Re: Judy: LDN

[Guest guest]

Wow, I just got a notice that I’m no longer on moderation. I also see that

I’m starting to get a bunch of old posts from the group. Yahoo must have

gotten everything straightened out. Thanks Joanne and everyone else for helping

get this working. Good luck with your dad and LDN. It really does help a lot of

people.

Judy H

To Health Through Knowledge

Started taking Low Dose Naltrexone on January 20, 2009 for

Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOS

http://health.groups.yahoo.com/group/LDNforFibro/

From: Joanne Ford

Sent: Saturday, October 29, 2011 1:17 PM

To: fibromyalgiacured

Subject: Re: Judy: LDN

thanks for this Judy

My dad has an appointment on the 11th of November, he is going to ask his

consultant for LDN. I am fortunate that I do not need this right now, but if I

ever became so poorly again and the diet was not working LDN is the medication I

would opt for

I would like to type more but I have so many emails. we must catch up soon

Love Joanne

[Guest guest]

Hi Joanne,

If you have been made moderator, you can go to the group’s main page and make

anyone else moderator. On the left side of your main page, you should be able to

see a section called Members. Click on Members and it will take you to a page

that lists the names and email addresses of everyone that is in the group. At

the top of the page there is a search box, put in Zaza’s name or address and

click search and it will take you to her page. You will see under her name a

place that says edit membership. You can click on that and change her to

moderator. Click on all the boxes and she will be able to do all the moderator

duties. It won’t make any difference otherwise if you are listed as moderator

or not. Once you assign Zaza the job she can take over. Judy let me know if you

need more help.

Judy H

To Health Through Knowledge

Started taking Low Dose Naltrexone on January 20, 2009 for

Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOS

http://health.groups.yahoo.com/group/LDNforFibro/

From: Joanne Ford

Sent: Saturday, October 29, 2011 3:50 PM

To: fibromyalgiacured

Subject: Re: Judy: LDN

Judy

Dont ask me how all this stuff happens because I do not have a clue, but in some

way this group is faciliated wuth curezone. Anyway somebody there must have seen

that i post a lot here and told yahoo to make me moderator. No one asked me but

yahoo told me this morning that I am the moderator of this board

Anyway, I will not start going on about why i cannot be moderator of the board,

I think you all know that so I have told yahoo to take my name off

I have also told them that we have had a vote and that Zaza had 100% of the

votes and that they should honour this. I have not had a email back from them

yet but i am assuming this is going to get sorted today

In the meantime if anybody else emails me direct telling me they cannot get

though I will see what I can do but really I ust want to get on with posting,

it is too hard for me to moderate as well

I have not had chance to speak to Zaza but I do know she was really pleased that

you said you would help her and I just want to think you personally for doing

so. All of this has been one big jumble mainly because I did not have a clue

what I was doing and yahoo simply would not help. If it was not for you and Lynn

helping I dont think anything would have ever got sorted out, so again thank you

for helping me too

Love Joanne

[Guest guest]

I learned about LDN (Low Dose Naltrexone) in 2008. Stanford University did a

trial that year in Fibromyalgia patients. In 2009 they reported the results and

then did a longer trial. That one should be published at any time. Here is the

URL of the video of the original trial:

Here’s the written report:

http://snapl.stanford.edu/research/ldn.html

Here’s a website that tells how LDN works:

http://www.ldnscience.org/

As for me, I’ve had excellent results. My pain levels have dropped from 6-8 on

a daily average to 1-2 or even less. I used to get sick all the time and

constantly had bladder and ear infections. I haven’t been sick now in almost 2

years. I also totally changed my diet.

Recently Dr. Jill P. of Penn State headed a trial of LDN in patients with

Crohn's disease that was really successful. Also Dr. Jaquelyn McCandles just had

her trial of LDN and AIDS patients in Africa published. You can read of the

results here:

http://lowdosenaltrexone.org/ldn_trials.htm

Hope this helps.

