Re: Antibiotics helped - feeling better than FOREVER!!

[Guest guest]

Hi Cheryl

I don¹t¹ know what to advise you to do but I once had this happen to me too.

I was put on antibiotics because theyguy figured I had lyme disease or a

parasite infection in the gut he wanted me to take them for two years I

was one them for 10 days and wow. I felt completely normal and had high

energy. The prescription ran out and due to a nurses oversight I ended up a

week without them. By the time I got more they didn¹t work again. He said

that was normal. The bacteria become resistant to that particular

antibiotic. Then he said the two year plan for me and I couldn¹t confront

it. Ihave only one kidney so I was terrified of two years on them.

So, I have seen this happen. Might you have lymes disease? I don¹t I just

had it tested. But you may have something like that.

Hope this helps.

rosemarie

>

>

>

>

>

> This is the third winter that I have complained about fatigue - so bad I

> cannot wake up in the AM and I simply sleep from FM/fatigue & exhaustion so

> bad that I do not wake up at all during Jan/Feb. Apart from my two months of

> complete hibernation, I am dragging with exhaustion all the time. The doctors

> do not know why, nor do they seem to be terribly interested in figuring it

> out. Any complaint I have is generally met with either " it must be your

> medications that are causing it. " Or, they quickly decide that 2) it's just

> too hard to figure out b/c my health issues are " too complicated. " Neither

> solves anything at all and it has become incredibly frustrating.

>

> An MRI of my cervical spine recently revealed an " enlarged thyroid with

> multiple nodules. " The concern was to rule out cancer, beyond that, no

> interest whatsoever. The hairbrush fills each time I brush my hair and I seem

> to have all the symptoms for Hashimoto's or low thyroid. The doctors want to

> simply watch it.

>

> Last week, my persistent sore throat seemed to progress into an upper

> respiratory infection that I finally persuaded the primary doctor to give me

> antibiotics for it. (3 tab pak of Zithromyacin). Wow!! By day 3 it was

> seriously knocking the infection right out of me. The next day I noticed that

> my energy level was substantially better. A week ago I was too miserable to

> even crawl out of bed to go in to see the doctor to get the antibiotics.

> Today, I seriously cannot recall the last time I felt this good!!! Maybe two

> years ago??

>

> I have noticed that my psoriatic arthritis often gets better when I get

> antibiotics. Has anyone else noticed it with FM? I have been questioning if

> there are bloodwork/labs I should have done for all the fatigue? Could I be

> low in something? Are there any particular tests I should be asking my doctor

> to order?

>

> Any and all suggestions welcome,

>

> Cheryl

>

>

>

>

>

[Guest guest]

Cheryl

 

I am new here so cannot really advise you on much but what I can tell you is

this, using antibiotics has messed up my gut bacteria. I have Candida and my

doctor wants me to have tests for Crohns. Right now I am following bee's diet

and this is making a big difference to all my symptoms

 

I have used low carbing before and it helped me in the past too, but I feel

happier with Bees diet because she has given us a list of supplements to use.

This is also helping

 

Joanne

________________________________

To: fibromyalgiacured

Sent: Tue, 15 March, 2011 2:21:03

Subject: Antibiotics helped - feeling better than FOREVER!!

 

This is the third winter that I have complained about fatigue - so bad I cannot

wake up in the AM and I simply sleep from FM/fatigue & exhaustion so bad that I

do not wake up at all during Jan/Feb. Apart from my two months of complete

hibernation, I am dragging with exhaustion all the time. The doctors do not know

why, nor do they seem to be terribly interested in figuring it out. Any

complaint I have is generally met with either " it must be your medications that

are causing it. " Or, they quickly decide that 2) it's just too hard to figure

out b/c my health issues are " too complicated. " Neither solves anything at all

and it has become incredibly frustrating.

An MRI of my cervical spine recently revealed an " enlarged thyroid with multiple

nodules. " The concern was to rule out cancer, beyond that, no interest

whatsoever. The hairbrush fills each time I brush my hair and I seem to have all

the symptoms for Hashimoto's or low thyroid. The doctors want to simply watch

it.

Last week, my persistent sore throat seemed to progress into an upper

respiratory infection that I finally persuaded the primary doctor to give me

antibiotics for it. (3 tab pak of Zithromyacin). Wow!! By day 3 it was seriously

knocking the infection right out of me. The next day I noticed that my energy

level was substantially better. A week ago I was too miserable to even crawl out

of bed to go in to see the doctor to get the antibiotics. Today, I seriously

cannot recall the last time I felt this good!!! Maybe two years ago??

I have noticed that my psoriatic arthritis often gets better when I get

antibiotics. Has anyone else noticed it with FM? I have been questioning if

there are bloodwork/labs I should have done for all the fatigue? Could I be low

in something? Are there any particular tests I should be asking my doctor to

order?

Any and all suggestions welcome,

Cheryl

[Guest guest]

Joanne wrote:

> It would take me a while to explain to you why we get so much relief when we

use antibiotics. <<

Joanne, I read your whole explanation to the original poster about your views on

fibromyalgia, etc. (and my limited, growing knowledge agrees with what you

wrote!), but I'm wondering if I am misunderstanding what you wrote above? " why

we get so much relief when we use antiBs... "

This makes it sound like it would be desirable to use antiBs, when I'm sure that

was not your intent...

Anyway, I'm really glad you invited me over here!

[Guest guest]

Joanne wrote:

> The other thing is this relief we get from using antibiotics and antifungals.

I know that relief, I have experienced it myself in the past and at the time

there was no way i would have given any of that up, not for anybody. but now i

know that those antibiotics and antifungals were not improving my illness but

making it worse.<<

Joanne - never mind; I'd not read far enough. Now I understand what you're

telling Cheryl. You're a power house of information! This is a joy to read it

all!

[Guest guest]

Hi - I think I missed the original poster's comment about which antibiotics

you're on and what it did for your symptoms - I'm interested in hearing -

If we have Lyme disease, which is a bacterial infection mostly transmitted by

ticks, then it's treated with antibiotics. My fibromyalgia turned out to be

Lyme. I am treating with 150mg clindamycin 1-2x/day and that stops all fibro

pain and reduces joint swelling. We're all different when it comes to which Lyme

strain(s) we have and which antibiotics we respond to. Doxycycline, for example,

is a typical med, and I can't tolerate it.

And if we have yeast, then that's treated with antifungals.

But we're all different, and sounds like it didn't work for Joanne.

Take care - Robin

Re: Antibiotics helped - feeling better than

FOREVER!!

Joanne wrote:

> The other thing is this relief we get from using antibiotics and antifungals.

I know that relief, I have experienced it myself in the past and at the time

there was no way i would have given any of that up, not for anybody. but now i

know that those antibiotics and antifungals were not improving my illness but

making it worse.<<

Joanne - never mind; I'd not read far enough. Now I understand what you're

telling Cheryl. You're a power house of information! This is a joy to read it

all!