Lea, some Info on Coumidan(warfarin) & Natural Anti-Inflammatories

November 28, 2006

Lea, here's some info I found on the net. Hope this helps.

http://www.recoveryeq.com/recovery_eq_technical_monograph.htm

Interesting reading....

Love, love, and always love,

Sunny xo

>

> Dearest Brigite:

>

> I am so sorry that you have CFS. I used to be just like you.

Talking on the telephone was the most difficult task, and had

to take my calls. After so many years, I still do not have the

strength to talk for very long. When I finish a call, my face is

bright red and I feel stressed. Another thing that seems to take my

energy is talking to someone in our home. Having guests in our home

is lovely, but it always leaves me drained. 's boss and his wife

are coming on December 9, and I am getting stressed over this. We

love them, and they are special friends, but it still kills me.

>

> Honey, what kind of breast implants do you have? We all hope that

you will find the strength to have them removed, because you are so

young. This is heartbreaking for me to hear that you are suffering so

much. The pain in my chest wall could be costochondritis, which is

inflammation. I cannot take anti-inflammatory drugs because I am on

Coumidan. The only way that I get any relief is by going to bed and

resting on a heating pad. The other day, I did all the walks, and

that is what made this condition worse. We have so much snow this

year, and I love shovelling the walks.

>

> Please let us know when you decide to have your implants removed,

we will all be here for you. This is a difficult decision to make,

but just know that we are here for you...love always.....Lea

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~````

> Re: CFS is real!

>

> --- In , " Lea " <devans@>

wrote:

> >

> > Thank you for this, Kenda. We have a doctor here who won a

case

> in court regarding CFS. I am not sure if I have CFS, but for me

it is

> the pulling down pain in my back rib cage that destroys my

life. I

> was up at 5AM, and now my day is over because I can no longer

sit. It

> feels like something is pulling my upper back downward! The

pain is

> so bad, and we are at a loss as to what is causing this...I

have had

> this condition for so many years. The doctors have told me that

I

> have chest wall damage from the ruptured implants. Do any of

you have

> this condition?

> >

>

> I do... I am 31 now, but was diagnosed with Chronic Fatigue

Syndrome

> at the same time as my fibromyalgia diagnosis -around age 24.

Just

> like the prior post implied... people see you go from being a

> healthy, active person to being cripled. The fatigue is so

great, it

> not only affects your physical capabilities, but you can't even

TALK

> enough to maintain a social life. I can't even talk on the

phone with

> my friends or family. I can become exhausted carrying on a

> conversation for more than 10 minutes. If I converse 30-60

minutes -

> I'm ready for bed. When you get tired, your throat gets sore

and your

> eyes swell up. (I'm pretty sure that's in keeping with the CFS

> symptoms---but I know they are for sure my symptoms I notice.)

I was

> recently diagnosed with malnurishment due to malabsorption in

my

> stomach, and this on top of the CFS has caused me to keep a

sore

> throat for months. It feels like strep, but isn't---it's from

pure

> exhaustion.

>

> It's hard for people to understand. I have friends and family

who

> think " OK, I understand you don't feel like going out and doing

> anything because you don't feel well ---so I'll just come visit

> you... or we can just go have dinner. " They can't comprehend

that

> even TALKING to them creates exhaustion.

>

> Life becomes a constant struggle for energy.

>

> I haven't posted for a while, but my other diagnosis are:

> Fibromyalgia, Pseudotumor Cerebri, Cluster Headaches,

Migraines,

> Hashimoto's Disease, Hypothyroidism, PID, Polycystic Ovaries,

and my

> labs go back and forth for Lupus and Sjogren's Syndrome.

(Currenly,

> my ANA is negative. It goes back and forth about every year or

two.)

>

> My rib cage stays swollen and inflamed with knots, by the way.

(I saw

> this mentioned.)

>

> God bless you all... sorry I haven't kept up or posted in a

while,

> but I've been miserable the past few months. You're all ALWAYS

in my

> prayers though!!!!

>

> Brigite

>

November 29, 2006

I saw the word Coumidan, and I have to mention that I saw a speaker

and she said she takes in so much green juices at home, that when

she needed hip surgery, she refused Coumidan. Her blood was so

wonderfully thin from her diet, that the Coumidan could've killed

her. They didn't test it ahead of time, they assumed it was thick

like most peoples. I am just passing this along because it really

stuck in my mind. I am guessing if one decided to juice a great

deal of greens and was on a blood thinner, platelet tests would be

in order? might know.