Judy H

To Health Through Knowledge

Started taking Low Dose Naltrexone on January 20, 2009 for

Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOS

http://health.groups.yahoo.com/group/LDNforFibro/

From: Joanne Webb

Sent: Tuesday, November 15, 2011 3:15 PM

To: fibromyalgiacured

Subject: Re: Judy: LDN

Judy

Can you tell us more about your experience with the LDN? I am using Bee's diet

and having some success but I am wondering if LDN would be a good option for me.

I have Crohns and Fibromyalgia. I don't think Bee recommends it but a lot of

people on similar diets do. Here is a short extract from the Crohnsboy Protocol.

http://crohnsdad.wordpress.com/tag/gaps-diet/

Joanne

[Guest guest]

Hi Judy

Do you see a doctor at Stanford?

Ciao-

Ange

________________________________

To: fibromyalgiacured

Sent: Tue, November 15, 2011 8:18:46 PM

Subject: Re: Judy: LDN

I learned about LDN (Low Dose Naltrexone) in 2008. Stanford University did a

trial that year in Fibromyalgia patients. In 2009 they reported the results and

then did a longer trial. That one should be published at any time. Here is the

URL of the video of the original trial:

Here’s the written report:

http://snapl.stanford.edu/research/ldn.html

Here’s a website that tells how LDN works:

http://www.ldnscience.org/

As for me, I’ve had excellent results. My pain levels have dropped from 6-8 on

a

daily average to 1-2 or even less. I used to get sick all the time and

constantly had bladder and ear infections. I haven’t been sick now in almost 2

years. I also totally changed my diet.

Recently Dr. Jill P. of Penn State headed a trial of LDN in patients with

Crohn's disease that was really successful. Also Dr. Jaquelyn McCandles just had

her trial of LDN and AIDS patients in Africa published. You can read of the

results here:

http://lowdosenaltrexone.org/ldn_trials.htm

Hope this helps.

Judy H

To Health Through Knowledge

Started taking Low Dose Naltrexone on January 20, 2009 for

Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOS

http://health.groups.yahoo.com/group/LDNforFibro/

From: Joanne Webb

Sent: Tuesday, November 15, 2011 3:15 PM

To: fibromyalgiacured

Subject: Re: Judy: LDN

Judy

Can you tell us more about your experience with the LDN? I am using Bee's diet

and having some success but I am wondering if LDN would be a good option for me.

I have Crohns and Fibromyalgia. I don't think Bee recommends it but a lot of

people on similar diets do. Here is a short extract from the Crohnsboy Protocol.

http://crohnsdad.wordpress.com/tag/gaps-diet/

Joanne

[Guest guest]

Hi, in reference to LDN, I joined one of the LDN groups, and read the posts for

a while. One post mentioned Bee's diet, and how one had better results if they

went on the diet first. So, I looked up Bee's site, and tried it, and got some

good results. So I never did ask for LDN. LDN use, as the posts said, had some

positive, but results like many treatments, were mixed. I don't really want to

go back to my doc to ask, go to the expense of buying it, read up on it again,

and such. To use it may be just trying to push my body to heal more than it is

able right now. If someone has tried Bee's diet, and later tried LDN, with even

better results, I would like to hear it. took neurontin for some years, and was

able to give it up after on bee's diet for months. I have only taken a few here

and there since then, when I really over did something.

C.

>

> Judy

>  

> Can you tell us more about your experience with the LDN? I am using Bee's diet

and having some success but I am wondering if LDN would be a good option for me.

I have Crohns and Fibromyalgia. I don't think Bee recommends it but a lot of

people on similar diets do. Here is a short extract from the Crohnsboy

Protocol.

>  

> http://crohnsdad.wordpress.com/tag/gaps-diet/

>  

> Joanne

>

>

> ________________________________

>

> To: fibromyalgiacured

> Sent: Tuesday, 15 November 2011, 15:32

> Subject: Re: Dr Armand/Guafinasin or Colonic Hydrotherapy?

>

>

>  

> Sorry but I made a mistake on the Gabapentin. That is also called Neuronton.

Guaifenesin is listed, but it doesn’t show it on that page. You have to click

on “Click Here†just below the chart and it will take you to another page

that has a little larger chart. You can then hover your mouse over the dots and

see that the Guaifenesin is on the lower left and is reported as a little more

effective than the Gabapentin.

