Re: (unknown)

[Guest guest]

That's OK, Lori. Sometimes I forget to as well.

--- ldanuloff wrote: > Sorry I

did not put a subject line on the e-mail I

> just posted. I'm

> kinda new at this e-mail thing. I pretty much don't

> know what I am

> doing so please bear with me. Lori

>

>

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- Check & compose your email via SMS on your Telstra or Vodafone mobile.

[Guest guest]

Welcome back, . Glad to hear that things are

still going well for you at the moment. Keep us

updated when you can.

--- wrote: > Hello

All,

>

> First of all let me say thank you so much for all

> your kind replies,

> each one was like gettting a get well card. I've

> read, but not

> replied to them all, so be assured once I have a bit

> of time I'll

> reply. Also I'm on a dialup here at the hospital and

> I get

> frustrated not being able to move between messages

> like I can at

> home, so I get mad and put the computer down

> sometimes.

>

> Okay, Well here's the deal. I still feel absolutely

> great, and it's

> now Saturday night here. I've had the good ole

> " foley " catheter

> removed and I'm free to roam about now. I ate lunch

> in the

> caffeteria today for the first time instead of in my

> room. I don't

> have to get IV antibiotics anymore and I had my last

> IV prednisone

> today too. I should get to leave tomorrow. I'll be

> discharged to

> these apartments that are used for transplant

> patients who don't

> live in town to stay and be monitored once a day for

> the next 2-3

> weeks. So i'll be going there and have bloodwork

> drawn every morning

> and see a dr. then be on my merry way for the day.

>

> So thanks so far for all your thoughts and prayers

> and just general

> love. Know that I'm doing just fine and tomorrow I

> should get the

> rest of my tubes out and be gone gone gone. Tomorrow

> if I get out

> early i'll have time to update the ole journal and

> some other stuff

> hopefully.

>

>

>

>

http://mobile.yahoo.com.au - Yahoo! Mobile

- Check & compose your email via SMS on your Telstra or Vodafone mobile.

[Guest guest]

Dear

Lovely to hear from you again, and wow what great news you have given

us. I am so pleased that you are feeling so good , this is just

what I prayed for, and it is just amazing that after just one week you

will be leaving to the recuperation apartments. I am over the moon, and

you have set my Sunday off to a fine start.

Keep well ok, and again, don't overdo things, your journal entry

will be awaited with eagerness, but, and I stress but, don't push it, do

things as and when you can, rest, relax and we will hear from you very

soon.

Bless you .

Love

UK Moderator

(unknown)

Hello All,

First of all let me say thank you so much for all your kind replies,

each one was like gettting a get well card. I've read, but not

replied to them all, so be assured once I have a bit of time I'll

reply. Also I'm on a dialup here at the hospital and I get

frustrated not being able to move between messages like I can at

home, so I get mad and put the computer down sometimes.

Okay, Well here's the deal. I still feel absolutely great, and it's

now Saturday night here. I've had the good ole " foley " catheter

removed and I'm free to roam about now. I ate lunch in the

caffeteria today for the first time instead of in my room. I don't

have to get IV antibiotics anymore and I had my last IV prednisone

today too. I should get to leave tomorrow. I'll be discharged to

these apartments that are used for transplant patients who don't

live in town to stay and be monitored once a day for the next 2-3

weeks. So i'll be going there and have bloodwork drawn every morning

and see a dr. then be on my merry way for the day.

So thanks so far for all your thoughts and prayers and just general

love. Know that I'm doing just fine and tomorrow I should get the

rest of my tubes out and be gone gone gone. Tomorrow if I get out

early i'll have time to update the ole journal and some other stuff

hopefully.

[Guest guest]

,

I just can't say how happy I am for you. It's just such wonderful news.

Keep feeling great and we look forward to more updates when you're feeling up

to it! What an answer to prayers.

Dana

<< (unknown)

Hello All,

First of all let me say thank you so much for all your kind replies,

each one was like gettting a get well card. I've read, but not

replied to them all, so be assured once I have a bit of time I'll

reply. Also I'm on a dialup here at the hospital and I get

frustrated not being able to move between messages like I can at

home, so I get mad and put the computer down sometimes.

