Guest guest Posted November 26, 2006 Report Share Posted November 26, 2006 Oh, just lovely. So I've had a " double whammy " problem - silicone gel implants PLUS mercury fillings. Well, I've got 2 of the culprits gone. Now I have to work on my teeth. No finances! Help, me God...why do the rich get richer and the poor get poorer???? LOL O.K.....I'd better practice what I preach and do a clearing on my financial state right now. Oh, well...maybe God is just working on my character. Heaven knows I need the work done!!!!! :) Love you all, Thanks for all your love & support, Sunny -- In , " stardancer222002 " <stardancer222002@...> wrote: > > Hi, > I had many of your symptoms 6 years prior to having McGhan double > lumin implants....It was from having 12 molars filled with silver- > MERCURY fillings. A year later, I felt like I had the flu every few > days, multiple kidney infections--general malaise. Most of these > ceased after removing the fillings! Of course, your troubles do > coincide with implant surgery so I'm not negating the liklihood of > the implants causing the problems, just a heads up in case my > experience might help you. > > > > > > Hi . > > Thank you. > > Yes, my implants have been a complete nightmare and I've written > about it > > several times but I don't mind writing again if it will help > someone. > > I had them put in Dec. 1999. They were the smooth Saline filled > McGhann > > time-bombs. Within about a year I started to feel run down and > emotionally > > unable to cope. I was an avid runner and quite the athlete so > this was > > unusual. My boyfriend at the time dumped me because I was > starting to have > > trouble keeping up with life and didn't know why. I went through > emotional > > hell for a while but that was just the beginning. In 1995 I went > to the > > emergency room with symptoms of a stroke. I had a near syncope > episode > > followed by numbness and weakness on my right side. (I had been > having > > symptoms of chronic fatigue and fibromyalgia for about 2 years but > they had > > gone undiagnosed), I was barely functioning at this point anyway > so when I > > actually had a symptom that warranted investigation I was actually > relieved. > > However, my relief turned into a nightmare as my symptoms got > worse and there > > was no diagnosis in sight. At first they thought it was a stroke > or a TIA. > > Then, they thought it was MS. After going through the hell of > spinal taps, > > MRIs, multiple venupunctures for the sake of testing, there was > still no > > answer. There was nothing that they could say definitively, " > Your diagnosis > > is:___________ " . I had a neurologist actually came into my > hospital room, > > sit on the edge of my bed and say, " Well, we think it's MS but > don't worry. > > It's not the end of the world " That was fun. I was seeing myself > in a > > wheelchair wetting myself and he gets up nonchalantly and walks > out leaving > > me there to contemplate this alone! You gotta love it! Then > comes the, > > " perhaps you should seek some psychological counseling, Sometimes > people are > > sick because they believe they are sick, " I won't tell you what I > would like > > to do to every Dr. that I have heard that from. First, they ruin > your health > > and then they tell you it's all in your head. What do we expect, > right? Oh, > > you mean I shouldn't expect that? Could'a fooled me!! Anyway, I > digress,,,, > > After the initial incident I started to have trouble with depth > perception, > > proprioception and ataxia. I even had episodes of speech aphasia > (You know, > > when you can get out the words that are in your head, They either > come out > > mixed up, or sporadically or not at all. I had all of these.) I > couldn't > > drive, I was even afraid to ride in cars because my proprioception > was so > > distorted that the motion made me scared and sick. I was having > trouble > > walking due to the weakness in my leg muscles. I had spotty > numbness and > > tingling and loss of motor control. When I tried to walk I could > only > > shuffle without straightening out my legs or lifting my feet. I > started > > walking with a cane when I could walk. After firing my PCP and my > > neurologist I found another Dr. who actually found something that > they had > > overlooked and was able to treat that part of my symptoms. I had > a positive > > ANA. When I got treatment for this with steroids and > hydroxychloroquine a > > lot of my symptoms got better but this was not until I had become > almost > > totally nonfunctioning and had moved back in with my Mother at age > 31!! The > > steroids calmed down the systemic inflammation and my ANA went > negative but > > the neurological symptoms kept persisting off and on. I have been > > hospitalized on 3 occasions with stroke-like symptoms, unable to > walk, speak > > and barely move my extremities at all. Every time, all the > possibilities > > were explored and everything came back negative. The last time I > was > > hospitalized, I think it was in Feb. of this year, I was unable to > move at > > all, I was shaking violently, all of the muscles in my body were > tight like a > > banjo