Re: Use of FM some problems

[Guest guest]

> From: LCorc16@...

>

> HI!

> I saw many posts on FM and I had question if anyone has experienced the

same

> thing and or any suggestions. My daughter has become so dependent on the

FM

> she is now staring to breakdown functionally in noisy situations when

wearing

> her hearing aides. Her attention span is awful but as soon as they put the

FM

> on she does wonderful. I feel this isn't true to life to eliminate all

noise

> but any suggestions would be of help. She has made such gains with it but

now

> is falling apart the other way. Thanks for any suggestions. Lori HOH

mother

> of Audrey HOH

Could it be that her hearing aids aren't giving her enough gain anymore???

That would be the first thing I'd check.

RoseAnn

[Guest guest]

In a message dated 2/2/00 9:24:03 PM Eastern Standard Time,

info@... writes:

<< am a HOH mother of a HOH 4 year old girl and a 2 year old hearing (so

far) boy. How old is your daughter? What is her hearing loss? >>

Hi a!

I have a progressive loss. I started to lose my hearing about 10 years ago. I

am now at a moderate loss across the board. it runs in both sides of my

family. Some of my relatives lost their hearing at a young age and some like

me in their mid to late 20's. my daughter was having a hard time acquiring

speech and language. She was developing in gaps. Her hearing tests were all

over the board. last year she started to develop tinnitus she called it

buzzing the BEES are in her ears. That's when we started to see many shifts.

Sometimes it can take a week for it to come back up and other times months.

Her shifts ranged from mild to severe. now the last 6 months they have now

noticed her discrimination si shifting. It can go from 90% to as low as 52%.

She has had episodes where she can't get off the couch. We recently had

bloodwork done for type II collagen antibodies and she was positive. they

feel she is destroying her inner cells. They diagnosed her with Meniere's.

She will be 4 next month. We are heading to see a pediatric ENT to help us.

sorry it took so long. How about yourself and your daughter? We use total

communication. I have three other daughters who always have their hearing

checked. thanks for the input on the FM. take care Lori

[Guest guest]

In a message dated 2/2/00 10:48:55 PM Eastern Standard Time, MDUPLAN@...

writes:

<< Could it be that her hearing aids aren't giving her enough gain anymore???

That would be the first thing I'd check.

>>

It's funny you would say that because she had a shift in hearing this past

week and now seems a bit better. Maybe this was it but I can tell when she si

at home and everyone is talking she just starts screaming and says I can't

hear you. oh well thanks for the help. Lori

[Guest guest]

Hi Lori:

I am so sorry for the late response! I just found a bunch of emails that

I never read. I was diagnosed with my hearing loss at 3 and it has been

progressive ever since. I am now profound in both ears and would

probably benefit from a cochlear implant, but I still get a lot of use

out of my aids and my kids are young, so I'm waiting a while on that.

What pediatric ENT did you or are you going to see? I don't think there

are many, so I'd love to get their name and what you thought of them.

Where are you located?

Take care, a

LCorc16@... wrote:

> From: LCorc16@...

>

> In a message dated 2/2/00 9:24:03 PM Eastern Standard Time,

> info@... writes:

>

> << am a HOH mother of a HOH 4 year old girl and a 2 year old hearing

> (so

> far) boy. How old is your daughter? What is her hearing loss? >>

> Hi a!

> I have a progressive loss. I started to lose my hearing about 10 years

> ago. I

> am now at a moderate loss across the board. it runs in both sides of

> my

> family. Some of my relatives lost their hearing at a young age and

> some like

> me in their mid to late 20's. my daughter was having a hard time

> acquiring

> speech and language. She was developing in gaps. Her hearing tests

> were all

> over the board. last year she started to develop tinnitus she called

> it

> buzzing the BEES are in her ears. That's when we started to see many

> shifts.

> Sometimes it can take a week for it to come back up and other times

> months.

> Her shifts ranged from mild to severe. now the last 6 months they have

> now

> noticed her discrimination si shifting. It can go from 90% to as low

> as 52%.

> She has had episodes where she can't get off the couch. We recently

> had

> bloodwork done for type II collagen antibodies and she was positive.

> they

> feel she is destroying her inner cells. They diagnosed her with

> Meniere's.

> She will be 4 next month. We are heading to see a pediatric ENT to

> help us.

> sorry it took so long. How about yourself and your daughter? We use

> total

> communication. I have three other daughters who always have their

> hearing

> checked. thanks for the input on the FM. take care Lori

> -----------------------------------------------------------------------

> [