Re: New to Group

[Guest guest]

Debra,  The neurologist at the Mayo Clinic in Rochester, Mn are very good.  Call

and talk with her doctor there and ask him about LBD as her problem.  They know

what drugs can and can't be used with LBD.  That is where my husband was

diagnoised with LBD. I am not at all familiar with the other disease. Kathy, MN

________________________________

To: LBDcaregivers

Sent: Wed, October 28, 2009 12:38:55 PM

Subject: New to group

 

Hello everyone. My name is Debra and I am daughter and long distance caregiver

to my mother , who was presumably diagnosed with MSA in May of this year at

the Mayo Clinic Rochester. She went into a nursing home last week for a respite

stay for my dad and symptoms she was having before at home have led me to

believe that my mom may have LBD instead of MSA. There is no diagnosis to

support this, nor do I plan to make her go through any tests. My mother is bed

bound, unable to feed herself. Speech is very rough, can't understand her most

days.

She has been going through bouts of paranoia about what people are planning to

do to her. She calls out for my dad all night, and yells for him even when a

caregiver his present. We are in the process of getting her admitted to a

facility, but my problem is this. In the nursing home she was in with respite,

they gave her ativan and I know that people with LBD or MSA for that matter

react badly to any antipsychotic. But the problem is, if she is yelling out

constantly in a skilled care setting they are going to have to quiet her. I

don't want her to be given these type of drugs, but again, I can't have her

being disruptive.

I guess I just want to know what I can do. I've talked the hospice nurse that is

taking care of her and have suggested more LBD friendly drugs, but I would like

to get this taken care of before she goes into a facility. My dad is so stressed

and overwhelmed and so am I. My mom is accusing people of doing things to her

etc.

My grandma had Alzheimers, but I, as of yet, have only had to deal with mild

memory issues with my mom.

I know I am doing the right thing by getting her care, but if we dad isn't next

to her bed all the time she cries and yells out.

Debra in Indiana

member of the Shydrager yahoogroups,

new member here.

[Guest guest]

I will see if I can locate his information. My dad has it. MSA is Multiple

System Atrophy. It is a neuro degenerative disorder. She has many symptoms of

that, but she is also starting to show dementia symptoms which is not part of

the MSA diagnosis.

However, the doctors said all along she had more than one disease process going

on. So she might have both.

Debra in Indiana

>

> Debra,  The neurologist at the Mayo Clinic in Rochester, Mn are very good. 

Call and talk with her doctor there and ask him about LBD as her problem.  They

know what drugs can and can't be used with LBD.  That is where my husband was

diagnoised with LBD. I am not at all familiar with the other disease. Kathy, MN

>

>

>

>

> ________________________________

>

> To: LBDcaregivers

> Sent: Wed, October 28, 2009 12:38:55 PM

> Subject: New to group

>

>  

> Hello everyone. My name is Debra and I am daughter and long distance caregiver

to my mother , who was presumably diagnosed with MSA in May of this year at

the Mayo Clinic Rochester. She went into a nursing home last week for a respite

stay for my dad and symptoms she was having before at home have led me to

believe that my mom may have LBD instead of MSA. There is no diagnosis to

support this, nor do I plan to make her go through any tests. My mother is bed

bound, unable to feed herself. Speech is very rough, can't understand her most

days.

>

> She has been going through bouts of paranoia about what people are planning to

do to her. She calls out for my dad all night, and yells for him even when a

caregiver his present. We are in the process of getting her admitted to a

facility, but my problem is this. In the nursing home she was in with respite,

they gave her ativan and I know that people with LBD or MSA for that matter

react badly to any antipsychotic. But the problem is, if she is yelling out

constantly in a skilled care setting they are going to have to quiet her. I

don't want her to be given these type of drugs, but again, I can't have her

being disruptive.

>

> I guess I just want to know what I can do. I've talked the hospice nurse that

is taking care of her and have suggested more LBD friendly drugs, but I would

like to get this taken care of before she goes into a facility. My dad is so

stressed and overwhelmed and so am I. My mom is accusing people of doing things

to her etc.

>

> My grandma had Alzheimers, but I, as of yet, have only had to deal with mild

memory issues with my mom.

>

> I know I am doing the right thing by getting her care, but if we dad isn't

next to her bed all the time she cries and yells out.

