Re: / Joanne

[Guest guest]

Oh Joanne your childhood sounds a lot like mine. My mother didn't really like

me either. I don't know why.

I think because she was rather stupid and was unfaithful to my dad that I didn't

believe what she said and started to dislike her for what she was up to. She

said to me one day not long before she died " Well , what do you think now? "

I didn't know what to say.. What did she want to know that for. But my dad

loved her anyway. Dad was a lovely man. When she died Dad asked me " What star

is Mum? " I said " Dad she isn't a star she's just in heaven and one day IF YOU

ARE A CHRISTIAN TOO, you'll see her there then. So I remember him when he

became a Christian. My second sister too is also a Christian but not my

youngest sister.

Also I don't go to Doctors. I learned here that about 80% of them like to

keep their patients so they can get more money. I haven't been to a Doctor for

quite a few years now. The last one I went to kept bandaging my right leg as

there was a big open sore on it and it was getting worse. BUT I noticed each

time that he NEVER cleaned the sore. And the sore just got bigger and bigger.

So I started cleaning it myself and the next time I went back to him he was

" Amazed " . He said I needn't go back to get it dressed again. So I don't trust

them at all.

If I have to go to a Doctor these days I'd be careful. The only medication I

take is just aspirins when I have pain. I used to have a lot of prescription

drugs like tramadol and codeine forte. Don't take any of them any more!! My

daughter needs them though. I can do without them except for the aspirins which

I don't even take EVERY day now anyway. Just when I need them.

Love,

Re:

Does any of this make sense to you

My fibro set in, with IBS symptoms when I was bout 24 years old. After this I

had bad spates and not so bad spates, but from what I could see this illness was

progressing. More and more symptoms over time

I now look back on my life, especially before this happened and I see that as

a child I had a lot of anxiety and as a young adult a very poor diet, low fat,

high carb that included a lot of processed foods etc.

Although I always give this bout of IBS in my twenties as the time all this

started. I truth I had signs of this illness much earlier

My parents have told me that when I was a baby I had terrible colic, I also

had emotional problems from being very young. I was very intelligent and had a

manner way beyond my years, I was highly tuned into other peoples troubles,

especially my parents, and I would develop leg pain and tummy ache when I

worried about them

I think I may have had ADHD, I had a highly creative mind, i could did

amazingly with mathematic, science and so on and many teachers liked me because

of this. But and this is the big but, I was always bored at school, always

wanting to do work way past the level I was studying at. I would get very

restless and need to move about, just to feel OK and I was always taliking

interupting the class and so on. A bit of a smarty pants, sometimes, and this

made some adults dislike me

When I listen to my parents account of my upbringing I get the impression they

did not like me. My mother, for certain did not. They refer to my other siblings

as normal and me not which seems rather strange now since I am the one the

family rely on and the others who are not that much younger than me, behave very

childishly. But my parents accept this. There is something not quit right with

my reationship with them, even now I feel I have to be very careful when I am

around any of my extended family

Anyway, I think that when I was a young adult, the hyper awareness I

experienced a s a child followed me, and I think I was very sensitive. I was

always kind and loving and when I saw a person suffering I empathised with their

pain so much, i physically felt their pain, and this would leed me to 'need' to

help them. Even now I cannot watch television because of this empathy thing, and

I also have difficulties with smells, noise, touch, which to me is all part of

the same system

I have trained myself to be less involved with others troubles, but I am still

a little over caring. I have to talk to myself constantly about this, reminding

myself the value of my own soul and how it can easily be hurt by my involvement

with troubled people, particularly addicts

I mysef ended up addicted to carbohydrates, cigarettes, diet coke etc, and I

never did good with any medication that the doctor gave me. Just one medication

helped me, it was called reductil it helped with dopamine, seratonin and

noradrenaline. It is banned here in england now. I have no desire for it since I

am doing well, but knowing that that antidepressent improved dopamine function,

has made me more certain over time that a lack of dopamine is to some extent

part of my illness

As you know I am now 24/7 in ketosis. This has helped me in every way possible

and continues to do so. The research on ketosis is very scanty, but there is

evidence that it works for a fair few neurological problems, even Parkisons,

which is what my dad has

My symptoms are much the same as his, even to the time of day that they occur,

and the clusters that occur, and I also have signs of the Reactive Arthritis on

my mums side

But when I look at me and look at them, there is still something different

going on here

I have always been deeply religious, not pious, or devout, not that kind of

religious, more happy religious, more commited, not in a judgemental way, in a

believing, kind of rejoicing way. It is hard to describe. People have their own

ways of seeing religious folk and I am not anything like what most folk think. I

just have an awareness of God being with me all the time and I speak in such

terms

My family, my dad with the Parkinsons and my aunts with the Reactive Arthritis

are good people and beleive in God but they are not like me, not as involved as

me, I think by now you will be seeing what I am saying. And what I am saying is

it is this faith that brings meaning to me in regards to my illness, and this

meaning releases me from the troublesomeness of it. My family struggle with this

concept, and as a result they suffer more psychologically than I do, even though

in fact when I listen to what they say I can see my physical suffering in the

past was more

My family, do not have the problems I have with doctors. They easily get

diagnosis and get medication. I always have to fight for treatment, sometimes

the fight out ways the remedy, and I also never get a set diagnosis, where as

these other I mention have, and all the folk around me have, even my husband,

mum, brothers and sisters, everybody. I am the only one with a vague diagnosis

and i am the only once that is ever told my illness is psycholgical

Anyway, I know it is not, and more recenlty I have been able to better express

this, but I suffer shame issues around this illness, and debilitating fear that

i will be abused when I am old, just as I have been when I was young. Much of my

life is preoccupied with protecting myself when I get old and I do sometimes

think this is not helpful, but i find it terribly hard not to feel compelled to

sort as much as possible out now, incase something 'bad' happens to me. I

chastise myself for this, saying this demonstates a lack of faith, even this

thinking gets me on the merry-go-round where I am arguing with myself about my

weakness, and my stupidity of the past. It is hard, but not as hard as it was in

the past because nowadays, at least, I do see myself doing this

Anyway, this email is getting long and warbly. I do hope you are well, you

always sound well, and your shares inspire me

I cannot get online much lately but hopefully I will get back later

Love Joanne

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> Hello

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> I am new to this group and do not yet fully understand what goes on here but

I

> have been reading through your previous posts and it seems some of you are

> saying Fibromyalgia is caused by antibiotics. I am asking if this is true

> because I have been on many antibiotics, not for Fibromyalgia, but for

Ulcers

> and H-pylori. The Ulcers and the H-pylori have not cleared up and more

> recently I have been diagnosed with Fibromyalgia. What I am trying to work

out

> is, is it the H-pylori causing the Fibromyalgia, is it the antibiotics

causing

> it, or are none of these things related?

>

> Thank you so much for your time

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