Re: Doctor Referrals - Cheryl

[Guest guest]

Hi Cheryl - I pop in here from time to time. My fibro turned out to be Lyme

disease, a bacterial infection, that I acquired from a known tick bite in my

foot. I now am on oral clindamycin antibiotics, 150mg 1-2x/day and the fibro

pain is at zero! Because I saw the tick and can date all symptoms - ie, I'm very

clear on what happened to me, I partecipated in a one-hour talkshow with three

others, which can be googled for, called San Francisco Lyme Disease Talkshow, in

order to help educate the public. A mom on the show mentions her daughter was

diagnosed with fibro and chronic fatigue. There are Lyme doctors in Washington

state. If you're interested in checking it out, I suggest you go to

www.lymenet.org, sign up, and post in SeekingADoctor for referrals to

knowledgeable Lyme-treating doctors in Washington state. Take care - Robin

Doctor Referrals

I have been living in Juneau, Alaska, for the past s

To: fibromyalgiacured

To: fibromyalgiacured even years, and would have continued to

live here long into retirement if it were not for multiple medical issues. This

is a beautiful area, but very isolated and accessible only by boat and air.

The medical care that exists is quite good in many respects. However, anything

beyond a family practice or orthopedist, requires a 1000 mile trip (or more)

down to Seattle or up to Anchorage. It is seriously draining, exhausting, and

terribly difficult for my body to endure the trip itself, which only happens

after an extended battle to persuade the hierarchy that I require the care of a

specialist. That said -- the reservations are made!! We board the ferry to

Bellingham June 29th!! We are returning to the lower 48, but my husband will go

no further than Bellingham, b/c he is absolutely convinced that he is coming

back to visit!!!! We will see what happens. (He has not left SE Alaska since we

arrived SEVEN years ago!!!) Has anyone found a good specialty center for fibro

and fatigue in Washington or Oregon?

When we first moved to Alaska, there was only one grandchild -- there are now

ten, so I am so excited to be going back that I can hardly contain myself. I

am also so very excited to begin to check out all the alternative care

possibilities, therapies that work that no one in Juneau's medical community

has even heard of, and specialists that everyone else probably takes for

granted!!!!! My quality of life has sunk so low that I am determined to use our

arrival in Whatcom County/Bellingham area -- and all the way to Seattle or

wherever I have to go -- to make some very powerful and positive changes.

I know that there are people on the various online support groups I belong to

that can help!! I am looking for recommendations for doctors/specialists and

any wonderful treatments that have worked for all of you!! It is finally time

to ask and I am so excited to hear from all of you!!! I have new found hope and

trust in my fellow onliners to start pointing me in the correct direction!! I

am on a couple of lists for fibromyalgia and chronic fatigue so that I can stay

informed and read a diversity of thoughts and experiences. Or perhaps you just

want to wish us well and contribute to my latest challenge.

Thank you!! Thank you!! Thank you!!

Cheryl (AK)