Re: Update on my NT daughter's strabismus

[Guest guest]

Hi ,

I have a nextdoor neighbor who is 22, she grew up Add and had the

strabismus all her life as I look at all her school pictures up on

her wall. She did do vision therapy it did straighten it out quite a

bit, but it is still there from what I can see, just not to the

extreme that it was. As she has gotten to know our family and has

listened to me talking to plenty of parents and read some to the

interesting things about mercury poisoning she remembers feeling and

being like many of our children are as she grew up. She is also

thinking of chelation for herself, I believe there is a definite

connection, I know we will be waiting until we are done with

chelation until we address s, although it is not as bad, by far

as it was prior, or at the beginning of chelation, we do not see it

as often, Leah

> Listmates,

>

> Many of you are aware that after we began chelating our son, Kenny,

for mercury poisoning, I became aware that strabismus (double

vision), which our older daughter had surgery for in Dec. 1999, was

another symptom of mercury poisoning.

>

> To make a long story short, we tested her and discovered that she,

too, was toxic. She has been chelating since last October.

>

> A few weeks ago I had to take her in for a physical because it was

required for entering middle school. To my surprise, she failed

miserably on her eye exam.

>

> We took her to the optometrist today (a personal friend whom I put

the utmost trust in) and learned that the strabismus is returning.

>

> Once again, chalk one up for Andy Cutler, who has repeatedly said

that surgery will not correct the problem.

>

> This time we will not bother with a referral to the ophthalmologist

for surgery. We are going to try some eye exercises and continue

with the chelation. I'll keep everybody posted on the outcome.

>

> (Cary, NC)

> persistentC@n...

> http://www.rtphome.org/mariposa/

>

>

>

[Guest guest]

In a message dated 8/11/01 6:11:07 AM Eastern Daylight Time,

weiherl@... writes:

> Listmates,

>

> Many of you are aware that after we began chelating our son, Kenny, for

> mercury poisoning, I became aware that strabismus (double vision), which

> our older daughter had surgery for in Dec. 1999, was another symptom of

> mercury poisoning.

>

> To make a long story short, we tested her and discovered that she, too,

> was toxic. She has been chelating since last October.

>

> A few weeks ago I had to take her in for a physical because it was

> required for entering middle school. To my surprise, she failed miserably

> on her eye exam.

>

> We took her to the optometrist today (a personal friend whom I put the

> utmost trust in) and learned that the strabismus is returning.

>

> Once again, chalk one up for Andy Cutler, who has repeatedly said that

> surgery will not correct the problem.

>

> This time we will not bother with a referral to the ophthalmologist for

> surgery. We are going to try some eye exercises and continue with the

> chelation. I'll keep everybody posted on the outcome.

>

> (Cary, NC)

> persistentC@...

> http://www.rtphome.org/mariposa/

>

My son had surgery for this at 10 months of age and his eyes are till this

day perfectly aligned and his vision is perfect. I have been totally

satisfied with the surgery that he had.

I have a cousin too distant from my son to be significant, that did not have

surgery and did therapy and wore glasses to help this condition and his eyes

are not perfectly aligned till this day and he is now 31.

I don't believe surgery is a bad thing, it must depend on the child and how

long it will work, if its forever or not.

If your daughter failed her vision test was it because of strabismus and that

one of her eyes was seeing another picture or was it because her vision is

poor in one eye, amblyopia. My little guy had that along with his strabismus

and patching him took care of that quickly, but NOT the strabismus. We

patched and exercised him and nothing fixed that except surgery.

[Guest guest]

Were your kids vaccinated in US or in their home country? Some of the

vaccinations overseas have more thimerosol than ours .

kelly

>

> > To make a long story short, we tested her and discovered that she, too,

> > was toxic. She has been chelating since last October.>

> > We took her to the optometrist today (a personal friend whom I put the

> > utmost trust in) and learned that the strabismus is returning.

> > Once again, chalk one up for Andy Cutler, who has repeatedly said that

> > surgery will not correct the problem.

> >

> > (Cary, NC)

> > persistentC@...

> > http://www.rtphome.org/mariposa/

> >

>

[Guest guest]

,

I have spoken with some vision therapy folks in Raleigh,North Carolina at the

" Center for Visual Learning " at Beacon Plaza/New Bern Avenue. I spoke with

Eleanor Privett and she spoke with me for about 30 minutes about this therapy.

They have a one hour private screening (costs $65) and will tell you if they can

help you. It might be worth checking out since you are so close. LEt me know

if you do since I am considering this later down the road (although no known

visual problems yet in my son). Also, we live in fayetteville, and I wanted to

know do you have a DAN doctor here in NC? I did not think there was one here.

www.autisticvision.com

[ ] Update on my NT daughter's strabismus

Listmates,

Many of you are aware that after we began chelating our son, Kenny, for

mercury poisoning, I became aware that strabismus (double vision), which our

older daughter had surgery for in Dec. 1999, was another symptom of mercury

poisoning.

To make a long story short, we tested her and discovered that she, too, was

toxic. She has been chelating since last October.

