the strange mooving

pain

> that keept erappearing & never got any reasonable answers.

> In late " 96 " I had a wicked ear infection ,possabley the worse in my life.It

> took a long time to get better .then after a verry stressfull time the

> " mooving ache " moved in with a vengance.

> I hade attackes that lasted 2 months each .

> on the onset of one of these spells I started taking some of the left over

> antibiotics I had from the ear problem & started to get better .

> All excited I ran back to my Dr. and ask for more since this was the first

> thing that had ever seemed to be helping .I was told " NO, there is no way

> that could possably be helping "

> Now I'm no Dr.but I know it was working ! That was " 98 " .more yrs more Dr,s

> Each time I told them my story & littery begged to try antibiotics each one

> telling me that they are sure that antibiotics would not help they won't even

> let me try because I would breed a " super virus " & really be in trouble then.

> BY " 2000 " I could no longer do the heavy lifting I had & changer

> jobs.different insurance & Dr.s same NO from all.2years later again the spells

are

> taking over I end up at the Pain Clinic now things start to make some since.

CAT

> scan shows I have a degenerated disc at my 12th vertabray, & was told to see a

> Rheumy when the mooving pain returned.I did & finally got a dioganoisis of

> reactive arthritis & thats all I got .no antibiotics

> called my daughter & ask her to look it up on the internet .by now it's

> 2004 .22years have past since this started .you probably know what she found

for

> me.THIS GROUP !

> Maybe I was right all along about the antibiotics,now how to find them,not

> as easy as one would think, armed with stacks of papers to back up my theory I

> revisit all Dr,s .still " NO you will breed a super virus " I told a superior

> at work about my delima & was told her daughter had been on minocycline for 3

> yrs rof acne.By now I was concidering Texas for help but finally through

> the groups help I got my MINO.* munths now & I'm not sure whats happening but

> do belive I'm getting better .sorry this is so long but I would love to here

> from anyone that knows about " reactive arthritics " as I still know very

> little about this & don't have anyone to ask.

> thanks for reading

> Bonnie in seattle

>

[Guest guest]

Oh crud, now I have a lot of questions. I have had PA since '88.

Tried the biggies, celebrex then enbril. Celebrex gave me heart

failure and enbril gave me cardiomyopathy. Susequentially I had an

ongoing infection in my body that no body could find I was going to

the almity Uof Washington Medical Center. No Luck. They finall pinned

it down to my legs, this time. Had my left leg amputated in '04 and

the right in '05. No more infections!!! until thanksgiving 2005.

Then they have been popping up every few weeks, I check in my

hospital. They run ABs and it clears up. Get infected agin, check in,

cured again. I have also noticed a decrease in pain and inflamation

when I am on the AB's. Has anyone heard of this reational thing

working with PA or coming on because of either celebrex or enbril.

Just banging my head against the wall. This is why I joined a

jazillion groups today. I am looking for answers.

michael

michaelr_321@...

>

> just thought i'd respond to your message...

>

> the way my doc explained it to me is that what's going on is both

[Guest guest]

Hey, Bonnie!

Sally In Little Rock here.

These dumb docs-WHY can a kid get mino for acne and we, with reactive

arthritis-literally means rheumatoid arthritis CAUSED BY AN INFECTION, cannot

get antibiotics.

Go to Gabe Mirkin's web site@... and download his treatment. He

explains in very plain language and quickly why you would NOT get a supervirus

on his AP and tells in 10 pages his exact antibiotic protocol for the individual

ailment. Then take his paper with you to your docs!!

I've been told it costs $10 or so and would post it for you if I could type that

long or copy it but I am NOT Miss Technology:)! Sorry!

Maybe somebody else could do it-I think Rosemary from Australia, sent it to me

in '02.

Good luck!

Sally in Little Rock

Re: rheumatic Re: one more thing...

Hi,

I joined the group about july or so .I haven't actually posted anything yet

so here goes.

In " 82 " my left hand began to ache something nasty .after about 2 months it

moved to the right hand , same horrid ache .next were my elbows,one at a time

,then knees ,ankels " they actually swelled up'', feet were next ,then the

whole thing mooved into my back .

this took about a year then whent away ,but would reappear from time to time.

bu " 86 " the back seemed to be getting worse .I handled the pain with over the

counter drugs.

By " 95 " or so I finally had to seek a Dr,s help with the pain ,although

through all these years I had been to a lot of Dr,s for the strange mooving

pain

that keept erappearing & never got any reasonable answers.

