Guest guest Posted July 6, 2000 Report Share Posted July 6, 2000 Hi Everyone! ........Ann-Marie, you and I must be on the same wave-length! The nurse at my doctor's office called me just two minutes ago with my latest CPK results.......I, too, am normal! Mine was 174 where the normal range is from 35 to 232. Whhoooo hooooo! It has been bouncing in and out of the normal range since December and it looks like things are on a positive swing! It's always good to have the lab results back up one's improvements, especially since I have taken an 'alternative' route to my recovery by using the antibiotics. The antibiotic, Minocin, is no longer considered alternative in treating rheumatoid arthritis, and these diseases are closely related, though. I hope everyone is able to enjoy these summer days. Let's take a 'vacation' from all of these illnesses and try not to think about them any more than necessary, OK? hugs to you all, Connie (dermatomyositis since Aug '96, started Minocin in Feb of '98) Checking in > Dear Everybody, > YEEEHAAAA! I went to the rheumatologist yesterday and my CPK is down to > 118!!! I am " normal... " and passed my strength tests with flying colors. I > get to continue decreasing the Prednisone. My goal? > to see cheek bones!!! Looks like my flare has " un-flared " and I hope it > lasts a good long time. > > Vicki, I empathize with you. I always want to shoot people (even when I'm > feeling somewhat better) who tell me I look so good. And all those folks > who insinuate that it could be worse. I'm like " let's see YOU live with PM > for a month! " Tiwanda!!!!! > > Take care all. > > Ann-Marie > ________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > > ------------------------------------------------------------------------ > Missing old school friends? Find them here: > http://click./1/5534/11/_/561170/_/962908924/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2000 Report Share Posted July 6, 2000 Ann-Marie....Hey, sounds like a hot fudge sundae event tonight. (Works for me) I'm so happy for you. Decreasing your Prednisone is the best ever.... Pretty soon those check bones will pop right out. I didn't start to see mine until I got down to 20mg.... It's the little pouches on the jar line that haven't gone yet..... My stomach, in that last few days, has also come down a little. It does seem to take a while but it's so much fun watching the changes take place.... Ann-Marie...if anyone said to me " it could be worse " , I don't know how the heck I would handle that.... My own doctor describes this disease as being one of the nastiest disease that has no rhyme or reason..... I'm with you.... I would like just one person thats healthy to have this disease for one day and see what they feel like. Not that I wish this on anyone... Take care, Vicki-PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2000 Report Share Posted August 12, 2000 Dear Everyone, Just checking in..., welcome to the group. I will keep Mattie in my thoughts and in my prayers. Ralph and Cari will be great resources for you. I had the vampire moment last Wednesday (labs!!!) and I will call in on Monday to see if my CPK is still good. If so, I can taper to 12.5 mg. of Prednisone---woooo-wooo! Last time, though, my labs were in cyberspace (or so I thought!) Actually they got sent to the wrong doctor and I made about 5 calls to track them down. Isn't it fun to have a chronic illness--the things we get to do for kicks that others never dream of!!! I just want to SHOOT the nuns who whine because they have to go to the doctor for something. Sometimes I've just smiled and said, " Well, my doctors are on my Christmas card list because I get to see them so often. We've really gotten to know one another... " Sorry, I'm a little crabby tonight--what was your first clue?!? I have been working to set up my classroom and I think I overdid it energy wise. Frustrating--I thought I had this figured out! Guess I'm not gifted--LOL! Sleep tight all! Love, Ann-Marie--MCTD/PM ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
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