Guest guest Posted January 11, 2000 Report Share Posted January 11, 2000 Colleen & Dana- I didn't get your whole message, Dana, so forgive me if I missed something. Just a note about hearing aids & conductive losses. My daughter has a conductive hearing loss and wore a bone conduction aid for 4 years. For the past 2 years she has worn a behind-the-ear air conduction aid. It is nothing short of miraculous how much better the air conduction aid is for her. The bone conduction aid was uncomfortable and she hated wearing it. She never had any adjustment problems with the air conduction aid. The other wonderful thing is that the air conduction aid has variable amplification, as opposed to the linear amplification. Anyway, our experience is that the air conduction aid is light years better for her. Our first audiologist always said it wasn't an option because of her tiny, " flaccid " ears. But then we went to a new audiologist and he recommended the air conduction aid. The way he explained it to us was that the air conduction aid essentially works like a bone conduction aid--the middle ear structure is bypassed and the inner ear is stimulated directly (due to the high power of the aid). Hope this helps. Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2000 Report Share Posted January 11, 2000 Hi Colleen, I hope you don't mind me barging in on your conversation about keeping your daughters aids in, but I just wanted to help. My son was diagnosed & aided at 9mo. He is now almost 16mo. and still he won't keep his aids in all the time. I still cannot " Trust " him to wear the aids if I'm not in the same room with him. As soon as we put him in his car seat, immediatley he pulls his aids out. No matter what I give to distract him, he still won't keep his aids in. It drives me crazy!! He also has learned that the aids are my " weak spot. " If anyone diciplines him by telling him " No " , immediatley he looks at you with these big eyes & threatens to pull out his aids!!! He'll loop his fingers behind the rubber tubing and just sit there looking at you as if to say " Just push me, I'll pull them out! " I really don't know how to break him of that. Except to look at him with a really sturn face, tell him " NO " and then give him something else to do to take his mind off of it. Has your daughter been wearing ear molds very long? I think the earmolds really bug some kids. Also, how long after you actually put the aids in, will you daughter tolerate them? I know that if I ever take just one aid out for whatever reason, will immediately pull the other aid out as well. I think he's trying to help us when he does that. Well, I know this isn't really helpful, but I thought you'd like to know that there are other parents out there that can really sympathize! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2000 Report Share Posted January 11, 2000 , you wrote: If anyone diciplines him >by telling him " No " , immediatley he looks at you with these big eyes & >threatens to pull out his aids!!! He'll loop his fingers behind the rubber >tubing and just sit there looking at you as if to say " Just push me, I'll >pull them out! " I really don't know how to break him of that. Except to look >at him with a really sturn face, tell him " NO " and then give him something >else to do to take his mind off of it. My son Ben does the same thing! He's also 16 months, has been wearing his aids since 3 months and mostly now leaves them in, but if he's pissed and/or wants my attention he grabs them (while looking right at me) and yanks them out. Their attached to critter clips, but he pulls with all his might, and usually manages to pull the aid right off the ear hook (an emergency in the car!) I know the usual method for changing bad behavior is to not have a reaction to it, but sometimes I can't help myself if I see he's about to throw the aid! Best of luck, Stefanie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2000 Report Share Posted January 13, 2000 , Hello! I don't mind at all. le was identified at birth and due to 4 conflicting brainstems we were unable to get her aids until she was about 7 months old. When we finally were able we went through 7 sets of ear molds before we had a set that fit well enough to wear. She was premature and tiny and they claim she was growing and that is why. We moved on to a different audie and they made a different type mold and we were finally able to get aids on her at 8 or 9 months old. She is also 16 months old now and not a preemie anymore she weighs 24.3 lbs. I diffidently can not Trust le for a second alone with the aids in. It wasn't always like this. She was great in the beginning now she wants no parts of them. Danni has a lot of down time due to reoccurring infections so as soon as we get up to a couple hours a day boom she gets a severe infection. But she always pulled at them. She checks all day long to see if they are in or not. And she is quick. I am now to the point that when she is checking to see if they are in and they aren't I say no and pull her hands down. The car is out of the question. Unless someone is in the back seat with her. I just requested that the next set of molds be made with the hypoallergenic material due to her ears are red and look dry so I am wondering if maybe they are itching her and it's uncomfortable. She actually runs from me or crawls away fast. Today when her Physical Therapists was here she crawled under the chair and her therapists said what is she doing. I said she pulled her aid out and she knows I am going to put it right back in so she is hiding. It's very frustrating but I am giving it all I have. She tolerates them for about 2 seconds before she starts pulling them out. She try's to pull the one out before I get the other one in. I usually have to hold her hands and play ring around the rosy, or play with musical toys I can't let her get from reaching distance or boom they are out like. Today I said to her. Lets put your hearing aids in an watch Teletubbies and she screamed NONONONO!... you were very helpful, le has other issues as well but right now I am giving it my all with these hearing aids. But I take them out when I sense she is getting frustrated. But I am a little easier on myself when I know other people are dealing with the same thing and it's not something that I am not doing. For some reason I always feel like it's me and it does help to know it's not just me. Thanks for sharing, your story with me. There are many times I would like to throw them out the window or flush them too. But I keep telling myself the same thing. Someday she will realize that she doesn't have to hold toys up to her ear to hear them, or put her head on the speaker of the TV to hear it. She will realize that she can hear just about everything when they are in and she will keep them in. Hopefully soon. LOL Colleen AFranich@... wrote: > From: AFranich@... > > Hi Colleen, > I hope you don't mind me barging in on your conversation about keeping > your daughters aids in, but I just wanted to help. > My son was diagnosed & aided at 9mo. He is now almost 16mo. and still > he won't keep his aids in all the time. I still cannot " Trust " him to wear > the aids if I'm not in the same room with him. As soon as we put him in his > car seat, immediatley he pulls his aids out. No matter what I give to > distract him, he still won't keep his aids in. It drives me crazy!! He > also has learned that the aids are my " weak spot. " If anyone diciplines him > by telling him " No " , immediatley he looks at you with these big eyes & > threatens to pull out his aids!!! He'll loop his fingers behind the rubber > tubing and just sit there looking at you as if to say " Just push me, I'll > pull them out! " I really don't know how to break him of that. Except to look > at him with a really sturn face, tell him " NO " and then give him something > else to do to take his mind off of it. > Has your daughter been wearing ear molds very long? I think the earmolds > really bug some kids. Also, how long after you actually put the aids in, will > you daughter tolerate them? I know that if I ever take just one aid out for > whatever reason, will immediately pull the other aid out as well. I > think he's trying to help us when he does that. > Well, I know this isn't really helpful, but I thought you'd like to know > that there are other parents out there that can really sympathize! > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
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