Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 PLEASE GET ON Tysabri as soon possible, I have many friends who have started it shortly after being diagnosed, seeing very positive results... I started taking it 10 years after the ABC drugs and after 12 months of using it seeing very little changes. Mark/Atlanta Spasticity in Legs Hi, I have not been diagnosed with MS yet. My brother is going through some tests to see if he has MS or not. My brother was telling me about some of the symptoms that he read about that he thought I have. About 3 years ago my eyesight got really bad really fast and I was having bad pains all around my eyes. I then started seeing flashes of light when I was resting if I heard a sudden sound. That still happens on and off for a few days at a time but I can't remember if it happens when I have other symptoms. I have since gotten glasses and the eye pain has never come back. About a year and half later I was sitting at my computer and went to get up and my knee was almost locked. The pain was as bad as anything I have ever experienced. This continued for about 2 days. There were moments if I layed perfectly still that it would calm down and I would be able to straighten out my leg but then it would suddenly lock up and I couldn't walk. I thought it was my knee maybe dislocating slightly. Then it just went away after 2 days. I could still feel it slightly for a couple of days but the locking up was gone. This has happened twice more over the last year and a half exactly the same and lasting 1 day one time and 2 days again the next time. I thought that there must be something really wrong so I went to my GP and he said that it was stress or maybe a Baker's Cyst. I don't think he realized the extreme pain I had or the fact that I could not walk. I will be going to the hospital the next time it happens even if I have to call an ambulance. I am now fearful that it will happen in public and I will not be able to walk. Does anyone else have anything like this in their legs with MS or does mine sound like something else? Thanks, ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 This is terrible advice. Tysabri was taken off the market for causing deaths and it has returned with the formulation unchanged. This is an alternative medicine site. Please keep that in mind when you post. I know that I have asked this of you in the past. No one here is qualified to give medical advice. You can only relate what you do, have done or are questioning. (moderator) Mark wrote: PLEASE GET ON Tysabri as soon possible, I have many friends who have started it shortly after being diagnosed, seeing very positive results... I started taking it 10 years after the ABC drugs and after 12 months of using it seeing very little changes. Mark/Atlanta --------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 , Is what I am describing the usual type of spasticty in MS or does mine sound more like an injury related pain. (your opinion only of course) Thanks, > > This is terrible advice. Tysabri was taken off the market for causing deaths and it has returned with the formulation unchanged. This is an alternative medicine site. Please keep that in mind when you post. I know that I have asked this of you in the past. No one here is qualified to give medical advice. You can only relate what you do, have done or are questioning. (moderator) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 PLEASE GET ON Tysabri as soon possible, I have many friends who have started it shortly after being diagnosed, seeing very positive results... I started taking it 10 years after the ABC drugs and after 12 months of using it seeing very little changes. Mark/Atlanta [/:)] [;] Actually, it seems like you are giving medical advice, saying its terrible. With any medication there is always a risk/benefit ratio. Since I haven't researched the drug, I don't know if its terrible advice. I do know that due to people's chemistry things work differently. Some people died when taking Vioxx for pain, I have a friend who swore by it and it helped her immensly. She was angry when the doctor took her off of it. People are adults, I see nothing wrong with putting information out there of whatever kind, letting people research it for themselves and making an informed decision. Alternative medicine can be just as dangerous if you don't know what you are doing. It is not just harmless herbs and spices that are being talked about. I am for alternative medcine with a circumspect approach. People have died from taking herbs too when they mixed it together with regular meds. I am a medical person actually, thats why all the talk about infection control, lol. Just my own opinion. Hugs, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 I'm not saying that the drug is terrible, although I think it is, I'm saying that to tell someone to take it is bad advise without being trained or having any background on the person. This was not informative. It would be more prudent to suggest doing research on this or any other treatment. The point of this group is to heal without drug therapy. Actually, it seems like you are giving medical advice, saying its terrible. With any medication there is always a risk/benefit ratio. --------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
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