New Member

[Guest guest]

-

Isn't it amazing how a doctor can diagnose a potentially life-threatening

illness/disease and then just sent the patient on their way with no ammunition?

The exact same thing happened to my hubby, Curt. It's why I came searching for

this group.

So sorry to hear that your Dad had get to this point before being able to find

some help! This group is amazing - and STRONG! Is your Dad receptive to

changing his lifestyle? Maybe try to reassure him that life doesn't end because

of diabetes. Curt's biggest hurdle was convincing himself that he CAN lead a

good & healthy life but he HAS to be aware of his needs. We purchased " Cook'n

for Diabetics " and it has changed the eating habits of our entire household.

I'd be happy to pass of recipes of his favorite meals - just ask! :-)

Best wishes & good luck to Dad! :-)

New member

Hi, I am a member under false pretenses really. I am not diabetic but

my father was diagnosed with Type 2 last summer and this past week

has had to undergo a toe amputation as a result of an infection.

The advice that he has received from doctors has been non-existent

and definitely contributed to his present condition. So, as he is not

particularly computer literate, I was hoping that I could

hover here and pick up any information that would help him rethink

his way of life and avoid such things happening again in the future.

Thanks

, UK

[Guest guest]

Thanks for making the positive comment about the

group, Amanada. I guess for my own support, I need

to hear that the group is helpful. The word Strong

makes me feel good. After the miserable week last

week with the doctor, I need a " strong " bit of

support.

Thanks,

-list owner

This group is amazing - and STRONG! Is your Dad

receptive to> changing his lifestyle? Maybe try to

reassure him that life doesn't end because of

diabetes. Curt's biggest hurdle was convincing

himself that he CAN lead a good & healthy life but he

HAS to be aware of his needs. We purchased " Cook'n

for Diabetics " and

> it has changed the eating habits of our entire

> household. I'd be happy to pass of recipes of his

> favorite meals - just ask! :-)

>

> Best wishes & good luck to Dad! :-)

>

>

>

> New member

>

>

> Hi, I am a member under false pretenses really. I

> am not diabetic but

> my father was diagnosed with Type 2 last summer

> and this past week

> has had to undergo a toe amputation as a result of

> an infection.

>

> The advice that he has received from doctors has

> been non-existent

> and definitely contributed to his present

> condition. So, as he is not

> particularly computer literate, I was hoping that

> I could

> hover here and pick up any information that would

> help him rethink

> his way of life and avoid such things happening

> again in the future.

>

> Thanks

> , UK

>

>

>

>

>

>

[Guest guest]

--- CoolSummerNites

wrote:

> -

>

> Isn't it amazing how a doctor can diagnose a

> potentially life-threatening illness/disease

> and then just sent the patient on their way

> with no ammunition? The exact same thing

> happened to my hubby, Curt. It's why I came

> searching for this group.

>

> Sure is..about eight months ago my Dr. told me

that I was borderline diabetic. Handed me a diet

sheet and said see you in 3 months. Three month

came and I had blood work done. When my test

results came in he put me on glucaphage and that

was that. Oh..he did tell me..after I ask..that

my blood sugar should be under 100 in the morning

and under 140 after meals. I had a bad toe

infection that lasted a month..ingrown

toenail..he never mention a foot Dr. I have a

friend thats diabetic and she told me of her's.

oh..my dr.did put me on meds. for my toe but they

never worked so I took the ingrown toe nail out

myself. Infection was gone in bout 2 weeks. I

went to my friend Dr. with my second ingrown

nail..I get them a lot. I thought maybe it was

because I didn't have insurance and he knew money

was tight. <sigh> Doctoer..who knows.

God bless

Carol S.

=====

Those who know your name will trust in you, for you, Lord, have never forsaken

those who seek you.

Psalm 9:10

AIM: CarolRStark

__________________________________________________

[Guest guest]

New Member

> Hi,

>

> My name is Pam and I am a new member to this group. I'm 22 years old

> and I live in Milwaukee, Wisconsin. I don't currently have Diabetes,

> but it has affected me seriously. My father died from complications

> due to it, I have an Aunt with it, a stepfather with it, and now my

> sister has it pretty bad. I grew up watching my stepfather undergo

> all the complications that come with it, kidney failure, dialysis,

> loss of a limb, and failure of his eyesight among others. Lately, I

> have been attempting to get involved.