>

> Debra in Indiana

> member of the Shydrager yahoogroups,

> new member here.

>

>

>

>

>

>

>

>

[Guest guest]

It's probably theoretically possible that MSA and LBD co-occur, but I've never

heard of anyone with this confirmed pathology.

> >

> > Debra,  The neurologist at the Mayo Clinic in Rochester, Mn are very good. 

Call and talk with her doctor there and ask him about LBD as her problem.  They

know what drugs can and can't be used with LBD.  That is where my husband was

diagnoised with LBD. I am not at all familiar with the other disease. Kathy, MN

> >

> >

> >

> >

> > ________________________________

> > From: Debra <admlizkirk@>

> > To: LBDcaregivers

> > Sent: Wed, October 28, 2009 12:38:55 PM

> > Subject: New to group

> >

> >  

> > Hello everyone. My name is Debra and I am daughter and long distance

caregiver to my mother , who was presumably diagnosed with MSA in May of

this year at the Mayo Clinic Rochester. She went into a nursing home last week

for a respite stay for my dad and symptoms she was having before at home have

led me to believe that my mom may have LBD instead of MSA. There is no diagnosis

to support this, nor do I plan to make her go through any tests. My mother is

bed bound, unable to feed herself. Speech is very rough, can't understand her

most days.

> >

> > She has been going through bouts of paranoia about what people are planning

to do to her. She calls out for my dad all night, and yells for him even when a

caregiver his present. We are in the process of getting her admitted to a

facility, but my problem is this. In the nursing home she was in with respite,

they gave her ativan and I know that people with LBD or MSA for that matter

react badly to any antipsychotic. But the problem is, if she is yelling out

constantly in a skilled care setting they are going to have to quiet her. I

don't want her to be given these type of drugs, but again, I can't have her

being disruptive.

> >

> > I guess I just want to know what I can do. I've talked the hospice nurse

that is taking care of her and have suggested more LBD friendly drugs, but I

would like to get this taken care of before she goes into a facility. My dad is

so stressed and overwhelmed and so am I. My mom is accusing people of doing

things to her etc.

> >

> > My grandma had Alzheimers, but I, as of yet, have only had to deal with mild

memory issues with my mom.

> >

> > I know I am doing the right thing by getting her care, but if we dad isn't

next to her bed all the time she cries and yells out.

> >

> > Debra in Indiana

> > member of the Shydrager yahoogroups,

> > new member here.

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Well my mom has been " unconventional " in all her disease processes, most of her

life. So this wouldn't surprise me with her.

I agree, it would be extremely unusual.

Debra in Indiana

> > >

> > > Debra,  The neurologist at the Mayo Clinic in Rochester, Mn are very

good.  Call and talk with her doctor there and ask him about LBD as her

problem.  They know what drugs can and can't be used with LBD.  That is where my

husband was diagnoised with LBD. I am not at all familiar with the other

disease. Kathy, MN

> > >

> > >

> > >

> > >

> > > ________________________________

> > > From: Debra <admlizkirk@>

> > > To: LBDcaregivers

> > > Sent: Wed, October 28, 2009 12:38:55 PM

> > > Subject: New to group

> > >

> > >  

> > > Hello everyone. My name is Debra and I am daughter and long distance

caregiver to my mother , who was presumably diagnosed with MSA in May of

this year at the Mayo Clinic Rochester. She went into a nursing home last week

for a respite stay for my dad and symptoms she was having before at home have

led me to believe that my mom may have LBD instead of MSA. There is no diagnosis

to support this, nor do I plan to make her go through any tests. My mother is

bed bound, unable to feed herself. Speech is very rough, can't understand her

most days.

> > >

> > > She has been going through bouts of paranoia about what people are

planning to do to her. She calls out for my dad all night, and yells for him

even when a caregiver his present. We are in the process of getting her admitted

to a facility, but my problem is this. In the nursing home she was in with

respite, they gave her ativan and I know that people with LBD or MSA for that

matter react badly to any antipsychotic. But the problem is, if she is yelling

out constantly in a skilled care setting they are going to have to quiet her. I

don't want her to be given these type of drugs, but again, I can't have her

being disruptive.

