RE: RE: I see my consultant tomorrow

[Guest guest]

Hi Joanne,

It's funny to read your emails sometimes, beause I can clearly see that you do

as much research on the web as I do. I think its actually become a hobby of mine

to be honest.

And I know exactly how you feel when you say its ashame that we have to read so

much literature on health just to be able to ask for the proper tests. As I have

had to do the same thing. Every time I go to the clinic here, I tell them that I

want this test done or that test done. None of the tests are recommended by

them, they are all my suggestions. I feel like Im the doctor have the time. By

the way IBS stands for Irritable Bowel Syndrome. Most people with Fibro suffers

with IBS.

I also believe that all diseases start in the gut somewhere, maybe in the

Intestines or the Stomach...

I have been reading a book the last few days called The Healing Codes. It might

just turn out to be a bunch of hogwash, I don't know as I have not finished it

yet, but so far from what I have read the Author of the book believes that all

diseases are of the heart. What he means is that all diseases are caused by

stress. Not so sure that I believe in this beings you get Scurvy from a lack of

Vitamin C, but anyways, its been a good book and alot of what it says in there

does make sense. One thing that I did read in it that I really did like what

that he stated was that alot of our responses to certain things like when your

arguing with your spouse about something or family member, and later you wished

that you hadnt of said what you said or acted the way you did, he said stems

back from a previous trauma in our life time. He said that drama could have

happened when you were five years old, or at any age in our life. And our

responses towards things are a result of things of past and most responses to

things are us protecting ourself from being hurt again or going through that

trauma again and he believes that all of our cells have memory. He gave alot of

examples that I was like wow, he's right.... so yeah its been a good book so

far. Seems like all I read these days is self help books. Its amazing how much

stuff one can learn. Wished I had done better in School now, maybe i could have

been a doctor, as much stuff I know these days, I feel like I am one most of the

time. lol

Much love to you Joanne. Good Luck with all that you are going through with the

doctors.

Love,

Carol

To: fibromyalgiacured

From: joannesford@...

Date: Tue, 22 Mar 2011 19:12:25 +0000

Subject: RE: I see my consultant tomorrow

Hi All

I see my consultant tomorrow regarding the results of my MRI scan taken several

months ago (I know, this is the speed things move at here in England). Anyway, I

phoned up and they have told me there is no inflammation showing, but some

degeneration showing on the sacroiliac joint. They have also said that they are

going to look at the results from the colonoscopy, that I had several years ago

that showed my ilioacal valve was enflamed.

Anyway, I have written a letter to them telling them I am on Dr Ebringers diet

and on his diet you do not have inflammation on a damaged sacroiliac joint

because that is what his diet is for, and I have told them I am still concerned

about this ilioscal valve and the effect that is having on this joint. I have

also described all the symptoms that come when I eat starch (and other carbs)

especially the fact that I cannot hold starch in my small intestine and the

arthritic pain I get in all my joints etc. I am keeping off the muscle pain and

nerve ending pain because I know where describing all that gets me.

I think I am ready, but I am very tired too, I have had a long day working

today.

I am not anxious, more determined, but also aprehensive, if that makes sense

I have had a fair few flashing thoughts today regarding appointments I have had

in the past where they have spoken to me like I was stupid, and frankly I sat

there and let them

I have had to talk to myself today and remind myself how ill I was at those

times and how much more knowledge I have now. But even this gets me angry,

because I feel it is all wrong that a person has to read journals the length of

a set of encyclopedias so that they can simply get tests done, let alone decent

treatments

Anyway, I do not know exactly what I am going to ask for, I shall see how the

conversation goes, but if I can I am going to ask for one of those camera

capsules, and tell him I want this small bowel examining

I dont' know what I think regarding this small bowel thing. I know in my heart

it is Fibro I have but my illness does originate in this small bowel and I do

suspect my illness is autoimmune

Anyway, I know it is not celiac because it is not just foods with gluten in, it

is all starch food, and other carbs too that affect me. I was told it is

dysbiosis, but I have never had a test for that either, this was just a word my

GP decided on one day when I would not stop warbling on

It could be dysbiosis since Bees diet is incredibly good at clearing illnesses

of this nature up

I have also been told it is IBS, but frankly I do not know what IBS is, I

suspect IBS means we do not have a clue

Of course it could be ulcers. I have read a lot about ulcers and I am still a

little confused on this subject

I know crohns can occur just in the small intestine, and since my colonoscpy

showed I had no ulcers in my colon I guess this is a possibility. The other kind

of ulcer I have read up on is peptic ulcer that normall occur in the stomack or

at the top on the small intestine. I have read in a few places that these can

occur in the jejunum, but the data is so unclear. If anybody has any information

regarding this it would be helpful

And then there are polips, cancer, cysts and other growths. I dont know I am not

sure about any of these, as far as I know the only illness that usually causes

irritation like I have and the problem with the bowel I have and the arthritis

problem is crohns

Anyway, as You all already know, I do not even beleive in these illnesses being

separte things, to me there is a continuum. I saw that clearly when I was

regularly visiting the AS site. There there were folk with crohns and

arthrtitis, IBS and arthritis, Crohns and fibro and arthritis, ibs, fibro and

arthritis, folk with candida crohns and arthritis, folk with colitis candida

crohns and arthritis, and the list went on and on. I thought Gordon do

these doctors not see whats going on, well apparently they dont

If I have crohns or ideed any growth there I need to know because it can be

serious. One thing I do know is I have had some healing there since being on

Bees diet, but that flare I had just the other week I reminded me of my

sensitive points, these are my small intestine below the belly button, my

sacroiliac joint, my neck and my brain over my right eye, and my joints of

course, but this joint this seems to be more of a result of all the other things

Anyway, if any of you have any suggestions they would be appreciated, you lot

here are about the only folk I know that has a clue what I am harping on about

Love Joanne

[Guest guest]

Hi Joanne:

I do know what you are talking about. I have recently been reading about

this sort of thing in the gut. I have the same symptoms as you and been

diagnosed with IBS. Irritable bowel syndrome. Either you can¹t go or you

go too much. They don¹t know why. But certain foods really do aggravate

it. Cheese, milk, wheat etc.

