Guest guest Posted November 28, 2006 Report Share Posted November 28, 2006 Thank you, Rogene: The university hospital might have them, but I will call first. A medical Supplier might be the best. I will let you know if we find one....love always....Lea ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~`` Re: CFS is real! >> Thank you for this, Kenda. We have a doctor here who won a case in court regarding CFS. I am not sure if I have CFS, but for me it is the pulling down pain in my back rib cage that destroys my life. I was up at 5AM, and now my day is over because I can no longer sit. It feels like something is pulling my upper back downward! The pain is so bad, and we are at a loss as to what is causing this...I have had this condition for so many years. The doctors have told me that I have chest wall damage from the ruptured implants. Do any of you have this condition?> > I do... I am 31 now, but was diagnosed with Chronic Fatigue Syndrome at the same time as my fibromyalgia diagnosis -around age 24. Just like the prior post implied... people see you go from being a healthy, active person to being cripled. The fatigue is so great, it not only affects your physical capabilities, but you can't even TALK enough to maintain a social life. I can't even talk on the phone with my friends or family. I can become exhausted carrying on a conversation for more than 10 minutes. If I converse 30-60 minutes -I'm ready for bed. When you get tired, your throat gets sore and your eyes swell up. (I'm pretty sure that's in keeping with the CFS symptoms---but I know they are for sure my symptoms I notice.) I was recently diagnosed with malnurishment due to malabsorption in my stomach, and this on top of the CFS has caused me to keep a sore throat for months. It feels like strep, but isn't---it's from pure exhaustion.It's hard for people to understand. I have friends and family who think "OK, I understand you don't feel like going out and doing anything because you don't feel well ---so I'll just come visit you... or we can just go have dinner." They can't comprehend that even TALKING to them creates exhaustion.Life becomes a constant struggle for energy.I haven't posted for a while, but my other diagnosis are: Fibromyalgia, Pseudotumor Cerebri, Cluster Headaches, Migraines, Hashimoto's Disease, Hypothyroidism, PID, Polycystic Ovaries, and my labs go back and forth for Lupus and Sjogren's Syndrome. (Currenly, my ANA is negative. It goes back and forth about every year or two.) My rib cage stays swollen and inflamed with knots, by the way. (I saw this mentioned.) God bless you all... sorry I haven't kept up or posted in a while, but I've been miserable the past few months. You're all ALWAYS in my prayers though!!!!Brigite Quote Link to comment Share on other sites More sharing options...
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