> > >

> > > Thank you for this, Kenda. We have a doctor here who won a

> case

> > in court regarding CFS. I am not sure if I have CFS, but for

me

> it is

> > the pulling down pain in my back rib cage that destroys my

> life. I

> > was up at 5AM, and now my day is over because I can no

longer

> sit. It

> > feels like something is pulling my upper back downward! The

> pain is

> > so bad, and we are at a loss as to what is causing this...I

> have had

> > this condition for so many years. The doctors have told me

that

> I

> > have chest wall damage from the ruptured implants. Do any of

> you have

> > this condition?

> > >

> >

> > I do... I am 31 now, but was diagnosed with Chronic Fatigue

> Syndrome

> > at the same time as my fibromyalgia diagnosis -around age

24.

> Just

> > like the prior post implied... people see you go from being

a

> > healthy, active person to being cripled. The fatigue is so

> great, it

> > not only affects your physical capabilities, but you can't

even

> TALK

> > enough to maintain a social life. I can't even talk on the

> phone with

> > my friends or family. I can become exhausted carrying on a

> > conversation for more than 10 minutes. If I converse 30-60

> minutes -

> > I'm ready for bed. When you get tired, your throat gets sore

> and your

> > eyes swell up. (I'm pretty sure that's in keeping with the

CFS

> > symptoms---but I know they are for sure my symptoms I

notice.)

> I was

> > recently diagnosed with malnurishment due to malabsorption

in

> my

> > stomach, and this on top of the CFS has caused me to keep a

> sore

> > throat for months. It feels like strep, but isn't---it's

from

> pure

> > exhaustion.

> >

> > It's hard for people to understand. I have friends and

family

> who

> > think " OK, I understand you don't feel like going out and

doing

> > anything because you don't feel well ---so I'll just come

visit

> > you... or we can just go have dinner. " They can't comprehend

> that

> > even TALKING to them creates exhaustion.

> >

> > Life becomes a constant struggle for energy.

> >

> > I haven't posted for a while, but my other diagnosis are:

> > Fibromyalgia, Pseudotumor Cerebri, Cluster Headaches,

> Migraines,

> > Hashimoto's Disease, Hypothyroidism, PID, Polycystic

Ovaries,

> and my

> > labs go back and forth for Lupus and Sjogren's Syndrome.

> (Currenly,

> > my ANA is negative. It goes back and forth about every year

or

> two.)

> >

> > My rib cage stays swollen and inflamed with knots, by the

way.

> (I saw

> > this mentioned.)

> >

> > God bless you all... sorry I haven't kept up or posted in a

> while,

> > but I've been miserable the past few months. You're all

ALWAYS

> in my

> > prayers though!!!!

> >

> > Brigite

> >

>

November 29, 2006

Dearest :

Thank you for the sweet greeting in your earlier note. I have had three pulmonary embolisms, and we just cannot take a chance on me having another. When I had the last one in 2004, they told me that I would die, but I am still here because they got to me in time. Have you heard of Silicone Fluid Induced Pulmonary Embolisms? My doctors sent me to a Hematologist and he said that I must stay on blood-thinners for the rest of my life. Dr. Blais had told me years ago about Sticky Blood Syndrome in women who had breast implants. We are not sure about saline breast implants and PEs, but I could ask Dr. Blais the next time that we speak. Dr. Edworthy in Calgary, Alberta, Canada did a study years ago, and he found fatty particles in the blood of women who had breast implants, again I do not know if saline women were studied. I have the article, and I will send it to the group again.