A few weeks ago I had to take her in for a physical because it was required

for entering middle school. To my surprise, she failed miserably on her eye

exam.

We took her to the optometrist today (a personal friend whom I put the utmost

trust in) and learned that the strabismus is returning.

Once again, chalk one up for Andy Cutler, who has repeatedly said that surgery

will not correct the problem.

This time we will not bother with a referral to the ophthalmologist for

surgery. We are going to try some eye exercises and continue with the

chelation. I'll keep everybody posted on the outcome.

(Cary, NC)

persistentC@...

http://www.rtphome.org/mariposa/

[Guest guest]

,

OOPS - here is the phone number for the visual therapy center - 919-231-3289.

[ ] Update on my NT daughter's strabismus

Listmates,

Many of you are aware that after we began chelating our son, Kenny, for

mercury poisoning, I became aware that strabismus (double vision), which our

older daughter had surgery for in Dec. 1999, was another symptom of mercury

poisoning.

To make a long story short, we tested her and discovered that she, too, was

toxic. She has been chelating since last October.

A few weeks ago I had to take her in for a physical because it was required

for entering middle school. To my surprise, she failed miserably on her eye

exam.

We took her to the optometrist today (a personal friend whom I put the utmost

trust in) and learned that the strabismus is returning.

Once again, chalk one up for Andy Cutler, who has repeatedly said that surgery

will not correct the problem.

This time we will not bother with a referral to the ophthalmologist for

surgery. We are going to try some eye exercises and continue with the

chelation. I'll keep everybody posted on the outcome.

(Cary, NC)

persistentC@...

http://www.rtphome.org/mariposa/

[Guest guest]

,

Thanks for the tip. I will check them out.

As for a DAN! doctor, we work with Amy Holmes. Our pediatrician usually will go

along with what I ask him to do, but it's up to me to do the research and tell

him what tests to order (as well as interpret the results!).

(Cary, NC)

persistentC@...

http://www.rtphome.org/mariposa/

[ ] Update on my NT daughter's strabismus

Listmates,

Many of you are aware that after we began chelating our son, Kenny, for

mercury poisoning, I became aware that strabismus (double vision), which our

older daughter had surgery for in Dec. 1999, was another symptom of mercury

poisoning.

To make a long story short, we tested her and discovered that she, too, was

toxic. She has been chelating since last October.

A few weeks ago I had to take her in for a physical because it was required

for entering middle school. To my surprise, she failed miserably on her eye

exam.

We took her to the optometrist today (a personal friend whom I put the

utmost trust in) and learned that the strabismus is returning.

Once again, chalk one up for Andy Cutler, who has repeatedly said that

surgery will not correct the problem.

This time we will not bother with a referral to the ophthalmologist for

surgery. We are going to try some eye exercises and continue with the

chelation. I'll keep everybody posted on the outcome.

(Cary, NC)

persistentC@...

http://www.rtphome.org/mariposa/

[Guest guest]

If your daughter failed her vision test was it because of strabismus and that

one of her eyes was seeing another picture or was it because her vision is

poor in one eye, amblyopia. My little guy had that along with his strabismus

and patching him took care of that quickly, but NOT the strabismus. We

patched and exercised him and nothing fixed that except surgery.

****

The current diagnosis is " exotropia " .

(Cary, NC)

persistentC@...

http://www.rtphome.org/mariposa/

[Guest guest]

,

They both got their shots in Korea up to the time they got here. Kira arrived

when she was just under 5 mos old (but then the doctors here gave her an extra

HIB by mistake) and Kenny arrived when he was 6.5 months old. (Kenny was two

months premature so the vaccines on top of that probably didn't help.)

I wasn't aware there was more thimerisol in some of the shots abroad. I will

have to check into that. I did get the information on the brand (White Cross)

but perhaps I need to look into this further.

Thanks for the " heads up " .

(Cary, NC)

persistentC@...

http://www.rtphome.org/mariposa/

Re: [ ] Update on my NT daughter's strabismus

Were your kids vaccinated in US or in their home country? Some of the

vaccinations overseas have more thimerosol than ours .

kelly

>

> > To make a long story short, we tested her and discovered that she, too,

> > was toxic. She has been chelating since last October.>

> > We took her to the optometrist today (a personal friend whom I put the

> > utmost trust in) and learned that the strabismus is returning.

> > Once again, chalk one up for Andy Cutler, who has repeatedly said that

> > surgery will not correct the problem.

> >

> > (Cary, NC)

> > persistentC@...

> > http://www.rtphome.org/mariposa/

> >

>

[Guest guest]

Just want to say,being a (40 something) adult, the kids i knew and

grew up with that had surgery for this now, years later, have the same

problem and wear glasses to boot. It maybe surgery will appear to

alleviate the problem temporarily....

Best wishes,

Margaret.

> In a message dated 8/11/01 6:11:07 AM Eastern Daylight Time,

> weiherl@n... writes:

>

>

> > Listmates,

> >

> > Many of you are aware that after we began chelating our son,

Kenny, for

> > mercury poisoning, I became aware that strabismus (double vision),

which

> > our older daughter had surgery for in Dec. 1999, was another

symptom of

> > mercury poisoning.

