Re:

[Guest guest]

--- ophelialace@... wrote:

> I would like to be removed from the mailing list.

> Thank you ophelialace.

This is what you do to leave the list ophelialace.

You have to do it yourself!!

> To leave this list please go to

> diabetes-unsubscribe

> Hope you come back soon!

__________________________________________________

[Guest guest]

Dear Phyllis,

My husband finally bought me 15 pills because he saw

what unbearable pain I am having and that I can't

sleep

more than 15 minutes at a time about 2 hours in all,

all night which is savagely taking its tole on my

nerves.

Then today, the insurance company called and said they

would pay. The first " right " thing they've done!

>>>>>> No one should ever be in pain in

America!<<<<<<<<

My son sure is in pain!! The doctors still have no

idea why he is in so much pain.

__________________________________________________

[Guest guest]

That is wonderful news. I hope they help. I also hope you can find

something out about your son.

----- Original Message -----

> Dear Phyllis,

> My husband finally bought me 15 pills because he saw

> what unbearable pain I am having and that I can't

> sleep

> more than 15 minutes at a time about 2 hours in all,

> all night which is savagely taking its tole on my

> nerves.

> Then today, the insurance company called and said they

> would pay. The first " right " thing they've done!

>

> >>>>>> No one should ever be in pain in

> America!<<<<<<<<

> My son sure is in pain!! The doctors still have no

> idea why he is in so much pain.

>

>

>

[Guest guest]

---Glad hubby got the pills for you. Even happier the ins. has

finally agreed to pay for them. you can rest easier with this

knowledge.

Are all the test results in for your son??? There has to be a reason

for the pain he is in.

Praying for you both.

Madge

In diabetes@y..., NANCY BROTZMAN <petra2000@y...> wrote:

> Dear Phyllis,

> My husband finally bought me 15 pills because he saw

> what unbearable pain I am having and that I can't

> sleep

> more than 15 minutes at a time about 2 hours in all,

> all night which is savagely taking its tole on my

> nerves.

> Then today, the insurance company called and said they

> would pay. The first " right " thing they've done!

>

> >>>>>> No one should ever be in pain in

> America!<<<<<<<<

> My son sure is in pain!! The doctors still have no

> idea why he is in so much pain.

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

,

I will pray for your son. You and him will be starting on a search that

you will have to leave no stone unturned. I pray that you get a good

team of doctors that will start eliminating every possible condition.

Please keep me posted. I and the others in the group can help with

Internet searches to constantly provide you with medical information.

Good luck.

[Guest guest]

Dear Phyllis,

Thank you! Hadn't thought about internet searches.

Since I really don't have a clue about anything, and

neither do the doctors I wouldn't know where to start.

All we know is he was perfectly healthy and a real

go-getter in soccer and basketball until mid October

when he suddenly couldn't walk without severe pain. No

injuries! All the tests seem to come back negative.

Thank you for your prayers!

> I will pray for your son. You and him will be

> starting on a search that

> you will have to leave no stone unturned. I pray

> that you get a good

> team of doctors that will start eliminating every

> possible condition.

> Please keep me posted. I and the others in the group

> can help with

> Internet searches to constantly provide you with

> medical information.

>

> Good luck.

__________________________________________________

[Guest guest]

---Obviously something is causing the pain and there has to be some

kind of test or xray or something that can determine what the problem

is. No torn ligaments, even slightly torn? no blockages anywhere?

Not a pulled muscle? Has every possible known test been done? Could

it be related to something lacking in the diet? Not a calcium

deposit?

Praying something can be done for him soon.

Madge

In diabetes@y..., NANCY BROTZMAN <petra2000@y...> wrote:

> Dear Phyllis,

> Thank you! Hadn't thought about internet searches.

> Since I really don't have a clue about anything, and

> neither do the doctors I wouldn't know where to start.

> All we know is he was perfectly healthy and a real

> go-getter in soccer and basketball until mid October

> when he suddenly couldn't walk without severe pain. No

> injuries! All the tests seem to come back negative.

> Thank you for your prayers!

>

>

>

> > I will pray for your son. You and him will be

> > starting on a search that

> > you will have to leave no stone unturned. I pray

> > that you get a good

> > team of doctors that will start eliminating every

> > possible condition.

> > Please keep me posted. I and the others in the group

> > can help with

> > Internet searches to constantly provide you with

> > medical information.

