neurologist

[Guest guest]

Hi Eileen

I live in Canton, MA, and we go to New England Medical Floating Hospital my

son see's Dr. Libenson Pedi-Neuro 6176365341 and We have also seen Dr.

which they I think they both are wonderful.Good Luck

Lori

[Guest guest]

Dear Rogene,

I had my appointment today what a complete waste of time, after listening to what I had to say he looked into my eyes with a light and told me I had migraines and prescribed me two different kind of tablets, needless to say I ripped it up before I left the hospital. Six months I have waited for that appointment just to be kept waiting for an hour then told I suffer with migraines. He seemed to ignore the dizziness my WORST symptom, another waste of my time.

Love Sue.

[Guest guest]

Hi ,

I am not sure what my next step is going to be........maybe I will leave it a while then try the neurologist again...a different one though.

Love Sue

[Guest guest]

Hi ,

I think I made a mistake in not asking the group with help in how to approach the neurologist, and having a strategy like you referred to, the stupid thing is I spoke with Rogene and told her I was going to do exactly that.......get some advise and I didnt, I forgot as usual.

I have lived in limbo forever...well so it seems, my Dr thinks I am loopy so I am up against it from the start.

How did you manage to get your diagnoses? my main symptoms are neurological and I hate it.

Thank

Love Sue

[Guest guest]

One of our SiliconeKids members (Lana) has a knack for putting doctors on the spot by asking the right questions and being persistent, , , , You really have to force a crack in their "medicine as usual" mode to get real action. Sue - you might ask her for some tips before seeing a doctor again. Crocker <dwcrn@...> wrote: Sue,I'm so disappointed for you! I'd have reacted the same way! My neurologist has disappointed me greatly; I respect his obvious intelligence,

medical training, experience, kindness, decency, but....what? It's his medical training. He can't think outside the box. And that's the problem. We're outside the box. I had hopes of seeing him again and getting some help, because my symptoms have flared, and my problems, residual damage, etc., is mainly neurological, fueled by vasculitis which is the root process which silicone + sets off. Then it depends of where the vasculitis is the worst. Mine is CNS (central nervous system) and PNS (peripheral nervous system). And it's scary stuff!I agree with Rogene's response. And I plan to have a whole strategy, a plan of attack, as it were, in place this time when I see mine! <grin> I'm going to tell him, ask him for, exactly what I want from him! Pretty please, with sugar on it! Hope you get some help with what's going on, Sue. No fun living in limbo.2 British Butterflies

(Papillons)

[Guest guest]

,

It was recommended that I take cod liver oil, but I haven't taken it

because last year, while sick from implants, I ended up getting sick

from vitamin A as well, so I've been concerned about getting too

much vitamin A and haven't taken the cod liver oil. I wasn't sure

if it had the potential to make me sick like the vitamin A from

regular vitamins did.

Sis

--- In , Crocker <dwcrn@...>

wrote:

>

> Patty,

> I can understand cod liver oil might well help, but I wonder if

you

> worry about the high level of vitamin A in it. If not careful,

and

> getting A in other products as well, you can get too much, and too

much

> A is harmful, I believe I've read that somewhere, warning against

use of

> cod liver oil as opposed to just plain fish oil. Can't find what

I'm

> looking for right now! <grin> What's your take on this?

>

>

[Guest guest]

The answers to your questions can be found on Dr Mercola's website, in this article where he addresses all of that. I trust his judgement on this! In the article below, the discussion of Vitamin A toxicity is addressed near the end.

http://www.mercola.com/forms/carlsons.htm

Cod Liver Oil and Fish Oil:One of Your Best Sources for Essential Omega-3

I am often asked what addition to the diet, outside of increasing the intake of water and fresh green vegetables, I most recommend to fight and prevent disease and live longer. My answer is easy: fish oil, fish oil, fish oil! More specifically, as you should read below, fish oil for those whose vitamin D levels are adequate, and cod liver oil for those who will benefit from its high vitamin D levels.

Americans consume a dangerously insufficient amount of Omega-3, a fat essential to good health but only found in fish oil and a few other foods. Meanwhile, our intake of Omega-6, another fat found in corn, soy, sunflower and other oils, is far too high. The ideal ratio of Omega-6 to Omega-3 should be 1:1, but the typical American's ratio ranges from 20:1 to 50:1!

I am convinced -- and even the medical establishment addicted to band-aid treatments versus prevention is conceding -- that this lack of Omega-3 in our diets is a primary reason behind many of the diseases Americans face, and our shorter lifespan in relation to many other "first world" countries such as Japan or Greece.