Hi Pam, Welcome.. Youve certainly had lots of experience with the down side

of diabetes. Is all your family members you mentioned type 2?

I have started doing some

> volunteering for the ADA in my city, and becoming educated. I also

> hae gained a couple of penpals through Diabetes Today, which is a

> magazine that I have a subscription to. I hope to become friends

> with several of you, and become an active member of this group. I

> noticed that someone said that he/she visited a nutritionist. I

> actually went to a series of Diabetes Education Classes, but I wasn't

> happy. The objective was to change my lifestyle so that I could

> become more healthy given my risk.

Great attitude, with the correct diet and life style hopefully you might not

ever become diabetic...

Nobody in the classes were my

> age, most people there were 3 times my age. I didn't learn much from

> it, I just wish there were education classes geared towards younger

> people, that can teach us how to restructure our lives.

>

Its hard to teach older people i think because they are so set in their

ways! young people are usualy type 1 and this comes on very quickly making

them very ill so lifestyle changes have to be dealt with straight away. I

was diagnosed at age 25 with type 1, after becoming very ill and

hospitalised.

I am sure you will enjoy this list;)

Anne

type 1, 11 years

Pumper,10 months

> I am always looking for new friends and penpals that may be in my age

> group, a bit older, or a bit younger. Please don't hesitate to email

> me or IM me. However, I look forward to getting to know all of you

> better.

>> Thanks for having me,

>> Pam

[Guest guest]

Hi thanks for your reply! All of my family members have type 2

diabetes. My sister's started as gestational diabetes and progressed

into type 2 once her baby was born.

Pam

[Guest guest]

Re: New Member

> Hi thanks for your reply! All of my family members have type 2

> diabetes. My sister's started as gestational diabetes and progressed

> into type 2 once her baby was born.

>

> Pam

>

I have heard this is common with gestational diabetes, it is wonderful that

your family has your support. Goodluck with acquiring all relevant info,

many on this list are type 2, so I am sure you will get some good advise

Anne

Type 1, 11 years

Pumper, 10 months

[Guest guest]

Welcome Pam. Are you overweight? That would be your first step in

cutting your risk factor way down is being at a normal weight.

I am still struggling to get there, but if I had done it at your age, I

would be in much better shape now.

Phyllis

[Guest guest]

Dear : (This may become confusing: I am also a "Phil" (Henry).) I am interested in hearing more about your course of treatment at Loma Proton Center. I am scheduled for an interview with the Doctors, but Insurance is a problem. I'm in the VA Program down the street, but the two entities don't talk to each other-- the VA won't fund Proton Treatment, and wanted to do a radical prostatectomy on me until I refused. I have applied for Disability pension with the VA under the "Presumptive Disease" concept: Veterans of the Vietnam War like myself are assumed to have come in contact with Agent Orange, which is believed to cause or be related to PC. In the meantime...how does one go about getting a second biopsy, preferably a Color one. Also... is a PET (Positron Emission Tomography) Scan useful in detecting the extent of PC and metasticis? -- Phil H. Walchap wrote: Hi All,My name is Phil W. and I am finishing a course ofproton radiation treatment at Loma California.My wife, the more literate one, and I will both beposting under this ID.Gory Details:First Clue: PSA Velocity of +.8,then 5 months later .9PSA 3.14/3.5 (highest)Gleason 3+4Stage T1c or T2a depending on whose figer was whereFirst 18 core biopsy negativeSecond Biopsy - Color Doppler (by Dr. Bahn) 2 of

7cores positivePhil W.__________________________________________________________Looking for a deal? Find great prices on flights and hotels with Yahoo! FareChase.http://farechase.yahoo.com/

Choose the right car based on your needs. Check out Yahoo! Autos new Car Finder tool.

