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[Guest guest]

Vicki,

I have been having so many problems sending e-mail to the

Ourmyositisonelist. Everytime I would send one it would get

terminated. It finally dawned on me that I could go to egroups and

post a message that way. Only took two months for me to figure that

one out! I have been reading with great excitement all of the new

members that have joined and all of the information that is being

shared. It's nice to see the group grow.

I guess I should introduce . is 4 years old and was

diagnosed with JDMS when he was 2 years 11 months. The disease came

on quickly and strongly. He lost almost all use of his muscles in

about 3 weeks time and was no longer able to walk, hold his head

up.... etc. He had a distiguishing rash on his face and one open

lesion on an eyelid. His knuckles looked skinned and his fingernail

beds were inflamed. He is a patient at the Medical College of

Georgia. He is currently doing very well and is at this very moment

running around the house pretending to be a Jedi Knight. He takes a

5mg tablet of prednisone every other day, 100 mg of plaquinil every

other day and 1 1/2 CC of Karafate every evening. was exposed

to the Chicken Pox at his preschool 1 1/2 weeks ago. He is probably

done with preschool for this year and he is very upset about that.

Only 1 child at this time has come down with it but of course it was

's best friend. His Dr. wants him to have an IGG shot.

has never had one. Has anyone else? Did you have any side effects?

is still very quiet about any symptoms that he is feeling and I

count on you all to fill in the blanks.

Joy - Katy has been in my prayers and thoughts. My Girl

Scout troop made some cards for her. Where can I send them? Let me

know and I'll get them right off.

So nice to meet everyone else. I will be changing my e-mail soon and

will let Vicki know what the new one is. Hope everyone is having a

good day! Thanks in advance for any advice anyone might have.

Cari