Benefits of the Omega-3 Found in Fish Oil and Cod Liver Oil

Helps fight and prevent heart disease, cancer, depression, Alzheimer's, arthritis, diabetes, ulcers, hyperactivity and many other diseases Increases your energy level and ability to concentrate Provides greater resistance to common illnesses such as flu and cold Helps pregnant women avoid premature births, low birth weight and other complications

While a helpful form of Omega-3 can be found in flaxseed, walnuts and a few other foods, the most beneficial form of Omega-3 -- containing two fatty acids, DHA and EPA, that are essential to fighting and preventing both physical and mental disease -- can only be found in fish. Unfortunately, however, I now warn my patients against consuming fish unless they are certain it has been lab-tested and shown to be free of harmful mercury and other toxins, such as the Vital Choice salmon offered through this site. Fish of all varieties from all water sources are now showing dangerously high levels of the tasteless but highly toxic metal, mercury, and so unless you are certain the fish you are consuming have been independently tested and shown to be free of toxins, I urge you to consider avoiding the fish.

And so I recommend, above almost any other addition to everyone's diet -- from infant to senior and every age in between -- fish oil and cod liver oil. I have researched and tried many fish oil brands, and the one I recommend most highly is the Carlson's brand of fish oil and cod liver oil.

Why Fish Oil and Cod Liver Oil are the Best Available

High in Omega-3 containing the essential fatty acids DHA and EPA

Purified to the highest standards to ensure freedom from detectable levels of mercury, cadmium, lead, PCBs and 28 other contaminants

Free from chemical modification and processing

In addition, Carlson's fish and cod liver oil -- the brand I highly recommend -- is one of the few that put the extra vitamin E in it for you straight from the get go. With Carlson's you don't have to take extra vitamin E if you don't want to.

Choosing Cod Liver Oil or Fish Oil: An Important Distinction

Cod Liver Oil

Only $24.95

Fish Oil

Only $18.95

The main difference between cod liver oil and fish oil is that cod liver oil is high in vitamin D. Many people, especially those who don't have adequate sun exposure, are deficient in vitamin D and would therefore receive all the health benefits from taking cod liver oil.

As sunshine is the main source of vitamin D, a significant number of people should consider switching from fish oil in the warm weather months -- when they tend to have more sun exposure -- to cod liver oil in the cool weather months, when their sun exposure is minimal. However, many people don't get enough sun exposure even in warm weather months, meaning their vitamin D levels may still be too low in summer ... they would therefore benefit from cod liver oil even in warm weather months.

Finally, while vitamin D deficiency can increase the risk for cancer and other diseases, overdosing on vitamin D -- having levels that are too high -- can bring its own set of problems, incluidng osteoporosis and hardening of your arteries. So if your vitamin D levels are too high, even in the winter months you should consider sticking to fish oil versus cod liver oil.

So how do you really know where your body's vitamin D levels are, and therefore which you should choose ... fish oil or cod liver oil? There is only one certain way: have your vitamin D levels tested. Because many people are so severely deficient in vitamin D (and because it helps to determine which to consume for your omega-3 intake as well, fish oil or cod liver oil), the vitamin D test is one of the few tests I require every single new patient in my health clinic to take.

While many people who believe they get sufficient sun exposure in the warm weather months choose to follow the guideline of fish oil in summer and cod liver oil in winter, it is my strong recommendation to you to have your vitamin D levels tested before making a firm and ongoing commitment when choosing between fish oil and cod liver oil. Once you know your vitamin D levels, you can then choose based on knowing that cod liver oil is significantly higher in vitamin D.

Get Essential Omega 3 & Vitamin D -- plus Vitamin A -- in Convenient Cod Liver Oil Softgels!

Cod Liver Oil Softgelswith Low Vitamin A

150 SoftgelsOnly $11.95

300 SoftgelsOnly $21.95

Now that we have officially entered into the fall season, with winter just around the corner -- if you haven't already made the switch from fish oil to cod liver oil -- I strongly urge you to consider doing so.

If you have difficulty digesting the cod liver oil or just cannot tolerate the taste, there's no need to worry because I now offer the perfect solution. Carlson Cod Liver Oil Softgels with Low Vitamin A are the most convenient, easily digested, and best-tasting cod liver oil softgels available.

These softgels contain approximately 300% more cod liver oil than other soft gel brands. Preservative free, natural vitamin E (10 IU) has been added to each 1000 mg soft gel to protect the freshness of the oil. As I mentioned earlier, cod liver oil is one of the best sources of vitamin D (other than the sun), but what you may not know is that it is also one of the best sources of vitamin A -- and each Carlson Cod Liver Oil Softgel contains 250 IU of Vitamin A.

Vitamin A is an important nutrient yet there is much confusion surrounding its appropriate form, dosage and source. I always cringe when I hear people who think they understand nutrition describing how vegetables like carrots are excellent sources of vitamin A. There are no plant sources of vitamin A -- it is only present in animal products.

Due to the commonly heard warnings that too much vitamin A is toxic and can result in birth defects, liver abnormalities, and reduced bone mineral density -- many people are afraid of taking too much of this nutrient.

What is rarely addressed, and must be considered along with these warnings, is the TYPE of vitamin A. There is a big difference between synthetic vitamin A and vitamin A from natural sources. Most cases of vitamin A toxicity result from an excess intake of synthetic vitamin A in supplements, NOT the natural form of retinol (vitamin A) found in cod liver oil.