> >

> > Good luck.

>

>

> __________________________________________________

>

[Guest guest]

<<Could

it be related to something lacking in the diet? Not a calcium

deposit?

Praying something can be done for him soon.

Madge >>

Madge just reminded me of something. A lack of potassium can bring

terrible pains to the legs, especially the calf area. I take it every

day. My levels look normal, but if I go a couple of days and don't take

it, my legs really hurt.

Just a thought.

[Guest guest]

Start searching under leg pain. Also, get him to a nuerologist who

specialises in pain management. He can take drugs that don't drug him.

This is the new pain management treatment. They treat the pain sensors

in the brain, so the pain stops, but you don't feel drowsy or sick. Most

doctors don't even know about this.

This is not the cure, but we have got to get him out of pain until they

find something. I would search and push the doctors to cover every part

of the body. For example - Circulation - have all test been done to rule

out any heart or artery damage? Nervous system - pinched nerve, nerve

damage etc.

Don't rule out a chiropractor. I know many when all else failed they

fixed it. This is going to be a long journey, but I am determined that

we all help him find out what is wrong!

But, please keep me posted. When I am sick it is one thing, but when it

is your child, then we really get serious!

[Guest guest]

Great idea. I have to take potassium because of my BP pills, my legs cramp

something awful. Something to think about.

Re: Re:

> <<Could

> it be related to something lacking in the diet? Not a calcium

> deposit?

> Praying something can be done for him soon.

> Madge >>

>

> Madge just reminded me of something. A lack of potassium can bring

> terrible pains to the legs, especially the calf area. I take it every

> day. My levels look normal, but if I go a couple of days and don't take

> it, my legs really hurt.

>

> Just a thought.

[Guest guest]

Also zinc comes into play on leg cramps

Phyllis Norwood wrote: <<Could

it be related to something lacking in the diet? Not a calcium

deposit?

Praying something can be done for him soon.

Madge >>

Madge just reminded me of something. A lack of potassium can bring

terrible pains to the legs, especially the calf area. I take it every

day. My levels look normal, but if I go a couple of days and don't take

it, my legs really hurt.

Just a thought.

[Guest guest]

--- We really have to be detectives in finding out what our problems

are, don't we?!!!! We may discover the problem before the drs. do!!!

Madge

n diabetes@y..., Phyllis Norwood <phyllis@t...> wrote:

> <<Could

> it be related to something lacking in the diet? Not a calcium

> deposit?

> Praying something can be done for him soon.

> Madge >>

>

> Madge just reminded me of something. A lack of potassium can bring

> terrible pains to the legs, especially the calf area. I take it

every

> day. My levels look normal, but if I go a couple of days and don't

take

> it, my legs really hurt.

>

> Just a thought.

[Guest guest]

--- You are correct about the potassium, Phyllis. I also get cramps

very bad in my legs if I am running low on it.

Madge

In diabetes@y..., Phyllis Norwood <phyllis@t...> wrote:

> One more thing , sorry to keep bugging you about your son, but

as

> soon as I get a idea, I just shoot it out.

>

> If you don't have any answers by after the holidays, I would have

him

> referred to Duke.

>

> Phyllis

[Guest guest]

Lots of times there are sales or free monitors if you

buy the strips to go with them. Check around places

like WalMart and KMart to see if they have such sales

before you put a lot of money out for something you

could get for free (unless your insurance will pay).

As far as the weight loss. I've found exercise is

really important. I've been quite sedentary, but now

I'm taking cardiac rehab 3 times a week and find I

have a lot more energy than before. I didn't want to

go, but have found exercise really helps. (You may

not know I had 2 heart operations Oct. 28 and Nov. 6)

Exercise needn't be on equipment. Just walking a

little more to do cleaning, or parking further away

when we go to the mall help.

-list owner

> Thanks for the encouragement to get a monitor. It's

> been on my mind

> a lot. I'll make the calls tomorrow.

>

> I haven't found the ADA diet hard to follow, but I

> wish the weight

> was coming off. I have lost about six pounds so far

> and have 64 to

> go to reach a healthy weight. I'm getting

> frustrated. I feel like

> I'm eating so much less, and feel better for it but

> just don't see

> results on the scale.

>

> It's gonna work, right??

>

>

>

>

__________________________________________________

[Guest guest]

Phyllis, I am on Amaryl 4 mg every am, and Glucophage xr, 3 before my supper

meal. No I haven;t been tested, but have also found that my legs do not hurt

while my suger is in the 100-120 range.