In late " 96 " I had a wicked ear infection ,possabley the worse in my life.It

took a long time to get better .then after a verry stressfull time the

" mooving ache " moved in with a vengance.

I hade attackes that lasted 2 months each .

on the onset of one of these spells I started taking some of the left over

antibiotics I had from the ear problem & started to get better .

All excited I ran back to my Dr. and ask for more since this was the first

thing that had ever seemed to be helping .I was told " NO, there is no way

that could possably be helping "

Now I'm no Dr.but I know it was working ! That was " 98 " .more yrs more Dr,s

Each time I told them my story & littery begged to try antibiotics each one

telling me that they are sure that antibiotics would not help they won't even

let me try because I would breed a " super virus " & really be in trouble then.

BY " 2000 " I could no longer do the heavy lifting I had & changer

jobs.different insurance & Dr.s same NO from all.2years later again the spells

are

taking over I end up at the Pain Clinic now things start to make some since.

CAT

scan shows I have a degenerated disc at my 12th vertabray, & was told to see a

Rheumy when the mooving pain returned.I did & finally got a dioganoisis of

reactive arthritis & thats all I got .no antibiotics

called my daughter & ask her to look it up on the internet .by now it's

2004 .22years have past since this started .you probably know what she found

for

me.THIS GROUP !

Maybe I was right all along about the antibiotics,now how to find them,not

as easy as one would think, armed with stacks of papers to back up my theory I

revisit all Dr,s .still " NO you will breed a super virus " I told a superior

at work about my delima & was told her daughter had been on minocycline for 3

yrs rof acne.By now I was concidering Texas for help but finally through

the groups help I got my MINO.* munths now & I'm not sure whats happening but

do belive I'm getting better .sorry this is so long but I would love to here

from anyone that knows about " reactive arthritics " as I still know very

little about this & don't have anyone to ask.

thanks for reading

Bonnie in seattle

[Guest guest]

Folks,

A little more research on my part and low and behold, there is a

direct relation to itching and rashes with Polycythemia. What is

also interesting is that this spring, several people commented on the

fact that my face looked red. I just thought it was because I had

been tanning in preparation for a trip to the Caribbean, but once

again this is a symptom of the condition. I have an appointment with

the Red Cross for the 5th so I hope they can drain a bunch and water

me down a little. I should be in line to give more at the end of

October.

Because this condition is so common in TRT and most common when

receiving injections, (4 times as likely as when treated with gels!)

I think it is important that everyone here knows the symptoms as well

as what to do. Below is an extract from the main site I found, as

well as the link to it.

Thanks for all your thoughts on the matter... Stay well.

Randy

===========================

http://www.nhlbi.nih.gov/health/dci/Diseases/poly/poly_signsandsymptom

s.html

===========================

Polycythemia vera (PV) develops very slowly. You may not see signs

and symptoms of PV for years after you have the condition. The signs

and symptoms of PV are the result of the above normal thickness of

your blood. This slows the flow of blood and the oxygen blood carries

to all parts of your body. Without enough oxygen, the parts of your

body can have problems functioning normally.

The most common signs and symptoms of PV include headache, dizziness,

weakness, shortness of breath, difficulty breathing when you're lying

down, feelings of pressure or fullness on the left side of the

abdomen due to enlargement of the spleen, double or blurred vision,

blind spots, ITCHING all over (especially after a warm bath),

REDDENED FACE, BURNING SENSATIONS IN YOUR SKIN (especially your hands

and feet), bleeding from your gums, more than normal bleeding from

small cuts, and unexplained weight loss. In rare cases, you may

experience pain in your bones if you have PV.

Other Types of Treatment

If you have itching as a result of PV, your doctor may prescribe a

number of prescription medicines to ease the discomfort you feel.

These include cholestyramine, cyproheptadine, cimetidine, or

psoralen. Your doctor also may prescribe ultraviolet light treatment

and antihistamines to help relieve your itching.

Your doctor may prescribe allopurinol if the level of uric acid in

your blood is higher than normal.

> >

> > I've been suffering strange allergies for the past year, and no

one

> > seems to know where they come from. hives, and itches mostly in

the

> > evening, but it can start any time. I read that this MAY be a

side

> > effect of polycythemia... Has anyone experienced this?? Alegra

has

> > worked well in controlling it but the less pills I shove down my

throat

> > the better!!!

> >

> > Randy

> >

>