Because cod liver oil contains vitamin D there's no need to worry about vitamin A toxicity if you take it in cod liver oil. It is virtually impossible to become toxic on vitamin A if you take it along with vitamin D. As evidenced in a study published in the December 2003 American Journal of Clinical Nutrition, vitamin D is associated with reduced vitamin A toxicity, and the vitamin D appears to protect against retinal toxicity.

An anti-infective vitamin, vitamin A is useful for many conditions including vision problems, poor thyroid function, a weakened immune system, and fighting off infections, especially those that involve mucous membranes as vitamin A is used to form the cells lining the digestive, respiratory, reproductive and urinary tracts and all tissue linings of the body. Night blindness, dry eyes, eye infections and skin problems are just some of the conditions associated with Vitamin A deficiency.

The best way to ensure that you are getting enough of both natural vitamin A and vitamin D during the many sunless days of fall and winter is to take your cod liver oil, and the best brand available is Carlson Cod Liver Oil Softgels with Low Vitamin A.

Dosage & Other Recommendations

Take one teaspoon of Carlson's liquid oil for every 50 pounds of body weight daily.

For Carlson's Cod Liver Oil Softgels with Low Vitamin A, I highly recommend taking one softgel for every ten pounds of body weight. However, do not exceed more than15 pills per day -- unless you have had your fatty acid levels tested.

You can also use a wine saver to create a vacuum to better preserve your fish oil. Simply transfer your fish oil to a bottle that fits the wine saver cap (many conventional containers). The Vacu Vin Wine Saver, available at Amazon.com, is an exceptional choice (and a great gift for anyone who enjoys wine, too), as it allows you to pump out the air inside the bottle prior to sealing, it is very durable, and costs under $15.00.

For other questions regarding the use and benefits of fish oil/cod liver oil, please visit our frequently asked questions area on this topic.

Ordering Information

Please note: Unless you are regularly getting your vitamin D levels checked, you should be switching from Fish Oil to Cod Liver Oil around Fall/Winter, and from Cod Liver Oil to Fish Oil around Spring.

Re: neurologist

Patty,I can understand cod liver oil might well help, but I wonder if you worry about the high level of vitamin A in it. If not careful, and getting A in other products as well, you can get too much, and too much A is harmful, I believe I've read that somewhere, warning against use of cod liver oil as opposed to just plain fish oil. Can't find what I'm looking for right now! <grin> What's your take on this?

[Guest guest]

Sue, please do not get too angry at this stupid neurologist. I have been through this same cycle, and finally we found a good neurologist who would listen. The dizzy spells could be a symptom of ear problems. I used to have silent migraines, and at times I felt like I had gone down to the floor while just sitting. This was weird, but these symptoms are gone now; however, when I walk, I still veer to the left. The lesions are on the left side of my brain only.

Honey, have you had an MRI? This is very important because there could be something else that is causing these dizzy spells. I am so sorry to hear that you have been abused by the medical profession, but it seems to have become epidemic among all of us women. When I read some of the letters that some of the doctors have written about me, I get angry all over again.

Stay close special lady...love you..........Lea

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~`````````

neurologist

Dear Rogene,

I had my appointment today what a complete waste of time, after listening to what I had to say he looked into my eyes with a light and told me I had migraines and prescribed me two different kind of tablets, needless to say I ripped it up before I left the hospital. Six months I have waited for that appointment just to be kept waiting for an hour then told I suffer with migraines. He seemed to ignore the dizziness my WORST symptom, another waste of my time.

Love Sue.

[Guest guest]

Excess vitamin A, whether it be from food or supplements, can make you sick.

It is not a water soluble vitamin and excesses are not lost through

urination.

Kenda

> ,

>

> It was recommended that I take cod liver oil, but I haven't taken it

> because last year, while sick from implants, I ended up getting sick

> from vitamin A as well, so I've been concerned about getting too

> much vitamin A and haven't taken the cod liver oil. I wasn't sure

> if it had the potential to make me sick like the vitamin A from

> regular vitamins did.

>

> Sis

>

>

>>

>> Patty,

>> I can understand cod liver oil might well help, but I wonder if

> you

>> worry about the high level of vitamin A in it. If not careful,

> and

>> getting A in other products as well, you can get too much, and too

> much

>> A is harmful, I believe I've read that somewhere, warning against

> use of

>> cod liver oil as opposed to just plain fish oil. Can't find what

> I'm

>> looking for right now! <grin> What's your take on this?

>>

>>

>

>

>

[Guest guest]

Thank you so much, Patty! I'm trying to research so many new and

interesting things right now, that I get a jumble in my brain

sometimes about what I read, where I read it, etc. I keep my

resources bookmarked of course but I had to learn how to save similar

topics on different tabs in one folder then it will be easier to go

back and see the whole picture again on any given topic. I'm having

to learn more complicated internet stuff at the same time I'm

researching much more! But it's fun and makes me feel as if my brain

is working again!