> >

> > To make a long story short, we tested her and discovered that

she, too,

> > was toxic. She has been chelating since last October.

> >

> > A few weeks ago I had to take her in for a physical because it

was

> > required for entering middle school. To my surprise, she failed

miserably

> > on her eye exam.

> >

> > We took her to the optometrist today (a personal friend whom I

put the

> > utmost trust in) and learned that the strabismus is returning.

> >

> > Once again, chalk one up for Andy Cutler, who has repeatedly

said that

> > surgery will not correct the problem.

> >

> > This time we will not bother with a referral to the

ophthalmologist for

> > surgery. We are going to try some eye exercises and continue with

the

> > chelation. I'll keep everybody posted on the outcome.

> >

> > (Cary, NC)

> > persistentC@n...

> > http://www.rtphome.org/mariposa/

> >

>

> My son had surgery for this at 10 months of age and his eyes are

till this

> day perfectly aligned and his vision is perfect. I have been

totally

> satisfied with the surgery that he had.

>

> I have a cousin too distant from my son to be significant, that did

not have

> surgery and did therapy and wore glasses to help this condition and

his eyes

> are not perfectly aligned till this day and he is now 31.

>

> I don't believe surgery is a bad thing, it must depend on the child

and how

> long it will work, if its forever or not.

>

> If your daughter failed her vision test was it because of strabismus

and that

> one of her eyes was seeing another picture or was it because her

vision is

> poor in one eye, amblyopia. My little guy had that along with his

strabismus

> and patching him took care of that quickly, but NOT the strabismus.

We

> patched and exercised him and nothing fixed that except surgery.

>

>

>

>

>

[Guest guest]

,

I live in Goldsboro, NC-about an hour from Fayetteville-and we take our son to

Anne Hines, MD. She is in Winston-Salem and is the mother of a 7 or 8 year old

son with autism. I don't know if Anne is a DAN doctor or not but she attends

the DAN conferences and follows the protocol. She is fantastic and I recommend

her to all my client families with autistic children (I own an agency that

provides services for CAP recipients and we specialize in autistic children).

Her number is 336.896.0954. Call me at 1 800 760-0665 if you'd like more info

about Anne.

Janet

Weiher Mills wrote:

> ,

> I have spoken with some vision therapy folks in Raleigh,North Carolina at the

" Center for Visual Learning " at Beacon Plaza/New Bern Avenue. I spoke with

Eleanor Privett and she spoke with me for about 30 minutes about this therapy.

They have a one hour private screening (costs $65) and will tell you if they can

help you. It might be worth checking out since you are so close. LEt me know

if you do since I am considering this later down the road (although no known

visual problems yet in my son). Also, we live in fayetteville, and I wanted to

know do you have a DAN doctor here in NC? I did not think there was one here.

>

> www.autisticvision.com

>

> [ ] Update on my NT daughter's strabismus

>

> Listmates,

>

> Many of you are aware that after we began chelating our son, Kenny, for

mercury poisoning, I became aware that strabismus (double vision), which our

older daughter had surgery for in Dec. 1999, was another symptom of mercury

poisoning.

>

> To make a long story short, we tested her and discovered that she, too, was

toxic. She has been chelating since last October.

>

> A few weeks ago I had to take her in for a physical because it was required

for entering middle school. To my surprise, she failed miserably on her eye

exam.

>

> We took her to the optometrist today (a personal friend whom I put the

utmost trust in) and learned that the strabismus is returning.

>

> Once again, chalk one up for Andy Cutler, who has repeatedly said that

surgery will not correct the problem.

>

> This time we will not bother with a referral to the ophthalmologist for

surgery. We are going to try some eye exercises and continue with the

chelation. I'll keep everybody posted on the outcome.

>

> (Cary, NC)

> persistentC@...

> http://www.rtphome.org/mariposa/

>

>

[Guest guest]

Hi ,

I know it may sound strange, but I would not recommend that anyone

have eye surgery until after chelation, unless it is really

something SO urgent. No saying what changes will take place, IMO,

and better to complete chelation first, then address remaining issues.

My first three weeks on ALA made more difference in SOME aspects

of my vision than did 9 mo of vision training. I can't truely

compare, because I don't know what would have happened if I had

NOT done vision training but did do chelation. But I know that

the differences are remarkable.

Moria

>My son had surgery for this at 10 months of age and his eyes are till this

>day perfectly aligned and his vision is perfect. I have been totally

>satisfied with the surgery that he had.

>

>I have a cousin too distant from my son to be significant, that did not have

>surgery and did therapy and wore glasses to help this condition and his eyes

>are not perfectly aligned till this day and he is now 31.

>

>I don't believe surgery is a bad thing, it must depend on the child and how

>long it will work, if its forever or not.

>

>If your daughter failed her vision test was it because of strabismus and

that

>one of her eyes was seeing another picture or was it because her vision is

>poor in one eye, amblyopia. My little guy had that along with his

strabismus

>and patching him took care of that quickly, but NOT the strabismus. We

>patched and exercised him and nothing fixed that except surgery.

>

>