Re: RoseMarie: Celiac

[Guest guest]

HI JOANNE:

YES, I HAVE BEEN LIVING GRAIN FREE. I HAVE BEEN PRETTY MUCH OFF WHEAT FOR

YEARS AND YEARS NOW. BUT SOMETIMES I WOULD EAT A PIECE OF BREAD IF WE ATE

OUT AND IT LOOKED ESPECIALLY GOOD. SO ITS NOT A HUGE CHANGE FOR ME TO NOT

EAT GRAINS BUT I AM ESPECIALLY AWARE OF IT NOW AND DON¡¯T CHEAT EVEN A LITTLE

BIT. ITS BEEN A MONTH NOW AND I HAVEN¡¯T NOTICED MUCH DIFFERENCE REALLY. I

STILL BLOAT ETC. LOL I JUST KEEP PLUGGING AWAY AND SEE HOW IT GOES. I

STILL GET THE BIG D WITH CRAMPING, I AM STILL GAINING WEIGHT TOO. SO I¡¯M

GOING TO SEE A METABOLIC SPECIALIST FOR HORMONAL PROBLEMS WITH THIS WEIGHT

GAIN BECAUSE I AM EATING LOW CARB WITH NO GRAINS AND STILL GAINING? I DON¡¯T

EVEN EAT 1200 CALORIES A DAY USUALLY. SO I¡¯LL LET YU KNOW WHAT HAPPENS

THERE TOO.

ANYHOW, I HOPE YOU HAVE GOOD RESULTS WITH YOUR APPOINTMENT. WHAT IS ILEUM

PROBLEM? JUST PAIN IN THAT AREA? I HAVE PAIN THERE TOO AND I HAVE HAD

SINCE I WAS 8 YEARS OLD. IF I EAT CHEESE OR WHEAT OR DAIRY IT GETS WORSE I

NOTICE. LET ME KNOW WHAT THEY SAY ABOUT THAT. CURIOUS.

THANKS FOR WRITING.

ROSEMARIE

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> Hi RoseMarie

> ?

> How are you doing without the grains?

> ?

> It made me depressed whe n I first did it, real spasms, nausea, the lot

> ?

> As you know it ended up that I had to give up potatos and rice too. No starch

> at all for me. This may not be the case for you, your fibro, may actually be

> Celiac

> ?

> Celiac creates symptoms like fibro when it is not treated. If your fibro is

> celiac, you may be able to eat some grains and some other starches, my priest

> can

> ?

> Coconut flour, appears to be pretty popular amongst the celiacs I know

> ?

> I only know a bit about celiac, but some folk that I know that have it tell me

> that once the grains were gone, other symptoms cleared up too, things they

> thought were separate illnesses. I do hope this is the case for you

> ?

> If not, and you do have to go all the way, and give up all carbs, dont

> dispair, once them grains have gone your celiac will stop reracting and your

> fibro will not be half as bad anyway. At least this is what I

> think............ When I have something else troubling my system, my fibro is

> always worse, but once I deal with that fibro improves all by itself

> ?

> I am at the hospital soon about my ilium............... I actually laughed

> then because I do not care no more. My Rhumatogogist has written to my GP and

> said I should stay on the low starch diet and my dietician has too. I could do

> with a Gastoenterologist telling them too, but whether they will or not is a

> different story.

> ?

> This time they may examine my ilium and actually tell me what is going on

> there, then again they may not LOL. boy it aint half a cushy number being a

> doctor, I missed my way LOL

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> Anyway, Celiac, I know aint no fun, but now you know what it is and now you

> are removing them grains, you are really going to see some more improvement,

> and this can only be good news

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> Hope to see you later

> ?

> :Love Joanne

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>> >

>> >

>> >

>> >

>> > I love my daughter with all my heart and soul. has been

>> > diagnosed with many illnesses throughout her 39 years of life that we have

>> > tried to understand and deal with. Seeing your loved one experience

>> constant

>> > pain is a fate only second to being the one in pain. My dear child has an

>> > intimate relationship with the medical establishment, which is completely

>> > baffled by the ailment called fibromyalgia.

>> >

>> > 's experience with fibromyalgia started when she was given Cipro for

a

>> > bladder infection. Her autoimmune issues before that time were being

>> managed

>> > well. After the doctor started her on Cipro she started to spiral downward

>> > almost to death. Either she was allergic to the Cipro or was experiencing

>> > what the clinical trials showed were possible side effects to this drug. >>

She

>> > was hospitalized because the ER didn't know what was causing her extremely

>> low

>> > blood pressure and pervasive pain. She noticed that after each doseage of

>> > Cipro her blood felt like it was on fire and the doctor wanted her to

>> continue

>> > taking it. Finally she refused and she regained her strength. Since that

>> > time she has experience constant pervasive pain that doesn't go away even

>> with

>> > very high doses of narcotics. She believes the Cipro caused it. The

>> clinical

>> > trials showed the drug caused blown tendons. Please do not take this drug

>> or

>> > allow your loved ones to take it. Since it is effective on many bacterial

>> > infections it is prescribed very much.

>> >

>> > Since fibromyalgia is believed to be caused by the central nervous system

>> > overfiring shouldn't it be managed by medicine effecting those receptors?

>> > Yet, the FDA hasn't approved Neuontin for fibromyalgia! tried some

>> > Neurontin obtained from a friend that is prescibed it for foot pain caused

>> in

>> > an automobile accident. It worked. 's rheumotologist won't listen to

>> > her input regarding medicines because he is the expert...but he doesn't

>> > experience the pain.

>> >

>> > I'm tired doctors who can name diseases but can't cure them.

>> >

>> > Thanks for letting me vent.

>> >

>> > , Mom of a fibromyalgia sufferer.

>> >

>> >

>> >

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