Warmest regards,

>

> The answers to your questions can be found on Dr Mercola's website,

in this article where he addresses all of that. I trust his judgement

on this! In the article below, the discussion of Vitamin A toxicity

is addressed near the end.

[Guest guest]

Dear Sue,

My diagnoses were pretty straight forward and simple in 1994 when I

was explanted. At that time everyone was talking about 'the breast

implant litigation,' and I went to a group meeting to hear about it.

I had decided on my own to have my implants out; I just knew they were

making me sick. At the meeting I discovered there was a group of

lawyers in Utah representing women like me; they had a doctor, Ira

Lewy, MD, who is a hematologist, who was examining clients of the

lawyers and ordering scans and lab work in order to start a medical

record on us. Some women had been ill and seeing doctors already. I

hadn't talked with anyone about how ill I felt except the Plastic

Surgeon who did my explantation. I was diagnosed with Systemic Lupus

Erythematosus with central nervous system involvement; there was

mention of a Multiple Sclerosis like syndrome. This was based on

symptoms I was having, an abnormal brain MRI, a breast MRI that

appeared to show 2 ruptured implants (mine were actually out by then),

an abnormal optic nerve visual response study, showing optic neuritis,

and also a neuro-psychiatric exam that showed me to have some very

specific areas of cognitive impairment. I was positive for Lupus

antibodies, had high anti-myelin antibodies, also high anti-silicon

antibodies, etc. etc. Since then the 3 rheumatologists I've seen have

given me a Lupus diagnosis, but have just sort of poked around trying

this drug and that drug, not wanting to do any studies, or follow-up

scans or anything, even when I was so ill I was bed-ridden for a

couple of years! Now I'm aware of what is probably permanent

neurological damage, but I am left with still a lot of pain that

requires treatment through a pain clinic. I've had several injection

procedures, and had a nerve ablation in a mid-thoracic spine facet

joint area, and am on low dose round the clock long-lasting pain

medication, but what I'm most hopeful about now is the myofascial

stretching being done. I'd like to be pain free enough to be off

regular pain meds, have enough energy to get more swimming and other

physical activity back in my life, and feel comfortable that my mental

status isn't going down the tubes! Other things I'll have to live

with. I've gone off my auto-immune drugs except for a very small dose

of Prednisone, and I feel better now that I don't seem to need meds to

suppress my immune system and chemotherapy to kill off cells growing

out of control. My rheumatologist will be surprised when I see her in

about a week. I'm going to check back through the neurologists who

have seen me to see how I'm doing there, and then I'd like to just

live for awhile with only my PT appointments! That would be heaven!

Tell me more about the treatment you receive from your osteopath.

Best wishes,

>

> Hi ,

>

> I think I made a mistake in not asking the group with help in how to

> approach the neurologist, and having a strategy like you referred

to, the stupid

> thing is I spoke with Rogene and told her I was going to do exactly

> that.......get some advise and I didnt, I forgot as usual.

> I have lived in limbo forever...well so it seems, my Dr thinks I am

loopy so

> I am up against it from the start.

> How did you manage to get your diagnoses? my main symptoms are

neurological

> and I hate it.

>

> Thank

>

> Love Sue

>

[Guest guest]

Dear Sis,

You could take fish oil for omega 3s without the vitamin A problem, or

flax oil. which gives Omega 3s but require one more step by the body

to get to them! I'd like the additional vitamin D, 'though, 'course

now I'm just taking vitamin D pills. So, I have D in my multi, D in

my liquid calcium and the D pills. I'm taking all together about 12

to 14 hundred IU/day. I've been taking flax for omega 3s. Vit A I

get in my multi vitamin. It takes looking things up to check how much

is enough and how much is too much on some of these supplements! What

are you able to do now? And is it helping?

>

> ,

>

> It was recommended that I take cod liver oil, but I haven't taken it

> because last year, while sick from implants, I ended up getting sick

> from vitamin A as well, so I've been concerned about getting too

> much vitamin A and haven't taken the cod liver oil. I wasn't sure

> if it had the potential to make me sick like the vitamin A from

> regular vitamins did.

>

> Sis

>

[Guest guest]

Yep fat soluble vitamins can be taken in excess and be toxic.

Excess water soluble vitamins just get urinated out...

> >>

> >> Patty,

> >> I can understand cod liver oil might well help, but I wonder if

> > you

> >> worry about the high level of vitamin A in it. If not careful,

> > and

> >> getting A in other products as well, you can get too much, and too

> > much

> >> A is harmful, I believe I've read that somewhere, warning against

> > use of

> >> cod liver oil as opposed to just plain fish oil. Can't find what

> > I'm

> >> looking for right now! <grin> What's your take on this?

