Guest guest Posted November 15, 2001 Report Share Posted November 15, 2001 Hi Welcome to the group. There is lots of information shared on this list. If you have time, you may want to go and read the e-mails in the archives. Has your doctor discussed nutrition with you? How many carbs per day are you eating? I'm assuming that your doctor has you monitoring your bg's. How are they doing? Sorry to ask so many questions, but if we have answers, perhaps this list can help you to get on the right road to controlling your bg's. It is not easy, but it will be easier with the support of this group. I'm glad you found us. Eunice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2006 Report Share Posted December 24, 2006 Hi Rita, So sorry to hear of your father’s diagnosis. I mailed you a little earlier Off List and I hope you do go to the YANA – You Are Not Alone Now at http://www.yananow.net site because the first thing you’ll see is the Don”t Panic Buttton. I know that the word “Cancer” is enough to send most folk into a spin, but prostate cancer is an unusual form of cancer and usually time is on our side. We have time to gain an understanding of the disease, to gain an understanding of ALL the options available (and surgery is certainly NOT the only one) and to then make a decision that is best for us. It seems that your father may be rushing into surgery and that if he delays his final decision for some weeks there will be no difference in the outcome. He should at least get a second or possibly third opinion – from a radiation oncologist and a medical oncologist – before he makes a final decision. You’ll find a list of questions that I suggest should be answered before any decision is made here http://www.yananow.net/questions.htm You say that he has been told that his disease is aggressive – aggressiveness is measured by what is known as the Gleason Score which is on a scale of 2-10 – do you know what his Score is? All the best, Terry Herbert in Melbourne, Australia Diagnosed ‘96: Age 54: Stage T2b: PSA 7.2: Gleason 3+3=6: No treatment. November '06 PSA 31.4 My site is at www.yananow.net As a physician, I am painfully aware that most of the decisions we make with regard to prostate cancer are made with inadequate data: Dr “Snuffy” Myers. From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Rita Sent: Monday, 25 December 2006 6:18 AM To: ProstateCancerSupport Subject: Newbie Hi ! My father was just diagnosed with Prostate Cancer (the doc says he has an agressive form). He's 63 (is that young for this type of cancer?). His PSA doubled in the last year (rectal exam confirmed lump). A biopsy was then done. His urologist said that he highly suggests a radical prostatectomy in his case (radiotherapy only offers a 50-50 chance). He is scheduled to have the operation on Jan 15th. My father is achy all over (I hope it's not in the bones also). Everything is going SO fast. Any info would be greatly appreciated. Rita. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2006 Report Share Posted December 24, 2006 Thank you for answering SO quickly !!! When you say time is on our side, is that also true for an agressive tumour ? My mother will ask the doc for the Gleason score. His PSA was 2.4 in 2005, 4.? in March 2006 and 5.5 in Sept. 2006 ... Is that high ??? Rita. > > Hi Rita, > > > > So sorry to hear of your father's diagnosis. I mailed you a little earlier > Off List and I hope you do go to the YANA - You Are Not Alone Now at > http://www.yananow.net <http://www.yananow.net/> site because the first > thing you'll see is the Don " t Panic Buttton. > > > > I know that the word " Cancer " is enough to send most folk into a spin, but > prostate cancer is an unusual form of cancer and usually time is on our > side. We have time to gain an understanding of the disease, to gain an > understanding of ALL the options available (and surgery is certainly NOT the > only one) and to then make a decision that is best for us. > > > > It seems that your father may be rushing into surgery and that if he delays > his final decision for some weeks there will be no difference in the > outcome. He should at least get a second or possibly third opinion - from a > radiation oncologist and a medical oncologist - before he makes a final > decision. You'll find a list of questions that I suggest should be answered > before any decision is made here http://www.yananow.net/questions.htm > > > > You say that he has been told that his disease is aggressive - > aggressiveness is measured by what is known as the Gleason Score which is on > a scale of 2-10 - do you know what his Score is? > > > > All the best, > > Terry Herbert in Melbourne, Australia > > Diagnosed '96: Age 54: Stage T2b: PSA 7.2: Gleason 3+3=6: No treatment. > November '06 PSA 31.4 > > My site is at www.yananow.net <http://www.yananow.net/> > > As a physician, I am painfully aware that most of the decisions we make with > regard to prostate cancer are made with inadequate data: Dr " Snuffy " > Myers. > > > > _____ > > From: ProstateCancerSupport > [mailto:ProstateCancerSupport ] On Behalf Of Rita > Sent: Monday, 25 December 2006 6:18 AM > To: ProstateCancerSupport > Subject: Newbie > > > > Hi ! > > My father was just diagnosed with Prostate Cancer (the doc says he has > an agressive form). He's 63 (is that young for this type of cancer?). > His PSA doubled in the last year (rectal exam confirmed lump). A > biopsy was then done. > > His urologist said that he highly suggests a radical prostatectomy in > his case (radiotherapy only offers a 50-50 chance). He is scheduled to > have the operation on Jan 15th. > > My father is achy all over (I hope it's not in the bones also). > > Everything is going SO fast. Any info would be greatly appreciated. > > Rita. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 Hi, My name is and I'm a mother of a 2 year old, Gwen. She's the light of my eyes and heart as well. The only thing is that I'm always in pain and sometimes don't feel like I'd ever deserve the World's Greatest Mom award..lol. I was diagnosed with Fibro on Dec. 22, 2010 (nice Christmas present huh), so I'm fairly new at all this. I'm scared because I've done research on this and not just one thing works for everyone. That and I don't want to be so drugged up that I can't play and be there for my daughter. I hope to learn as much as I can from this group. I look forward to it even! from Austin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2011 Report Share Posted January 7, 2011 You're not alone. I'm a mother of 6 kids ages 1-11. I've had fibro since I was 18. I don't take drugs, never have. I moderate my diet, exercise, sleep and supplement. Most days are very good. Some are difficult. The healthier my lifestyle, the less the flare ups, for me. It is manageable and chiropractic adjustments have been very important. from Fort Worth From: fibromyalgiacured [mailto:fibromyalgiacured ] On Behalf Of G Sent: Friday, January 07, 2011 5:43 PM To: fibromyalgiacured Subject: newbie Hi, My name is and I'm a mother of a 2 year old, Gwen. She's the light of my eyes and heart as well. The only thing is that I'm always in pain and sometimes don't feel like I'd ever deserve the World's Greatest Mom award..lol. I was diagnosed with Fibro on Dec. 22, 2010 (nice Christmas present huh), so I'm fairly new at all this. I'm scared because I've done research on this and not just one thing works for everyone. That and I don't want to be so drugged up that I can't play and be there for my daughter. I hope to learn as much as I can from this group. I look forward to it even! from Austin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2011 Report Share Posted January 8, 2011 Hi , Welcome to the group and I so relate to your story, as I was raising children when I first got diagnosed as well. I totally agree w/ and especially to look at the diet first. And extremely important, not sure how you feel about eliminating white sugar and in fact, white products from you diet for a couple of weeks, as well as anything that that is processed,(and these are dietary baby steps). But what a difference, others have expressed that this has made for them. If you add one thing back at a time and journal your observations, you just might be quite surprised at how quickly you'll learn what might be a trigger for your pain and energy. There are in fact, many more restrictive diets that do work, however, they can be quite a challenge for some to stick with, or to start off with if you are not ready for such a drastic change yet. There are many dietary restrictions to consider, but it would be interesting to see, what you discover with this simple beginning. Also, are you into herbs or alternative care at all? If so, maybe you can find a seasoned natural health practitioner in your area. It would be nice to have someone look at you individually, to see what herbal basics might help. One of the things that we like to start off with is getting the colon opened up and making sure that a person has ample good flora or bacteria. After that, we feel that building can really begin rather than just " treating " symptoms. Remember though what you said and I so agree, that since everyone is sooo different, " there is no one thing that works for all. " But, diet change doe's make a difference for all, the degree of the difference is determined by the individual and the diet that is most compatible for them. There are some people, who although are extremely low carbbers cannot eat read meat at all, while others who are extremely low carbbers can eat as much as they want and not be effected and this is w/appropriate levels of stomach acid and enzymes for both parties. So, , you have to find out, what works for , and you will, eventually. Unfortunately, w/us fibro people, in the beginning this requires a lot of patience. BTW, you are the greatest mom for wanting to be! I found that whatever it is that you can do, just be consistent at it and that is what your daughter will grow to expect, love and appreciate about you. I find that children are so forgiving. I have a children's book coming out soon, I think you will really be able to relate to the story. It's entitled; " I Guess My Mom Is Pretty Special, " it is my story seen through the eyes of a child, and is dedicated to my three sons, it is about a mom who is sick all of the time, but manages to be consistent in her love. The women's son has a best friend, who inadvertently helps him to appreciate how special his mom is. It is a great feel good story. I will post when it is ready. Take Care, Ann > > You're not alone. I'm a mother of 6 kids ages 1-11. I've had fibro since I > was 18. I don't take drugs, never have. I moderate my diet, exercise, > sleep and supplement. Most days are very good. Some are difficult. The > healthier my lifestyle, the less the flare ups, for me. It is manageable > and chiropractic adjustments have been very important. > > > > from Fort Worth > > > > From: fibromyalgiacured > [mailto:fibromyalgiacured ] On Behalf Of G > Sent: Friday, January 07, 2011 5:43 PM > To: fibromyalgiacured > Subject: newbie > > > > > > Hi, > My name is and I'm a mother of a 2 year old, Gwen. She's the light of > my eyes and heart as well. The only thing is that I'm always in pain and > sometimes don't feel like I'd ever deserve the World's Greatest Mom > award..lol. I was diagnosed with Fibro on Dec. 22, 2010 (nice Christmas > present huh), so I'm fairly new at all this. I'm scared because I've done > research on this and not just one thing works for everyone. That and I don't > want to be so drugged up that I can't play and be there for my daughter. I > hope to learn as much as I can from this group. I look forward to it even! > > from Austin > > Quote Link to comment Share on other sites More sharing options...
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