Phyllis wrote: What medications do you take?

Did you have any medical tests to prove the neuropathy? I ask this

because I had the same symptoms in my legs and feet and they found that

I had peripheral arterial disease, but they never tested for neuropathy?

So I am confused on the issue.

I am now on Atkins and have cut my meds way down. On the days when my

blood sugar is 100 I don't take any meds and my legs and feet don't

hurt. I am still trying to figure this out and am going to the doctor in

about 2 weeks with lots of questions.

Phyllis

[Guest guest]

Thanks Phyllis. My wife has to lose weight too because of high cholesterol.

Hang in there and you will live a long time.

Phyllis wrote: <<I stopped at 30 and hope to live way

past 64.>>

I think you caught yours in time. Good for you. My sister was " crazy "

and I had to put her in a rehab. She has been clean for 10 years and has

very good health, better than mine. She also lost all her weight and has

been at a normal weight for 20 years. I hope that when I get to the

normal weight that will help me.

To leave this list please go to diabetes-unsubscribe

Hope you come back soon!

[Guest guest]

Hi ,

I just read your email and felt I needed to respond.

I do feel for you with much of what you stated.

Although I seldom post to this great list; I do read

it daily since I have learned a great deal from this

list over the past year; and continue to learn so

much. The listowner () should stand and take a

bow for running such a wonderful place for us to come.

I tend to be such a lurker; but when I have written I

get quick responses that help me so much.

I just wanted to say that I weigh more than you

stated; and after I got over the shock of being

diagnosed last March 27, 2001; I was thankful. It was

a blessing in disguise. Simple as that. I have

changed my eating habits; this was easier than I

expected it to be. I made small changes and continue

to do so. I am improving my health and there is no

stopping me now! I've lost close to 60pounds now;

many inches off my hips/thighs; continue to do my

aerobic breathing program daily; as well as my

Oxyciser machine (which is based on the chi machine so

I call it my imitation chi machine). I try to do the

thighmaster a few times a week; and am trying to do my

walking tapes more. Each month I set 3 new things to

do for myself; (ie. add an exercise; or change my hair

style a few times a week; or doing something I really

want to do).

This is a slow process for me since I am so obese.

But I am thankful for the initial diagnosis.

Otherwise, I would have continued down the road being

an unhealthy person. So I call this my Road to

Wellness; I don't focus on the amount of weight or

inches; but it sure feels great when I need to buy

something smaller. I don't weigh myself; etc.

If I see my bg numbers going higher then I re-evaluate

my eating and exercise and make some changes. I have

learned to closely monitor how I am feeling.

I have a long way to go; but I have come a long way as

well. I am proud of what I've accomplished over the

year. March 27, 2002 will be one year since being

dx'd; then I look at my diet/exercise plan and make

more changes so I can continue to drop pounds; and

eventually hope to be like Eunice and be able to go

without meds. I find her posts quite inspiring.

I'm so glad you were able to get your blood checked

and new what to look for. You will succeed!

Take care,

Wanda.

Message: 17

Date: Tue, 26 Feb 2002 02:27:07 -0000

Subject: Hi, I'm new

Hi everyone. I just joined this list today. I just

found out this

past Friday that I have diabetes. My sister is an ARNP

at my

gynocologists office so I go to her to get certain

free things and to

get my bloodwork done. I had her test me for diabetes

because I

couldn't stop drinking or going to the bathroom. Sure

enough the

blood test came back positive. I'm going to my general

practitioner

tomorrow to talk about treatment. I weigh 350 pounds

so my sister

thinks that maybe a diet can control things enough so

I won't need

medicine. I'm very discouraged right now.

__________________________________________________

[Guest guest]

He is 12. We are about 40 miles north of Durham, right off of 85.

He is doing really good. Tired, but he feels better.

> ,

>

> I hope he is better. How old is he? How horrible for you and him. Been

> there, done that and there is not much worse.

>

> Where do you live? I am in Cary, right outside of Raleigh. You must be

> close to me.

>

>

> Phyllis

>

>

>

> To leave this list please go to diabetes-unsubscribe

> Hope you come back soon!

