Support Group Update 8/20/2006

[Guest guest]

Dearest Group,

This is a quick note to tell you that I'm going to be on Sally Kirkland's radio show again tomorrow morning from 10-11am pacific time. The archived show from last week and links to hear this live are on our homepage. We got lots of positive feedback and welcome several new women to our group that found us from the show.

www.BreastImplantAwareness.org

We have several women going through explant in the next couple of weeks. Please join me in sending prayers and positive healing energy to them.

The madness of this cause continues. Women are being silenced with tiny settlements and gag orders and forced to remove any of their personal implant stories from the internet.

Our Lany, an angel who blessedly survived Hurricane Katrina last year, just had her website censured and removed without her permission or desire because it " upset " someone.

http://community.webtv.net/lany25/LifeAfterBreast0

Thanks very, very much to Fuchs-sey for this important study that follows. It is highly significant for women with implants and begs further investigation. I've copied a portion of it here ... it relates to genetic work which may lead to explanations of why some women get so very ill with implants ... and some can tolerate from for long periods of time. Leroid (I mean, Leroy) Young began this work around a decade ago, but instead of following through, he went on to push Tofu Titties (soy oil filled) and butt implants instead.

I've included some great feedback from Paige on the fibromyalgia discussion from last week ... I actually received enormous feedback that I will try to put together soon.

Also, we 've gotten great response from our petition to Judge Hood. We've also found out that 95% of the women have been turned down for Level A in the Dow Bankruptcy ... please check the website if you wish to participate ... it's not too late. (see note below Paige's writing). I thank for pointing out what Frailich Law Firm wrote about this (see below.) It's a scandal.

Blessings to all and prayers for healing for our group and for our planet.

Ilena

www.BreastImplantAwareness.org

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Peripheral Neuropathy: Human LeukocyteAntigen (HLA) Genetic Studies

http://www.veradyne.com/EDA%20study%20final%20proof.pdf#search=%22Arthur%20Dale%20sson%22

It has been reported, by several authors,16,17,18 that theHuman Leukocyte Antigen (HLA) DR 53 has been consistentlyfound in patients with fibromyalgia associated with silicone breast implants.

The HLA DR antigensare individual loci on lymphocytes and are useful indesignating individual proclivity to specific medical conditions.Furthermore, DQ2, in those studies, appeared to be significantly increased in patients with siliconeprostheses and with clinical evidence of disease. DQ2is associated with DR7 and at the same time in linkagedisequilibrium with DR 3 and DR 52, but the authors could not find an increased frequency of either B8, DR 3or DR 52 in those patients with fibromyalgia. The presenceof DR 53 gene was associated with auto-antibodiesto B cells in symptomatic patients but was not associated with either the DQ1 or DQ2 genes. One of these studies,that of Young, et. al.,19 reported that HLA DR53gene was present in 68% of asymptomatic and symptomaticpatients.

However, the asymptomatic patientsalso had an increased frequency of DR1 and DR2 genes,and the DQ genes possibly represented protector genes. They concluded that symptomatic patients with breastimplants share important DR53 positivity that differentiatesthem from asymptomatic patients.

These authorsconcluded that a genetic characteristic that predisposesan individual to mount an immune mediated responseas a consequence of silicone breast implantation as well as the composition and location of the implant prosthesesmay play a role in the body's response to siliconeexposure. However, other investigators have found thepresence of DQ1 gene present in 75% of symptomatic patients as well as the decreased frequency of the DR3and DQ2 genes.20

The current study of over 100 patients with ChronicInflammatory Demyelinating Neuropathy associatedwith Silicone Breast Implant Adjuvant Disease demonstrates an equal preponderance of HLA of DR13, DR15,DR51, DR52 and DR53 genes of 30%, 44%, 32%, 62%and 46% respectively.

This study supports the thesis thatHLA typing is clearly related to autoimmune sensitivityto silicone breast implants in those patients with Chronic Inflammatory Demyelinating Peripheral Neuropathy.Furthermore, the presence of more than one combinationof DR gene 13+15+51, etc., appears associated withthe more severe and progressive illness.

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FROM PAIGE:

I am writing in response to the Fibromyalgia site that was sent out a few days ago.

I have had the opportunity to meet with Dr . St. Amands and at a seminar. They are very nice and knowledgeable when it comes to fibro. I do not necessarily agree with everything they teach but it has worked well for some. However, if you choose to do the Guaifenisen method it is very hard to follow and you must be very strict about not using anything with Salicilates. It is in almost everything. It is in most chap sticks, toothpaste, hand soaps, cosmetics, lotions, etc. Even the smallest amount of Salicilates will block what you are trying to achieve. They have a list on their website. I have tried it along with a lot of other people and not been successful with the treatment. However, there are some women and men that I know that have been helped tremendously.

The seminar I attended where I met them was a Vulvar Pain Foundation seminar.

While you may not have vulvar pain problems, a lot of the protocol definitely helps with Connective Tissue problems. If I understand the breast implant problems a lot of you have Connective Tissue Disorders. I do know that not everything works for everyone like the Guaifenisen treatment or the protocol at this site.

www.vulvarpainfoundation.org If you are interested in helping any connective tissue problems

please check out this site too along with the Guaifenisen website. It has really helped with my Fibromyalgia. Magnesium to relax muscles. Glucosamine to strengthen tissues/cartilage. Our protocol recommends the N – Acetyl kind but the Glucosamine Sulfate works for some. The sulfate may be a little aggravating to your system for some especially if you have vulvar pain, IC or any lower pelvic problems. HTO on this site is another treatment worth checking out for connective tissue.

Now, unrelated to the above, I also go to a Doctor about my Fibromyalgia that uses Dr. Titlebaum's protocol. You can find a lot of the information over the internet. He has a book called " From Fatigued to Fantastic " . My Doctor recommended a daily vitamin powder drink that Dr . Titlebaum formulated called From Fatigued to Fantastic Daily Energy Enfusion. It retails for about $50 for a month supply but I buy it from www.vitacost.com

for under $30. That is a great deal considering it really boosts your immune system and gives you energy and many of the vitamins and minerals are high enough that you can stop taking other supplements. It also comes with a package of B complex supplement that is excellent! This is the best multivitamin I have ever had and I have tried a lot! I used to get a lot of infections and I do not ever get them anymore! Most places you find the Energy Enfusion under the Brand Name Enzymatic Therapy . He made it under Phtyo Pharmocopia or something like that. It is the same exact product under either label.

I really appreciate this site and all of you ladies helping with my Spiritual Mom, Betty and convincing her to get her implants out. I believe she is headed in that direction.

If you want help with your Fibromyalgia the following is an excellent book that I have used to help myself and used to make recommendations to my Drs. … Fibromyalgia and Chronic Myofascial Pain: A Survival Manual by Dr. Devin Starlanyl. She has the Syndrome herself. . http://www.immunesupport.com/ is a really good site too! AS many of you breast explant gals have found out you have to educate, support yourself and try to get a teachable Dr. that will give you what you need. Unless you are very blessed to find out one who knows.

Paige

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Thanks :

http://www.frailichlaw.com/commentary.htmlBAD THING. According to the Claims Board, 95 % of all Level A claims have been denied. The Claims Board has taken the position that the proper criteria for a Level A disability is where a claimant can perform few or none of her normal activities of vocation AND self care. The Claimant Advisory Committee has taken the position that the proper criteria for a Level A disability are where a claimant can perform few or none of her normal activities of vocation OR self care.