Re: [c_p]Fibro-co exists Debra-Jeanette

[Guest guest]

Jennette wrote:

> I know quite a few people with multiple diagnosis, including fibro.  I

personally feel your doctor is wrong.  It's like saying you can't possibly get

fibro if you have some other immune related chronic disease. 

Jennette,

You are so right Jennette, because Medline (doctors) and other notable Research

doctors state fibromylagia is a disorder in partner

with auto immune disease. If you do a internet research by typing in

autoimmune disorders and fibromylagia, you can see the many instances of they co

exist.

Lupus has the following which Fibromylagia does not, so I guess I would say,

that need to look at if you meet the critieria of Fibromylagia (which is really

not a joint ache but a ache as if you had been beaten up and at different

trigger points than Lupus) and has specific points that Lupus does not.

Fibromylagia is a disorder and Lupus is a disease so it is like apple

and oranges. Fibro is signficant as it does not have the ashes,joint

pain, photo synsitivity, or the lab test results that Lupus shows up in.

Lupus symtoms are:

# malar rash: A malar (pronounced: may-lur) rash appears across the

nose and cheeks in the shape of a butterfly.

# discoid rash: This rash features round, red, scaly patches that can

appear on the face, arms, scalp, or ears.

# photosensitivity: This means sensitivity to ultraviolet rays, like

the ones that come from the sun or from fluorescent lights. Most people

with SLE are photosensitive and find that the sun worsens their lupus.

# ulcers in the nose or mouth: These usually don't hurt and many people

with SLE don't even know they are there.

# arthritis: This makes joints hurt, especially in hands and feet.

Unlike the kind of arthritis that older people sometimes get, this

arthritis doesn't damage the bones. Most people with SLE have some

degree of arthritis.

# serositis (pronounced: sir-o-syte-us): This is the collection of

fluid near the linings covering the heart, lungs, or abdomen.

# kidney problems: These can be mild or severe. Most people with SLE

will have kidney problems, but only about half of them will have

permanent kidney damage.

# neurologic problems: This refers to problems with the brain and

nervous system, like seizures.

# blood problems: SLE can cause a lower than normal number of red blood

cells (anemia), white blood cells, or platelets.

# immune system problems: Blood tests may show that the immune system

isn't functioning properly.

# positive ANA test: This is a blood test that shows a certain type of

antibody. About 95% of people with SLE have a positive

So I encourage you to research on your own as Jeanette is right fibro

co exists with other auto immune diseases and the research

proves so. Auto immune diseases also trigger fibromylagia.

Maybe your doctor didn't mean it that way, he was relating the type of pain.

(Nurse along with many other members who are nurse members) I have fibro,

Hashimotos, and connective tissue disease) They co exist in my body and I treat

them differently and the doctors prescribe different medications for both.

Bennie

[Guest guest]

I wonder if back in the 90's they believed this, cause this is when the doc gave

me the info, and I went looking and you all are absolutely

right.

So I guess that I should add it to the list, and ask the doc if it should be

treated as well. btw I also have a sleep disorder.

(narcolepsy)

Deb RN

[Guest guest]

Debra wrote:

> So I guess that I should add it to the list, and ask the doc if it

> should be treated as well. By hthe way I also have a sleep disorder.

> (narcolepsy)

My fibro does not flare badly until I do not get REM sleep and I always ask for

sleeping aids to get it. I am sure that your Narcolepsy prevents you from

getting good REM sleep, which they have found to trigger fibro flares.

I would ask your sleep disorder doctor about it and I belong to a

support group, National Fibromylagia Association and Fibromylagia Center and

they send out e-newsletters on current research and

treatments.

I know with your medical background, you could advocate effectively,

and I hate to see anyone suffer when they do not have to.

Deb, I encourage you to get i checked by a Fibromyagia specialists and in Texas,

they even have centers that only treat Fibromylagia.

Let us know what you find out, I hope you less pain as it does hurt.

Do you take Provigel?

I use it to regulate my sleep cycles and it seems to help but I need

the help with the deep sleep, I have always been a light sleeper and used to

take call an night and never learned to sleep deep after those many years.

Let us know what you find out. Bennie