>

> Judy H

> To Health Through Knowledge

> Started taking Low Dose Naltrexone on January 20, 2009 for

> Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOS

> http://health.groups.yahoo.com/group/LDNforFibro/

[Guest guest]

No, I don’t. I heard about the Stanford trial on another Yahoo group, but I

lived too far away to participate. However, I did decide to read about LDN and

thought it might work for me. I printed out the information about it and gave it

to my doctor. He said he couldn’t see any harm in it and wrote me a

prescription. I was fortunate that it started working within a couple of weeks

and I steadily started to feel better. It took me about 6 months altogether to

feel like I was starting to get my life back.

Now almost 3 years later, I feel almost normal. I still have to pace myself, but

if I do have a day that I totally overdo, I'll only need one day to recuperate

instead of the 3-4 that it used to take. I went from being pretty much bedridden

and having to use a walker to just get around the house to going everywhere

again. I can even go out and get my own groceries again and walk around the

store. A few months ago I took a bus trip with my daughter and daughter-in-law

and we had a wonderful time. I did rent a motorized cart for the day when we got

there, but at least I was able to go.

Judy H

To Health Through Knowledge

Started taking Low Dose Naltrexone on January 20, 2009 for

Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOS

http://health.groups.yahoo.com/group/LDNforFibro/

From: Giannini

Sent: Tuesday, November 15, 2011 11:42 PM

To: fibromyalgiacured

Subject: Re: Judy: LDN

Hi Judy

Do you see a doctor at Stanford?

Ciao-

Ange

[Guest guest]

The reason that it is a good idea to do Bee’s diet first is that LDN will seem

to make Candida worse. For some reason not yet understood, people who start on

LDN will notice that their tongue will turn white or they will get a rash under

their arms or a vaginal infection. This is a sign that Candida is coming out of

the body. Unfortunately, it can also make it so that you’ll feel as though the

LDN isn’t working. Because of this, I’d definitely recommend to start the

diet first and then try LDN.

By the way, LDN is a generic and is thus very cheap. Even getting it compounded

it only costs about $1 a day or $30 for a month’s supply. Personally, I have a

Medicare supplement insurance where I get generic drugs at no cost, so I get the

50 mg tablets free and mix my own with 50 ml filtered water and then withdraw

the 4.5 ml for my daily dose. It tastes bitter, but you get used to it pretty

quickly.

Judy H

To Health Through Knowledge

Started taking Low Dose Naltrexone on January 20, 2009 for

Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOS

http://health.groups.yahoo.com/group/LDNforFibro/

From: cindy_martian

Sent: Wednesday, November 16, 2011 9:17 AM

To: fibromyalgiacured

Subject: Re: Judy: LDN

Hi, in reference to LDN, I joined one of the LDN groups, and read the posts for

a while. One post mentioned Bee's diet, and how one had better results if they

went on the diet first. So, I looked up Bee's site, and tried it, and got some

good results. So I never did ask for LDN. LDN use, as the posts said, had some

positive, but results like many treatments, were mixed. I don't really want to

go back to my doc to ask, go to the expense of buying it, read up on it again,

and such. To use it may be just trying to push my body to heal more than it is

able right now. If someone has tried Bee's diet, and later tried LDN, with even

better results, I would like to hear it. took neurontin for some years, and was

able to give it up after on bee's diet for months. I have only taken a few here

and there since then, when I really over did something.

C.

[Guest guest]

And what do you think of the theory that Cancer is Candida that has gotten into

the cells and changed their physiology? There is a doctor that says he is

killing these cancer cells with baking soda (simplified version of the story).

Yes, we all have Candida in our systems and it is there for a purpose. Also,

because of our diets (sugar especially), it can take over and cause all kinds of

problems.

Have you read any of the articles by Doug Kaufman of Know The Cause? :

http://www.knowthecause.com/Home.aspx

He says that all of the causes of all our diseases can be linked back to Fungus

(Candida, etc.) His information corresponds pretty closely to Bee’s. It’s

pretty interesting stuff.

