Re: Agenda when going to the doctor...

[Guest guest]

This is one of the best things that have I learned after much abuse from doctors. The list of health problems is so very important, my doctors always ask for "the list". They seem to like having everything on paper.

My doctors are wondeful, and they all believe that I have been badly injured by breast implants. This is a comfort to me.

Stay close...love always.......Lea

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Agenda when going to the doctor...

Terri brings up a good point in the CFS discussion about how there's so much to fit into discussing with your doctor, that you may find yourself trying to scramble in thoughts. I've always been the same way, between having complex medical issues and being nervous... So, I started writing out, or typing up, an "agenda." I make a list of each topic I need to discuss with my doctor, and include sub listings if necessary to keep myself on track. It makes my visits go much faster, and it's actually easier for my doctors when I go prepared like this. I also leave a small space to write notes about my doctor's replies if there's something specific I think I may not be able to remember later.Terri's right -you get one shot, and if you miss it, you're stuck waiting till your next appointment. This is especially frustrating if it's a doctor you only see a time or two per year.Go prepared! Some doctors might be on the medical high horse, but when we go to them---they are at our hire! We are paying for their time, and we deserve to utilize it.Take care all!!!Brigite > Brigite,> I agree I am totally exhausted all the time, nobody seems to get it. > When I go to my Dr. I have to tell him so much stuff that I kind of > rattle things off like I still have this and that and this oh by the > way the fatigue is really bad and he thinks because I talk so fast > and all at once when I get to see him it isn't a problem. I tried to > tell him that I have so much to tell him and only one shot that I > have to get it all out at once but that after I am wiped out. He > doesn't get it.> Terri P> > > > > >

[Guest guest]

Lea, that is great your doctors back you up on why you are ill! how

progressive! I always bring a list too! My, we are an organized

bunch of women!

> Terri brings up a good point in the CFS discussion about how

there's

> so much to fit into discussing with your doctor, that you may

find

> yourself trying to scramble in thoughts. I've always been the

same

> way, between having complex medical issues and being

nervous... So, I

> started writing out, or typing up, an " agenda. " I make a list

of each

> topic I need to discuss with my doctor, and include sub

listings if

> necessary to keep myself on track. It makes my visits go much

faster,

> and it's actually easier for my doctors when I go prepared

like this.

> I also leave a small space to write notes about my doctor's

replies

> if there's something specific I think I may not be able to

remember

> later.

>

> Terri's right -you get one shot, and if you miss it, you're

stuck

> waiting till your next appointment. This is especially

frustrating if

> it's a doctor you only see a time or two per year.

>

> Go prepared! Some doctors might be on the medical high horse,

but

> when we go to them---they are at our hire! We are paying for

their

> time, and we deserve to utilize it.

>

> Take care all!!!

> Brigite

>

> > Brigite,

> > I agree I am totally exhausted all the time, nobody seems to

get

> it.

> > When I go to my Dr. I have to tell him so much stuff that I

kind of

> > rattle things off like I still have this and that and this

oh by

> the

> > way the fatigue is really bad and he thinks because I talk

so fast

> > and all at once when I get to see him it isn't a problem. I

tried

> to

> > tell him that I have so much to tell him and only one shot

that I

> > have to get it all out at once but that after I am wiped

out. He

> > doesn't get it.

> > Terri P

> >

> >

> >

> >

> >

> >

>

[Guest guest]

Amen! Brigite and Terri - that's about the only way to do it for me,

as well. When he sees me pull out my " list " he usually sits back,

knowing that it'll be more than 5 minutes!! lol

Love ya lots,

Sunny

In , " BRIGITE " <KissofSadness@...>

wrote:

>

>

> Terri brings up a good point in the CFS discussion about how

there's

> so much to fit into discussing with your doctor, that you may find

> yourself trying to scramble in thoughts. I've always been the same

> way, between having complex medical issues and being nervous... So,

I

> started writing out, or typing up, an " agenda. " I make a list of

each

> topic I need to discuss with my doctor, and include sub listings if

> necessary to keep myself on track. It makes my visits go much

faster,

> and it's actually easier for my doctors when I go prepared like

this.

> I also leave a small space to write notes about my doctor's replies

> if there's something specific I think I may not be able to remember

> later.

