Sarcoidosis

March 30, 2001

Hi Judy :-)

A while back I asked both Dr. Chiu and Dr. Franco if the antibiotic

protocol (AP) could be used for sarcoidosis. Both more or less told

me that it would be worth a try. I interpreted that answer to mean

that while they had not directly had a lot of experience with

sarcoidosis, but they would be willing if the situation presented

itself.

This was a couple of years ago and hopefully, more information is

available.

Wishing your friend the best of luck,

Connie

> I am searching for information about AP for sarcoidosis for a

friend. Anyone on here on AP

> for sarcoidosis? Thanks. Judy

January 21, 2003

Hi,

Can anyone explain what neuro-sarcoidosis is and if you think it can

be helped by chelation? If so, can you explain what chelation would do to

cure or lessen the illness?

Dorothy

February 5, 2005

I need some information on sarcodosis. They have just found a grasnuloma in

my lungs various nodules and airway disease. I have been diagnosed with RA in

1999 and have severe swelling, joint pain , joint deformity alreafy in 6 of

ten fingers. I was taken off the MTX b/c of the lungs but for all I know it is

the RA attacking the lungs or perhaps this Sarcodosis . I read it was far

underdiagnosed and often missed and mixed up with RA or other illnesses. I have

severe pain under both ribs, pain when I inhale in my chest and both arms

are hurting constantly. What were your symptoms and how did they arrive at your

diagnosis.

Thanks

Jacquie in Ocala

August 31, 2006

CINDY FUCHS-MORRISSEY <cfuchsmorrissey@...> wrote: From: CINDY FUCHS-MORRISSEY <cfuchsmorrissey@...>Date: Wed, 30 Aug 2006 19:32:19 -0700 (PDT) ~Please post~ Hi. I would like to network with women who have been exposed to breast implants and have been diagnosed with sarcoidosis. Also, I would like to know the company and lot numbers if this is known as well. Thank you. Fuchs-seyFuchsseyhotmailcfuchsmorrisseyhotmail .

November 8, 2007

Hi Henrich,

Sarcoidosis is a type of cancer that LDN should be effective against, according

to the list of conditions given here

http://tinyurl.com/2cnpl6

For information about LDN as a treatment for cancer, visit

http://tinyurl.com/2p57xv

With best wishes,

Dudley Delany

dudley_delany

[low dose naltrexone] Sarcoidosis

Hello, I'm new to this group and was wondering if there is anyone with

sarcoidosis being treated with naltrexone?

November 8, 2007

Hi Henrich,

I was confusing sarcoidosis with another condition. Sarcoidosis is NOT cancer!

My apologies!

Here's a good site for general information about LDN:

http://tinyurl.com/2boot2

With best wishes,

Dudley

[low dose naltrexone] Sarcoidosis

Hello, I'm new to this group and was wondering if there is anyone with

sarcoidosis being treated with naltrexone?

November 8, 2007

my brother is taking it since April

[low dose naltrexone] Sarcoidosis

Hello, I'm new to this group and was wondering if there is anyone with sarcoidosis being treated with naltrexone?

November 11, 2007

Does anyone have sarcoidosis? I mentioned in a previous message

that my cousin has it. Now my rheumatologist thinks that could

explain my polyarthritis and other problems with inflammation, as

well as insomnia, etc. I had a chest x-ray Friday and an blood test

for ACE levels, but I gather it can be hard to diagnose.

November 11, 2007

,

There is another Lyme patient in my town who also has sarcoidosis.

>

> Does anyone have sarcoidosis? I mentioned in a previous message

> that my cousin has it. Now my rheumatologist thinks that could

> explain my polyarthritis and other problems with inflammation, as

> well as insomnia, etc. I had a chest x-ray Friday and an blood test

> for ACE levels, but I gather it can be hard to diagnose.

>

November 11, 2007

IMO, I believe that all these arthritic, rheumatic, inflammatory diseases are

from an infectious origin that lowered the immune system. The symptoms depend on

where the offending microbes landed and depending on the type of bacteria/viral

infection. They are called micoplasmas, are CWD (Cell Wall Deficient) and there

is a large variety of them. They take up parasitic residence in your immune

cells rendering them helpless. Your healthy immune cells start to attack the

infected immune cells, therefore the name " Autoimmune Disorder " , a misnomer, to

say the least! Multiple bacteria or viral attacks can cause co-infections and

multiple symtoms. No matter the name of the disease, they give it, the

important thing is to follow the correct protocol. Google up micoplasmas and

educate yourself. Easily done on the computer. These protocols usually involve

antibiotics. Therefore, the name A/P or antibiotic protocol. Which one you

choose is between you and your doctor and the

information you have gathered. Read these books and you will have a clearer

understanding. " The New Arthritis Breakthrough " , by Henry Scammell and " The

RoadBack " , by Henry Scammell and Dr. MacPherson Brown. Whatever you do,

do not take drugs that suppress your immune system. You need the immune system

boosted to fight off these diseases. Check the computer for every drug you take.

Educate yourself and take no-one's word for it. Not even mine. We all must

learn to be our own advocate as we are all different and respond differently.

