to Poly, Debbie, , Gwen, Tina and all

[Guest guest]

We had a wonderful three days at the sea with unusual warm weather,

returned yesterday, " free " time (husband plays with Lea) and have read all

your latest e-mails, have got two pages of thoughts written down while

reading them (do skip the passages that you are not interested in, as it is

going to be another long mail, sorry!):

Poly, I will ask Dr. Kruschinski and Dr. Putz, both Germany, and I suppose

22 questions won´t worry them.

I am back in the office tomorrow and will then be able to get the

questionnaire and translate it.

If again you are in need of a moderator, please tell me (though I am not a

native speaker). If it is long enough in advance I am able to reduce other

necessities and help out.

How do you feel about your surgery? Is there anything we could do to help you?

Debbie, THANKS SOOOOOOOO MUCH!!!!! .... for the two adresses of specialists

in Germany. It was great to know that one of them (Dr. Gallinat) was the

surgeon who did my last hysteroscopy in August!!! I feel so relieved!!! So

I was lucky to by accident come across a well known doctor for Asherman´s,

uff. At least something that has worked out. And thanks for taking the time

to write down even the telephone numbers and addresses, x, x, x, .... I

will contact the other one, too. I won´t stop contacting all of them until

I feel being treated in the best possible way. May I ask for your dr.´s

name as to be able to say who recommended him? Or wouldn´t your dr. like this?

, welcome to this group, sorry I am a bit late saying this, but my

wishes for your future are none the less the best (And I am sure this group

will contribute to your good future, we can all give emotional and medical

support, everyone of us has her special field(s).) One answer to your

question about when to do the surgery: It is best to have it done in the

first week of your cycle, this I have read and was told by my dr, too. I

suppose that way the endometrium is yet not too thick and the danger of

damaging part of it is lower, but I am only guessing.

Gwen, I know that you can add an alternative e-mail address when signing up

with e-groups, that way I can read the e-mails from home, too.

How are you? I am still keeping my fingers firmly crossed for a positive

outcome of your surgery!

Tina, I read your e-mails stating both bad and good news within half an

hour and it even took my breath away just reading it, so you must have

really had a very emotional time playing the main part in it!! All my

prayers are with you and the child!!!

Though your first news were really bad, I must say that your detailed

description of what exactly happened helped me to understand what an abort

is like. And as we all have to face this possibility when ttc again, I am

glad that you took the courage to tell us, thanks. One question still: Does

one always have to have a D & C after an abort or m/c? Or do they do this

only after an US has shown left pieces (of placenta or what?)?

Vikki and Pam, welcome, too. Sorry to meet under sad circumstances but it

is a great group to get comfort AND information.

now to all of you:

When reading about all those mega doses of estrogen I do feel a little

awkward though. It sounds, please excuse my way of being straight forward

in this matter, like: " The more the better! " . Up to now I can´t really

explain the feeling that this can´t be right and I will ask the drs. here

in Germany about it but one question that I would like to post is: What

does our body do AFTER all this estrogen? How can he come back to normal

function? Is there no danger of the body getting " addicted " to it? This

might sound naive but nevertheless I would very much appreciate your comments.

Meanwhile I have thought about the possibilities to make other women and

GYN/OBs aware of Asherman´s. At university we had a gyn congress and I

suddenly had the idea, why not demonstrate at

an important one in the States? I once saw women in the streets of London

demonstrating for breast cancer. The just queued up quietly with a

particular slogan on their t-shirts. It would definitely get the media

together.

My husband went to a symposium about a special eye-disease (Asherman´s

wasn´t the only bad news to us last year ...). It was organized by a

support group with 4000 members, including a board of trustees etc. I am

sure there are many more women with Asherman´s. So why don´t we one day

come up with a little symposium, where specialist talk about newest

research, a woman with Asherman talks about her experience, representatives

of the pharma industry show there medicine, people can ask questions etc.

(this is like what happened at the symposium my husband went to)?

I suppose it is yet a little to early for it but we will sure become a

bigger group.

Love to you all, Corinna