Re: Re: Robin, I have a question for you

[Guest guest]

Hi Robin,  I am very curious about the Lyme disease.   Somewhere around 10-15

years ago I was biten by a tick.  It was on top of my head in the middle of my

crown.  Back then I had big hair, LOL, and very dry, thick hair.  So without

going into the embarrassment of it all, I didn't know it was there.  One day I

had a funny feeling and I reached right up to where it was.  I almost went into

shock and shook so badly that I couldn't think.  Except to get it off.  Oh

gosh,

it wasn't a small one either.  It had to have been there atleast 4 days. 

Anyway, afterwards a huge know came up and it drained for a few weeks.  I did

immediately go to my doctor and I remember he put me on some 7 day

antibiotic.  

Afterwards, around 2 years maybe that is when I got Irritable Bowel Disease,

which is Chrons and Ulcerative Colitis.  After many doctors of treating that I

was told that within the year I would have to have a total colosomy.  Well,

it's

been a very long time since then and I still have everything.  Then 7 years ago

I had cancer.  Where it was at and all, the doctors were baffled because they

said I didn't fit the discription.  Anyway, that was taken care of by total

hysterectomy.  So then 2 years later came fibro.

I have went to doctors as recent as 3 years ago begging them to do a more in

depth test for lyme disease.  They wouldn't budge.

I often go back in my mind and wonder if this bit was the start of a disease

ridden body.  Up until the tick bite I was a very fit and active woman. 

I am going to research for doctors in my area that specializes in this type of

illness.  What kind of doctor do I look for? LOL, I have no idea.  I just want

to be sure if this is lyme or fibro.

Thank you my friend!!!!

Carol B.

________________________________

To: fibromyalgiacured

Sent: Tue, May 17, 2011 10:55:51 AM

Subject: Re: pain - Lorrie

 

Hi Robin,

Thanks for all the info, I will look into that. I am on docecycline for my lung

disease, but I always get thrush in my mouth, wich is very painful, so then I

have to take nistatin for that. I get thrush real easy don't know why. I went to

the lyme site and foundd out a lot, I am going to the dr again and talk to him

about getting tested. I'll let you know inthe mean time I will read all I can

get my hands on. Thanks

Lorrie

> >

> >

> > Lorrie, can't find your original post, but wanted to tell you that my

>fibromyalgia of 25 years turned out to be Lyme disease, a bacterial infection I

>acquired from a known tick bite in my foot. I am now on oral clindamycin

>antibiotics, 150mg 1-2x/day and my fibro pain is at zero. I also take various

>anti-inflammatory supplements that treat my symptoms. We're all different and

>respond differently to treatments. People can also get Lyme from other insects

>and from human fluids and tissues, including congenitally. If you want to check

>this possibility out, you could go to www.lymenet.org, sign up with a name,

then

>click on flash discussion, then seeking a doctor, then make a post with WA in

>the heading and people will give you referrals. Anyone can also access the

>archives there and read on any topic. I'd say about half of Lyme patients

>present with fibro symptoms - ie, inflammatory presentation. That's what the

>Lyme bacteria does, is inflame everything - nerves and soft tissues. - Robin

> >

> >

> >

> >

> >

> >

> >

> >

> > pain

> >

> >

> > I am in so much pain I am seriously depressed, I have been in bed for a

week,

>

> > The pain clinic said they couln't help me because my insurance wouldn't

cover

>

> > anything, I can't afford what they are asking for fee. My Regular Dr said

>they

>

> > don't perscribe pain meds.I am at wits end and feeling very desperate. Dose

> > anyone know of any Dr. in the washington state area. Please let me know. I

>don't

>

> > know what to do and I am only getting worse. Thanks anyone.

> >

> >

[Guest guest]

Hi Carol,

You post really interested me. since I  was 15 i had ulcers, at 19I had

ulcerative colitis, which I still suffer. I had uterin cancer, and colon tumors

and breast cancer. I gratefullly lucky since they got all of it in surgeries.