> >>

> >>

> >

> >

> >

>

[Guest guest]

,

For the most part, I just drink alot of water, take a probiotic, a

digestive enzyme, avoid sugar, avoid chemical cleaning agents, and

try to eat healthy. I eat some organics, and read alot of labels.

I haven't had soda in about a year, and I use Stevia if I want to

sweeten something.

Sis

--- In , " diana crocker " <dwcrn@...>

wrote:

>

> Dear Sis,

> You could take fish oil for omega 3s without the vitamin A

problem, or

> flax oil. which gives Omega 3s but require one more step by the

body

> to get to them! I'd like the additional vitamin

D, 'though, 'course

> now I'm just taking vitamin D pills. So, I have D in my multi, D

in

> my liquid calcium and the D pills. I'm taking all together about

12

> to 14 hundred IU/day. I've been taking flax for omega 3s. Vit A I

> get in my multi vitamin. It takes looking things up to check how

much

> is enough and how much is too much on some of these supplements!

What

> are you able to do now? And is it helping?

>

>

>

> --- In , " auntsisnj " <auntsisnj@>

wrote:

> >

> > ,

> >

> > It was recommended that I take cod liver oil, but I haven't

taken it

> > because last year, while sick from implants, I ended up getting

sick

> > from vitamin A as well, so I've been concerned about getting too

> > much vitamin A and haven't taken the cod liver oil. I wasn't

sure

> > if it had the potential to make me sick like the vitamin A from

> > regular vitamins did.

> >

> > Sis

> >

>

[Guest guest]

, Did you see Dr. Lewy? He was a bad deal for many women diana crocker <dwcrn@...> wrote: Dear Sue,My diagnoses were pretty straight forward and simple in 1994 when Iwas explanted. At that time everyone was talking about 'the breastimplant litigation,' and I went to a group meeting to hear about it. I had decided on my own to have my implants out; I just knew they weremaking me sick. At the

meeting I discovered there was a group oflawyers in Utah representing women like me; they had a doctor, IraLewy, MD, who is a hematologist, who was examining clients of thelawyers and ordering scans and lab work in order to start a medicalrecord on us. Some women had been ill and seeing doctors already. Ihadn't talked with anyone about how ill I felt except the PlasticSurgeon who did my explantation. I was diagnosed with Systemic LupusErythematosus with central nervous system involvement; there wasmention of a Multiple Sclerosis like syndrome. This was based onsymptoms I was having, an abnormal brain MRI, a breast MRI thatappeared to show 2 ruptured implants (mine were actually out by then),an abnormal optic nerve visual response study, showing optic neuritis,and also a neuro-psychiatric exam that showed me to have some veryspecific areas of cognitive impairment. I was positive for Lupusantibodies, had high

anti-myelin antibodies, also high anti-siliconantibodies, etc. etc. Since then the 3 rheumatologists I've seen havegiven me a Lupus diagnosis, but have just sort of poked around tryingthis drug and that drug, not wanting to do any studies, or follow-upscans or anything, even when I was so ill I was bed-ridden for acouple of years! Now I'm aware of what is probably permanentneurological damage, but I am left with still a lot of pain thatrequires treatment through a pain clinic. I've had several injectionprocedures, and had a nerve ablation in a mid-thoracic spine facetjoint area, and am on low dose round the clock long-lasting painmedication, but what I'm most hopeful about now is the myofascialstretching being done. I'd like to be pain free enough to be offregular pain meds, have enough energy to get more swimming and otherphysical activity back in my life, and feel comfortable that my mentalstatus isn't going down

the tubes! Other things I'll have to livewith. I've gone off my auto-immune drugs except for a very small doseof Prednisone, and I feel better now that I don't seem to need meds tosuppress my immune system and chemotherapy to kill off cells growingout of control. My rheumatologist will be surprised when I see her inabout a week. I'm going to check back through the neurologists whohave seen me to see how I'm doing there, and then I'd like to justlive for awhile with only my PT appointments! That would be heaven!Tell me more about the treatment you receive from your osteopath.Best wishes, >> Hi , > > I think I made a mistake in not asking the group with help in how to > approach the neurologist, and having a strategy like you referredto, the stupid >

thing is I spoke with Rogene and told her I was going to do exactly > that.......get some advise and I didnt, I forgot as usual.> I have lived in limbo forever...well so it seems, my Dr thinks I amloopy so > I am up against it from the start.> How did you manage to get your diagnoses? my main symptoms areneurological > and I hate it.> > Thank > > Love Sue>

[Guest guest]

Lewy ended up being discredited . . . and exams he did for the law suit were set aside and often had to be redone. . .One friend spent a fortune on him because he said, if she didn't stay under his care, he wouldn't submit her report. He was prescribing meds, then not following up for side effects . . .Like visual effects from Plaquinel. Bad deal! Rogenediana crocker <dwcrn@...> wrote: I did not see Dr. Lewy for

treatment, only for consultation, testing,and diagnosis.> >> > Hi , > > > > I think I made a mistake in not asking the group with help in how to > > approach the neurologist, and having a strategy like you referred> to, the stupid > > thing is I spoke

with Rogene and told her I was going to do exactly > > that.......get some advise and I didnt, I forgot as usual.> > I have lived in limbo forever...well so it seems, my Dr thinks I am> loopy so > > I am up against it from the start.> > How did you manage to get your diagnoses? my main symptoms are> neurological > > and I hate it.> > > > Thank > > > > Love Sue> >>