Sending you lots of love....Lea

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~`

Re: Lea, some Info on Coumidan(warfarin) & Natural Anti-Inflammatories

I saw the word Coumidan, and I have to mention that I saw a speaker and she said she takes in so much green juices at home, that when she needed hip surgery, she refused Coumidan. Her blood was so wonderfully thin from her diet, that the Coumidan could've killed her. They didn't test it ahead of time, they assumed it was thick like most peoples. I am just passing this along because it really stuck in my mind. I am guessing if one decided to juice a great deal of greens and was on a blood thinner, platelet tests would be in order? might know.> > >> > > Thank you for this, Kenda. We have a doctor here who won a > case > > in court regarding CFS. I am not sure if I have CFS, but for me > it is > > the pulling down pain in my back rib cage that destroys my > life. I > > was up at 5AM, and now my day is over because I can no longer > sit. It > > feels like something is pulling my upper back downward! The > pain is > > so bad, and we are at a loss as to what is causing this...I > have had > > this condition for so many years. The doctors have told me that > I > > have chest wall damage from the ruptured implants. Do any of > you have > > this condition?> > > > > > > > > > I do... I am 31 now, but was diagnosed with Chronic Fatigue > Syndrome > > at the same time as my fibromyalgia diagnosis -around age 24. > Just > > like the prior post implied... people see you go from being a > > healthy, active person to being cripled. The fatigue is so > great, it > > not only affects your physical capabilities, but you can't even > TALK > > enough to maintain a social life. I can't even talk on the > phone with > > my friends or family. I can become exhausted carrying on a > > conversation for more than 10 minutes. If I converse 30-60 > minutes -> > I'm ready for bed. When you get tired, your throat gets sore > and your > > eyes swell up. (I'm pretty sure that's in keeping with the CFS > > symptoms---but I know they are for sure my symptoms I notice.) > I was > > recently diagnosed with malnurishment due to malabsorption in > my > > stomach, and this on top of the CFS has caused me to keep a > sore > > throat for months. It feels like strep, but isn't---it's from > pure > > exhaustion.> > > > It's hard for people to understand. I have friends and family > who > > think "OK, I understand you don't feel like going out and doing > > anything because you don't feel well ---so I'll just come visit > > you... or we can just go have dinner." They can't comprehend > that > > even TALKING to them creates exhaustion.> > > > Life becomes a constant struggle for energy.> > > > I haven't posted for a while, but my other diagnosis are: > > Fibromyalgia, Pseudotumor Cerebri, Cluster Headaches, > Migraines, > > Hashimoto's Disease, Hypothyroidism, PID, Polycystic Ovaries, > and my > > labs go back and forth for Lupus and Sjogren's Syndrome. > (Currenly, > > my ANA is negative. It goes back and forth about every year or > two.) > > > > My rib cage stays swollen and inflamed with knots, by the way. > (I saw > > this mentioned.) > > > > God bless you all... sorry I haven't kept up or posted in a > while, > > but I've been miserable the past few months. You're all ALWAYS > in my > > prayers though!!!!> > > > Brigite > >>

November 29, 2006

My stepdad takes Coumidan and has been told by his doctor to stay away from

greens because they thin his blood too much. Seems to me that he could

simply eat the greens and skip the Coumidan but he's 75 and not about to

disobey his doctor.

Kenda

> I saw the word Coumidan, and I have to mention that I saw a speaker

> and she said she takes in so much green juices at home, that when

> she needed hip surgery, she refused Coumidan. Her blood was so

> wonderfully thin from her diet, that the Coumidan could've killed

> her. They didn't test it ahead of time, they assumed it was thick

> like most peoples. I am just passing this along because it really

> stuck in my mind. I am guessing if one decided to juice a great

> deal of greens and was on a blood thinner, platelet tests would be

> in order? might know.

>

>>>>

>>>> Thank you for this, Kenda. We have a doctor here who won a

>> case

>>> in court regarding CFS. I am not sure if I have CFS, but for

> me

>> it is

>>> the pulling down pain in my back rib cage that destroys my

>> life. I

>>> was up at 5AM, and now my day is over because I can no

> longer

>> sit. It

>>> feels like something is pulling my upper back downward! The

>> pain is

>>> so bad, and we are at a loss as to what is causing this...I

>> have had

>>> this condition for so many years. The doctors have told me

> that

>> I

>>> have chest wall damage from the ruptured implants. Do any of

>> you have

>>> this condition?

>>>>

>>>

>>> I do... I am 31 now, but was diagnosed with Chronic Fatigue

>> Syndrome

>>> at the same time as my fibromyalgia diagnosis -around age

> 24.

>> Just

>>> like the prior post implied... people see you go from being

> a

>>> healthy, active person to being cripled. The fatigue is so

>> great, it

>>> not only affects your physical capabilities, but you can't

> even

>> TALK

>>> enough to maintain a social life. I can't even talk on the

>> phone with

>>> my friends or family. I can become exhausted carrying on a

>>> conversation for more than 10 minutes. If I converse 30-60

>> minutes -

>>> I'm ready for bed. When you get tired, your throat gets sore

>> and your

>>> eyes swell up. (I'm pretty sure that's in keeping with the

> CFS

>>> symptoms---but I know they are for sure my symptoms I

> notice.)