Lazarides talks about this on her website. She is british and has

several books on nutrition that describe exactly what you are talking about.

I bet you can get them in the library over there for free. Several of them

are years old.

Anyhow, take heart. They will probably not diagnose you with anything and

that is a good thing. That means you are disease free. You are not pain

free, you are just disease free. That means that you are not in any

imminent danger. But you are living in pain and that¹s the truth.

I gave up looking for diagnosis years ago. Fibro says it all. And stress

can cause all of these pains. We also stress over over our pain so how is

that for circular? Yuk. LOL . Laugh or cry it doesn¹t change it.

Christ died and was crucified and ridiculed and we suffer some of his pain

on a daily basis as well. Nobody escapes this tortuous existence. We all

need to take his attitude. We are not here for worldly purposes, we are

here to correct our own self, and hopefully help others in the process so

that our soul is in alighnment with God.

Our wordly cares can become bigger than our love of God. I believe that¹s

what we need to remember.

I hope I am not preaching here but recently I have been reading about

Catherien of Siena and she had the right message. Very inspiring.

Let us know what they say Joanne when you go for your results today.

Love to you and yours

rosemarie

>

>

>

>

>

> Hi All

>  

> I see my consultant tomorrow regarding the results of my MRI scan taken

> several months ago (I know, this is the speed things move at here in England).

> Anyway, I phoned up and they have told me there is no inflammation showing,

> but some degeneration showing on the sacroiliac joint. They have also said

> that they are going to look at the results from the colonoscopy, that I had

> several years ago that showed my ilioacal valve was enflamed.

>  

> Anyway, I have written a letter to them telling them I am on Dr Ebringers diet

> and on his diet you do not have inflammation on a damaged sacroiliac joint

> because that is what his diet is for, and I have told them I am still

> concerned about this ilioscal valve and the effect that is having on this

> joint. I have also described all the symptoms that come when I eat starch (and

> other carbs) especially the fact that I cannot hold starch in my small

> intestine and the arthritic pain I get in all my joints etc. I am keeping off

> the muscle pain and nerve ending pain because I know where describing all that

> gets me.

>  

> I think I am ready, but I am very tired too, I have had a long day working

> today.

>  

> I am not anxious, more determined, but also aprehensive, if that makes sense

>  

> I have had a fair few flashing thoughts today regarding appointments I have

> had in the past where they have spoken to me like I was stupid, and frankly I

> sat there and let them

>  

> I have had to talk to myself today and remind myself how ill I was at those

> times and how much more knowledge I have now. But even this gets me angry,

> because I feel it is all wrong that a person has to read journals the length

> of a set of encyclopedias so that they can simply get tests done, let alone

> decent treatments

>  

> Anyway, I do not know exactly what I am going to ask for, I shall see how the

> conversation goes, but if I can I am going to ask for one of those camera

> capsules, and tell him I want this small bowel examining

>  

> I dont' know what I think regarding this small bowel thing. I know in my heart

> it is Fibro I have but my illness does originate in this small bowel and I do

> suspect my illness is autoimmune

>  

> Anyway, I know it is not celiac because it is not just foods with gluten in,

> it is all starch food, and other carbs too that affect me. I was told it is

> dysbiosis, but I have never had a test for that either, this was just a word

> my GP decided on one day when I would not stop warbling on

>  

> It could be dysbiosis since Bees diet is incredibly good at clearing illnesses

> of this nature up

>  

> I have also been told it is IBS, but frankly I do not know what IBS is, I

> suspect IBS means we do not have a clue

>  

> Of course it could be ulcers. I have read a lot about ulcers and I am still a

> little confused on this subject

>  

> I know crohns can occur just in the small intestine, and since my colonoscpy

> showed I had no ulcers in my colon I guess this is a possibility. The other

> kind of ulcer I have read up on is peptic ulcer that normall occur in the

> stomack or at the top on the small intestine. I have read in a few places that

> these can occur in the jejunum, but the data is so unclear. If anybody has any

> information regarding this it would be helpful

>  

> And then there are polips, cancer, cysts and other growths. I dont know I am

> not sure about any of these, as far as I know the only illness that usually

> causes irritation like I have and the problem with the bowel I have and the

> arthritis problem is crohns

>  

> Anyway, as You all already know, I do not even beleive in these illnesses

> being separte things, to me there is a continuum. I saw that clearly when I

> was regularly visiting the AS site. There there were folk with crohns and

> arthrtitis, IBS and arthritis, Crohns and fibro and arthritis, ibs, fibro and

> arthritis, folk with candida crohns and arthritis, folk with colitis candida

> crohns and arthritis, and the list went on and on. I thought Gordon do

> these doctors not see whats going on, well apparently they dont

>  

> If I have crohns or ideed any growth there I need to know because it can be

> serious. One thing I do know is I have had some healing there since being on

> Bees diet, but that flare I had just the other week I reminded me of my

> sensitive points, these are my small intestine below the belly button, my

> sacroiliac joint, my neck and my brain over my right eye, and my joints of

> course, but this joint this seems to be more of a result of all the other

> things

>  

> Anyway, if any of you have any suggestions they would be appreciated, you lot

> here are about the only folk I know that has a clue what I am harping on about

>  

> Love Joanne

>  

>

>