Okay, Well here's the deal. I still feel absolutely great, and it's

now Saturday night here. I've had the good ole " foley " catheter

removed and I'm free to roam about now. I ate lunch in the

caffeteria today for the first time instead of in my room. I don't

have to get IV antibiotics anymore and I had my last IV prednisone

today too. I should get to leave tomorrow. I'll be discharged to

these apartments that are used for transplant patients who don't

live in town to stay and be monitored once a day for the next 2-3

weeks. So i'll be going there and have bloodwork drawn every morning

and see a dr. then be on my merry way for the day.

So thanks so far for all your thoughts and prayers and just general

love. Know that I'm doing just fine and tomorrow I should get the

rest of my tubes out and be gone gone gone. Tomorrow if I get out

early i'll have time to update the ole journal and some other stuff

hopefully.

>>

[Guest guest]

lol, more chins than a chinese phone bookm now that was good!!!

Signed,

Your sister in steroids (30) mgs

Vicky81856

••••••••••••• Original Message •••••••••••••

Donna,

In reply to your question...prednisone at times causes me to feel high, though not to any great extreme and then there are times I feel like it is doing nothing for me. Then there is the issue of weight gain.... Ha! Funny thing(twisted joke by the makers I think).

Saw my doc last month, he asked how I was doing.. My reply was Great! Other than I have more chins than a chinese phone book. I'm chasing trucks down the road gnawing on tires and I have developed an affinity for tree bark. While the use of prednisone I feel has been beneficial to my well being and recovery whilst battling this monster. I wish, hope and pray that no other person walking the face of the Earth should have to take any form of steroids.

Wally Holmesly ipf 10/06 west Texas

donna siegmann <dsiegmann1> wrote:

Quick question I forgot...to sing my last entry...andDo people feel a little high on perdnisone?donnaS 11/05 IIP NY__________________________________________________

[Guest guest]

HI Everyone,When my dad is asked how he is doing he replies, " As long as there is room for me to get worse I am doing great!" This monster is horrible and I look up to all of you for fighting it! Keep it up and Keep strong!Cyndi (DAD PF 12/05)WALLY HOLMESLY wrote: Donna, In reply to your question...prednisone at times causes me to feel high,

though not to any great extreme and then there are times I feel like it is doing nothing for me. Then there is the issue of weight gain.... Ha! Funny thing(twisted joke by the makers I think). Saw my doc last month, he asked how I was doing.. My reply was Great! Other than I have more chins than a chinese phone book. I'm chasing trucks down the road gnawing on tires and I have developed an affinity for tree bark. While the use of prednisone I feel has been beneficial to my well being and recovery whilst battling this monster. I wish, hope and pray that no other person walking the face of the Earth should have to take any form of steroids. Wally Holmesly ipf 10/06 west Texas donna siegmann <dsiegmann1> wrote: Quick question I forgot...to sing my last entry...andDo people feel a little high on perdnisone?donnaS 11/05 IIP NY__________________________________________________

[Guest guest]

Hi Guy, Im Ann from the UK, are you a PF sufferer or was it your wife?

Have you been a drinker before and stopped or did you have to suppress it whilst your wife was ill?

Please dont say you want to die, thats a permanent solution to a temporary problem. Grief is awful there are so many feelings, relief person is away from suffering, relief for yourself as a carer, guilt for feeling relief, anger for illness, lonliness, no wonder your feeling upside down. You can be grieving not only for what you have lost but also for what your hopes for the future would have been.

Now its time to recoupe your feelings, dont think suppressing them can be good so go ahead, scream shout sob your heart out and when your exhausted sleep. Tomorrow will be a little easier as will the next day, life will never be the same just different, keep your memories alive. Drinking will only numb your head and make you feel even lower, I sometimes feel like going out and getting out of my head but the facts wont change when your sober, you sound like you would beat yourself up for have a drink.

Does writing down your feelings make you feel any better? I am a long way away in miles but I am close to you in your despair, I wish I could wrap you in my arms and hold you so you can have the physical feeling people care what your going through but I cant so Im giving you a virtual hug, you'll get it together eventually dont rush it but please dont feel alone you have friends on the site who care about you.

you are in my prayers love Ann (carer UK)

[Guest guest]

