Re: New Member Introduction from OKlahoma

[Guest guest]

Hi Denene,

I also live in Oklahoma. (Go SOONERS)  I live right next to the Arkansas state

line.  West of Siloam Springs. 

My pain is caused by Primary Progressive Multiple Sclerosis.  I have complete

demyelination from the second to the sixth vertebra.  I'm sure everyone knows

what that means, but just in case, it means that the myelin, which is the

insulation around the nerves, has deteriorated and now my nerves are bare. 

Sometimes just moving the wrong way will make me fall down in horrible pain.  I

know exactly what you mean by falling down all the time. 

I'm now in a wheelchair, but before that I fell at least once a day and usually

more.  Some doctors think that the pain associated with MS is more like RSD

pain.  All I know is I'm in constant pain and I have to take several pills to

help control it. 

I don't particularly like taking so much medication, but I do because doing so

gives me quality of life.  Most of the time I can enjoy my family and especially

my grandchildren with the medication.  So I'll keep on taking them for that

reason.

I would love to talk with you more.  Do you live in Oklahoma City?  That's about

4 hours from me.  I used to drive it quite a bit when I could still drive.  My

daughter went to college in Edmond so I drove there quite a bit.

Have a Merry Christmas and much less pain.

Carol  (OK

>  Denene wrote:

 

> Hi, My name is Denene and I am 44 years old and from OKlahoma. I have chronic

pain in my back and neck, and down through the legs.

[Guest guest]

Welcome Denene from Cyrilla in Tulsa

I have Fibro and other minor isses enough to complicate

Merry Christmas and enjoy your family. I rescue dogs,two shepherds, one

cattle dog, one sheltie and one kitty, these are my keepers

Cyrilla in OK

--- servicedogmom wrote:

>

>

> Hi, My name is Denene and I am 44 years old and from OKlahoma. I have

>

[Guest guest]

Hi,

I am 2 1/2 hours from Amarillo to the East and 2 1/2 hours from Wichita Falls

Texas I am close to outside of Weatherford, Oklahoma actually.

I already fell here. I am in Ada, Oklahoma right now at my mother in

laws. I fall a lot and would be better off using a wheelchair or a

electric scooter would even be better for me but as of yet to get a

doctor to prescribe it for me is a joke, so I keep falling until I do get one.

When I get home I will email more. We leave tomorrow sometime for home.

Denene

Carol in OK wrote:

I also live in Oklahoma. (Go SOONERS)  I live right next to the Arkansas > state

line.  West of Siloam Springs.

[Guest guest]

Hi Denene,

I'm so sorry you keep falling.  I know it hurts and I'm so afraid your going to

really hurt yourself.  Your doctor should be afraid of that also.  My primary

care physician wrote my prescription.  I have a wheelchair and an electric

chair.  I hate having to be in them but the alternative is falling down and I

hate that worse. lol   Talk to your doctor about it.  You might even try using a

walker.  I used one for a couple of years until my mobility got to the point

where it wasn't helping me much. 

I am worried about you falling so much.  Please be careful, go slow, and hold on

to things as much as possible.

Carol  (OK)

[Guest guest]

My pain doctor cares about the pain but NOT the falling. I am looking for

Another doctor. I am NOT happy with this one I have in Oklahoma City right

now.

I have a stimulator that helps with the pain but with the pain now

being all my back and neck and still falling. He is only wanting $$ and

right now with hubby's pay we can't afford to pay anything.

I am not eating

like I should with hubby on the job. He is driving truck long haul and gets

barely enough to eat and live on the truck on the job he can't send $ home

and I can't work and make limited $ I barely pay bills and then lucky to get

any if very little food to eat after all that.

I owe him and the hospital so much they don't want to see me

again till they get paid in full! My medicare didn't all of it and left me

with a nice hunk of amount to pay yet!!

Denene

Carol wrote:

I'm so sorry you keep falling. I know it hurts and I'm so afraid your going

to really hurt yourself. Your doctor should be afraid of that also.

[Guest guest]

Denene wrote:

Hi,

I am 2 1/2 hours from Amarillo to the East and 2 1/2 hours from

Wichita Falls Texas I am close to outside of Weatherford, Oklahoma

actually.

Denene

Denene,

I live in Amarillo & would be willing to get you information for my

pain specialist here. Causes of pain & treatment for it is all he

does. If you're interested, please feel free to email me.

Lori