Re: Newbie Needs Help

[Guest guest]

I have been a member of this group for months but was too ashamed to

post. I kept listening to others and telling myself to " be strong " .

I really need to get this out, please be patient with me. I am a MS

patient and I was diagnosed 2 years ago. I had to retire and since

then I spend most of my days home alone and in pain.

I stopped telling my long lost friends and family (they don't really care when

they say - how are you?). I have horrible spasticity and the spasms wake me

screaming at night.

I have a reginimen of about 5-6 meds a day and now I supplement that with a

glass of wine, and I still can't get through the night. The spasms are in

cycles and they involuntary shaking is so bad and so painful that I look like I

might be having seizures.

My body has to go through a 10-15 minute cycle of spasms and then it usually

subsides and I am so exhausted from trying not to scream at the top of my lungs.

Pain sends you to such a deep level of despair that only someone that

has walked the walk can understand. My pain comes through

tranquilizers and yes I do see a MS specialist, a Neuro, a PM

specialist and my Primary on a regular basis. Thanks.

Any ideas for coping will greately apreciated. Thanks for listening,

I am running out of courage.

[Guest guest]

voogee wrote:

> I have a reginimen of about 5-6 meds a day and now I supplement that with a

glass of wine, and I still can't get through the night. The spasms are in

cycles and they involuntary shaking is so bad and so painful that I look like I

might be having seizures.

> My body has to go through a 10-15 minute cycle of spasms and then it usually

subsides and I am so exhausted from trying not to scream at the top of my lungs.

You really have your plate full. I trust that the doctors are giving

you something like a strong dose of Baclofen or another anti spasmodic

to help with the spasms? If they are and it's not working, they need

to address that issue immediately.

Please don't supplement your medications with alcohol. That can

easily lead to even more problems than you have already.

--

Lyndi

[Guest guest]

Rich,

I cannot begin to tell you the hell I have been through because I did

not have the support you seem to have had. The pain alone was bad

enough but I was determined not to let it beat me.

But because of the lack of support one needs, my life has turned from a 28 year

sucessful career, a 15 year marriage, a beautiful home, lots of friends and a

big family to losing them all because my life of friends and family were so

intertwined.

A sequence of events so absurd unfolded on me I would not know how to begin to

tell my story or if it would do me any good. All I can say is it has made me a

very sick man inside on top of my chronic back pain.

I am on the edge of losing this battle because I am now alone in this world and

feeling terribly beaten and it all started with my back problems after surgery.

>Rich S. wrote:

> I was forunate to become a member of a local pain clinic. Besides

> treating my extreme low back pain, they also had a psychologist on

> staff that I met with several times. Although I still feel the loss

> of my career on some levels, the counseling really helped me.

[Guest guest]

Hi vboogee       

I also have MS and suffer horrible spasms and pain.  I know exactly what you are

talking about.  It's a pain that is hard to describe to someone who doesn't have

it. 

You are definetely at the right place.  Even though a lot of us suffer different

types of pain one thing is for sure and that's that we all know what pain is. 

We all understand the words in your post.  Never be ashamed to post here.  No

one will ever judge you or think you are over exaggerating your pain.  We all

know and we all care what you are going through.

What medications are you currently taking?  Are you currently taking anything

specifically for MS?  What type of MS do you have?  It's okay if you don't feel

like answering these questions. 

As long as you know that no one will ever judge you here.  If you would like to

e-mail me privately we could talk a little more in depth about our MS and I

could give you some good sites to check out.

Your in my thoughts and Prayers,

Carol  (OK)

> vboogee wrote:

> Pain sends you to such a deep level of despair that only someone that has

walked the walk can understand.  My pain comes through

tranquilizers and yes I do see a MS specialist, a Neuro, a PM

specialist and my Primary on a regular basis.  Thanks.

>Any ideas for coping will greately apreciated.  Thanks for listening,

I am running out of courage.

[Guest guest]

Hi Lyndi,

Don't know if this is the first time I've posted here. I've been a quiet

back seat driver for a long time, and have got a lot out of just reading. I

can't keep up with being an active member of everything.

I Just saw your post, and something a doc said to me a long time ago when I

was about 23yrs old (I'm 42 now) when I was having trouble sleeping, because

of pain from two work accidents and to car accidents in a 2 year space of

time. The doc recommended having a " glass of port " each evening. Didn't

take up his idea because I've never drunk anything alcoholic in my life when

it comes down to it. The only alcoholic stuff I've drunk is what's in cough

syrup. And I wasn't going to start back then.

I know a lot more now than I knew then and know enough about not mixing most

meds with alcohol. Especially pain meds, and antidepressants and epileptic

meds, not good combing them with alcohol. Thankfully medical advice has

changed over the years.

Pam

Vic Oz

Cats aren't clean ...

they're just covered in cat spit!