[Guest guest]

Phil H:

Please let me clarify the biopsy question. I had an 18 core biopsy in

the summer of 2006 that was negative. My PSA went up to 3.5 in early

2007 and that is what prompted me to get a second biopsy. I wanted

something more definitive than the " hit and miss " biopsy that is

normally performed by a urologist. My wife did some research and came

up with Dr. Bahn, in Ventura CA, who does color doppler ultrasound

targeted biopsy. I saw Dr. Bahn, who did that procedure on me. That

is the biopsy that identified the prostate cancer.

If you have already been diagnosed with prostate cancer, I'm not sure

what value a second biopsy would have. However, I have heard of some

men who have obtained a second opinion on their slides from experts

in the field.

I, too, am a Vietnam era veteran but I was not on the ground in

Vietnam. I was stationed in Alaska and serviced aircraft that were

returning from Vietnam. Was I exposed to Agent Orange? Good question.

I have received two different opinions from the VA as to whether or

not I am entitled to a disability pension from them. I will apply but

time will tell.

Phil W.

_____________________________________________________

> Dear :

>

> (This may become confusing: I am also a " Phil " (Henry).)

> I am interested in hearing more about your course of treatment at

Loma Proton Center. I am scheduled for an interview with the

Doctors, but Insurance is a problem.

> I'm in the VA Program down the street, but the two entities don't

talk to each other-- the VA won't fund Proton Treatment, and wanted

to do a radical prostatectomy on me until I refused. I have applied

for Disability pension with the VA under the " Presumptive Disease "

concept: Veterans of the Vietnam War like myself are assumed to have

come in contact with Agent Orange, which is believed to cause or be

related to PC. In the meantime...how does one go about getting a

second biopsy, preferably a Color one. Also... is a PET (Positron

Emission Tomography) Scan useful in detecting the extent of PC and

metasticis? -- Phil H.

>

>

> Walchap wrote:

> Hi All,

>

> My name is Phil W. and I am finishing a course of

> proton radiation treatment at Loma California.

>

> My wife, the more literate one, and I will both be

> posting under this ID.

>

> Gory Details:

> First Clue: PSA Velocity of +.8,then 5 months later .9

> PSA 3.14/3.5 (highest)

> Gleason 3+4

> Stage T1c or T2a depending on whose figer was where

> First 18 core biopsy negative

> Second Biopsy - Color Doppler (by Dr. Bahn) 2 of 7

> cores positive

>

> Phil W.

>

> __________________________________________________________Looking

for a deal? Find great prices on flights and hotels with Yahoo!

FareChase.

> http://farechase.yahoo.com/

>

>

>

>

>

> ---------------------------------

> Choose the right car based on your needs. Check out Yahoo! Autos

new Car Finder tool.

>

[Guest guest]

I believe that you should always get a second opinion on the slides

from your biopsy. There is nothing to lose and occasionally that

second opinion will produce a different conclusion. With respect to

a second biopsy, I happened to get one because I was about to enter

the " expectant management " (i.e., watchful waiting) program at s

Hopkins and they wanted a baseline biopsy for that program done by

one of their doctors. That second biopsy showed that the cancer was

more extensive within my prostate than the first biopsy (in 5 out of

12 cores in the second one vs. 1 out of 7 cores in the first one),

and I changed the course of my treatment as a result (opting for

radical prostatectomy instead of watchful waiting).

> > Hi All,

> >

> > My name is Phil W. and I am finishing a course of

> > proton radiation treatment at Loma California.

> >

> > My wife, the more literate one, and I will both be

> > posting under this ID.

> >

> > Gory Details:

> > First Clue: PSA Velocity of +.8,then 5 months later .9

> > PSA 3.14/3.5 (highest)

> > Gleason 3+4

> > Stage T1c or T2a depending on whose figer was where

> > First 18 core biopsy negative

> > Second Biopsy - Color Doppler (by Dr. Bahn) 2 of 7

> > cores positive

> >

> > Phil W.

> >

> >

__________________________________________________________Looking

> for a deal? Find great prices on flights and hotels with Yahoo!

> FareChase.

