Guest guest Posted April 1, 2011 Report Share Posted April 1, 2011 HI Joanne: I know how you feel. I and many others on this list have been in your shoes many times. I am glad we are here for each other. I am glad you are happy with the direction your doctor is moving. That¡¯s always a relief. We get so tired of being invalidated. I mean, do they think we are liars? Cheez whiz. We are grown up adult women. I think we are empaths and we feel other peoples pain for them. I think that¡¯s why some of it is can¡¯t be understood, even by us. We are like catchers mitts for the vibes others send around. We absorb them and then those vibes don¡¯t hurt other people. You should read about empaths. Its very enlightening. Also, if you think about it. Fibro has made us grown in intelligence, compassion and understanding hasn¡¯t it? Hmmmmm? I wonder what that means. I believe you are a path finder. All your information will forge a path for others that come after us. They will have a better time of it because you did not give up. Its like before penicillin. Nobody knew what to do with infection or why we got infections well there is some kind of virus or infection I believe that causes fibro. Very much like lyme disease, if not lyme disease itself. But the natural solution to lyme disease works for any fibro. It is natural and herbal and if one tries it maybe the result will be miraculous? So, keep forging ahead Joanne. You are doing a service to humanity. God knows this and sees this. Love to you rosemarie > > > > > > Hi RoseMarie > ? > thank you for being there at this time for me, I have certainly been very down > this week. I am a little more on my feet today. My husband comes home today > ? > I have been worried about him because he has had signs of another heamorhage > but after listening to him more carefully I realised he was detoxing. a few > hours later he broke out in a cold and this confirmed it for me. It is so hard > when our faith is challenged in this way. None of the doctors or the nurses > had a clue what i was talking about when i said could he just be detoxing, > think they thought i was a nut, but later when he told me he felt like he had > the flu I smiled and said, well now I feel better LOL > ? > anyway they are discharging him today but he is still grumpy, but since I know > he is going to be OK, I have decided to put 100% into me today > ? > I have also had a letter from the hospital. I was surprised by it. the doctor > i saw last week had refered me to a gastoenterologist but very reluctantly. It > was only when i was leaving his office and said no I do not want any > medication that his manner changed but that was a little to late > ? > I was up and down about this because I sensed I was not being belived, yet > again and also because that nurser consultant woman whoi wrote loads of things > about me, her stuff came up on the screen when i was talking to him and that > got me upset because i did not say anything about that > ? > anyway, this letter i have here it is from the consultant i saw last time, not > this time but a few months back. I did not think i would ever hear from him > again but the two doctors must have had their heads together because in the > letter this first doctor is advising me to persue the problem with my gut, and > says i should ask for more tests in regards to crohns. > ? > I really do not know if it is crohns i have but I would like to know what > shape my small intestine is in, because by the feel of it it is not in good > shape, better than it was but not correct > ? > If it is crihns it is in remission, but i still would rather know, it would > help me confirm a few things > ? > but the most important thing in this letter for me was that this doctor said > he is going to advise my GP that I must remain on the diet > ? > I wanted this on my records because now if i ever get taken into hospital the > staff will have to do all they can to meet my needs, in regards to the diet. I > know this may seem like a trivial thing but here in England most folk over the > age of 65 are now being moved into sheltered housing, care homes etc. I know > it is a long time off for me but anything i can put into place now whilst i am > well really is worth the effort. I have seen so many old folk simply drugged > up and fed yuk and I just find the thought of that unbareable > ? > Anyway my head is more my own since i recived this letter, I am more joyful > ? > I actually cried when it came, a much needed cry. I did not think one of them > down their was going to do anything for me but this mand had stood out from > the rest. I am so insecure when it comes to all this i had not even dared > think that he might help me, but he?did. See God is good and he does send folk > to help us, even when our faith is weak as mine has been lately > ? > Will hopefully be online later. just know you have helped me stay sane > ? > All my love Joanne? > > >> > >> > From: <jemma63@... >> <mailto:jemma63%40westnet.com.au> <mailto:jemma63%40westnet.com.au> >>> > > >> > Subject: Our own special diets >> > To: " Joanne Ford " <joannesford@... >> <mailto:joannesford%40yahoo.co.uk> <mailto:joannesford%40yahoo.co.uk> >>> > > >> > Date: Tuesday, 29 March, 2011, 2:33 >> > >> > Hi Joanne >> > >> > Hi >> > ? >> > I am keeping the dose on the kelp low for now because I know high doses >> over >> > time can damage the thyroid, but a small amount over the recommended daily >> > amount will not do too much harm in a short time. I am thinking a small >> amount >> > now and if I do have to take a higher dose then at least I am part there, >> but >> > to be honest I do not really think kelp is the best remedy >> > ? >> > At Bees site we have been taught a lot of ways to detox the body. Ketosis, >> the >> > state I am in all the time because of my low carb/high fat diet is >> extremely >> > detoxing. I know that a lot of people struggle with this but if in your >> life >> > you ever do need a cheap way to get a good detox, a short time in ketosis >> > could I think make some difference >> > ? >> > The other thing that Bee has taught us is that 500mg of vitamin C every >> hour >> > in an emergancy or during illness is also beneficial. I am doing this >> already, >> > mainly to help me with my fibro, but it would for certian help my immmune >> > system cope with radiation >> > ? >> > Another thing that Bee has shown us is using niacin, to help the body >> detox. >> > It is a very parcular sensation I get from this, I even turn red, but this >> too >> > I think is perhaps safer than the high doses of iodine they recommened >> > Oh Niacin!!? I remember taking that.? I don't know where it is at the >> moment >> > but I remember feeling as if my head was cooking!!! >> > But it does help when it 'cools' down.? Also I am on a lowcarb, high fat >> > diet.? I eat more butter than bread.? I make my own cream cheese spread and >> > have to use cruskits to spread it on or gluten free bread.? I love the >> cream >> > cheese spread.. Just blend it up with juice of one lemon (or half) and a >> > little salt, and a flat teaspoon of curry powder.? >> > ______________________ >> > The one last thing is drinking water. I know this sounds obvious, and we >> all >> > say we do it, will do it etc, but frankly it is easily dismissed and >> forgotten >> > ______________________ >> > I do drink water but normally I'd prefer the distilled water as our water >> here >> > has chlorine in it.? And some of the water here has fluoride in it.? We >> should >> > have been able to say NO to that!!? Where I live in the country area >> there's >> > no fluoride, only in the city.? It's so evil adding that to our water.? >> > I take the richest vitamin C that I can.? And also CoQ10 version the best >> > being from Dr Al Sears in USA.? The usual one from the local pharmacy is >> > useless compared to Dr Sears. >> > From our local pharmacy I get the high dosage of Magnesium.? I couldn't >> ever >> > do without that.? Stops my muscles from hurting for instance.?? The one I >> used >> > to buy online is rubbish compared to the pharmacy. >> > --------------------------------- >> > It is my himble opinion that if I do all the above I am doing a lot to help >> > myself >> > ? >> > The other thing that I know helps is walking about. Walking helps the body >> > detox and it is best to do it with no shoes on because we detox through our >> > feet >> > --------------------------------- >> > I can't walk with no shoes on here.? Our lawn is filled with all sorts of >> > prickles.? This morning I had to pick prickles off my dress as they'd stuck >> to >> > me.? I must dig that prickle bush up and burn it. >> > But I do eat those prickly little weeds that are good for us but I just >> pick >> > the leaves off and gently cook them.? Called " stinging nettles " >> > --------------------------------- >> > Anyway this is my protocol. There is a fair bit to remember, but nothing >> > difficult or expensive. >> > ? >> > So glad to see you are still here . I have been meaning to send you a >> > message but honestly, I know it sounds like an excuse, but my email box is >> > constantly chocka. >> > ? >> > I belong to a few sites that are very