Guest guest Posted January 13, 2001 Report Share Posted January 13, 2001 Good Morning Everyone.... Ok... I guess I must have missed a post because I never saw s dress.... what did I miss??????????? I stayed up late last night to try an find more info on the LGMD. I agree with Cari about going to the MDA. Get into a clinic that is not only top notch but doing research as well. This will afford you a better chance at finding a cure or maybe slowing the disease down to a crawl. I also read that the disease progresses very slowly over many, many years (20 to 30) before you'll need the use of a wheel chair. This is great news.... One ariticle from the MDA said there research is starting on this disease first (that was in 99) ... if it works then it will open the door for the rest of the muscles diseases. You just keep your chin up and keep the faith.... Gentle hug for ya Vicki By the way... I can smell pancakes cooking.... Mike, is that you on the BBQ? Quote Link to comment Share on other sites More sharing options...
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