saturday

[Guest guest]

Hi all! Nice to see so many posts today and yesterday. Jax, I

definitely agree with Fern-- your doc does need to repeat sed and CPK

test- maybe even on a sort of regular basis, say, every month or

every few weeks- to give a better idea-one or two of those tests once

a year or so can't tell a whole lot, unless say, CPK was highly

elevated. Sounds like myo to me! I should talk tho- I haven't had my

sed and cpk tested regularly at all- think I will request it for my

next appt oct 20. Describe your rash problems again for me? I

forgot...

Cari, I think your plan for is right on-- register then see how

it goes. Wish I could help you out with the ss info for your brother,

but Jim's post says it all I think?

Fern or whoever asked me if I had worked enough in my earlier years

to perhaps qualify myself - I don;t think so. I worked in my 20's of

course, but I flitted from one thing to another-- you have to have

had at least 2 consecutive years worth of work at one place to

qualify for anything??? Well, as I said, I FLITTED all over the

place!Heck, I don't think I'd even have a way of getting all the old

info- ex- one of my jobs was with an attorney, for a year or so. He

paid me in cash..every week-- I was naive but come to find out he was

stiffing the IRS, as well as doing a bunch of other " things " and he

ended up vanishing.....

I REALLY appreciate all the comments and advice re: working or not-

and things being " in my head " or not. I, as well, will do my best to

spend some quality family time this weekend to try adn figure out all

our options. And, even though my therapist adn I have discussed myo

and autoimmune disease and fatigue and pain and all that, she could

use some extra education! I think she is just trying to figure out

how MUCH of my complaint is truly physical and she thinks I shoudl go

on Pred if it would make me much better, or whatever medicine--- I

will NOT unless it ends up a last resort.

Gotta run for now- well, walk. Hugs to all,