IMO, Dolores, Scleroderma, R/A, MCTD (mixed connective tissue disease) That's

the catch-all phrase they give it when you are carrying the bacterial/viral

load. There are also many sites where you can become a member of, on the

computer, and get information. I'm sure some of the others can enlighten you

further, Good Luck~~~~Dolores

Beckman <beckman5@...> wrote:

Does anyone have sarcoidosis? I mentioned in a previous message

that my cousin has it. Now my rheumatologist thinks that could

explain my polyarthritis and other problems with inflammation, as

well as insomnia, etc. I had a chest x-ray Friday and an blood test

for ACE levels, but I gather it can be hard to diagnose.

__________________________________________________

November 11, 2007

Thanks, Delores. I was just wondering about the specifics of

sarcoidosis because it does have certain peculiarities from what I

read. Like a need to avoid vitamin D. And the Marshall Protocol

begins with Benicar. I have mycoplasma antibodies and am already on

minocin. L.

On Nov 11, 2007, at 3:29 PM, mike rosner wrote:

> IMO, I believe that all these arthritic, rheumatic, inflammatory

> diseases are from an infectious origin that lowered the immune

> system. The symptoms depend on where the offending microbes landed

> and depending on the type of bacteria/viral infection. They are

> called micoplasmas, are CWD (Cell Wall Deficient) and there is a

> large variety of them. They take up parasitic residence in your

> immune cells rendering them helpless. Your healthy immune cells

> start to attack the infected immune cells, therefore the name

> " Autoimmune Disorder " , a misnomer, to say the least! Multiple

> bacteria or viral attacks can cause co-infections and multiple

> symtoms. No matter the name of the disease, they give it, the

> important thing is to follow the correct protocol. Google up

> micoplasmas and educate yourself. Easily done on the computer.

> These protocols usually involve antibiotics. Therefore, the name A/

> P or antibiotic protocol. Which one you choose is between you and

> your doctor and the

> information you have gathered. Read these books and you will have a

> clearer understanding. " The New Arthritis Breakthrough " , by Henry

> Scammell and " The RoadBack " , by Henry Scammell and Dr.

> MacPherson Brown. Whatever you do, do not take drugs that suppress

> your immune system. You need the immune system boosted to fight off

> these diseases. Check the computer for every drug you take. Educate

> yourself and take no-one's word for it. Not even mine. We all must

> learn to be our own advocate as we are all different and respond

> differently. IMO, Dolores, Scleroderma, R/A, MCTD (mixed connective

> tissue disease) That's the catch-all phrase they give it when you

> are carrying the bacterial/viral load. There are also many sites

> where you can become a member of, on the computer, and get

> information. I'm sure some of the others can enlighten you further,

> Good Luck~~~~Dolores

>

> Beckman <beckman5@...> wrote:

> Does anyone have sarcoidosis? I mentioned in a previous message

> that my cousin has it. Now my rheumatologist thinks that could

> explain my polyarthritis and other problems with inflammation, as

> well as insomnia, etc. I had a chest x-ray Friday and an blood test

> for ACE levels, but I gather it can be hard to diagnose.

>

> __________________________________________________

>

November 11, 2007

Is she on the Marshall Protocol and how is she doing?

On Nov 11, 2007, at 2:59 PM, tickmeister1 wrote:

> ,

>

> There is another Lyme patient in my town who also has sarcoidosis.

>

> >

> > Does anyone have sarcoidosis? I mentioned in a previous message

> > that my cousin has it. Now my rheumatologist thinks that could

> > explain my polyarthritis and other problems with inflammation, as

> > well as insomnia, etc. I had a chest x-ray Friday and an blood test

> > for ACE levels, but I gather it can be hard to diagnose.

> >

>

November 11, 2007

I don't know the person personally. I know of their story through a

friend who is a pharmacist and knows her.

> > >

> > > Does anyone have sarcoidosis? I mentioned in a previous message

> > > that my cousin has it. Now my rheumatologist thinks that could

> > > explain my polyarthritis and other problems with inflammation,

as

> > > well as insomnia, etc. I had a chest x-ray Friday and an blood

test

> > > for ACE levels, but I gather it can be hard to diagnose.

> > >

> >

>

November 11, 2007

Hi , I have a friend with Sarcoidosis. She has dry eyes and dry mouth!

This summer she had a case of Bell's Palsy and said she wouldn't go out because

she looked like quasimoto. Her eye was all popped out. I didn't get to see her.

She went into hiding. She also has a lot of arthritic problems. And she is

always tired! I copied and sent her all the material I had on Sarc., but she

is so loyal to her doc that she will not even try M/P. Go to sarcinfo.com and

see what you come up with. From what I understand, Trevor Marshall cured himself

of Sarcoidosis. It's worth a phone call. Have your doc call, he doesn't speak

with patients as he is a PHD, not an M.D. He is a medical research scientist

with a background in engineering. My doc had a pleasant conversation with him.

I am on first phase M/P. Ask Lynne also, she knows a lot. She posts on this

site as well as on the Roadback site. ~~~~~~Dolores

Beckman <beckman5@...> wrote: Thanks, Delores. I was just

wondering about the specifics of