string, I had zero gag reflex, speech aphasia - I was a > mess!!! This > > was a spell that lasted many hours at various levels of severity > and Drs. > > pumped me full of anti-seizer medication and anti-anxiety > medication and some > > type of migraine headache steroid! By morning I was walking and > talking and > > able to swallow and they sent me home but I continued to be weak > for several > > days. I have lived my life for years feeling sick, weak, tired, > wondering if > > I'm going to have the strength to handle each day, afraid to plan > anything in > > case I have an " episode " , afraid I might not be able to walk half > the time, > > and basically afraid to live!! I have had chronic stiffness and > pain in my > > neck and shoulders which had gotten much worse right before my > explantation > > surgery and had progressed to frequent migraines. I have been > unable to run, > > workout, finish school, get a real job or progress at all in my > life because > > I have just been trying to survive dealing with all of this alone > with my 2 > > beautiful children who have had to watch me suffer through all > this. I was > > told by every Dr. I ever saw that none of this could possibly be > related to > > my breast implants as there were no studies that show they are > dangerous or > > that women who have saline implants develop systemic illnesses any > more often > > than women who don't. It's funny though, my illness never had any > real > > diagnosis except Mixed Connective Tissue Disease (due to +ANA) and > this never > > explained any of the neurological problems. My rheumatologist > told me that > > not only were my implants not the problem but if I had them > removed I would > > be psychologically scarred and it would not help. My neurologist > asked my if > > I was sexually active and when I told him, no, he said, " Maybe > that's your > > problem. " Does any of this sound familiar to anyone else out > there? I mean, > > how many ways can I be humiliated, really? Thank you. May I have > another?... > > But, I digress again,,,*lol*. > > There is a good end to this horror story. My current PCP did > listen to me > > and referred me to a PS who she thought might be able to help me. > See, the > > problem was getting my HMO to pay. I, being a single mother, > didn't have the > > resources to have an explantation even though I have wanted and > known that I > > have needed one for years. And, to my surprise, my PS was able to > get my HMO > > to pay for the explantation along with a complete capsulectomy and > a biopsy > > of the right and left pectorals major. When I asked him how he > did it he > > said that he was unable to present any scientific evedence to the > insurance > > company so he did some research online (following up on what I had > done) and > > collected a volume of annecdotal evidence which he presented > as: " She might > > be that one in a million...) I was so extatic that I didn't care > about > > recruiting him to my side. However, when I asked him why there > have never > > been and " scientific " studies done to prove that saline breast > implants are > > safe and effective to the purpose for which they are marketed he > said, " you > > are the study. " You gotta love it! I just about fell over. Not > at what he > > said, because I think I had already figured that out, but that he > could sit > > there and look me straight in the eyes and tell me this without > flinching. > > Now for the happy ending: I had my explantation done on June 4, > 2002. I > > feel great! The first symptom that went away was the neck > stiffness and > > headaches. Then, the chronic throbbing pain in my hands and > feet. I have > > not had any other neurological symptoms except a little numbness > (like > > asleep) feeling in my lower legs and feet when I walked on the > treadmill for > > an hour the other day! I just kept going and pushed through it > and it went > > away! I wake up early and feel good now. I'm no longer taking > the > > prescription pain medication every morning, going back to bed and > waiting for > > it to kick in so I can get up and function! I feel motivated, > confident and > > hopeful about the future! And, you know what? Most everyone says > that they > > can't really notice the difference in my size! Of course, after > not running > > and working out for years I have gone from a size 3 to a size 8 so > I know > > that part of it will go away when I get back down to my regular > weight but I > > don't care!!! I am so happy to have my life back!! All of my > family and > > friends are ecstatic for me too. My PS did send my implants and > biopsy > > material to pathology to be analyzed but I haven't heard anything > yet and I > > imagine that I won't if I don't keep pushing for the info. > > That's my 'little' story. I hope that something in it can help > someone else > > in some way. > > Love from Newport Beach. > > Lorri > > P.S. My AOL account is closing. Please change my Email address on > the list to > > lorri.lotr@ > > Thanks. > > > Quote Link to comment Share on other sites More sharing options...
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