>

>

[Guest guest]

Ha ha ha, well if you do send me info more than once, don't worry...I tend to

not notice myself What with two ASD kids, one NT kid, my Mom, and a husband

who is out of town much of the time...my memory can be extremely scattered:) Uh

oh, I was going to write back, but I'm being beckoned. I'll be back on later

[Guest guest]

My middle daughter has epilepsy and autism - the people where she lives in an

adult group home (this has also caused retardation) have her on a ketogenic diet

and it has stopped the seizures. She doesn't get any work with a teacher -that

stopped when she had to stop school at 21. But there is no further damage.

>

>

>

> Love Joanne

>

>

>

>

[Guest guest]

I agree, one of my first signs of my fibro were my sudden severe reactions to

msg! Would you be willing to share your cracker recipe, my granddaughter is also

very much allergic to a lot of things especially gluten.

>

>

>

> I don't think anybody with Fibro can handle MSG. In fact, from what I have

seen,

> none of us do very well with any processed foods or artificial additives. Now

> that I rarely eat anything artificial my Fibro symptoms are almost gone

> You are definately doing the right thing removing MSG and creating

your

> own food from natural ingredients.

>

>  

> Love Joanne 

>

>

>  

>

> Hi , I was going to show the dead mouse but it's already been posted on

> Facebook by someone. I am pretty careful what I buy. For instance I bought a

> whole package of 'healthy' foods including crackers etc. Well the crackers I

got

> were full of MSG. No way was I going to eat them. I'm allergic to that. These

> products were supposed to be good for all.

> I can make my own crackers actually and don't need msg in them. Mine are

> superior to the bought variety.

>

> I get diarrhea if I eat anything with MSG in it.

> Does anyone else on your list have that problem?

> Cheers,

>

>

>

[Guest guest]

Hi ,

I totally agree with you. I only eat Arnott's Cruskits now if I want to have

something savoury or sweet. I don't eat bread anymore and Cruskits are made of

corn. I don't even have many of them anyway. Vegetables are my favorite food.

I still eat meat but not all the time. Last night I cooked mainly cauliflower

for tea and it was beautiful. I love fruit too and luckily I have some growing

here in my garden. Oranges, lemons, grapes (when in season) Apricots, Apples.

I have to buy bananas and pineapple but they're not gm foods so that's good. I

also grow a lot of herbs. I grow my own parsley, basil, mint, etc.

I do use butter on my vegetables. And salt and pepper etc.

I had a great sleep last night and woke up at 4am feeling so fit and good.

My son has just gotten up too now. He's editing a book for someone over in USA.

Hi,

Back when I was going gluten free, I made my own gluten free crackers. However,

it was not until I went with very low carbs, and no grains, or rice at all, that

I had the best improvement. It may be an option as you transition to going less

carbs.

c

[Guest guest]

Good news, I just came back from my hearing with the ssdi judge and was approved

on the spot. Yeah.

 Tree

________________________________

To: fibromyalgiacured

Sent: Sat, October 30, 2010 6:18:25 AM

Subject: Re: Re:

 

In England they refuse everybody on the first run. I myself do not claim social

security benefit, but have helped many with this.

Sometimes it was better if somebody else went in complaining just how terrible

it is that this person is being neglected and so on. And before we filled in the

second form it was usually better if they had seen the doctor plenty of times

since the last claim

Also, we would go on and on about how this was affecting them emotionally. how

they had left claiming for as long as possible but the situation was now

unbarable etc

Once the form was sent the other person would phone up explaining that the

person who is sick cannot afford to live and they need the benefit sorting as

soon as possible

Hope this is of some help

Love Joanne

________________________________

To: fibromyalgiacured

Sent: Sat, 30 October, 2010 2:17:24

Subject: Re: Re: Love Joanne

 

I was denied today for social security disability. I was denied in a matter of

three days. Has anyone applied for disability and were you successful? If so

what words did you use to get the benefits? This disease together with the liver

disease has taken the best of my years. Unable to work not only for the pain

and

fatigue; I cannot remember things from one moment to the other during flares.

Wierd thing now is that the liver disease is bringing on flares more often.

Any advice out there?

Thank you,

Subject: Re: Love Joanne

To: fibromyalgiacured

Date: Friday, October 29, 2010, 6:48 PM

 

Hi Joanne,

Sometimes I need a break from all the research, and my health in general. Many

of us were waiting for a diagnosis for our health problems, and then we got

it-fibromylgia, but did having a name for it, really help us? We can overwhelm

our body and mind by too much info, and too many treatments. I am not as OC, as

in the past, but I have to watch myself at times. You could be retracing

compulsive behavior, actually meaning you are starting to heal more. Take care.