> > http://farechase.yahoo.com/

> >

> >

> >

> >

> >

> > ---------------------------------

> > Choose the right car based on your needs. Check out Yahoo!

Autos

> new Car Finder tool.

> >

>

[Guest guest]

Hey Phil W.!!!

WOW!!! A fellow Loma Proton guy!!

I don't feel so " alone " on this forum any more!!!

I have the distinct impression that many here think that I am a " nut "

because I am so upbeat about Proton Beam Therapy. Read some of the

past posts and you will see what I mean.

Here are a bunch of questions:

When did you start your treatments? Did I meet you at one of the Weds.

night meetings? ( I left March 8, 2007, the day of my last treatment.)

Are you a BOB member yet? Did you meet Bob Marckini when he was there

last? What is your impression of the overall Loma " Experience? "

Lots to discuss here, maybe some will realize that there IS another

very viable alternative.

Regards,

Fuller ( " Sonny " )

>

> Hi All,

>

> My name is Phil W. and I am finishing a course of

> proton radiation treatment at Loma California.

>

> My wife, the more literate one, and I will both be

> posting under this ID.

>

> Gory Details:

> First Clue: PSA Velocity of +.8,then 5 months later .9

> PSA 3.14/3.5 (highest)

> Gleason 3+4

> Stage T1c or T2a depending on whose figer was where

> First 18 core biopsy negative

> Second Biopsy - Color Doppler (by Dr. Bahn) 2 of 7

> cores positive

>

> Phil W.

>

>

>

>

>

>

>

>

________________________________________________________________________________\

____Looking

for a deal? Find great prices on flights and hotels with Yahoo! FareChase.

> http://farechase.yahoo.com/

>

[Guest guest]

-Well I wasn't really alone, there is Laurel and her husband Gregg,

but it will be good to have a new perspective here!

Sonny J

[Guest guest]

Sonny:

I started in early April and probably did not meet you. I have

not attended too many Wednesday night support group sessions.

Unfortunately, the night that Bob Marckini was here, I was in the

Urgent Care facility attending to an infected toe (unrelated to

proton treatment)! Too bad I missed him.

Sonny, I know that you are an ambassador for Loma . I do have

a " proton power " T-shirt so I am " with you " part of the way. In the

interest of fairness to prospective Loma proton patients,

however, I would like to present my observations based on my current

experiences here. I FULLY agree with you about the benefits of proton

beam radiation over conventional (photon) radiation. That is the

reason I am here. However, having said that, I feel it is only fair

to advise potential Loma patients of some of the frustrations

that my wife and I have experienced.

They are currently experiencing a serious problem, in our opinion,

keeping their equipment up and running. On almost a day-to-day basis,

at least one of the three gantries (treatment rooms) experiences an

outage of some kind. Outages vary in time but can range from an hour

to all day. Under these circumstances, some patients, especially new

patients, are cancelled to make room in the shortened schedule for

patients who are further along in their treatment course. It is not

unusual to see a new patient cancelled on his first day of treatment.

I have personally witnessed it a number of times. Fortunately, that

did not happen to me. For an institution that claims to be " patient

centric " , this appears to be somewhat of a contradiction, in my

opinion.

I asked the Loma physician to whom I am assigned about the

issues contained in my last paragraph. His reply was " You were told

to expect several missed treatment days " . That is true, although over

the course of a 2+ hour consult appointment, my wife and I were told

a lot of things. However, it does not help when one is literally

attached to one's cell phone all day long, waiting for a call that

may or may not occur. It also doesn't help the poor " first day "

patient whose very first treatment is summarily cancelled and who

may, in fact, be questioning his decision to come to Loma in

the first place.

A separate, but related, problem is that the gantries are

incompatible. A patient whose gantry is down cannot be switched to

another treatment room. This limitation, I am told, is due to basic

design differences and the fact that the gantries were built at

different times. Again, when questioning my LL physician about this,

the " You were told to expect several missed treatment days " response

was given. It appears to be the " company line " response to all

questions of this nature. The Loma Radiation Medicine

Department spends a considerable amount of staff time (and therefore

$$) managing patient expectations. In my opinion, these resources

could be put to better use by managing the equipment maintenance and

training in that area.

