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Re: Waardenburg Syndrome

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At 05:28 11/30/99 EST, you wrote:

>From: Theathdi@...

>

>In a message dated 11/30/1999 10:07:34 AM Pacific Standard Time,

>handley@... writes:

>

><< I have a question about Waardenburg's.

>

> Does the gene have to be passed from both parents or only one? >>

>

>One-its autosomal dominant. Do you think your child has it?

I have no idea. I just found out last week that my cousin (my father's

sister's child, age 6) has one blue and one brown eye. Apparently my

grandmother's aunt had a white forelock.

My children, my father and I all have partial epicanthal folds. And my

daughter is hoh.

This has certainly gotten me wondering...... I don't know if this is

enough reason to pursue genetic testing or not.

Barbara Handley

" I felt part of everything, part of animal and bird, tree and stone. If I

was part of everything, then I was also part of bridge and stream, of the

sharp rocks beneath the water and the tumbling, rushing waters. Even if I

fell into the waters, and even if I was swallowed up by them, I would still

be part of it all. In such a world, such a universe, nothing terrible could

happen to me. " --- Furlong

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In a message dated 11/30/1999 10:07:34 AM Pacific Standard Time,

handley@... writes:

<< I have a question about Waardenburg's.

Does the gene have to be passed from both parents or only one? >>

One-its autosomal dominant. Do you think your child has it?

Terry

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In a message dated 11/30/1999 5:50:32 PM Eastern Standard Time,

handley@... writes:

<< My children, my father and I all have partial epicanthal folds. And my

daughter is hoh. >>

My family has slight epicanthal folds too. The neurologist picked up that my

son had it and I said it was a family thing. We all have the same eyes on my

Dad's side of the family. Jake is profoundly deaf. All my Dad's siblings

and both parents have hearing loss. But they were not noticed until they were

older...my Dad was 18. Still not aided (pride). My Grandmother is

convinced it is all her fault that Jake is deaf....poor thing won't believe

she isn't.

When Jake has his last CI mapping he heard speech at 5dB.......I didn't hear

it!

Elaine

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A

> This has certainly gotten me wondering...... I don't know if this is

> enough reason to pursue genetic testing or not. >>

>Sounds like reason for genetic testing to me. what area are you in?

Eugene, Oregon

Barbara Handley

" I felt part of everything, part of animal and bird, tree and stone. If I

was part of everything, then I was also part of bridge and stream, of the

sharp rocks beneath the water and the tumbling, rushing waters. Even if I

fell into the waters, and even if I was swallowed up by them, I would still

be part of it all. In such a world, such a universe, nothing terrible could

happen to me. " --- Furlong

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In a message dated 11/30/1999 2:50:29 PM Pacific Standard Time,

handley@... writes:

<<

This has certainly gotten me wondering...... I don't know if this is

enough reason to pursue genetic testing or not. >>

Sounds like reason for genetic testing to me. what area are you in?

Terry

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Waardenburg Syndrome

>

>I have a question about Waardenburg's.

>

>Does the gene have to be passed from both parents or only one?

>

>Barbara Handley

The gene is from one parent.

Ede

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In a message dated 11/30/1999 9:34:42 PM Pacific Standard Time,

handley@... writes:

<< enough reason to pursue genetic testing or not. >>

>Sounds like reason for genetic testing to me. what area are you in?

Eugene, Oregon >>

Contact Boys Town in Nebraska. I think thats probably the closest

Terry

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