Some of my symptons started when I was 15, an abused child, i had alot of

stress, all of the stress affected my physicall bodie, then I had my car wreck,

I ws doa, with lost of injuries,a blood clot in the brain. Seem like we have

alot of the same issues. I'm even more interested to look into the lyme disease.

So If I find any thing I will surelly pass it on.

Lorrie

Subject: Re: Re: Robin, I have a question for you

To: fibromyalgiacured

Date: Tuesday, May 17, 2011, 8:12 AM

 

Hi Robin,  I am very curious about the Lyme disease.   Somewhere around

10-15

years ago I was biten by a tick.  It was on top of my head in the middle of my

crown.  Back then I had big hair, LOL, and very dry, thick hair.  So without

going into the embarrassment of it all, I didn't know it was there.  One day I

had a funny feeling and I reached right up to where it was.  I almost went into

shock and shook so badly that I couldn't think.  Except to get it off.  Oh

gosh,

it wasn't a small one either.  It had to have been there atleast 4 days. 

Anyway, afterwards a huge know came up and it drained for a few weeks.  I did

immediately go to my doctor and I remember he put me on some 7 day

antibiotic.  

Afterwards, around 2 years maybe that is when I got Irritable Bowel Disease,

which is Chrons and Ulcerative Colitis.  After many doctors of treating that I

was told that within the year I would have to have a total colosomy.  Well,

it's

been a very long time since then and I still have everything.  Then 7 years ago

I had cancer.  Where it was at and all, the doctors were baffled because they

said I didn't fit the discription.  Anyway, that was taken care of by total

hysterectomy.  So then 2 years later came fibro.

I have went to doctors as recent as 3 years ago begging them to do a more in

depth test for lyme disease.  They wouldn't budge.

I often go back in my mind and wonder if this bit was the start of a disease

ridden body.  Up until the tick bite I was a very fit and active woman. 

I am going to research for doctors in my area that specializes in this type of

illness.  What kind of doctor do I look for? LOL, I have no idea.  I just want

to be sure if this is lyme or fibro.

Thank you my friend!!!!

Carol B.

________________________________

To: fibromyalgiacured

Sent: Tue, May 17, 2011 10:55:51 AM

Subject: Re: pain - Lorrie

 

Hi Robin,

Thanks for all the info, I will look into that. I am on docecycline for my lung

disease, but I always get thrush in my mouth, wich is very painful, so then I

have to take nistatin for that. I get thrush real easy don't know why. I went to

the lyme site and foundd out a lot, I am going to the dr again and talk to him

about getting tested. I'll let you know inthe mean time I will read all I can

get my hands on. Thanks

Lorrie

> >

> >

> > Lorrie, can't find your original post, but wanted to tell you that my

>fibromyalgia of 25 years turned out to be Lyme disease, a bacterial infection I

>acquired from a known tick bite in my foot. I am now on oral clindamycin

>antibiotics, 150mg 1-2x/day and my fibro pain is at zero. I also take various

>anti-inflammatory supplements that treat my symptoms. We're all different and

>respond differently to treatments. People can also get Lyme from other insects

>and from human fluids and tissues, including congenitally. If you want to check

>this possibility out, you could go to www.lymenet.org, sign up with a name,

then

>click on flash discussion, then seeking a doctor, then make a post with WA in

>the heading and people will give you referrals. Anyone can also access the

>archives there and read on any topic. I'd say about half of Lyme patients

>present with fibro symptoms - ie, inflammatory presentation. That's what the

>Lyme bacteria does, is inflame everything - nerves and soft tissues. - Robin

> >

> >

> >

> >

> >

> >

> >

> >

> > pain

> >

> >

> > I am in so much pain I am seriously depressed, I have been in bed for a

week,

>

> > The pain clinic said they couln't help me because my insurance wouldn't

cover

>

> > anything, I can't afford what they are asking for fee. My Regular Dr said

>they

>

> > don't perscribe pain meds.I am at wits end and feeling very desperate. Dose

> > anyone know of any Dr. in the washington state area. Please let me know. I

>don't

>

> > know what to do and I am only getting worse. Thanks anyone.

> >

> >