> > >

> > > I guess I just want to know what I can do. I've talked the hospice nurse

that is taking care of her and have suggested more LBD friendly drugs, but I

would like to get this taken care of before she goes into a facility. My dad is

so stressed and overwhelmed and so am I. My mom is accusing people of doing

things to her etc.

> > >

> > > My grandma had Alzheimers, but I, as of yet, have only had to deal with

mild memory issues with my mom.

> > >

> > > I know I am doing the right thing by getting her care, but if we dad isn't

next to her bed all the time she cries and yells out.

> > >

> > > Debra in Indiana

> > > member of the Shydrager yahoogroups,

> > > new member here.

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Hi Debra, A big warm Texas welcome to this forum of loving, caring

caregivers.

I know others have written of which I haven't read, but I have had the

same problems with my Don, who does have LBD. He actually became violent.

He is on Seroquel, and Aricept. I can't rave about his medications enough.

It has given me back my loving, calm, man. I know some can't take

Seroquel, but

there sure is no harm in trying it to see if it will be the peace maker

for your Mom as it is for my Don.

He was given 25mg of Seroquel at first, (go low and slow). It has now been

increased to 50mg at bedtime. I give the Aricept in the mornings as it is

a mind stimulant, and he is more alert during the day instead of at night.

He sleeps well and gets up very peaceful. It has done marvels for him.

Love with a smile of hope,

Imogene

Caregiver for my True Texas Gentleman Husband. Diagnosed with AD in 2005.

And then, with LBD 2006.

A happy personality is contagious. Infect someone today.

Yours Truly

In a message dated 10/28/2009 11:55:03 A.M. Central Standard Time,

admlizkirk@... writes:

Hello everyone. My name is Debra and I am daughter and long distance

caregiver to my mother , who was presumably diagnosed with MSA in May of

this year at the Mayo Clinic Rochester. She went into a nursing home last

week for a respite stay for my dad and symptoms she was having before at

home have led me to believe that my mom may have LBD instead of MSA. There is

no diagnosis to support this, nor do I plan to make her go through any

tests. My mother is bed bound, unable to feed herself. Speech is very

rough, can't understand her most days.

She has been going through bouts of paranoia about what people are

planning to do to her. She calls out for my dad all night, and yells for him

even

when a caregiver his present. We are in the process of getting her

admitted to a facility, but my problem is this. In the nursing home she was in

with respite, they gave her ativan and I know that people with LBD or MSA

for that matter react badly to any antipsychotic. But the problem is, if she

is yelling out constantly in a skilled care setting they are going to have

to quiet her. I don't want her to be given these type of drugs, but

again, I can't have her being disruptive.

I guess I just want to know what I can do. I've talked the hospice nurse

that is taking care of her and have suggested more LBD friendly drugs, but

I would like to get this taken care of before she goes into a facility. My

dad is so stressed and overwhelmed and so am I. My mom is accusing people

of doing things to her etc.

My grandma had Alzheimers, but I, as of yet, have only had to deal with

mild memory issues with my mom.

I know I am doing the right thing by getting her care, but if we dad isn't

next to her bed all the time she cries and yells out.

Debra in Indiana

member of the Shydrager yahoogroups,

new member here.

[Guest guest]

I would appreciate some info direct to my email. It is childsj@.... I

have had Fibro for years, and have had some success with changing my diet.

Jody Childs

Jody's Training Stables

Del Dios Peruvians

www.DelDiosPeruvians.com

---- Joanne Ford wrote:

> Sorry a, I do not know why this is. I do know some of the messages on

board get a bit long sometimes.

>  

> Anyway, I have said to the other newcomers that if they want me to send them

information directly to their email I will do, so I am offering this to you too

>  

> I have no idea if this will make any difference, but folk are telling me that

when I do send them information direct it is a little easier to understand

>  

> Anyway, if you think this will be useful, let me know, my email is

joannesford@...

>  

> Love Joanne

>  

>

>

>

>

>

>

> Subject: New to Group

> To: fibromyalgiacured

> Date: Thursday, 30 December, 2010, 16:16

>

>

>  

>

>

>

> Hi! I'm new! Just wondering why the messages have so many spaces and angle

thingys in some spaces. The whole digest is so long because of all the spaces. I

joined two other groups the same day as this one (I only belong to three) and

their messages are single spaced and much easier to read. I'm not complaining -

just curious.

>

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