similar to this one and have a lot of >> > friends LOL >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2011 Report Share Posted April 3, 2011 Hi joanne: I know how you feel. Life is so full of mystery as to why we suffer with our various conditions. Somebody once gave me a metaphor for life. It goes like this. We are all climbing a mountain to God. This mountain is uphill but we wind around and around the mountain. Sometimes the path is rocky, sometimes it is flat and wide, sometimes it is steep and it has deep ravines on both sides and requires a lot of courage from us to continue on. However, if we keep our eye on the goal, and keep our expectations in balance with what part of that mountain we are on today, we can listen for Gods advice, and feel his love, a little bit easier. On that mountain sometimes there are beautiful flowers, and sometimes there are rocks and snow. Some days it rains and some days its sunny with a beautiful breeze. So be with this day, whatever it may bring knowing your trip will bring you into sunny pastures right around the next corner. I am glad your hubby is ok. There¡¯s a sunny pasture for you. That is a relief. I know you will be fine too. You have us to vent to. We are willing to listen and to share with you. I gave up on medical people long ago. I had your exact experiences many times over and I felt they made a fool of me often enough. I no longer require their services except once a year I get a checkup and be sure all my vital signs are good and that¡¯s that. They try to peddle their drugs. My cholesterol is slightly high and she wanted to put me on a statin drug and said there is no scandal with statin drugs etc. I looked it up when I got home and there it was. People die from them. I can understand taking a risk if the drug may save your life, but in my case that is not true. All they offer is drugs now. They act like you are taking too much of their time and it used to make me wish I had a serious diagnosis so they would listen to me. I don¡¯t wish that anymore because I realized how self destructive that was. You are not unimportant Joanne. Nobody is. We are all part of God¡¯s tapestry. Every little thread forms the big picture that he is creating in this world. So, know you are important and that you are doing an important job. You¡¯ve already done an amazing job raising your children and caring for your husband. And now your father. You are superwoman and like all superwomen you burn out some days. That¡¯s ok too. Have a good cry, burn out, put your feet up, enjoy some silly television and then sleep long and deep. Tomorrow is another day. You wrote this email a few days ago, so I bet you are already feeling better. Love to you Joanne rosemarie > > > > > > Oh RoseMarie > ? > There are days when I scream at god for not enabling me to help the world with > this, and then other days when I feel so little and unimportant and even wrong > and lost > ? > I have been so up and down lately, I was so sad when I saw my husband ill > again and so frustrated when I saw my dad. My dad keeps looking for attention, > deliberately doing stuff wrong and my hubby, well what happend with him was he > had a fall and then he started getting a pulse pulsating in his head and then > a pain down his arm and, well I told the doctor and they had him in > ? > Yes you see thats all he has to do and there they all are faffing after him > LOL > ? > I dont mind, at least he gets checked out correctly, but whilst I am there I > often think what is the crack here, everybody swinging from the lamp shades > for him but when I come here its usually 'yeah and what do you want' > ? > Then there was the build up to seeing the consultant, that always gets me at > it, and then when i got there, he new nothing about my illneess, said he had > read my file, which was clearly nonsense, but I eventually let it go when he > said he would refer me to a gastoenterologist > ? > Fortunately the consultant i saw earlier this year had advised that I should > do so. He actually sent me a letter this week, which helped me emtionally > because honestly sometimes I feel like nobody down there cares > ? > I have had a bit of a talk with myself today. I have reminded myself that a > lot of the run around i have had with doctors in the past was because I did > not know anything about this illness. I do know a lot more now, and although I > do not know everything I do really know enough to at least discuss it. > ? > Honestly RoseMarie if you saw me in the consultants office you would not > recognise me. I sit there stammering and warbling, I