Judy H

To Health Through Knowledge

Started taking Low Dose Naltrexone on January 20, 2009 for

Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOS

http://health.groups.yahoo.com/group/LDNforFibro/

From: Joanne Ford

Sent: Wednesday, November 16, 2011 10:33 AM

To: fibromyalgiacured

Subject: Re: Re: Judy: LDN

Judy

This makes sense. I know this is not conventional thinking, but some of us at

Bees site regard Candida as our friend. Seriously, and I know that sounds

batty!!!!

But the Candida is not the cause of our illness, it is the result of it. The

Canidida is part of the bodies own immune system, it is only there because so

may parts of our systems are failing to remove the high levels of toxicity we

are carrying. The systems are failing because for far far far too loang we were

all eating grains, high carbs, pesticides, additives, vegetable oils and all the

other stuff. Plus in my case I had been taking antibiotics, having

immunisations, exposing myself to chemicals and so on, plus I had a lot of

stress. When the body is failing because of these things it creates Candida to

cope, Canidida is basically a super bug, a suer probiotic, if you like that

takes over the role of the damaged gut flora and from what I see it just works

more aggressively to get the poisons out of us

It is thus determination of Candida to remove my Candida that make me both

appreciate and repect it. I see now that all along I blamed it for my tragic

state, but it was not deliberately hurting me it was just deliberately trying to

clean u my mess

I have never killed my Candida, it is still there and when I take care of me,

there is no bother from it what so ever. But as soon as I expose myself to too

much electromagnetism, or detergents, or and other thing that is toxic for me

the Candida gives me a nudge, a 'ouch', but that ouch is Candida speaking to me,

it is saying oi good food good living is all we need, what is this junk you have

brought to us now. And I very quickly get to work removing the poison

It has actually been shown in some studies that Candida is precancer, and again

cancer it another thing made by the body to get toxins out. If I destroy my

Candida, I will have no Candida but I will have a lot of toxin, abd this tixon

will like it is with so many people in our society lead to cancer, or one of the

other degenerative illnesses, but now that I dont destroy my candida I know

immediately when my body is overloaded with toxicity and I am able to do

something about it, and this is why I am so certain I will not get cancer, nor

parkinsons, not any of the other illnesses my family get and have had, because

there is so little toxicity in me now, and monthly this situations is still

continuing

I know how crazy I sould now I have typed Candida is my friend, but it was

realising this that enabled me to get well with the diet and made me willing to

suffer the healing reactions in the early days

Gosh, it is so very hard to share this you know, folk just dont believe me but I

know this is so

Love joanne

[Guest guest]

Hi Judy

That is wonderful news. I am at Stanford now for a stroke I had in March. They

have been very good and are working with me and a few doctors to figure out my

blood clotting issues. I am on Gabapetin for my stroke head pain which seems to

help me. My uncle who has fibro also takes it and says his pain is now

manageable.

Ciao-

Ange

________________________________

To: fibromyalgiacured

Sent: Wed, November 16, 2011 7:26:44 AM

Subject: Re: Judy: LDN

No, I don’t. I heard about the Stanford trial on another Yahoo group, but I

lived too far away to participate. However, I did decide to read about LDN and

thought it might work for me. I printed out the information about it and gave it

to my doctor. He said he couldn’t see any harm in it and wrote me a

prescription. I was fortunate that it started working within a couple of weeks

and I steadily started to feel better. It took me about 6 months altogether to

feel like I was starting to get my life back.

Now almost 3 years later, I feel almost normal. I still have to pace myself, but

if I do have a day that I totally overdo, I'll only need one day to recuperate

instead of the 3-4 that it used to take. I went from being pretty much bedridden

and having to use a walker to just get around the house to going everywhere

again. I can even go out and get my own groceries again and walk around the

store. A few months ago I took a bus trip with my daughter and daughter-in-law

and we had a wonderful time. I did rent a motorized cart for the day when we got

there, but at least I was able to go.

Judy H

To Health Through Knowledge

Started taking Low Dose Naltrexone on January 20, 2009 for

Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOS

http://health.groups.yahoo.com/group/LDNforFibro/

From: Giannini

Sent: Tuesday, November 15, 2011 11:42 PM

To: fibromyalgiacured

Subject: Re: Judy: LDN

Hi Judy

Do you see a doctor at Stanford?

Ciao-

Ange