>

> Terri's right -you get one shot, and if you miss it, you're stuck

> waiting till your next appointment. This is especially frustrating

if

> it's a doctor you only see a time or two per year.

>

> Go prepared! Some doctors might be on the medical high horse, but

> when we go to them---they are at our hire! We are paying for their

> time, and we deserve to utilize it.

>

> Take care all!!!

> Brigite

>

>

> > Brigite,

> > I agree I am totally exhausted all the time, nobody seems to get

> it.

> > When I go to my Dr. I have to tell him so much stuff that I kind

of

> > rattle things off like I still have this and that and this oh by

> the

> > way the fatigue is really bad and he thinks because I talk so

fast

> > and all at once when I get to see him it isn't a problem. I tried

> to

> > tell him that I have so much to tell him and only one shot that I

> > have to get it all out at once but that after I am wiped out. He

> > doesn't get it.

> > Terri P

> >

> >

> >

> >

> >

> >

>

[Guest guest]

-Ladies,

I bring a list of all my symtoms, some of the doctors just set it

aside never even giving it a glance. I am going to my PCD to get

some answers about my continuing care if I don't like the results

that is it I am done. I will find alternative healing elsewhere. I

am hoping to start back to work with the company I left 5 years ago.

I am slated to start in Jan. I am just so fatigued I have to get

this under control before then, as I have said before I have had all

my pain for ten years so I think I can work through that, but

nothing so far for the fatigue.

Terri P

-- In , " Emerald Kittee "

<emeraldkittee@...> wrote:

>

> Lea, that is great your doctors back you up on why you are ill!

how

> progressive! I always bring a list too! My, we are an organized

> bunch of women!

>

>

> > Terri brings up a good point in the CFS discussion about how

> there's

> > so much to fit into discussing with your doctor, that you

may

> find

> > yourself trying to scramble in thoughts. I've always been

the

> same

> > way, between having complex medical issues and being

> nervous... So, I

> > started writing out, or typing up, an " agenda. " I make a

list

> of each

> > topic I need to discuss with my doctor, and include sub

> listings if

> > necessary to keep myself on track. It makes my visits go

much

> faster,

> > and it's actually easier for my doctors when I go prepared

> like this.

> > I also leave a small space to write notes about my doctor's

> replies

> > if there's something specific I think I may not be able to

> remember

> > later.

> >

> > Terri's right -you get one shot, and if you miss it, you're

> stuck

> > waiting till your next appointment. This is especially

> frustrating if

> > it's a doctor you only see a time or two per year.

> >

> > Go prepared! Some doctors might be on the medical high

horse,

> but

> > when we go to them---they are at our hire! We are paying for

> their

> > time, and we deserve to utilize it.

> >

> > Take care all!!!

> > Brigite

> >

> > > Brigite,

> > > I agree I am totally exhausted all the time, nobody seems

to

> get

> > it.

> > > When I go to my Dr. I have to tell him so much stuff that

I

> kind of

> > > rattle things off like I still have this and that and this

> oh by

> > the

> > > way the fatigue is really bad and he thinks because I talk

> so fast

> > > and all at once when I get to see him it isn't a problem.

I

> tried

> > to

> > > tell him that I have so much to tell him and only one shot

> that I

> > > have to get it all out at once but that after I am wiped

> out. He

> > > doesn't get it.

> > > Terri P

> > >

> > >

> > >

> > >

> > >

> > >

> >

>

[Guest guest]

Terri, I feel for your frustration. Non-traditional practitioners seem

to hear me and believe me, whereas for the most part traditional

allopathic practitioners seem rigid in their thinking, unable to hear

what may be outside their area of training and practice. But, I need a

good allopath--a rheumatologist. Because I do have autoimmune

conditions which if not kept under control can and do do permanent

damage. Lupus can affect all the organs in the body. And when I'm out

of remission I need to be helped with proper medication, but it's so

hard to find someone who will listen to me, to what I've learned about

my illness and what helps and what doesn't help. I'm having that

problem right now with my rheumatologist. She thinks I should be taking

medication which was making me feel worse after awhile. It helped for

awhile and then, bam, it wasn't working anymore. I've had this happen

before. I've been off now and have been feeling much better than I have

in a long time. She and I did a good job with the medication, got me a

remission. But I'm sick, flaring again, and I need to be able to work

with her to get me back on track. I don't want this process to damage

me in the ways that it can. I see her tomorrow; I'm worried that she'll

be angry because I chose not to do what she wanted me to do, and now she

may feel that I'm ill because I didn't, whereas I know it's because it's

just flare time again. I hope to be able to explain this to her. And I

hope we can agree on something for me to try that we will both feel

comfortable with, and have a plan if it doesn't! I've always had pain

to deal with, but it's too out of control now, using more medication.

