not doing well

[Guest guest]

I apologize for not keeping you updated

on my prayer requests and my health info.

The MRI did not go well. It was not a

good experience. I woke up in the middle

and just about " freaked out " from the

panic disorder.. messed up part of the

MRI films, so the doctor will not have the

complete picture on my shoulder.. however,

due to the POOR CARE I received at the

day surgery unit, the anesthesiologist

did the best she could.. and then INSISTED

that I call the hospital and explain what

happened in the day surgery unit..

(basically put my husband and me in a

small, hot room (I have SEVERE HEAT SENSITIVITY)

and LEFT US THERE for 2 hours (not even telling

us that the MRI has been postponed for 45 min.)

NOR helping me to take the IV down and use the

bathroom.. telling my husband after we put the

call light on 2 times and they ignored it.. and

he went to the nurse's station.. that HE COULD

JUST TAKE THE IV down and take me to the bathroom..

and I just got more and more " uptight " , thinking

(circular thinking that goes with the panic disorder)

that they " forgot me " .. (we were at the end of the

hall, and like I said NO NURSE or ANYONE came in the

room for 2 HOURS)..

By the time the anesthesiologist got to me, she had

to give me MASSIVE amounts of Versed to calm me down

which didn't work.. and then the propofol depressed

my breathing and she had to be cautious about how

much to give me and I woke up in the middle and

moved around..

Anyway, the MRI report states: There is a partial

articular surface tear along the most anterior aspect

of the supraspinatus tendon just prior to the insertion

into the tuberosity. In addition, there is thickening of

the cortical humeral ligament which is associated with

rotator interval lesion.

The labrum appears grossly intact, however the axial images

are severely degraded secondary to patient movement (I think

this is due to me " waking up " and moving around.. yelling

" get me out of here " )

No abnormal signal was seen within the visualized bone marrow.

IMPRESSION: Small partial tear along the articular surface of

the supraspinatus tendon anteriorly.

I am in severe pain.. really need to take pain meds and sleep,

but had to call the hospital and wait for phone calls today...

Our HMO and the anesthesiologist INSISTED that I report the

" mismanaged care of the day surgical unit " to the administration

of the hospital.. because even though I am insulin dependent

no one even checked my glucose for the 5 hours that I was there

and that is definitely DANGEROUS.. both for the anesthesiologist

and for me, the patient.. and for future patients.

So.. I called and the " patient advocate " brought me 2 copies

of my entire chart, as well as copies of the MRI's and the

MRI report today. The MRI report had never even been faxed

to my surgeon like they are required to do within 72 hours..

so the surgeon does not even have the results yet.. MAJOR

SCREW-UP. I have an appointment for next Wed. afternoon

with the surgeon, and will hand carry the MRI copies and

report to him. The patient advocate is starting a " full

scale " investigation, and will get back to me either Tues

or Thurs.. (right now, I couldn't care less.. I didn't even

want to call her to begin with.. but if I hadn't the jerks

wouldn't even have informed my doctor of the results!!!!!)

The patient advocate is an RN.. she advised TOTAL REST of

the right arm and hand until I see the surgeon..

Also, the " trauma " of the experience has caused my fibro to

flare worse than I can ever remember.. and the adrenal

insufficiency is making my body just about stopping function..

I finally raised the prednisone last night and believe it or

not, LOST 4 # of fluid overnight...

I can't type anymore.. I have been reading the e-mail..

I appreciate your prayers.. and have been praying for you all.

I am going to take the pain meds that the doctor prescribed

and try to sleep more to let my body recover a bit during

the weekend while my husband is home to make sure that I

wake up for meds and glucose monitoring, etc..

BTW, Ed's job has NOT improved.. the stress HE is under is

unbelievable as well..

Love you all

God bless you,

elaine