have this issue about > saying the right thing, and not putting my foot in it, I am absolutely not > myself, you would not beleive it > ? > Anyway, to help myself more with the gastroenterologist i have joined a crohns > forum > ? > I have been on there today > ? > I know 90% of what they are talking about because we either discuss it here or > it is the same stuff that is discussed on the arthrtis board > ? > From what i have read so far the main diet they are using is the SCD. The SCD > is almost identical to Bees, but i do prefer Bees because she has removed the > fruit > ? > I do find I am not too bad with fruit, and the folk there seem to be doing OK > with it. It is not triggering their symptoms like it does not actually trigger > mine. But I am so addicted to it, and had I have not joined Bees site I would > no doubt be believing what many on these crohns and arthritis sites beleive, > that we do need carbs and that fruit is the only carb they can binge on. > ? > Loads of folk on the SCD diet binge on fruit, and this really is not good, > fructose can mess up blood sugar like any sugar can, and there is the thing > with cancer and candida with fruit so at least I know not to have much of it > and I dont > ? > Anyway, the good news is my consultant has told my GP about my diet and that I > should stay on it. I see my dietician for the very last time soon and I am > hoping she will tell them the same. The more of them that tell the GP the > better > ? > As your the empath thing, I do know about that to. Part of my thrapy has been > to help me deal with that. Like you I think this is tied in with the illness. > I think being on hyper alert as a child I trained myself to be aware like this > and I also trained my immune system to over react to everything > ? > This is why eliminating toxicity from? my body and environment has worked for > me. With less to worry about my body has been able to heal me > ? > You know RoseMarie, I know I do get proer down sometines, proper resentful too > sometimes, but you know what I have been thinking about today. If this is > crohns, I am still 50 50, but if it is and I ahve not had any treatment for > crohns in 20 years, and yet I am still here and it has not spread from my > ilium. I know i do not have crohns in my colon because i have had a > colonoscopy there. So if it is as the doctor is suggesting, confind to my > ilium I am very fortunate. And further more i may have suffered damage there > and all that pain i ahve had but i am OK now. And with the rate of healing I > am experieincing I am not going to need those meds they offer. Have you seen > those meds? Some of them are out ond out dangerous. > ? > So this is where my mind is today. I am and have been on no mads for over a > year. And I defiantely do not need any now. If I had been diagnosed with > crohns in my 20s when this all started i definately would have taken all that > stuff and right now I could well have ended up with no bowel or one of the > other illnesses folk get wehn they take those meds > ? > Anyway, it might not be crohns. What makes me think it is is the sandpaper > feeling i get when food, especially starch, lacotse a nd sucrose (the three > foods crohns patients cannot eat) when these foods pass over a certain point > in my small intesting the pain is very different to my normal fibro pain it is > more like sandpaper and they do say this feeling indicates ulcers. The other > thing i ge that is sometimes associated with ulcers is a feeling of hinger 3 > inches below the belly button. Everybody i ask about this says they do not get > that feeling, but on one of the crohns sites they said a feeling of hunger > that far below the belly button is a sign of ulcers, so we shall see. I > definately get all the other porblems they have > ? > Anyway crohns or not at least now things are getting written down that I need > written down,like about the diet the accupuncture etc. And now i have told > them never to offer me a shrink again, they have not and thats made things a > lot easier too LOL > ? > All my love Joanne > > >>>> >> > >>>> >> > From: <jemma63@... >>>> <mailto:jemma63%40westnet.com.au> >>> >> <mailto:jemma63%40westnet.com.au> <mailto:jemma63%40westnet.com.au> >>>>>> >>> > > >>>> >> > Subject: Our own special diets >>>> >> > To: " Joanne Ford " <joannesford@... >>>> <mailto:joannesford%40yahoo.co.uk> >>> >> <mailto:joannesford%40yahoo.co.uk> <mailto:joannesford%40yahoo.co.uk> >>>>>> >>> > > >>>> >> > Date: Tuesday, 29 March, 2011, 2:33 >>>> >> > >>>> >> > Hi Joanne >>>> >> > >>>> >> > Hi >>>> >> > ? >>>> >> > I am