[Guest guest]

I certainly have no need to know this information, nor did I solicit

this information. I said, in order to put an end to the subject, that

I had received no treatment; had only received an examination,

testing, and a well-supported diagnosis, well supported by a good

history taken by Dr. Lewy in his consultation with me, an included

review of symptoms, laboratory results and imaging study reports, and

a well-written conclusion which supported the diagnosis that has been

sustained by other physicians who have seen me in consultation and/or

treatment. I received my settlement money a couple of months ago,

based on his evaluation and diagnosis, supported by a treating

rheumatologist and my medical records. I was awarded the amount

expected for someone with my diagnoses.

> > >

> > > Hi ,

> > >

> > > I think I made a mistake in not asking the group with help in

how to

> > > approach the neurologist, and having a strategy like you referred

> > to, the stupid

> > > thing is I spoke with Rogene and told her I was going to do exactly

> > > that.......get some advise and I didnt, I forgot as usual.

> > > I have lived in limbo forever...well so it seems, my Dr thinks I am

> > loopy so

> > > I am up against it from the start.

> > > How did you manage to get your diagnoses? my main symptoms are

> > neurological

> > > and I hate it.

> > >

> > > Thank

> > >

> > > Love Sue

> > >

> >

>

[Guest guest]

All right, now my dander is up! Y'all butted into a reply I wrote to

Sue asking me how I got my diagnosis. Y'all continue to butt in when

I've made it clear I didn't want to discuss the subject. It's your

subject--y'all discuss it off list to your heart's content. I've

asked not to be addressed about something I didn't bring up in the

first place. Y'all are rude!

> > > > >

> > > > > Hi ,

> > > > >

> > > > > I think I made a mistake in not asking the group with help in

> >how to

> > > > > approach the neurologist, and having a strategy like you

referred

> > > > to, the stupid

> > > > > thing is I spoke with Rogene and told her I was going to do

exactly

> > > > > that.......get some advise and I didnt, I forgot as usual.

> > > > > I have lived in limbo forever...well so it seems, my Dr

thinks I am

> > > > loopy so

> > > > > I am up against it from the start.

> > > > > How did you manage to get your diagnoses? my main symptoms are

> > > > neurological

> > > > > and I hate it.

> > > > >

> > > > > Thank

> > > > >

> > > > > Love Sue

> > > > >

> > > >

> > >

> >

> >

>

[Guest guest]

Dearest :

Please do not get angry, the women in this group have had a bad experience with Dr. Lewy. I had a bad experience with Dr. Brautbar, but someone else might have had a good experience with him. He charged us for coming to see him and he did nothing. When we went to California to see him, I was so sick, but he did not do any blood-work, he is a turncoat. We have all been poisoned by the rotten silicone that they implanted into our bodies.

Please do not be sad because that will make me sad too...love...Lea

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Re:neurologist

All right, now my dander is up! Y'all butted into a reply I wrote toSue asking me how I got my diagnosis. Y'all continue to butt in whenI've made it clear I didn't want to discuss the subject. It's yoursubject--y'all discuss it off list to your heart's content. I'veasked not to be addressed about something I didn't bring up in thefirst place. Y'all are rude!> > > > >> > > > > Hi ,> > > > >> > > > > I think I made a mistake in not asking the group with help in> >how to> > > > > approach the neurologist, and having a strategy like youreferred> > > > to, the stupid> > > > > thing is I spoke with Rogene and told her I was going to doexactly> > > > > that.......get some advise and I didnt, I forgot as usual.> > > > > I have lived in limbo forever...well so it seems, my Drthinks I am> > > > loopy so> > > > > I am up against it from the start.> > > > > How did you manage to get your diagnoses? my main symptoms are> > > > neurological> > > > > and I hate it.> > > > >> > > > > Thank > > > > >> > > > > Love Sue> > > > >> > > >> > >> >> >>

[Guest guest]

, it's not a personal attack from what I can see, if you don't

want to discuss the subject that's ok - but it doesn't mean others

can't discuss it if they'd like, just don't read the posts that

refer to whatever it is you don't want to discuss. Speaking for

myself, most of the time I don't even remember who initially brought

something up, we just see a commentary and add our two cents.

Peace and love to you,

Sis

> > > > > >

> > > > > > Hi ,

> > > > > >

> > > > > > I think I made a mistake in not asking the group with

help in

> > >how to

> > > > > > approach the neurologist, and having a strategy like you

> referred

> > > > > to, the stupid

> > > > > > thing is I spoke with Rogene and told her I was going to

do

> exactly

> > > > > > that.......get some advise and I didnt, I forgot as

usual.