Fatigue is a big problem for me right now. My remission was full of

energy, my own natural energy, plus not having to be on medication whose

big side effect is fatigue! Well, it is frustrating. I hope you are

able to come to terms with your doctor. Or, as you say, find someone

else. Have you been in treatment for an auto-immune condition? 'Course

they refuse to believe that our AI condition could be from implants

usually, but I guess I can try to swallow that, if I have to, if I can

get good care for the condition. Know what I mean? Let us know how

your visit with your doctor goes.

> -Ladies,

> I bring a list of all my symtoms, some of the doctors just set it

> aside never even giving it a glance. I am going to my PCD to get

> some answers about my continuing care if I don't like the results

> that is it I am done. I will find alternative healing elsewhere. I

> am hoping to start back to work with the company I left 5 years ago.

> I am slated to start in Jan. I am just so fatigued I have to get

> this under control before then, as I have said before I have had all

> my pain for ten years so I think I can work through that, but

> nothing so far for the fatigue.

> Terri P

>

[Guest guest]

, it sounds like you have a very open mind. Being a nurse, it

must be difficult when the medical professionals do not understand or

support your poor health reasons.

Just know that through being who you are, you will bring about change

in that arena.

Love & Blessings,

Sunny

>

> Terri, I feel for your frustration. Non-traditional practitioners

seem

> to hear me and believe me, whereas for the most part traditional

> allopathic practitioners seem rigid in their thinking, unable to

hear

> what may be outside their area of training and practice. But, I

need a

> good allopath--a rheumatologist. Because I do have autoimmune

> conditions which if not kept under control can and do do permanent

> damage. Lupus can affect all the organs in the body. And when I'm

out

> of remission I need to be helped with proper medication, but it's

so

> hard to find someone who will listen to me, to what I've learned

about

> my illness and what helps and what doesn't help. I'm having that

> problem right now with my rheumatologist. She thinks I should be

taking

> medication which was making me feel worse after awhile. It helped

for

> awhile and then, bam, it wasn't working anymore. I've had this

happen

> before. I've been off now and have been feeling much better than I

have

> in a long time. She and I did a good job with the medication, got

me a

> remission. But I'm sick, flaring again, and I need to be able to

work

> with her to get me back on track. I don't want this process to

damage

> me in the ways that it can. I see her tomorrow; I'm worried that

she'll

> be angry because I chose not to do what she wanted me to do, and

now she

> may feel that I'm ill because I didn't, whereas I know it's because

it's

> just flare time again. I hope to be able to explain this to her.

And I

> hope we can agree on something for me to try that we will both feel

> comfortable with, and have a plan if it doesn't! I've always had

pain

> to deal with, but it's too out of control now, using more

medication.

> Fatigue is a big problem for me right now. My remission was full

of

> energy, my own natural energy, plus not having to be on medication

whose

> big side effect is fatigue! Well, it is frustrating. I hope you

are

> able to come to terms with your doctor. Or, as you say, find

someone

> else. Have you been in treatment for an auto-immune

condition? 'Course

> they refuse to believe that our AI condition could be from implants

> usually, but I guess I can try to swallow that, if I have to, if I

can

> get good care for the condition. Know what I mean? Let us know

how

> your visit with your doctor goes.

>

>

>

> > -Ladies,

> > I bring a list of all my symtoms, some of the doctors just set it

> > aside never even giving it a glance. I am going to my PCD to get

> > some answers about my continuing care if I don't like the results

> > that is it I am done. I will find alternative healing elsewhere. I

> > am hoping to start back to work with the company I left 5 years

ago.

> > I am slated to start in Jan. I am just so fatigued I have to get

> > this under control before then, as I have said before I have had

all

> > my pain for ten years so I think I can work through that, but

> > nothing so far for the fatigue.

> > Terri P

> >

>