Guest guest Posted August 10, 1999 Report Share Posted August 10, 1999 How did you find the Mayo Clinic? Everytime I went to search for it I ended up with Best Foods Mayo. LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 1999 Report Share Posted August 11, 1999 Hi Everybody I do hope everyone had a good day. thats wonderful new's about the chair thing....my mind....gone!!!! Sounds like your doing OK with all the new stuff your getting. Teddi The Mayo Clinic just came on line the 4th or 5th of this month. But, are you sure you were looking for HEALTH or HUNGER....LOL I know, my sense of humor is strange tonight. Been out to many times. Went to the doctors today. Didn't get a chance to talk to the Lung specialist today because she was in ICU all day. Been there done that... I talked to my Rheumy and he had already talked to the lung specialist and the Catscans were not ready yet. Maybe tomorrow. All blood workup came back normal again. CK at 35.....WOW Had to laugh when he said that because I'm still weak, still have muscle pain, still have problems breathing. I just know they love me down there. BUT...good news is: They just got a report back from JAPAN. Seems Japan has alot more cases of DM & PM then the U.S. does. Why? Who knows. So they have been experimenting with a new drug called Cyclosporine on these people with wonderful results. Scripps would not put me on this drug until more research had been done. It was originally for Rheumatoid Artritis. If I go on this drug I will have to take my blood pressure every day because this drug can raise the blood pressure. Also it can weaken the kidneys. So what is the good news about this drug you say....Possible side effects include bleeding, tender or enlarged gums; fluid retention; and INCREASE IN HAIR GROWTH; and LOSS OF APPETITE. Now, while I got really jazzed at the hair growth thing and the appetite thing. On my way back home I realized the hair growth meant ON THE FACE, and the loss of appetite meant YOU ONLY EAT THREE MEALS A DAY BUT GAIN 50 POUNDS OF WATER. Until they decide what to do, all depends on the Catscan, I have to INCREASE my Prednisone by 1mg a week to see what level I'm best at. Why that should really put me in the dumper....LOL Hope you all have a wonderful day tomorrow. Hugs to all Vicki Quote Link to comment Share on other sites More sharing options...
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