> > > > > > I have lived in limbo forever...well so it seems, my Dr

> thinks I am

> > > > > loopy so

> > > > > > I am up against it from the start.

> > > > > > How did you manage to get your diagnoses? my main

symptoms are

> > > > > neurological

> > > > > > and I hate it.

> > > > > >

> > > > > > Thank

> > > > > >

> > > > > > Love Sue

> > > > > >

> > > > >

> > > >

> > >

> > >

> >

>

[Guest guest]

You may not need the information now but other women here may find it

helpful. Since it was written to the list and not off list to you, I am

assuming it was directed to everyone here.

Kenda

>

>> I certainly have no need to know this information, nor did I solicit

>> this information. I said, in order to put an end to the subject, that

>> I had received no treatment; had only received an examination,

>> testing, and a well-supported diagnosis, well supported by a good

>> history taken by Dr. Lewy in his consultation with me, an included

>> review of symptoms, laboratory results and imaging study reports, and

>> a well-written conclusion which supported the diagnosis that has been

>> sustained by other physicians who have seen me in consultation and/or

>> treatment. I received my settlement money a couple of months ago,

>> based on his evaluation and diagnosis, supported by a treating

>> rheumatologist and my medical records. I was awarded the amount

>> expected for someone with my diagnoses.

>>

>>

>>

>>>>>

>>>>> Hi ,

>>>>>

>>>>> I think I made a mistake in not asking the group with help in

>> how to

>>>>> approach the neurologist, and having a strategy like you referred

>>>> to, the stupid

>>>>> thing is I spoke with Rogene and told her I was going to do exactly

>>>>> that.......get some advise and I didnt, I forgot as usual.

>>>>> I have lived in limbo forever...well so it seems, my Dr thinks I am

>>>> loopy so

>>>>> I am up against it from the start.

>>>>> How did you manage to get your diagnoses? my main symptoms are

>>>> neurological

>>>>> and I hate it.

>>>>>

>>>>> Thank

>>>>>

>>>>> Love Sue

>>>>>

>>>>

>>>

>>

>>

>

>

>

[Guest guest]

People have different experiences with doctors. For one thing, a long term MDL

claim (or

Option II Dow) lupus claim, for example, requires a diagnosis by a treating

physician. That

itself requires more than one visit. Even Option I claims now seem to require

more than

one visit, although theoretically a QMD does not need to be a treating

physician.

Sometimes, the decision to reoconfirm a doctor makes no sense. I sure do know

of a

couple of cases of that - and the doctors have also been taken 'off' the list.

On the other

hand, I saw one claim where a doctor wote a thyroid 'exclusion' for peripheral

neurpathy

(GCTS claim), when the woman's medical records clearly showed she had thyroid

disease.

It was throughout the records, both before and after the peripheral neuropathy

diagnosis.

It is possible that Dr. Lewy wanted to make sure he didn't have any problems

with

reconfirmation with the claims office, and that was why he required more than

one visit. I

do not know.

Generally, if a woman has supportive documentation by other doctors and the

symptoms

are clearly in her records, there is not a problem-- even if the 'diagnosing'

doctor is on a

reconfirmation list.

The claims office is a lot like insurance companies - they won't pay benefits if

they can

avoid it. I fear for the women who have not had their claims approved yet. I

wonder how

much more difficult it will be, now that the FDA and Health Canada have approved

silicone

implants. Objectively, it should not make a difference because a settlement is

a contract.

But the decisions are also subjective, and the Claims office has the right to

deny a claim or

require reconfirmation (often by doctors that never will reconfirm).

It is wonderful that was approved for a claim (I presume lupus). I know

how sick

you have to be to be approved for an MDL long term or Dow Option II claim, or a

Level A

Option I claim. You have to be very sick.

The problem with all of this is that the silicone litigation was given a black

eyes by much

politics, lobbying and of course, the millions of dollars that Dow paid for

" studies " that

show implants do not cause systemic problems. On its face, that is ludicrous,

because a

person's body can reject any implant. And I absolutely believe that some women

are more

susceptible to immune reactions than others. But doctors do not want their own

reputations tarnished. Even many lawyers want nothing to do with it. And to

be honest, I

also believe that many women who have claimed they are sick from implants are

not. Not

every illness is related to implants. I have also seen women who have skin

cancer, or

osteoarthritis claim it is from their implants. This simply doesn't even make

sense.

I know that Sherry was blunt about this issue, and talking about credibility,

but she was

right. We have to live with the situation as it is, not as we would like it to

be. And

women's credibility is not enhanced when they insist that everything wrong with

them is

caused by implants.

I don't know if the real risks of implants will ever be accepted by the

" mainstream " medical

profession. I only hope and pray that the newer implants are somewhat safer

than the old

ones, but I don't know. There are no studies of the long term effects of

rupture - none.