Dear Guy, I feel your pain. I am praying for stength for you. Please don't give up on life. Your wife would want you to be happy. She is in a far better place than we are. Don't drink please. Paint, DRaw, write. anything just not the bottle. The devil want you to fall. Have faith in God. He is the way. I have Pul. Fib. now 4 years and I am 39, I sometimes feel hopeless. But I just thank God for everyday that I have to spend it with my children. Please get some guidance anywhere maybe, at church or a support groups. Don't drown your pain. Let it OUT! If you need to talk please write back. Life is Beautiful. LIVE IT>>> TAmmydiaz_oly wrote: >> I don't knonw I If I can say that. But I am drinking again, i feel so > bad my wife is gone I have no suppott from my family I am so > disperated, I just whant to die please give me some word of > encouragement . guy>Hi Guy:You sound very disperate, was your wife sick with IPF?? or are you sickwith this disease??Do you have any family member you can turn to right now?? Stay with us Guy.. there are a lot of people who can help you right here right now...Don't give up, don't say you want to die..talk to us.. let the wonderful caring

people on this board help you.. Believe me everyone has their strenth here.. You will get through this..I will pray that you find some comfort.. God Bless you...Hugs Oly

[Guest guest]

Hi Guy, We have talked about you not having a support system and it still just breaks my heart. How are you doing with your Dr. visits and cough?

Is your grandson close to you?

I can not imagine drinking and wanting to die. That must be a horrible feeling.

Please know God loves you and you are never alone. We are all here with you. Such a shame your wife doesn't understand...we do. Hang in there and post more often and maybe we can help keep your spirits up.

Love and Prayers, Peggy 9/04 ipf Florida

" Worry looks around, Sorry looks back, Faith looks up "

I don't knonw I If I can say that. But I am drinking again, i feel so

bad my wife is gone I have no suppott from my family I am so

disperated, I just whant to die please give me some word of

encouragement . guy

[Guest guest]

Guy, Look for strgenth from God, He is the only ONE who will never let you down. A hp 6/06TNdiaz_oly wrote: >> I don't knonw I If I can say that. But I am drinking again, i feel so > bad my wife is gone I have no suppott from my family I am so > disperated, I just whant to die please

give me some word of > encouragement . guy>Hi Guy:You sound very disperate, was your wife sick with IPF?? or are you sickwith this disease??Do you have any family member you can turn to right now?? Stay with us Guy.. there are a lot of people who can help you right here right now...Don't give up, don't say you want to die..talk to us.. let the wonderful caring people on this board help you.. Believe me everyone has their strenth here.. You will get through this..I will pray that you find some comfort.. God Bless you...Hugs Oly

Yahoo! oneSearch: Finally, mobile search that gives answers, not web links.

[Guest guest]

Hi Annie, Welcome to our group. Tell us a little about yourself. The board has been quite lately but we are here. I think we are needing a fresh voice..

God Bless.

Love and Prayers, Peggy 9/04 ipf Florida

" Worry looks around, Sorry looks back, Faith looks up "

Aha, now I see. I forgot I was on yahoo for the support group and kept trying to access stuff from my hotmail account. Annie

Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Yahoo! Mail

[Guest guest]

I think maybe it's because your up and about during the day and at night everything piles up for morning.

Take 2 aspirin and mail me 5 bucks..LOL

Love and Prayers, Peggy 9/04 ipf Florida

" Worry looks around, Sorry looks back, Faith looks up "

Does anyone know why the cough is worse in evenings, when going to bed, and first thing in the morning? In the afternoon I don't have much coughing. Hmmmm? Joy 3/6

Check it out!! Great Original Jewelry ...mention " On Sale " and get 10% off total purchase. www.thehandcraftedjewelrymall.com/joykiefner/ <http://www.thehandcraftedjewelrymall.com/joykiefner/>

[Guest guest]

Hi Joy,

These are the times when your body is the most

susceptible to the things that irritate your breathing

causing you to cough. Your tired in the evening, when

in bed, and when you wake up my rehab tells us the

shallow breathing you do when sleeping lowers your o2

levels. Hope that is helpful, I got a bed that

inclines so I breath a little easier and it helped me.

Doing deep breathing when I first wake up helps in the

morning.

Good luck and God Bless

H. NH ipf 04/06

" WHO FEELS IT KNOWS IT "

--- Joy wrote:

> Does anyone know why the cough is worse in evenings,

> when going to bed, and first thing in the morning?

> In the afternoon I don't have much coughing. Hmmmm?

> Joy 3/6

>

> Check it out!! Great Original Jewelry ...mention

> " On Sale " and get 10% off total purchase.

> www.thehandcraftedjewelrymall.com/joykiefner/

>

>

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