If you are a person with a boatload of patience, then you probably

won't be bothered by any of this. That is great. If, however, you are

short in the " patience department " (as my wife and I both are) this

might be something to consider.

Again, this information is being posted with the goal of presenting a

fair and balanced picture of proton treatment AT LOMA LINDA. My wife

and I are NOT sorry, in the least, that we chose proton treatment.

The side effects have truly been minimal, so far. I am experiencing

only some minor urinary issues and am taking medication to help

control that. Loma 's present delivery of this treatment,

however, unfortunately leaves much to be desired, in my opinion.

Phil W.

__________________________________________________

> Hey Phil W.!!!

>

> WOW!!! A fellow Loma Proton guy!!

>

> I don't feel so " alone " on this forum any more!!!

>

> I have the distinct impression that many here think that I am

a " nut "

> because I am so upbeat about Proton Beam Therapy. Read some of the

> past posts and you will see what I mean.

>

> Here are a bunch of questions:

> When did you start your treatments? Did I meet you at one of the

Weds.

> night meetings? ( I left March 8, 2007, the day of my last

treatment.)

> Are you a BOB member yet? Did you meet Bob Marckini when he was

there

> last? What is your impression of the overall Loma

" Experience? "

>

> Lots to discuss here, maybe some will realize that there IS another

> very viable alternative.

>

> Regards,

>

> Fuller ( " Sonny " )

>

>

>

> >

> > Hi All,

> >

> > My name is Phil W. and I am finishing a course of

> > proton radiation treatment at Loma California.

> >

> > My wife, the more literate one, and I will both be

> > posting under this ID.

> >

> > Gory Details:

> > First Clue: PSA Velocity of +.8,then 5 months later .9

> > PSA 3.14/3.5 (highest)

> > Gleason 3+4

> > Stage T1c or T2a depending on whose figer was where

> > First 18 core biopsy negative

> > Second Biopsy - Color Doppler (by Dr. Bahn) 2 of 7

> > cores positive

> >

> > Phil W.

> >

> >

> >

> >

> >

> >

> >

> >

>

______________________________________________________________________

______________Looking

> for a deal? Find great prices on flights and hotels with Yahoo!

FareChase.

> > http://farechase.yahoo.com/

> >

>

[Guest guest]

You're not alone.

I am also a proton graduate. I completed my treatment May 2nd.

Though superstition is not in my vocabulary, in the case of my

treatment I embrasse it because May 2nd happens to be my birthday.

So, I look at it as a " REBIRTH " ...

I've been reading all your posts regarding PBT and I must admit you

are doing a great job of informing prospective newly diadnosed

patient. So keep it up.

As far as my experience is concerned, it was a breeze except for the

fact that I drove in every morning from Los Angeles. THat was the

biggest challenge (150 miles round trip).

In terms of side effects I had minor urinary urgency mostly in the

morning due to the water intake and all I took to manage it were a

couple of advil when needed, eventhough my doctor recommended flowmax

i never filled the prescription. Also my nights during the treatment

were normal and did not wakeup to urinate. The other side effect I am

still experiencing is painful orgasm. Obviously not painful enough to

give up sex. As time passes things are getting better.

In conclusion, I feel good and very happy with choice of treatment.

I must add that I had scheduled surgery before discovering Proton. I

was convainced at the time that given all the side effect of the

various modalities, surgery was the way to go.

Another thing I want to stress about Loma , is that they

restored my trust in the medical institutions. Thoughout the

treatment I never felt that I was a case of cancer but the entire

staff treated me like a person and that does a long way to manage the

stress we all experience during these difficult times.

Thanks again for keeping members informed about Proton Beam Therapy.

Beau

> >

> > Hi All,

> >

> > My name is Phil W. and I am finishing a course of

> > proton radiation treatment at Loma California.

> >

> > My wife, the more literate one, and I will both be

> > posting under this ID.