C.

>

> I am not happy

>

> My results for the gene test have come back negative. the doctor is now saying

>I

>

> could have a different spondyloarthropathy, but getting a diagnosis for one of

> these could take years. I know this is the case because there are plenty of

> people on the AS site going through that

>

> That is the last thing I want. i cannot hack it

>

> Right now I am feeling i should pull out of this but I know that if I do

> immediately I will get angry at myself.

>

> She has made me an appointment with the Rhumatologist on the 1st December.

>right

>

> now I do not want to go there either

>

> The AS folk are telling me that my symptoms are definately typical of

> Sonyloarthropathy illnesses and that I should stick with it because I

>eventaully

>

> will get a diagnosis

>

> i now know it is not AS and it is not one of the reactive arthritis from the

> sexually transmitted illnesses because I have been diagnosed negative to all

of

>

>

> these types of illnesses that can cause this. So we are looking at salmonella,

> ecoli and a few others which to get a dignosis I will have to read up on and I

> have had enough of reading

>

> i think I need some time off from all of this. I have changed lately, in some

> ways I am becoming obsessive.

>

> I will share more when my mood lifts. Honestly I am sick of all this

>

> Love Joanne 

>

>

>

>

>

[Guest guest]

That's great!!

Subject: Re: Love Joanne

To: fibromyalgiacured

Date: Friday, October 29, 2010, 6:48 PM

 

Hi Joanne,

Sometimes I need a break from all the research, and my health in general. Many

of us were waiting for a diagnosis for our health problems, and then we got

it-fibromylgia, but did having a name for it, really help us? We can overwhelm

our body and mind by too much info, and too many treatments. I am not as OC, as

in the past, but I have to watch myself at times. You could be retracing

compulsive behavior, actually meaning you are starting to heal more. Take care.

C.

>

> I am not happy

>

> My results for the gene test have come back negative. the doctor is now saying

>I

>

> could have a different spondyloarthropathy, but getting a diagnosis for one of

> these could take years. I know this is the case because there are plenty of

> people on the AS site going through that

>

> That is the last thing I want. i cannot hack it

>

> Right now I am feeling i should pull out of this but I know that if I do

> immediately I will get angry at myself.

>

> She has made me an appointment with the Rhumatologist on the 1st December.

>right

>

> now I do not want to go there either

>

> The AS folk are telling me that my symptoms are definately typical of

> Sonyloarthropathy illnesses and that I should stick with it because I

>eventaully

>

> will get a diagnosis

>

> i now know it is not AS and it is not one of the reactive arthritis from the

> sexually transmitted illnesses because I have been diagnosed negative to all

of

>

>

> these types of illnesses that can cause this. So we are looking at salmonella,

> ecoli and a few others which to get a dignosis I will have to read up on and I

> have had enough of reading

>

> i think I need some time off from all of this. I have changed lately, in some

> ways I am becoming obsessive.

>

> I will share more when my mood lifts. Honestly I am sick of all this

>

> Love Joanne 

>

>

>

>

>

[Guest guest]

Hi,

Yes I had forgot about that, in that our body parts swell to protect the

area(keep us from using it), and as a place to get rid of toxins. I think it

should subside, as you heal.

cindy c

>

> Although my swelling imprived with ketosis, it only went away when I gave up

the

> starch all together. Having said that the swelling with me was always around

the

> gut and joints, which is typical of reactive arthritis

>

> I don't really know what this could be with you , but my general

> understanding with swelling it is to do with the body trying to detox toxins

>

> I think it itakes some time for the body to clear all its toxins using

ketosis,

> but eventually i would think we all manage to get rid of all of it. At least

> that is wha tI think will happen, after all once at our correct weight the

body

> is then generally a detoxing machine and with so little fat for the toxins to

> sink into, eventually we should all be OK with this. that my feeling anyway.

If

> I come across any evidence I will let you know

>

> Love Joanne

>

>

>

>

> ________________________________

>

> To: fibromyalgiacured

> Sent: Wed, 1 December, 2010 4:06:27

> Subject: Joanne

>

>  

> Allo, Joan,

> still get the swelling...even had huge swelling on side of my throat. Doctor's

> assistant didn't know what it was. Finally the painful swelling went down

after

> four days. I will try the tea.