>> I was

>>> recently diagnosed with malnurishment due to malabsorption

> in

>> my

>>> stomach, and this on top of the CFS has caused me to keep a

>> sore

>>> throat for months. It feels like strep, but isn't---it's

> from

>> pure

>>> exhaustion.

>>>

>>> It's hard for people to understand. I have friends and

> family

>> who

>>> think " OK, I understand you don't feel like going out and

> doing

>>> anything because you don't feel well ---so I'll just come

> visit

>>> you... or we can just go have dinner. " They can't comprehend

>> that

>>> even TALKING to them creates exhaustion.

>>>

>>> Life becomes a constant struggle for energy.

>>>

>>> I haven't posted for a while, but my other diagnosis are:

>>> Fibromyalgia, Pseudotumor Cerebri, Cluster Headaches,

>> Migraines,

>>> Hashimoto's Disease, Hypothyroidism, PID, Polycystic

> Ovaries,

>> and my

>>> labs go back and forth for Lupus and Sjogren's Syndrome.

>> (Currenly,

>>> my ANA is negative. It goes back and forth about every year

> or

>> two.)

>>>

>>> My rib cage stays swollen and inflamed with knots, by the

> way.

>> (I saw

>>> this mentioned.)

>>>

>>> God bless you all... sorry I haven't kept up or posted in a

>> while,

>>> but I've been miserable the past few months. You're all

> ALWAYS

>> in my

>>> prayers though!!!!

>>>

>>> Brigite

>>>

>>

>

November 29, 2006

Wow, so it is true! Goes to show we need to read up on everything -

even wonderful organic greens can be at odds with some meds out

there.

> >>>>

> >>>> Thank you for this, Kenda. We have a doctor here who won a

> >> case

> >>> in court regarding CFS. I am not sure if I have CFS, but

for

> > me

> >> it is

> >>> the pulling down pain in my back rib cage that destroys my

> >> life. I

> >>> was up at 5AM, and now my day is over because I can no

> > longer

> >> sit. It

> >>> feels like something is pulling my upper back downward! The

> >> pain is

> >>> so bad, and we are at a loss as to what is causing this...I

> >> have had

> >>> this condition for so many years. The doctors have told me

> > that

> >> I

> >>> have chest wall damage from the ruptured implants. Do any

of

> >> you have

> >>> this condition?

> >>>>

> >>>

> >>> I do... I am 31 now, but was diagnosed with Chronic Fatigue

> >> Syndrome

> >>> at the same time as my fibromyalgia diagnosis -around age

> > 24.

> >> Just

> >>> like the prior post implied... people see you go from being

> > a

> >>> healthy, active person to being cripled. The fatigue is so

> >> great, it

> >>> not only affects your physical capabilities, but you can't

> > even

> >> TALK

> >>> enough to maintain a social life. I can't even talk on the

> >> phone with

> >>> my friends or family. I can become exhausted carrying on a

> >>> conversation for more than 10 minutes. If I converse 30-60

> >> minutes -

> >>> I'm ready for bed. When you get tired, your throat gets

sore

> >> and your

> >>> eyes swell up. (I'm pretty sure that's in keeping with the

> > CFS

> >>> symptoms---but I know they are for sure my symptoms I

> > notice.)

> >> I was

> >>> recently diagnosed with malnurishment due to malabsorption

> > in

> >> my

> >>> stomach, and this on top of the CFS has caused me to keep a

> >> sore

> >>> throat for months. It feels like strep, but isn't---it's

> > from

> >> pure

> >>> exhaustion.

> >>>

> >>> It's hard for people to understand. I have friends and

> > family

> >> who

> >>> think " OK, I understand you don't feel like going out and

> > doing

> >>> anything because you don't feel well ---so I'll just come

> > visit

> >>> you... or we can just go have dinner. " They can't

comprehend

> >> that

> >>> even TALKING to them creates exhaustion.

> >>>

> >>> Life becomes a constant struggle for energy.

> >>>

> >>> I haven't posted for a while, but my other diagnosis are:

> >>> Fibromyalgia, Pseudotumor Cerebri, Cluster Headaches,

> >> Migraines,

> >>> Hashimoto's Disease, Hypothyroidism, PID, Polycystic

> > Ovaries,

> >> and my

> >>> labs go back and forth for Lupus and Sjogren's Syndrome.

