Doing fine, No RSD,Doctor was wrong!

[Guest guest]

It`s been quite awhile since I posted, but I have been reading. The

last time I posted a new doctor told me that he felt I had RSD,

instead of a rotator cuff injury.

My family doctor and pain specialist refused to go along with his thoughts. They

have known me for years and explained that if I truly had RSD I would not be

able to even have the range of motion in my arm that I do.

My pain specialist who treats RSD, said he wouldn`t even feel right about

treating me for this. Now over the length of a few weeks and a cortisone shot,

by shoulder has been doing just fine.

I`m thanking the Lord for this and going along with the two doctors who have

known me for years. I`m a coward and really couldn`t face any more to be wrong

with me.

My cancer surgery has healed well. The only time I feel poorly from

that is when I tend to overdo like so many of us do. Sometimes I let

myself wonder if it is coming back, but I push that to the side.

I know so many of you are going through so much more than I ever

have, I feel wrong venting, but I`m just so tired of waking up in the

morning feeling like I can handle the world and maybe a job.

Then I do something a little more than I should and I end up spending the rest

of the day in pain. But it seems everything causes me spine

pain.

I`m sure the degenrative disc problem, plus the fact that I fracture a vertabrae

easier than shelling a peanut, and that my heart can't take much doesn't help. I

read from all of you out there who

have fibro, as I do, and I wonder how you keep up your spirits.

I agree so much with all of you who feel an invisble illness is a

horrible thing to deal with. I get so tired of people saying, you

look so good, and smiling back when I really feel like crying. and I

feel so useless when it comes to trying to help us get out of the

financial bind we are in.

I think I can do something to help, get a job and work lots of hours and then I

realize that's foolish thinking. I'd end up getting sicker and just costing us

more money.

Am I right in thinking that there are many of you who are also in

financial binds. I don't want to be nosy, and I know very well I'm

not alone, but sometimes it`s just good to hear from others who are

going through the same thing.

I wish I could win the lottery and start handing out some money to all who need

a little help. I think I would start by going out and finding some of the

homeless on these cold nights and sending them to a motel.

I guess I've said enough for now, and my hurting is getting the best of me. Not

to hard to see what sort of a mood I'm in tonight is it.

If I could reach out and touch you all, I would give you a hug

and tell you all that I love you. Thank you so much for being out

there for all of us who need someone to go too.

Stay warm and feel loved,

R.

[Guest guest]

Wow, thanks for that karen. I don't have RSD but spinal stenosis,

a very arthritic left knee and my pelvis slides out easily from the joints

because I am double jointed.

i am strapped financialy, very lonely, can no longer drive and

even my kids who live far away think i can do more. They have no

idea because there are no visible supports or strappings that i am

in so much pain. I think about a job but neve know how my night

will be. You are not alone.

Cathie in CT

[Guest guest]

> wrote:

>I think I can do something to help, get a job and work lots of hours and then I

realize that's foolish thinking. I'd end up getting sicker and just costing us

more money.

>Am I right in thinking that there are many of you who are also in

financial binds? I don't want to be nosy, and I know very well I'm

not alone, but sometimes it`s just good to hear from others who are

going through the same thing.

Hi ,

Thanks for posting and being willing to be so honest. It was just what I

needed..knowing that I am not alone.

I, too, struggle with wanting to work more, or trying to do more and having

setbacks. It is hard having an 'invisible' illness. That's why this group is so

important to me. People who understand what living with pain is like, how

draining it is, how difficult it is to accept limitations.

What I do to keep my spirits up? The simplest things that are often the hardest

for me to do: ACCEPT this is what is for me right now; letting go of the

judgements I have or that I think other people have about me and my condition;

finding something in the moment that is beautiful (my dog constantly saves my

life), or comforting (a soft blanket) or distracting (a jigsaw puzzle). That

helps sometimes.

I have learned to live with a lot less financially, but it is still scary to

think about the future, so I don't too much. Right NOW - I have a roof over my

head and food to eat. Tomorrow, when I look at my budget, I will deal with

things as best I can.

I feel like I am going on a bit and not saying much. I send love and courage to

each and every one of you who struggle with chronic pain. It has been so helpful

to know that I am not alone. Thank you for that.

J.