> >

> > Gory Details:

> > First Clue: PSA Velocity of +.8,then 5 months later .9

> > PSA 3.14/3.5 (highest)

> > Gleason 3+4

> > Stage T1c or T2a depending on whose figer was where

> > First 18 core biopsy negative

> > Second Biopsy - Color Doppler (by Dr. Bahn) 2 of 7

> > cores positive

> >

> > Phil W.

> >

> >

> >

> >

> >

> >

> >

> >

>

______________________________________________________________________

______________Looking

> for a deal? Find great prices on flights and hotels with Yahoo!

FareChase.

> > http://farechase.yahoo.com/

> >

>

[Guest guest]

> > >

> > > Hi All,

> > >

> > > My name is Phil W. and I am finishing a course of

> > > proton radiation treatment at Loma California.

> > >

> > > My wife, the more literate one, and I will both be

> > > posting under this ID.

> > >

> > > Gory Details:

> > > First Clue: PSA Velocity of +.8,then 5 months later .9

> > > PSA 3.14/3.5 (highest)

> > > Gleason 3+4

> > > Stage T1c or T2a depending on whose figer was where

> > > First 18 core biopsy negative

> > > Second Biopsy - Color Doppler (by Dr. Bahn) 2 of 7

> > > cores positive

> > >

> > > Phil W.

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> >

>

______________________________________________________________________

> ______________Looking

> > for a deal? Find great prices on flights and hotels with Yahoo!

> FareChase.

> > > http://farechase.yahoo.com/

> > >

> >

>

[Guest guest]

I second that Sonny. We are definitely in the minority. There are other members and their wives who are Proton vets, just don't hear much from them on a regular basis. They are out there however.

LaurelSee what's free at AOL.com.

[Guest guest]

Beau, Laurel here. Gregg completed his treatment at Loma March 14th, just days after Sonny. Sonny and Caroline lived just one street over from Gregg while they were in Loma . We could talk to Sonny over the back fence, but Sonny and I were corresponding before he even left for CA from Florida. It was one of those mini miracles that made us neighbors in Loma .

The painful orgasm is basically a case of prostatitis due to damage from the protons. The pain is gone for most men about 3 months post treatment. Gregg is still aware of some minor prostate discomfort if he sits all day as he did yesterday at the Santa Cruz Blues Festival. He is about 11 weeks post treatment. It takes a while for things to settle down.

LaurelSee what's free at AOL.com.

[Guest guest]

Hi: Be welcome and please tell us your situation so that we can offer

help.

Fuller

[Guest guest]

Hello , and a big warm Texas welcome from me and my Texas gentleman

husband, Don.

I am sure by now many here have given you their experiences, and know how.

And, have agreed that Antipsychotic medications were wrong for LBD.Shame

on that Doctor!

There is another area that I would not dismiss. And that is that a nurse

may very well be mistreating your Dad at night. I found that Don had one

like that, and eventually he went on several rampages. Needless to say I took

him out of there.

But, I know you will get all the support you need right here. It sure is a

loving and supportive group.

I haven't been able to get on here for a while, and am 50 letters behind.

Another loving welcome and may you keep yourself strong and healthy in

order to look after two parents at the same time. Whew!

Love with a smile,

Imogene

Caregiver for my True Texas Gentleman Husband. Diagnosed with AD in 2005.

And then, with LBD 2006.

A happy personality is contagious. Infect someone today.

Yours Truly

In a message dated 10/6/2009 2:29:04 P.M. Central Daylight Time,

michaelmarshall_43@... writes:

Hi all,

I am a 57-yr. old woman whose father was diagnosed with LBD last year. At

that time, he was living in a retirement home, and seeing all sorts of

" critters " in his room...........bugs, frogs, butterflies, caterpillars, etc.,

etc. He was put on an anti-pyschotic by his doctor (and after doing some

research, I see that this would NOT be indicated for dementia!) He also

has myelodysplastic syndrome, which is a blood disorder. In Dec. of last

year, he was found on the floor of his room with very low blood pressure, and

very low body temp. The first 48 hrs. were really touch and go, and we

thought we would lose him. As a result, he spent 9 wks. in hospital, and we

were never really given any reason as to what this was or why it happened.