keeping the dose on the kelp low for now because I know high >>>> doses >>> >> over >>>> >> > time can damage the thyroid, but a small amount over the recommended >>>> daily >>>> >> > amount will not do too much harm in a short time. I am thinking a >>>> small >>> >> amount >>>> >> > now and if I do have to take a higher dose then at least I am part >>>> there, >>> >> but >>>> >> > to be honest I do not really think kelp is the best remedy >>>> >> > ? >>>> >> > At Bees site we have been taught a lot of ways to detox the body. >>>> Ketosis, >>> >> the >>>> >> > state I am in all the time because of my low carb/high fat diet is >>> >> extremely >>>> >> > detoxing. I know that a lot of people struggle with this but if in your >>> >> life >>>> >> > you ever do need a cheap way to get a good detox, a short time in >>>> ketosis >>>> >> > could I think make some difference >>>> >> > ? >>>> >> > The other thing that Bee has taught us is that 500mg of vitamin C >>>> every >>> >> hour >>>> >> > in an emergancy or during illness is also beneficial. I am doing this >>> >> already, >>>> >> > mainly to help me with my fibro, but it would for certian help my >>>> immmune >>>> >> > system cope with radiation >>>> >> > ? >>>> >> > Another thing that Bee has shown us is using niacin, to help the body >>> >> detox. >>>> >> > It is a very parcular sensation I get from this, I even turn red, but this >>> >> too >>>> >> > I think is perhaps safer than the high doses of iodine they recommened >>>> >> > Oh Niacin!!? I remember taking that.? I don't know where it is at the >>> >> moment >>>> >> > but I remember feeling as if my head was cooking!!! >>>> >> > But it does help when it 'cools' down.? Also I am on a lowcarb, high fat >>>> >> > diet.? I eat more butter than bread.? I make my own cream cheese >>>> spread and >>>> >> > have to use cruskits to spread it on or gluten free bread.? I love the >>> >> cream >>>> >> > cheese spread.. Just blend it up with juice of one lemon (or half) and a >>>> >> > little salt, and a flat teaspoon of curry powder.? >>>> >> > ______________________ >>>> >> > The one last thing is drinking water. I know this sounds obvious, and >>>> we >> > all >>>> >> > say we do it, will do it etc, but frankly it is easily dismissed and >>> >> forgotten >>>> >> > ______________________ >>>> >> > I do drink water but normally I'd prefer the distilled water as our >>>> water >>> >> here >>>> >> > has chlorine in it.? And some of the water here has fluoride in it.? We >>> >> should >>>> >> > have been able to say NO to that!!? Where I live in the country area >>> >> there's >>>> >> > no fluoride, only in the city.? It's so evil adding that to our >>>> water.? >>>> >> > I take the richest vitamin C that I can.? And also CoQ10 version the best >>>> >> > being from Dr Al Sears in USA.? The usual one from the local pharmacy is >>>> >> > useless compared to Dr Sears. >>>> >> > From our local pharmacy I get the high dosage of Magnesium.? I >>>> couldn't >>> >> ever >>>> >> > do without that.? Stops my muscles from hurting for instance.?? The >>>> one I >>> >> used >>>> >> > to buy online is rubbish compared to the pharmacy. >>>> >> > --------------------------------- >>>> >> > It is my himble opinion that if I do all the above I am doing a lot to help >>>> >> > myself >>>> >> > ? >>>> >> > The other thing that I know helps is walking about. Walking helps the body >>>> >> > detox and it is best to do it with no shoes on because we detox >>>> through our >>>> >> > feet >>>> >> > --------------------------------- >>>> >> > I can't walk with no shoes on here.? Our lawn is filled with all sorts of >>>> >> > prickles.? This morning I had to pick prickles off my dress as they'd >>>> stuck >>> >> to >>>> >> > me.? I must dig that prickle bush up and burn it. >>>> >> > But I do eat those prickly little weeds that are good for us but I just >>> >> pick >>>> >> > the leaves off and gently cook them.? Called " stinging nettles " >>>> >> > --------------------------------- >>>> >> > Anyway this is my protocol. There is a fair bit to remember, but >>>> nothing >>>> >> > difficult or expensive. >>>> >> > ? >>>> >> > So glad to see you are still here . I have been meaning to send >>>> you a >>>> >> > message but honestly, I know it sounds like an excuse, but my email >>>> box is >>>> >> > constantly chocka. >>>> >> > ? >>>> >> > I belong to a few sites that are very similar to this one and have a >>>> lot of >>>> >> > friends LOL >>>> >> > >>>> >> > Quote Link to comment Share on other sites More sharing options...
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