> >> (Currenly,

> >>> my ANA is negative. It goes back and forth about every year

> > or

> >> two.)

> >>>

> >>> My rib cage stays swollen and inflamed with knots, by the

> > way.

> >> (I saw

> >>> this mentioned.)

> >>>

> >>> God bless you all... sorry I haven't kept up or posted in a

> >> while,

> >>> but I've been miserable the past few months. You're all

> > ALWAYS

> >> in my

> >>> prayers though!!!!

> >>>

> >>> Brigite

> >>>

> >>

> >

>

November 29, 2006

Lea, and others, from ~~

There is an antibody called _anticardiolipin_ antibody that has been

found in many women exposed to silicone in implants; I was negative

for that one, but there was a member of the silicone survivors support

group I belonged to who was positive for anticardiolipin, and had a

diagnosis of Lupus as I did, and she had a couple of strokes and was

hospitalized at the medical center. She then had to be on Coumadin

for the rest of her life because of the danger of a repeat stroke or

pulmonary embolism, or deep vein thrombosis, etc. She was only 27

years old; it was such a pity. Anyone taking Coumadin needs to be

instructed about the medication and things to avoid while taking it.

Lea, you need to be aware of these things; I'm sure your doctor has or

would be happy to instruct you further.

**These are some precautions from Medline Plus:

http://www.nlm.nih.gov/medlineplus/druginfo/

What special precautions should I follow?

Before taking warfarin,

* tell your doctor and pharmacist if you are allergic to warfarin,

aspirin, tartrazine (a yellow dye in some medications and processed

foods), or any other drugs.

* tell your doctor and pharmacist what prescription and

nonprescription medications you are taking, especially other heart

medications; antibiotics; aspirin and other non-steroidal

antiiflammatory drugs such as ibuprofen (Advil, Motrin) and naproxen

(Aleve, Naprosyn); cimetidine (Tagamet); medications for cancer,

depression, diabetes, digestive problems, epilepsy, gout, high

cholesterol, and thyroid problems; and vitamins. Many medications

interfere with the effectiveness of warfarin. It is important that you

tell your doctor every medication that you take, including

nonprescription medications. Do not take any new medications without

talking to your doctor.

* tell your doctor and pharmacist what herbal products you are

taking, especially bromelains, coenzyme Q10, danshen, dong quai,

garlic, Ginkgo biloba, and St. 's wort. Do not start taking any

herbal products without talking to your doctor.

* tell your doctor if you have had your prostate removed, have or

have ever had a stroke, kidney or liver disease, high blood pressure,

a thyroid condition, diabetes, tuberculosis, a bleeding disorder,

ulcers, leukemia, vitamin C deficiency, colostomy bag, or intestinal

disease.

* tell your doctor if you are pregnant, plan to become pregnant,

or are breast-feeding. If you become pregnant while taking warfarin,

call your doctor.

* if you are having surgery, including dental surgery, tell the

doctor or dentist that you are taking warfarin. Your doctor may tell

you to stop taking warfarin 3 days before your procedure. Follow these

directions.

* ask your doctor about the safe use of alcohol while you are

taking warfarin.

What special dietary instructions should I follow?Return to top

Do not increase your consumption of foods containing vitamin K, such

as liver, green leafy vegetables, broccoli, and cauliflower, without

discussing your diet with your doctor.

>

> Dearest :

>

> Thank you for the sweet greeting in your earlier note. I have had

three pulmonary embolisms, and we just cannot take a chance on me

having another. When I had the last one in 2004, they told me that I

would die, but I am still here because they got to me in time. Have

you heard of Silicone Fluid Induced Pulmonary Embolisms? My doctors

sent me to a Hematologist and he said that I must stay on

blood-thinners for the rest of my life. Dr. Blais had told me years

ago about Sticky Blood Syndrome in women who had breast implants. We

are not sure about saline breast implants and PEs, but I could ask Dr.

Blais the next time that we speak. Dr. Edworthy in Calgary, Alberta,

Canada did a study years ago, and he found fatty particles in the

blood of women who had breast implants, again I do not know if saline

women were studied. I have the article, and I will send it to the

group again.

>

> Sending you lots of love....Lea

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~`

> Re: Lea, some Info on

Coumidan(warfarin) & Natural Anti-Inflammatories