He was then placed into a nursing home (and, incidentally, my mother is in

a different nursing home with Alzheimer's). That was in February. At the

beginning, there were ups and downs, and he was back in hospital about a

month later, for another 3 wk. stint, and required 3 weekly blood

transfusions after that. Anyway, he has improved considerably since then, but

now has

started hallucinating and having delusions, in the last couple months.

This time, it is not critters, but he imagines that there is a nurse at night

who treats him very badly, and that there are people who come into his

room dressed weirdly and doing weird things, and that there are wild parties

going on all over the building (by the staff), etc., etc.

Last week, he came down with pneumonia (for the second time this year),

and a bad bladder infection (which he is very prone to..........long-standing

history of gout), and since then, the hallucinations/delusions have

increased. He calls me daily, sometimes twice, very depressed and telling me

all

of this crazy stuff that he imagines to be happening. The doctor for the

nursing home will be in this morning, and I have told Dad to tell him what

he tells me, so that the doctor can see for himself what is going on. I

have far more faith in this doctor, who is very well known in the area, than

I had for Dad's old doctor! I understand that Aricept is one of the

treatments for LBD, and I hope he puts him on it. My mother is on it, and it

helped her for a long time, and still is. Oh, and BTW, Dad also has macular

degeneration, and some deafness, so visual/hearing is an issue.

Anyway, I am an only child, and live 30 miles away, so this is difficult

for me. Dad is 83, and has no other family close by, except a sister, and

she has too many medical problems of her own to even be able to visit Dad.

I don't know how to deal with this situation, and was hoping for advice

from some who have been through it.

Thanks in advance,

Lynda Marshall

Wellandport, ON Canada

[Guest guest]

Hi Everyone,

My name is Mia and I have Fibromyalgia. I also have Hashimoto's and have

discovered how much that affects it. Does anyone else here have that connection?

I do believe is the cause of it because getting the right balance of meds has

helped it die down significantly, but that has been a long, difficult and

ongoing journey. I hope to find good advice here and support.

Thank you,

Mia

[Guest guest]

Hello Mia

welcome! This site is very supportive and many people do have Hashimoto's I

thought I did but have been tested many times but honestly I dont think I have

found the right doctor who knows enough about thyroid tests or issues. I had to

change my diet due to food sensitivities which helped me but what really helped

me was this site and learning about the different diets and supplements which

have helped me. Different diets work for different people. How long have you had

fibro and Hashimotos?

Ciao-

Ange

________________________________

To: fibromyalgiacured

Sent: Wed, November 9, 2011 2:50:01 PM

Subject: New Member

Hi Everyone,

My name is Mia and I have Fibromyalgia. I also have Hashimoto's and have

discovered how much that affects it. Does anyone else here have that connection?

I do believe is the cause of it because getting the right balance of meds has

helped it die down significantly, but that has been a long, difficult and

ongoing journey. I hope to find good advice here and support.

Thank you,

Mia

[Guest guest]

I also have Hashimoto’s Thyroiditits. I keep it pretty much under control with

a combination of Levothyroxine (Synthroid) and Liothyronine (Cytomel) and

staying gluten free. There are several great websites that point out the

connection between Thyroid disease and Fibromyalgia.

Here’s one: http://www.drlowe.com/

Here’s another: http://drrodgermurphree.com/

Watch some of Dr. Murphree’s vidios on Fibromyalgia and you’ll learn a lot

about it. He also has a webinar about once a month, plus has in the past given

out free phone consultations.

Judy H

To Health Through Knowledge

Started taking Low Dose Naltrexone on January 20, 2009 for

Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOS

http://health.groups.yahoo.com/group/LDNforFibro/

From: miahurley2009

Sent: Wednesday, November 09, 2011 4:50 PM

To: fibromyalgiacured

Subject: New Member

Hi Everyone,

My name is Mia and I have Fibromyalgia. I also have Hashimoto's and have

discovered how much that affects it. Does anyone else here have that connection?

I do believe is the cause of it because getting the right balance of meds has

helped it die down significantly, but that has been a long, difficult and

ongoing journey. I hope to find good advice here and support.

Thank you,

Mia