With the FDA " requirement " of a 10 year study for scleroderma (a very rare

rheumatological illness), that is unlikely to happen. Many women do not become

ill for 20,

25 or 30 years.

The problem with implants are (1) the black eye with the 90s litigation; (2)

there is a whole

group of doctors (plastic surgeons) who DO have a financial interest in

implants, and (3)

men generally are not affected.

That is why I think the true dangers will never be known.

> > > > > >

> > > > > > Hi ,

> > > > > >

> > > > > > I think I made a mistake in not asking the group with help in

> > >how to

> > > > > > approach the neurologist, and having a strategy like you

> referred

> > > > > to, the stupid

> > > > > > thing is I spoke with Rogene and told her I was going to do

> exactly

> > > > > > that.......get some advise and I didnt, I forgot as usual.

> > > > > > I have lived in limbo forever...well so it seems, my Dr

> thinks I am

> > > > > loopy so

> > > > > > I am up against it from the start.

> > > > > > How did you manage to get your diagnoses? my main symptoms are

> > > > > neurological

> > > > > > and I hate it.

> > > > > >

> > > > > > Thank

> > > > > >

> > > > > > Love Sue

> > > > > >

> > > > >

> > > >

> > >

> > >

> >

>

[Guest guest]

, I did not mean anything personal in what I said about Dr. Lewy . . . Quite a few women had bad experiences with him. I'm glad your experience was good. Personally, I think women should be wary of doctors who get too involved with the attornies in these legal cases . . . There are too many chances for problems and conflicts of interest. I would caution any woman not to talke a diagnosis from one of these doctors as a life sentence (even though she needs it for a claim). We've seen too many make a great recovery - or near recovery. Regardless of what a doctor says, never, but NEVER quit trying to regain your health! I'm sorry you took offense - no offense meant! Rogene

[Guest guest]

Lynda, I am glad that Dr. Brautbar treated you with respect. In my case, he listened to my infectious disease specialist here who was holding hands with my plastic surgeon. We will never know what this doctor sent to Dr. Brautbar, but he sure did not help me, in fact his report hurt me. It might be that I was an opt out...we will never know.

Sending love always...Lea

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Re:neurologist >>All right, now my dander is up! Y'all butted into a reply I wrote to>Sue asking me how I got my diagnosis. Y'all continue to butt in when>I've made it clear I didn't want to discuss the subject. It's your>subject--y'all discuss it off list to your heart's content. I've>asked not to be addressed about something I didn't bring up in the>first place. Y'all are rude!>>>> > > > > >> > > > > > Hi ,> > > > > >> > > > > > I think I made a mistake in not asking the group with help in> > >how to> > > > > > approach the neurologist, and having a strategy like you>referred> > > > > to, the stupid> > > > > > thing is I spoke with Rogene and told her I was going to do>exactly> > > > > > that.......get some advise and I didnt, I forgot as usual.> > > > > > I have lived in limbo forever...well so it seems, my Dr>thinks I am> > > > > loopy so> > > > > > I am up against it from the start.> > > > > > How did you manage to get your diagnoses? my main symptoms are> > > > > neurological> > > > > > and I hate it.> > > > > >> > > > > > Thank > > > > > >> > > > > > Love Sue> > > > > >> > > > >> > > >> > >> > >> >>>><http://promos.hotbar.com/promos/promodll.dll?RunPromo & El= & SG= & RAND=45089 & partner=hbtools>>Upgrade Your Email - Click here!>>>

[Guest guest]

My attorney refused to use the summary Dr. Lewy did and I went

elsewhere to get one.

Lynda

At 03:29 PM 11/26/2006, you wrote:

>I certainly have no need to know this information, nor did I solicit

>this information. I said, in order to put an end to the subject, that

>I had received no treatment; had only received an examination,

>testing, and a well-supported diagnosis, well supported by a good

>history taken by Dr. Lewy in his consultation with me, an included

>review of symptoms, laboratory results and imaging study reports, and

>a well-written conclusion which supported the diagnosis that has been

>sustained by other physicians who have seen me in consultation and/or

>treatment. I received my settlement money a couple of months ago,

>based on his evaluation and diagnosis, supported by a treating

>rheumatologist and my medical records. I was awarded the amount

>expected for someone with my diagnoses.

>

>

>

> > > >

> > > > Hi ,

> > > >

> > > > I think I made a mistake in not asking the group with help in

>how to

> > > > approach the neurologist, and having a strategy like you referred

> > > to, the stupid

> > > > thing is I spoke with Rogene and told her I was going to do exactly

> > > > that.......get some advise and I didnt, I forgot as usual.

> > > > I have lived in limbo forever...well so it seems, my Dr thinks I am

> > > loopy so

> > > > I am up against it from the start.

> > > > How did you manage to get your diagnoses? my main symptoms are

> > > neurological

> > > > and I hate it.

> > > >

> > > > Thank

> > > >

> > > > Love Sue

> > > >

> > >

> >

>

>